-
most recent test results
I had an appointment with my oncologist yesterday. Mri unchanged (looks more & more like the lymph node is in fact my ovary). CT scan clear.Recent EUA also good. Looks like I have eventually got my first official NED 8 months after treatment ended. So far, so good. Will be thinking of you, Mary, today. Liz
-
Laz' Update.
So I got the report of the MRI and the chest/liver CT. Unfortunatelly my rectal cancer did not responded to the radiation and chemo at all. So I need full resection. Lymph nodes look ok. I decided to go with a surgen at Cedar Sinai in Los Angeles. He was very confident, warm, patient with us and the hospital has very good…
-
Laz's Wedding.
Sep 16, 2013 - 3:18 pm Thank you so much for all your well wishes. I read every one of them with joy and told my bride about how nice this community is. The wedding day was beautiful. We had 10 guest and we did everything ourselves. The only sad thing was that my ex let my daughter stay for only two hours so she couldn't…
-
complications
please help me. I completed treatment Jan of this year. Had anoscopy in March ALL was well. Had another anoscopy/and port removed in June. I have been totally violated by this last exam, anal area is torn, excruciating pain with every BM, and pain sitting. The RAD ONC never told me to do anything after treatment to the…
-
How Do You Stay Positive and Hopeful?
We all know that the cancer journey is a roller coaster ride. You have highs and lows, successes and defeats. In the middle of all this is hard to stay positive and hopeful and we all have to build a new reality. I'm wondering if you have any "technique", ritual, activity or a mental process to get you and keep you in a…
-
Burning feet!
The bottom of my feet are sometimes burning soooo bad I can't sleep! They are getting worse and now my little toes feel somewhere between a tingle and electric current running through them. I've had it on the mild side for quite awhile but didn't think it would get worse. Anyone else out there have this?
-
Tomorrow
Well, tomorrow is the big day to meet with the doctor to discuss if there may be mets to the lungs. I had the scan 3 weeks ago, so I am thinking it must be ok, or they wouod have called. I don't want any more cancer. Twice was enough. I know I have asked for prayers before, but I am asking again. My meeting is at 10:30. I…
-
Update, scope and scan
So I had a PET/CT scan end of August, and a sigmoidoscopy four days ago showing no signs of cancer, so I guess I'm a NED'er now. Finished radiation 2nd week of june so 3 months out from treatment now. bill
-
Vaginal bleeding?
I am 6 months out from chemo and radiation. I am not hurting as bad now while having intercourse, but bleed during and after. Anyone know from experience if and when this will go away. I am asuming that it is because it is still healing up there. But I need to know if anyone else is or had this happen after radiation and…
-
Stress and cancer
I don't know if there any studies to corroborate my theory, that prolonged stress can cause cancer. I have seen time and time again in my female friends that they are diagnosed with cancer some number of years after enduring traumatic, long term stress. I know for me, I was diagnosed some years after a horrible, gut…
-
Suggestions for getting to the end of radiation
I have 13 more radiation treatments. The pain from going to the bathroom is so intense, I can't leave the house for fear of when it will hit. I have been trying hard to keep up my nutrition and not lose weight, but I need suggestions for what to eat to minimize the pain. I take stool softeners and then I have to take…
-
More on health insurance changes
I finally spoke to someone at the health insurance company today. I was informed that as of January 1, 2014, the policy that I could buy today for $650/month will be $900/month due to the new law. So, I know many here have employer paid insurance and Are not worried about it. I buy on the direct market as an individual.…
-
XELODA OR MITOMYCIN
JUST TALKED WITH DOC FRIDAY AND HE IS GIVIVING ME A CHOICE BETWEEN XELODA OR MITOMYCIN. XELODA HAS THE "HAND AND FEET" PROBLEM. MITOMYCIN HAS THE PORT AND PUMP ISSUE. IS THERE ANY OPINIONS OUT THERE ON THIS??
-
Join Me To Celebrate!...
