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Question regarding food, chemo, and radiation after MIE
My father had MIE surgery 4 weeks ago. Is it possible to ever enjoy eating again? He used to live to eat and now only eats to live. He finds dinner really hard to muster any apetite for and will sometimes wake in the middle of the night to the food coming back up. Nothing tastes the same as it did pre-surgery. He never…
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Any update on Jeff Thomas?
Since there have been several post looking for updates...I've been wondering about Jeff Thomas. Hope he is still recovering and feeling more himself these days.
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Anyone heard how Hopper (Michael) is going?
Just wondering if anyone has heard from Michael (Hopper) lately or speak with his daughters to see how he is travelling?
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Where is Callaloo
Hi Lu Are you o.k? I miss seeing you post. Please let us know how you are. Love Barb
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Big day tomorrow for Keith and Chad
For those not following the "Surgery Date Change" thread, this is just a reminder that Keith and Chad are having surgery tomorrow. Best of luck to both of you! You, your families and your surgical team will be in my prayers! Mary
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Where is Callaloo
Hi Lu Are you o.k? I miss seeing you post. Please let us know how you are. Love Barb
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Fevers
Husband was about to start chemo cycle # 7, EC is stage IV mets to nodes and liver. He started having fevers on Monday. He had a chest xray yesterday that was all clear, WBC was 8.5 within normal range. He has no symptoms, that would cause an infection and has no pain. Still handling chemo really well. He was put on an…
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Insomnia Please Help
Hi guys my mom finished chemo and radiation 2 1/2 weeks ago. Next Friday we have a Pet scan. She is no longer on pain meds and for the last 4 days, she is having major insomnia. The doctor even prescribed her the extended release ambien and she is still only sleeping 3-4 hours a night. She said she keeps thinking about the…
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Anybody heard from Cheryl?
As far as I can tell, Cheryl's last post was on 11/13 and that's a bit unusual. If you're onboard Cheryl, I know you're very busy but just let us know how Ricky is doing. We are all a bunch of worry warts, you know. Hugs to you Rita
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Clinics in Germany
HI folks, My partner has completed his first round of chemo/radio and is Stage 4. we are interested in some of the treatment being offered in Germany, as it seems to combine traditional approaches with some more experimental modes. Of course this is not a cheap option and it seems that success is anecdotal...no published…
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feeding tube difficulty
Has anyone that had a feeding tube had difficulty getting the cap off of the j-tube? My husband's seems to have stuck. We have tried everything. Luckily a couple of days ago he opted to stop tube feedings to see how he would do. However, I can't get the frickin cap off to do a flush. Is this something that happens when…
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I am new . I need you guys
My hubby was dx with ec late in aug. Have gone 2 chemo cycles and feed tube 2 wls ago. The cancer was stage 4 local advanced. Last wk we went in for 3rd chemo and found that the surgeon that did j tube took a look in lower abdominal area and found fluid to abdominal wall and mets to liver . We were told not candidate for…
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Survivors of Risky Surgery - need support/feedback
My uncle is having surgery tomorrow morning and is T3N1MO - Squamous cell. The first few times that he was in the hospital with complications, they told him surgery was not an option because the placement of the tumor was in too tough a spot. They tried a different type of chemo to shrink it some but had no effect. He…
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through my tears
my dear friends, it is with a heavy heart that I tell you that Lee passed away early this morning. I can't stop crying, yet at the same time, I am relieved that he is not suffering any more. He had a really bad couple of days leading up to his death, and this time gave me the strength to say goodbye and give him permission…
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Any experience with CTCA?
We are in the process of getting a referral for a 2nd opinion and perhaps a more aggressive treatment plan. In the northeast, Sloan-Kettering has a 6 - 8 week wait for appointments and you can't be under treatment yet. We are now looking into the Cancer Treatment Center of America in Philadelphia. Anyone ever dealt with…
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Statistics
I saw mam132's mention of statistics and how he was "given" 12-18 months. I posted this a couple years ago, and, perhaps, it's a good time to post it again. The thing to remember about statistics is that while they may be grim, they have absolutely NO bearing on an individual. We are each either 100% alive or 100% dead.…
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For Rita and Chantal
Rita and Chantal, We've been out of the country for several weeks and I'm just catching up. I am SO sorry to hear about your loss of Greg and Lee. If there is anything I can do, please let me know. I am just in awe of you both! You are both still here, answering questions and offering encouragement to others. You are truly…
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caregiver ?
