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New to board, father in bad shape, looking for info
Hi everyone, My father was diagnosed with stage 3 Esophageal cancer just a couple of months ago it seems like. He was very quickly put into a 7 week treatment of both chemo and radiation. Week 5 of 7 came and the treatment was so brutal on him, he became "dangerously malnourished" and was rushed to the hospital where he…
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Plz Help .....
HI, My dad was diagnosed with esophageal cancer almost 2 months back. After pet scan the finding were tht cancer hasnt spread to any other organ or lymp nodes , but they found a mildy fdg avid rounded enhancing lesion on left adernal gland , but the doctor said its a unlikely site for cancer to spread. The Pet SCan opinion…
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Update on Rickie Prayers please
Dear EC friends, I haven't posted lately as we had been busy with going to radiation for 10 days. We finished that a week ago Wednesday, and Rickie was regaining the use of his right leg. He has been getting stronger and was actually able to eat a little better than usual. we were also running the feeding tube during the…
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I hate EC
If I could punch EC in the face I would. I would spit on it, stomp on it, curse at it, and set it on fire. I hate what it's done to my mom and all of the worries it's caused. I know people say, "it's life" Bull crap, how does a person who is so wonderful, so sweet, so taking care of everyone else be cursed with this awful…
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Nov 18 update for Jerry
Well, I dunno... As you may remember, folks, originally I was diagnosed Stage IV. Then, after stating I was getting a second opinion, the Oncologist scheduled a series of MRIs. Oh. Guess there AREN'T any mets to the brain and spine. "Yes, we examined your brain, and found there was nothing there..." --HA. So, met with the…
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Removed more stomach than esophagus during surgery
Hi friends, I write this sitting In the waiting rom at UC irvine. My mom had a successful surgery with dr. Nguyen. However he says they removed more stomach than esophagus. Has anyone encountered or heard of this before? Is she on the border or classified as having stomach cancer? I will ask her oncologist when we get back…
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Thank you all for your responses
My name is Peggy. I am the one with husband Tim stage 4 b, we decided no more chemo had 1 hospice visit so far. I got the pain patch for Tim because I figured with mets to liver the patch would be better than all those pills. 2nd opinion doc said about two months. We are taking one day at a time. Had family here from out…
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Exciting progress in Esophageal Cancer research
All, Each year Kim Priest has helped coordinate through ECAN - the declaration of April as Esophageal Cancer Awareness Month. She introduced me to ECAN and this is a group that has been fighting to bring awareness to EC. Today I received an email below about exciting news I wanted to share with everyone. Kim will probably…
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Husband just diagnosed with esophageal cancer but don't know stage yet
Hubby has been having trouble with solid food getting stuck in esophagus - went to doc and had barium xray, ct scan, biopsy, etc. So far diagnosis is adenocarcinoma, but the gastro doc did not know the stage. They are sending him to U of M hospital in Ann Arbor, MI but don't know when yet. Why wouldn't the doc know the…
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Does anyone have information on adrenal gland involvment?
Has anyone had drenal gland issues or mets? Can you tell me your story. What was the issue? How was it discovered? What are they doing about it? I would really appreciate any input.
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Thanksgiving..
To all of you who will be spending Thanksgiving this year without your loved one, may God grant you peace and may you feel your loved one near you in some way. Thinking of you all.
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Heeran ???
How are you and your mom doing? You sounded very down your last post. I'm just wondering how you are. Mom and I had a rough rough Monday (it's the chemo and rads day - always rough). She got mad at me; I got mad at her. I feel so frustrated. Struggling to do the best I can and make the right decisions. She's still fighting…
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PET results today
Good news today!!! Bill's pet scan of one week ago is free from any evidence of disease!! WooHoo. His blood work is great as well!. His anemia is essentially gone and all the other tests were great. Will see him again in 3 months. Have a CT scan in 6 months at which time the doctor is going to start decreasing the number…
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HOPPER 52 UPDATE
Hi Friends. Sorry I haven't been able to update but I'm in pretty bad shape. Just trying to hang on. My daughters have lent me so I'll post more in the wee hours of the morn. Thanks for the birthday wishes and all the concerns. Michael Daniels Brandon, FL
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Treatment Plan
I just called my dad's radiation and chemo oncologist because he was confused by the treatment plan. He showed up today for radiation and chemo and they wanted to hook up the infusion bag to stay for 4 days. He was not aware of that (or didn't hear that part) and asked to push it back a week because his mother was just…
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Road to Recovery
Good morning! Had to share htat my husbands j-tube was removed on thursday. We are beginning to believe we will survive this thing! He has eaten better since tube came out. he had to chose between getting new tube (old one malfunctioning) or getting it out. I don't think it was even a tough call. He was taking 1200…
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MRI - Really GOOD News
Just got an email from the oncologist about my MRIs: Jerry- call me tomorrow in Moses Lake. The scans of the spine and brain do NOT show any metastases. TT WAHOOO!!!!
