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Prognosis..?
Hello.. My name is Marisa and I live in London. I found this site by accident but it looks like the only REAL way to get any information regarding PPC; everything else being Ovarian based! I was diagnosed in September last year with 111C PPC. I had 4 chemo's (usual blend!), surgery, then 2 more chemo's finishing in April.…
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Modified citrus pectin
I have read with interest Laundry Queens post about MCP can anyone tell me if it has to be modified? One site I looked on said not to be fooled by over priced MCP and that CP was just as good....... Thanks X
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Please tell us your story
Hello to all of the brave women on this network. My mother was just diagnosed with PPC at stage 3c. She just had surgery (hysterectomy, and omenectomy) and will be seeing an oncologist. At first her symptoms were vague. In June 2010, She had a hx of a simple ovarian cyst seen by ultrasound,which was followed up after 4 mo.…
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Stomach pain and obstuction
Hi, Any of you suffer from severe ovstuctions and/or adhensions in your stomach? Mum have a lot of trouble with "caking" causing her doing surgery for the second time now to bypass the "stop" so she can eat by herself.. Anyone else live with "a bag on your tummy" because of the ppc? A huge problem to mum besides the…
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Colostomy?
Have any of of you on the board had colostomy and trouble with obstruction/adhensions due to the "caking" of the "seeds" from PPC? Has it gone worse (i.e more caking, more surgery) or being better with time? Anyone being off the colostomy later in life? /Sophie
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ascites or the CA125 test?
Nancy's surgeon at MSK told her she suspected peritoneal cancer after looking at the CT scan. The increase in the CA125 number from 35 to 51 gave her concern but it was the scan that I think convinced her. I suppose that means she saw ascites. But every thing I've read describe the symptoms of ascites as bloated belly from…
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The anxiety of being off chemo
Its been just over 4 months since I finished my 2nd round of chemo for my PPC. I have enjoyed my hair growing back and the general feeling of being normal again as I am free from the treatment. However, like most people I do feel a little anxious whilst being free from chemo - I mean, the cancer has the freedom now to rise…
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Chemo started AGAIN!
Well we are on the home stretch i hope. Mom thought she was getting just the taxol this past Friday. They did carbo/taxol. She than will get the taxol every friday for 9 weeks than he's gonna do imaging. I just know she's very tired, depressed, and nauseous. Tonite I made salmon and she ate that half a baked potato and two…
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my girlfriend
My girlfriend just was diagnosed with Peritoneal Cancer through a CT scan done at Memorial Sloan Kettering. Her CA 125 was 35 a month ago and 51 yesterday. I am hoping that this is considered stage 1 but really don't know if the stages correspond to the CA numbers. She's scheduled for surgery Wednesday. Being that her CA…
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2nd round
Hi again, just keeping you posted, my husband was very poorly after his first round of chemo, has lost a lot of weigh very down and generally unwell. He has his next chemo thurs 11th. I still feel in the dark about whats happening, the ongologist said that the lymph nodes secondary mets in peritoneal ( from cc in cecum )…
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About to stop chemo - how long do others go without treatment
Hi to all, Because Pet/CT scans showed nothing at all, my oncologist has said that I'm to have two more sessions of chemo - my last one next month - before stopping chemo and simply having my CA125 checked by him each 4 weeks after that. I believe that it is is common for those with peritoneal cancer not to stay off…
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Surgery!!!!!!
Mom went to Penn to find out catscan results. Chemo is doing it job and shrunk tumors quite a bit. Great! The only thing the same is her omentum which is where alot of the tumor was. I really would like to see the cancer. I know that sounds terrible but I love science and medicine. She has her debulking next friday. Dr.Chu…
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Long day tomorrow
Hey gang, Have a long day at Penn tomorrow. I'm scheduled for my second CT scan with contrast in the morning and then the usual doctor's visit and chemo hook up in the afternoon. This will be my first scan since they swiched out Avastin for Oxaliplatin. I will tuck in lunch with my mom and aunt in the middle. My onc thinks…
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Any recommendations for the newly diagnosed
My Mother, 69, was recently diagnosed with Peritoneal Cancer. We are in the very early stages of treatment as she has only had CT Scan and biopsy and has Omentum tumor and ascites removal surgery scheduled for Wed. July 27th and further treatment to be three rounds of chemo with a three week break in between. There has…
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Catscan?
Unsure of why they will be able to tell if my mom's cancer has shrunk through a catscan? She had a catscan and the gyno/oncologist said it looked fine. Now all of the sudden they can see it?
