Urinary leakage during treatment female

marykat

Hi Everyone,

I am going into my sixth week of treatment for S2 AC and am so excited to be near the end. Within the last week, I have had peeing pain and low flow. I was tested and do not have a UTI but was told I could take pyridium to help with these issues. The pyridium, besides making my urine a lovely shade of orange, does definately help with both issues. But I am also noticing I am leaking drops of urine, not constantly, but enough to be a problem with my 3-hour round-trip commute to the hospital and at nighttime. I am wearing men's boxer shorts and it's impossible to put a sticky pad in. At night, I am sleeping on a bed pad. I've tried diapers but they irritate my burned skin.

Does anyone have any explanation why this is happening? Is it the pyridium? When will I be able to go off the pyridium? Is there something to stop it? Any ideas on how I can manage it?

Thank you very much. This is my first time posting.

Marykat

Mebane

Marykat

Congratulations on getting close to the end of treatment .  You did not say if you were undergoing radiation and/or chemo.  I had trouble with this but post treatment.  It is possible that your pelvic floor muscles are weak and this could be the reason for leakage.

In last stages of treatment the very last thing I could have done was pt.  I don't know about meds but you might  go on HPV and Anal Cancer Foundation for more info they are a great resource.  

Keep us updated and stay strong 

Mebane

 

eihtak

marykat.....

Hi,

Just think you are almost done!!!! Congrats on seeing the end of the road as far as that part goes.

I do remember having a similar problem and there is no perfect way to manage this. I mostly wore regular underwear during the day with a pad and either none or something loose fitting at night and also slept on a bed pad. I did however have two UTI's during this time and was put on meds for that. I don't know much about pyridium but don't think that would be adding to your issue negatively.

As much as I'd have liked to avoid peeing altogether, I remember the importance of drinking LOTS of fluids, and that may help with increased flow and "slightly" les pain. I always had with me a squirt bottle of lukewarm water to spray on my self right as I peed and that relieved much of the immediate pain.

Know that once done with treatment, while some aspects of recovery take time....this issue will resolve fairly quick.

Wishing you well as you cross that finish line!

katheryn

marykat

Mebane and eihtak

Thank you so much for your replies. As this was my first post I was very excited to see your encouraging messages.

I am getting chemo and radiation; just had the last week of chemo off yesterday. My chemo was reduced by 20% because of the side effects I have been experiencing (including losing most of hair). I'm trying not to worry about the reduction. 

Membane, I will read up on pelvic floor exercises. I am trying to keep up with the drinking katheryn. I'm even drinking cranberry juice which is not my favorite

I'm glad that this leaking will resolve once recovery starts. I'm am so looking forward to that.

It sounds like you are both post treatment. How is it now for you?

All my best,

marykat

eihtak

marykat said:

Mebane and eihtak

Thank you so much for your replies. As this was my first post I was very excited to see your encouraging messages.

I am getting chemo and radiation; just had the last week of chemo off yesterday. My chemo was reduced by 20% because of the side effects I have been experiencing (including losing most of hair). I'm trying not to worry about the reduction. 

Membane, I will read up on pelvic floor exercises. I am trying to keep up with the drinking katheryn. I'm even drinking cranberry juice which is not my favorite

I'm glad that this leaking will resolve once recovery starts. I'm am so looking forward to that.

It sounds like you are both post treatment. How is it now for you?

All my best,

marykat

marykat....

Hi,

I am 5years post treatment for Stage 3b (so almost 4) anal cancer. The treatment was chemo and radiation and in my case required an ostomy due to size and placement of the tumor. I have adjusted to that just fine and came to realize it even has some benefits! Vaginal stenosis seems to be an issue for many post treatment and it is often recommended to use dilators on a routine basis to help from too much scarring causing related problems in that area. I was unaware of this initially and did not begin doing that until 1 year post treatment.  You may want to ask your radiation doctors opinion on such. While I still do havesome stenosis, my most recent pap/pelvic exam was (for lack of a better word) comfortable. 

Unfortunately 1 year after treatment I was diagnosed with breast cancer and required more treatment, and then last year had a recurrance of the anal cancer as mets to my lung so more chemo and surgery.  Before you become alarmed, keep in mind I was a later stage to begin with and already at higher risk for recurrance being stage 3b.

That all being said, I went back to college and will graduate upon completion of just 2 more classes, have and continue to chase grandkids around baseball fields and soccer parks, travel every chance I get and recently returned from a marvelous trip to Florida....(I live in Wisconsin).  So how is it for me, very little to complain about and living a full and active life post treatment for ALL!!!

I will keep you in my thoughts and prayers that your recovery goes great as well.

katheryn

TraceyUSA

Marykat

Welcome and sorry for the reason you are here.   I am 3 years post treatment and doing well.

I, too, has this happen at the end of treatment.  It resolved itself within a week or two after the treatment ended.

Best Wishes, 

Tracey