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Atlanta EC Support Group Lunch
Late November and December are such busy times for most of us that I decided to schedule a single EC Lunch for the holiday months. The December lunch for the Atlanta EC support group will be held on Saturday, December 3rd. We'll gather at La Madeleine's at Perimeter Center West at 11 AM. I know 11 is a bit early for lunch,…
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Window for Post-op chemo
I posted several weeks ago about getting post op chemo for Bill. He was diagnosed T3N1M0 in May, did chemo and radiation and had the IL August 29th at the University of Indiana. The post op path showed 5/22 positive nodes. At his 6-week check the oncologist didn't/wouldn't order post-op chemo citing studies that it didn't…
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Positive thinking
I have often said that cancer is more of a mental battle than physical but of late, I had forgotten that. When I had the bad PET, I let myself go to a bad place and remained there for quite a while. I had resigned myself to my fate which had yet to be determined medically yet I had already figured it out. I've had some…
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REMEMBERING LEE
Lee's passing away is such a moment of sorrow for all of us. This post is just to remember lee and request everyone to state one characteristics of LEE by which they will always remember lee for life. To Start with me..... I remember Lee for his spirit for life and his energy. He through his post would spread that joy and…
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Stent, Surgery, Tube, or Radiation??
Hello all, My father in law has stage 4 Adenocarcinoma in the lower esophagus. He's completed only two sessions of chemo, which he was tolerating well. He was still eating solids, even sandwiches, until about a week ago. Then he suddenly had trouble even with liquids. Started to lose weight quickly. Oncologist put off next…
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Conflicting Dietary Suggestions...right after surgery
After Dad's surgery they told Dad he could have anything he wanted get up to 1500 to 2000 calories. Even suggested adding ice cream to the boost! Milk, whatever he wanted. I had read on here about people developing the intolerance to lactose, but I thought, that hasn't been dad, so maybe that didn't effect him. Because he…
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Possible Change In Plans
I have almost talked myself into returning to Pittsburgh and going ahead and having the questionable lymph node removed. Acting now and removing the node if it isn't cancerous has no downside. Waiting until January, scanning and finding out it is cancerous gives this beast two months to grow inside me and possibly spread.…
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My Mom's in ICU after surgery on November 1st
I am worried about my Mom. She had surgery to remove her esophagus on November 1st and is currently still in ICU. They try to take the breathing tube out, but she has so much mucus, she can not breath. She starts to panic and they sedate her to calm her. She now has pneumonia in both lungs. I was wondering if anyone who…
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"Free" Michelle this one is for you
Michelle, Tonight I'm going to watch the Zac Brown Band in concert and when they play "Free" I will think of you and Eric and of when you shared this song with Lee and Chantal too. Hope I can keep from crying. Take Care Lee Ann
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Lee's obituary
Chantal posted this on Facebook. I thought you'd all want to see it - http://tinyurl.com/7fuu3hq. Sorry, I think you'll have to cut and paste. Mary Caregiver to Chad Diagnosed at stage 4a in October 2009 at 43
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How does it hurt?
Hi everyone, It's been nearly 6 months since Tom's MIE (May 17th). He is scheduled for a CT scan in the end of this months. I am so hoping for good scan results because I have reasons to worry. Tom's recovery seemed very fast in the first few weeks after the surgery, but after about two months his condition stabilized at…
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Can't do the surgery
Hi All, My uncle was diagnosed with esophageal cancer in March and they seemed to have a good plan, with chemo then radiation and hopefully not the surgery, which is what we realized we should have done right away all along. He handled the chemo pretty well - strong guy, very together, pushed himself a little and still…
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Dad's Endoscopy Results
My Dad has a stomach blockage. He is now on a liquid diet for the next three weeks. (Poor guy) really wants to eat and not drink.) But we are happy that this could be the issue. However, we are not sure what caused the blockage in the first place because they couldn't get around the food, undigested pills and what not to…
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Kim's Dad has passed
For those of you who knew Kim Heburn Priest from the board, her Dad, Kenny, passed away this morning. All the family was able to see and visit him this weekend and he was alert and able to speak to them all. They thought they were going to have weeks with him but it was not to be and he was ready. Many of them including…
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Dad's Endoscopy scheduled for Wednesday
Dad hasn't been eating much, but keeping things down. They are going to check him out, he'll talk with the Doctor tomorrow and will have the endoscopy on Wednesday night. I am going to stay in Ft. Myers with the dogs, while Mom and Dad go up to Tampa. I hope I am making the right decision. Mom and Dad both feel that would…
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Willliam, if you are available, please post a eulogy to Lee today for me please?