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Secondary Peritoneum Cancer and FOLFOXFIRI Treatment
Hi all: Got the results of my MRI today from the oncologist. The MRI was done after 4 treatments of oxaliplatin/irenotecan/leucovin/5FU pump for cancerous seeding from a surgically removed gallbladder and its tumour. The good news is that the number and size of the nodules have not increased since an MRI done in April 2011…
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no offense to anyone, i neeeeed clinical, non inspirational answer , bottom line real answer. pleeee
> I have been asking for a detailed description of what to expect, physically , on progression of a dying patient. I have always walked my life in gratitude and love.I am not ready to die....but I know that I am. With never having more than 4months remission.I am fearful of the unknown part. I am good with the dying part…
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appendix connection
Westie just mentioned the appendix connection with PPC in her post. I am wondering how many PPC survivors have a ruptured appendix in their past? My mom nearly died when she was 4 years old (61 years ago) due to a ruptured appendix. For some reason, the appendix was not removed at that time. Then at age 30(ish), she had…
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aussiemaddie
Hi, my husband had a cocktail of chemo thurs, it was all going fine until we were about to leave the chemo unit, when he had a reaction to the chemo which he couldn't breath, laryngeal spasm!!!!! Then he has been very sick and poorly since being home, he seems a little better today, a lot of belching though? On the good…
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QUESTION? Mom in pain!
Mom had her debulking last friday so it has only been a week. I am concerned yet I understand alot of the reasons she feels the way she does. They sent her home with dilaudid and i just don't get it. It is like dope. The pain is still there but u can't **** about it. Excuse my french. I have begun to sound like a trucker…
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SUCCESS!
I am very excited to say that during my mom's debulking on Friday, i was a nervous wreck but it was a success! They removed the omentum, hysterectomy, they only had to shave the liver, and spleen and other stuff. They only left a little bit in stomach that would have caused too much damage. She said 90% of tumors were…
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thankyou
Thankyou to the replies with regarding my husband secondary peritoneal cancer. He starts his chemo tomorrow. Please keep me posted on any informatin for us, which we hope will help us in this so upsetting time of our lives.
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Plueral effusion
My cancer was diagnosed after I suffered double plueral effusion. I underwent 3 chest drains within 2/3 weeks of each other before I started on my chemo regime. 4 weeks into my treatment I was back in hospital having my 4th chest drain. The irony of this was like a kick in the teeth as I was a road runner and used to run…
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For Cheryl - Our experience of different types of peritoneal cancer
Hi, rather than answer Cheryl's question about what type of peritoneal cancer I have under the topic of Hair loss and changes, I thought it appropriate to start a new thread on the topic, since the two are not really related. Others on this board have different experiences of peritoneal cancer. Mine was found, not by the…
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New to PPC - Eggs freezing
I am in Upstate New York in the Rochester area. Am a new patient of PPC. Primary Peritoneal Cancer. Will start Chemo soon. I have read about free eggs freezing for cancer patients by an Institute called SHER Institute for Reproductive Medicine. They are in the East Coast, West Coast and other locations. Does anyone know of…
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short term memory loss
I really didnt notice many cognitive changes during chemo. I have been off chemo 6 weeks now and I seem to have trouble finding the right word at times and forget the names of things. I usually eventually think of the word I want but it is annoying. Maybe I just notice it more because I am out and more social now. Has…
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Things that help us cope
It is hard living with a cancer diagnosis yet we all do it and all seem to manage to cope. What sort of things do people find have helped them "pick themselves up and carry on?" For me it is writing. I started writing in a journal a year before my diagnosis. I lost my mum to cancer and a very special relationship ended. I…
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Please tell us your story
Sorry I've been away just lately but I am so pleased with the interest this board has had. So I would like to start a new thread where we can tell our stories and that way we can get to know each other. Right, where to start............. November 2009 I was struggling to breathe and ended up in hospital hoping for some…
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Trifunctional Antibody Catumaxomab as treatment for PPC
Future Oncol. 2010 Sep;6(9):1387-94. The trifunctional antibody catumaxomab in treatment of malignant ascites and peritoneal carcinomatosis. Ströhlein MA, Heiss MM. SourceDepartment of Abdominal, Vascular & Transplant Surgery, Cologne-Merheim Medical Center, University of Witten/Herdecke, Ostmerheimer Strasse 200, Cologne,…
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fab news for mum today!
Welll after being told the chemo was failing, today we have been told that the ct scan shows no new growth!!!!! hooray , happy days. So the plan of action is for mum to have the doxil on thursday, as she was previously. However, the consultant did say that as her ascites had filled up after only a week, it could be a sign…