Is there a special board like ours, that is specifically for caregivers of oncology patients ? Just wondering and couldn't find it. So, if there is one, could someone post a link. Thanks, Cora
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CHEMOSMOKER IS DOING MUCH BETTER THAN ORIGINALLY THOUGHT NOW....OH OH....
Well after MANY wonderful and caring responses to my thought-to-be horrid condition change with Ascites and the fluid buildup and what I *thought* was the end being so near (maybe had a little to do with Lee's passing and conditions surrounding it), the "NEW" Florida Hospice staff AND doctor (yes the hospice doctors here…
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Anybody need a good laugh???
OMG I laughed harder than I've laughed in a long time. There's a discussion thread on the Caregivers board titled, "You might be a caregiver if..." It's a side splitter! Enjoy Rita
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Thinking you should stay local and not venture out to a larger Cancer Center?
Today I found the true difference between a smaller local and a large national Cancer Center. My oncologist wanted me to meet with a surgeon and radiation oncologist locally to discuss options in case my node is cancerous. I already knew he had presented my case at the last tumor board and the response was not great.…
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A bit of fun
Yesterday I had a surprise birthday party for my twin grandsons. Mom has been with me since Saturday so she was here for the party. I'm so pleased to say that she was up, moving around, going outside to the sun, talking albeit hoarse, and even eating! She ate more than I've seen her eat in a week! She ate very small…
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Yeah it's Sal,I really need your input, please!
I am dumb Struck, I just had a conversation with hubby, I'll Keep it short. " no I am between stage 1 and 3". No >>>> Dr. said: You are stage 3,III. Tumor 3, you have two nodes...Subcardianl and hillar.....Oh my God.... Husband was flabergasted. I thought we were on the same page ... the Diagnose stage 3. I am losing my…
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HER 2 gene
Can anyone explain the significance of the HER 2 gene? I jsut came across one of my husbands test reports that said his EC was positive for the HER 2 gene. Problem is I don't ever recall the doc's mentioning it. thought I was pretty well versed on the ins and outs of this cancer, but don't have a clue on this one.
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Lee has passsed.....Pray for Chantal
Friends, It is my understanding that Lee has passed. I wish Chantal all the love in the world and I wish and hope he is in a place FREE of pain and discomfort now. I love you Lee. I am here for you Chantal. Eric
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Ok can anyone help me
I have been looking on the old posts for over an hour now and can't find what I am looking for. Maybe someone else will remember seeing it or posted it. I know I read something about a treatment or therapy that began with an R. Something like Reiko or such. I think it was like a massage therapy or relaxation therapy, but…
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Please remember Ray (Jr.)
Again, I know I am not a spouse to one suffering from this disease (thank God!) but I am a sister who loves my brother very much and it pains me to see him this way. I know he does not belong to this site and I do feel that I am a misfit here but I know you are all going through this same cancer as he and I find some kind…
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Atlanta EC Support Group Lunch
Late November and December are such busy times for most of us that I decided to schedule a single EC Lunch for the holiday months. The December lunch for the Atlanta EC support group will be held on Saturday, December 3rd. We'll gather at La Madeleine's at Perimeter Center West at 11 AM. I know 11 is a bit early for lunch,…
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Window for Post-op chemo
I posted several weeks ago about getting post op chemo for Bill. He was diagnosed T3N1M0 in May, did chemo and radiation and had the IL August 29th at the University of Indiana. The post op path showed 5/22 positive nodes. At his 6-week check the oncologist didn't/wouldn't order post-op chemo citing studies that it didn't…
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Positive thinking
I have often said that cancer is more of a mental battle than physical but of late, I had forgotten that. When I had the bad PET, I let myself go to a bad place and remained there for quite a while. I had resigned myself to my fate which had yet to be determined medically yet I had already figured it out. I've had some…