...Martha's (mp327) 5 year anniversary tomorrow on the 9th of September. She needs no introduction here on this forum, in her family, in her community and neither will she in heaven (no rush), because she is a very special lady to all of us. HAPPY ANNIVERSARY MARTHA! Laz
-
Health Insurance...Obamacare
I am in the process of looking for new health insurance, as my COBRA is about to end. Looking at the new ObamaCare estimator, my costs are going to skyrocket for what they call the silver plan, which is inadequate for someone with cancer. Just for that plan, my cost is estimated at 880 per month for an individual and that…
-
Question about NED
I noticed the post below that some of you have an actual date that you celebrate being NED. I don't know if I ever was or even if I am. What is the date you consider yourself NED? The last day of treatment? I never had scans until recently(big mistake), and there are some issues, so I don't even know if I ever was NED. I…
-
Skin changes
The skin in the crease between my legs and groin has been darkening, but is suddenly raw, burning and peeling. I assume this is also a burn from radiation, but should I treat it with the same Radiaplex cream? I don't see the doctor for 3 days more so I wondered if anyone could answer?
-
Getting Married On The 15th!
2 and a half years ago I met a young woman in Santa Monica. I was wounded from a bad marriage and a bitter divorce and afraid of commitment. Over time we grew closer together, appreciated each other's values and qualities that are about the fundamentals: love, keep yourself attractive by always looking good, do admirable…
-
postoperative myalgia
Anyone else had this? I had never heard of it, but following my examination under anaesthetic on Monday, I have suffered a lot of pain in my neck, arms, upper abdominal and upper leg muscles. Could barely get out of the car yesterday. getting out of bed (multiple times) overnight was a struggle. I read it is something to…
-
Scan
I am heading to the hospital for another scan tomorrow. I am praying that all the suspicious nodules they saw in my lungs 2 months ago are gone, or at least have not multiplied and grown. I believe in the power of prayer, so if you have a minute tomorrow afternoon, I would appreciate a prayer. Still believing in miracles!!!
-
Upcoming Doctor Visits
I have three upcoming doctor visits. Next week I meet with my surgeon (after the scope I bleed for a few weeks), October is a CAT Scan, November is with the radiologist. It seems never ending. I am 2 years out of treatment and cancer crosses my mind everyday. Why do the cancer demons dance in my head at 3:00 am? I have…
-
I HAVE A DREAM...
...that one day we will have a pink heart shape pill that cures all cancers and our biggest complaint will be that it comes only in 6 different flavors. Please, join me in this dream and until then god bless us with nothing but happy hopeful days. Laz
-
Angela K (calendar???)
Hi, I was trying to locate the site for a calendar that I think Angela ???? posted a while back. I believe it was out of the UK and was in support of anal cancer with a pic of "bare behinds." I was telling someone about and just wanted to forward the info, but now can not find it! Any help? Thanks
-
Weakness in legs; knee giving out
Hi, all . . . . I was diagnosed stage 3B in January 2013; began treatment Feb. 4, and completed treatment March 28. I’ve spent the last 3-1/2 months becoming acquainted with the new me, as I have tried to come to grips with a variety of side effects. About 3 weeks ago, I began to notice a profound weakness in my legs. I…
-
Inspiration
I just want to say that the people who post on this Board inspire me very much! Thanks for sharing your stories of courage and journeys to wellness! We can do this!
-
a good visit
since my biopsies in June showing my most recent growth as "microinvasive" I have been having follow-ups every few weeks, my visit yesterday was a very good one, I had an anoscopy and barring any unforseen new symptoms I do not have to go back to my oncologist for 3 months, this was good news since I was expecting to go…
-
Anal Cancer Questions
Hello everyone, I'm new to this forum and I have a few question I'd to ask to you about anal cancer I've been experiencing change in my bowels habits for quite some time now and I've had blood in my stool on several occasions. (a test performed by a doctor also revealed that I had blood in my stool sometimes even when I…
-
Papillon Targeted Contact radiotherapy for Lower Rectal Cancer
http://contactpapillon.com/about/ Although for Rectal and not Anal cancer currently and somewhat limited in its application (typically T1) I wonder whether this might bode well for a brighter future for Anal Cancer sufferers also Rectal Cancer Application * Early stage – T1 tumour as stand alone treatment * Small tumour…
-
Exercise...
The oncologist at MDA told me that exercise was one of the best ways to combat cancer. Here I go walking everywhere!
-
Slight anal bleeding.
The way most of us found out that we have cancer is that we had blood in our stool. So did I. However 2-3 weeks into the radiation and Xeloda it stopped and so did my pain. I finished radiation about a month ago and I am on my second Folfox. I still don't see blood in my stool, but when I wipe the tissue paper is light…