William I need your words here for Lee.
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Vocal cord paralysis
I am so thankful to have found this board. It is a relief to know that there are others who have faced and overcome esophageal cancer, many of whom have faced far more difficulties than myself. It's also great to be able to get no-nonsense advice from people who have been there. My MIE was on 2/14/2011. After some…
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REMEMBERING LEE
Lee's passing away is such a moment of sorrow for all of us. This post is just to remember lee and request everyone to state one characteristics of LEE by which they will always remember lee for life. To Start with me..... I remember Lee for his spirit for life and his energy. He through his post would spread that joy and…
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What to expect 3-6 weeks after surgery - getting through it.
My 64 year old father just had robotic surgery to remove a tumor. He has been strong and positive since he was diagnosed with stage 3 cancer the weekend of father's day. He went through the radiation and chemo with minimal issues. (Not easy, scary moments, but we got through that.) The expected 6-8 hour surgery lasted 8…
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Waiting
Hi, I am a 40yro female. If you happen to be reading my post, English is not my first language so please bear with me. I feel ashamed to be here but I have to let it out somewhere. I chose this forum because of all the overwhelmingly loving and caring responses given by many people to each other, and the bravery stories…
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Hello
Hello. I have been reading this board for some time now, and I figured it was time to introduce myself and tell you my story. My name is Chad, and I live in Minneapolis. This past summer I began to have issues with eating, and could not keep any food down. After loosing about 40lbs, I decided it was time to go to the Dr.…
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Lee and Chantal....
Lee and Chantal, or anyone else with info... We are VERY VERY concerned. Have heard nothing since the last post by Chantal that it does not look good. We would really like to know what is going on and what to expect, not to sound ignorant considering the circumstances and all, but I do want to know what to expect from…
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Going to New Orleans Prayers for Mom
All, I am asking for prayers for my mom this week and next. As many of you know my dad passed away in June after a long battle with the beast. Although, he left mom with a nice pension she is unable to stay in the home they shared for almost 40 years. We fortunately have been able to sell it in this horrible market, and…
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Why NO endoscopic ultrasound
So here is what Dr. Tucker said: Jerry- endoscopic ultrasound is important for staging when the disease appears to be localized, not when you already know that it is metastatic and stage IV. Her-2 neu testing can be performed for gastric cancers to see if a drug called Herceptin may be able to be used to treat the disease.…
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Is LEE In London OKAY???? ALSO OFFLINE UNTIL NEXT WEDNESDAY!!!
Lee or Chantal, Where do we stand? How are you?? About to be on the road without internet for three days and want to know. HE can CALL ME ANYTIME ---but---- I won't be on here of face book for the next three days until like NEXT WEDNESDAY just so everyone knows here as well. WE are okay. Eric and Michelle FLORIDA BOUND!!!!
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Thinking about you, yes YOU & have a quesiton.
Hi, you are in my thoughts... I haven't been able to post, but please know that you are in my thoughts and my prayers. I am always apprensive when I open this thread...my heart is always in my throat. I have a question, I realize my husbands issues at this point are not as daunting as other situations. I just recieved a…
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Prayers and Thoughts to Jan101 in the loss of her husband
A dear friend and former coworker, Jan101, has lost her husband to a Stage IV battle with EC. Jan brought me to CSN when she heard of my husband's EC diagnosis. She has been a silent reader here during her husband's Stage IV journey. I know Jan followed many posting the Stage IV path here. Jan's husband was recently able…
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Roller Coaster ride this past week
Well, we have ridden the roller coaster this week and I knew there was a reason why I never cared for that ride. Rickie came home from the hospital on Thursday afternoon and we had an appointment with the radiation doctor Friday morning to discuss the options. Our son came along and that was a great help. The doctor again…
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Bailey1459
Sherri, I just wanted you to know that I am so thankful that you are here, posting honestly, factually and freely about your experience. It is so very helpful to those of us that are knocking on that door. Your posts are presented in the perfect way that I need to read them - I need and like to know what could be down the…
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I am dying
To all my special csn friends and especially my csn brother Eric; I've been basically told today that my treatment options have come down to pain relief and waiting, and that I've come to the end of my life. I intend to write more when I can about the medical details, but currently I can't really walk as my legs and…