The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Ileocecal Valve Syndrome

TC40
TC40 CSN Member Posts: 6
I had appendix cancer in 2007. I had a debulking surgery that included a right hemicolectomy. Last year, I started having horrible constipation alternating with out of control diarrhea. after much testing, I found a gastro dr who told me what the problem was. When they removed part of my colon, they removed the ileocecal valve. This valve controls the bacteria between the large and small intestine. Without it, bacteria can build up, thus causing flu like symptoms and or constipation. It's too bad the dr who performed the surgery couldn't have warned me about this!!!!! The treatment is to go on cipro when diarrhea starts becoming a chronic problem.

Comments

  • wanttogetwellsoon
    wanttogetwellsoon CSN Member Posts: 147
    Ileocecal valve
    I'm really sorry to hear about the complications you are facing. It's very frustrating when you find that something could have been done earlier in order to either diagnose the problem or to do something about it. Healing hugs go your way.
  • wanttogetwellsoon
    wanttogetwellsoon CSN Member Posts: 147
    Ileocecal valve
    I'm really sorry to hear about the complications you are facing. It's very frustrating when you find that something could have been done earlier in order to either diagnose the problem or to do something about it. Healing hugs go your way.