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Neuroendocrine Carcinoma of Esophagus
Hi, I just joined this group in the hopes of finding out some statistics that will help me understand what my family is about to endure. On October 10 my 66 yr old mother in law had an endoscopy becuase of a gastro pain...they thought she had reflux. (She has a terrible pain in her chest that she felt starting in the…
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What happened to optimism and support from doctors???
My 59 yr old father was diagnosed last week with Stage IV EC with affected lymph nodes in his stomach. His first and 2nd opinion doctors both basically told him they can't do anything for him. Other than having difficulty swallowing, he feels fine. They are doing 6 weeks radiation and 11 weeks chemo but said after that,…
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I'm still around
I just wanted to drop a quick note and tell everyone I am still around. I started back at work Monday and it's been a little tough. This was the first full (Actually I even worked over some) week that I've put in since I was diagnosed back in February. I've been battling the physical effects of recover just being tired and…
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Worth disagreeing???
Mom's Onc doc Rx'd Xanax and it's working nicely (sometimes). I mentioned that since we are seeing him tomorrow before a chemo pump refill, I will ask him to call in a refill to mom's Rx mail order. Mom said she wants her GP to order the drug (because he knows where to fax the refill order). My opinion (I always have one)…
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Hi, I'm new!
My name is Bruce, I hope I'm posting in the right place.Since I was diagnosed with stage 4 Esophageal Cancer, which had metastasized to my liver and lymph glands. I'm 65 years old, my wife and I have two adult sons. Both are married and have children of their own. Both our sons live in Colorado, my wife and I live in the…
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Quick question
Hi all Just a quick question regarding my hubbie who is stg iv with mets to the lungs, he has been doing really well but is finding he has pain in his hips and knees, says he feels like an old man, sitting still is tough but too much movement is also causing pain, has anyone else had problems in these areas? he had a scan…
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OT: Funny subject lines ???
I see some posts w/o a subject line when the post is opened. I see subject lines on my posts, yet I do not put subject lines when replying to posts. Am I doing something goofy? Well... don't answer that - I always do goofy things... what am I doing wrong that puts subject lines in my reply posts?
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Tom went for his CT scan today
They will call us tomorrow or Friday. Please keep him in your prayers. jan
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Chemosmoker is GRATEFUL for Hospice and their new steroids and others are doing WONDERS!!!
Hey all. So much good and bad on the board this week. Thought I should just start a new thread and let everyone know I am doing really well after last weeks scare! I have ALL my energy back and Sherri is wonderful, she suggested these meds they got me and they do wonders. I am feeling like the old ERIC and I am living…
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Question regarding food, chemo, and radiation after MIE
My father had MIE surgery 4 weeks ago. Is it possible to ever enjoy eating again? He used to live to eat and now only eats to live. He finds dinner really hard to muster any apetite for and will sometimes wake in the middle of the night to the food coming back up. Nothing tastes the same as it did pre-surgery. He never…
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Any update on Jeff Thomas?
Since there have been several post looking for updates...I've been wondering about Jeff Thomas. Hope he is still recovering and feeling more himself these days.
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Anyone heard how Hopper (Michael) is going?
Just wondering if anyone has heard from Michael (Hopper) lately or speak with his daughters to see how he is travelling?
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Where is Callaloo
Hi Lu Are you o.k? I miss seeing you post. Please let us know how you are. Love Barb