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Anal Cancer

Skin care
I have my surgery scheduled and have been told there will be a bit of a scar and of course the area where the colostomy bag is going to go. Is there any special creams that anyone has used to keep the area soft and to minimize scarring? I'm still learning to navigate this site, so if you've written to me or answered some…
Gearing up for round 1
Gearing up for round 1. Sitting here not being able to go to sleep wish it because I was going to Disneyland on Monday instead of round 1. Port goes in Monday morning and then on to chemo/radiation. Wish I could wake up from this nightmare but guess that would require being asleep first :) . Wanted to thank you all for…
A question for women ....
Are you able to have comfortable, vaginal sex post treatment? Really? If so ... What helped you? do u have vaginal stenosis? Scars? How did u get beyond all this to get back sexual intimacy? My perineum is so friable that it bleeds when I wipe to hard ... And I use gentle wet ones. I need a frank, no **** discussion of…
Just Beginning
Hello everyone and thank you for any help you can give. I know I probably can, and have, found tips out there but I really wanted to ask people who have been through this. I am a single grandmother raising my two grandchildren ages 7 and 8. I have been diagnosed with anal cancer. I begin treatment one week from tommorrow.…
Residual mass after CT-RT for anal Cancer
Hello everyone, I am not a cancer survivor but my father is. I hope its ok for me join this network. My father completed standard CT (Mitomycin-C + 5FU two cycles) + RT (60Gy/30 fractions on IGRT) protocol for anal cancer (squamous cell carcinoma) for a 9 x 7 x 5 cm mass that had invaded his left posterior acetabular…
Sandysp
Hello sandysp...been thinking of u! How are u? Doing ok?
Off Topic......how cancer effects more than the patient
Hi friends, I have been out of town helping my dad (83yrs) with some things. He has had some urinary concerns so went to see a urologist. More tests are needed but upon initial exam it appears that a recurrance of cancer related to his prostate is causing his issues. 20 years ago he had his prostate removed for cancer and…
Mole
I found a mole on my left butt cheek. It looked slightly irregular plus I don't remember it being there. I went to get it taken out today just to make sure. Dermatologist said that it's probably nothing but because of the radition she wants to make sure. She said she was mildly worried and wanted to be sure. Any of you had…
Lost my belly button ;)
Don't worry everything is fine. All my wounds are hearing well, but my belly button had this discharge all the time. Today I went back to the plastic surgeon, he cleaned it out and sutured it up with a drain. I was bummed that they had to put me under, but the doc said I needed it. On the way home I threw up a couple…
Pain!
I haven't felt really good for the last few days and today has been the worse! My lower abdomen is crampy, my lower back is hurting like mad, I feel like I need to have a BM but cant. I used a fleet enema, senecot, hot coffee, walking and still hurt. I don't think this is actually constipation because I sometimes pass thin…
3 year checkup coming up....
Hi fellow cancer survivors and those in treatment: I am due for my 3 year checkup (Pet scan) and am getting anxious. You would think this gets easier, and it does, but a week before the check up I am just as nervous. It is this feeling of not knowing and thinking it will be ok but then... constantly questioning. I feel…
Laz's pathology report.
Great news! Everything they removed was Dead cancer. There was so much crap in there, it's scary. The fibrous tissue that used to be the cancer was the size of a walnut. Plus a big abscess and 17 lymph nodes. All negative. I have to go through 5 rounds of chemo and should be done. Let's pray that's all that is. All of you…
Radiation burn treatments
My wife has severe burns in her crotch, which spread to her anus today. She finished 30 days of radiation 5 days ago and chemo 10 days ago. She was hospitalized 3 days ago with dehydration, low white blood cells, red blood cells, potasium and a host of other problems. But her burns are horrible and getting worse and the…
Chemo/Surgery does it matter where?
I would like to have my chemo at a hospital close to my home. If I have the chemo at Sloan I will have to get on a dirty subway to get the treatment and get home. My surgeon is at Sloan and wants me to get it there. It's Friday, no dr. is returning my calls and I need to get this started next week. I'm confused. Does…
Bleeding again-sorry if I sound like a broken record
Hi Everyone! I haven't been on in a while because I started a part time job and by the time I get home I'm exhausted. Anyway, I'm 8 months post treatment. I have had 2 CT scans and I'm still cancer free! YAY! But I'm still bleeding. Sometimes my right side hurts. I bled before I new I had cancer but never this much. When I…
Health Insurance.....buyer beware
I hate to bring up a sore subject, but I am in the process of reading health insurance plans because I buy on the direct market and my plan will end. Not only have the costs gone way up, but I want to caution everyone to read the fine print and double check the networks, most of which have changed! Networks of providers…
No workouts for me!
I hired a trainer to help me develope more stamina.... She was awesome.. we used 2pound weights and kept things to the light side of a workout..... BUT!!!... I was only gone from her gym about half an hour when my feet started to burn, ankles, wrists, and hands hurt....bad. Still trying to get over it. NEVER felt like such…
Anal Cancer
Hi is anyone out there who is a anal cancer survivor? I just finished Chemo & Radiation in the begining of December. The Dr says my new PET scan shows no cancer so I am so grateful. I still get tired easily and have some "chemo brain" but all in all doing well.
scan results tomorrow
Having a little trouble falling to sleep tonight with my scan results pending until tomorrow. I know you all understand the waiting. Praying all is clear. If so,I will be two years out. While I was going through treatment I told myself that I would have a blue stripe put in my hair if I could make it. Perhaps it was the…
Health Insurance
Is anyone else having trouble dealing with the changes in health insurance? I am at my wit's end. The costs here have skyrocketed and the networks are limited. UGH!
Addressing Long-Term Side Effects After Treatment for Anal Cancer - Support Meeting
Hi everyone, I work for the HPV and Anal Cancer Foundation (www.analcancerfoundation.org). On October 9th we have got an incredibly exciting event happeneing in New York City. For the first time, a forum exclusively dedicated to anal cancer survivors will bring together a panel of experts to discuss long-term side effects…
Brachytherapy
Did anyone have brachytherapy in combination with their external radiation and chemotherapy? http://en.m.wikipedia.org/wiki/Brachytherapy
FYI-Long term side effects after treatment
Forgive me if this link doesn't work, I am not all that technical, I am hoping to attend and thought of all of you so I wanted to share it http://www.mskcc.org/events/support-meeting/addressing-long-term-side-effects-after-treatment-anal?dtstart=1381354200&dtend=1381359600
Happy Birthday Martha!
I hope you had a wonderful day! Turning 60 is quite a victory for cancer survivors!
mskcc october presentation
http://www.analcancerfoundation.org/2013/10/16/october-anal-cancer-forum-an-inspiring-and-educational-evening/?utm_source=Patients&utm_campaign=851288f62b-Thank_You_for_Attending_Anal_Cancer_Forum+10_16_20&utm_medium=email&utm_term=0_6f25b0debe-851288f62b-417506453
Two years after tx..
Side effects that are not accepted as side effects! Blood in urine with no infection. Feet burning.. Started not so bad during tx now keeps me awake some nights and ankles get weird electrical shocks in them.... Wrists and thumbs following suite... Unpredictable "crappy" days.... Chemo brain... Sigh!! flip side, NED.…
New Treatment for Advanced Anal Cancer
My oncologist, Dr. Howard Safran, was recently on a segment of WJAR NBC 10 discussing a new treatment for advanced anal cancer. At my office visit last week he was excited to share the success of treating advanced anal cancer patients with the HPV vaccine in addition to radiation and chemo. Although the treatment would not…
last post for while
this will be my last post for a while.... I got this from a google search NaturalNews) A widely used chemotherapy drug causes damage to the brain that can last for years after treatment is completed, according to a study conducted by researchers from the University of Rochester and published in the Journal of Biology. "It…
WHAT IS A REAL SECOND OPINION.
When I was diagnosed I got plenty of "second" opinions, but I believe these were not incompletely independent second opinions. I had my oncologist and my radiation oncologist of the same institution, which is good as long as it is just routine chemo. As soon as you have options of different chemo drugs or type of…
I'm starting to hate the letter "C"
Diagnosed 3-B in January 2013; completed treatment 28 March. Had great response & 2 good PET scans; doctors were very optimistic. But a biopsy done during a sigmoidoscopy last week revealed we didn't get it all. Spent the week-end doing research, and am frankly having a hard time wrapping my mind around the next step.…

Anal Cancer

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