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New to the Network
Hello - hope someone can comment on my case. I'm a 51 yr old Mom of two young kids and cann't believe what has happened..... Started feeling not right Jan. 09 and got an endoscopy which showed esophigitis. This followed a ct scan which showed a possible 2.7 cm mass. I was relieved at the time and went about life. March /…
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Anyone use Dr. Shah for surgery
Asking for another, anyone use Dr Prashant C. Shah ? he is now at Fox Chase in Philadelphia was at Brigham and Women's Hospital , Its a little confusing about his true surgical experienc
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Private Message Spam
Hello everyone, Thank you to those who've alerted us to the PM spamming from earlier today. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If you received a message from rita44556 prompting you for money,…
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Help Please!!
So after 2 weeks of back and forth with MD Anderson and the lady assuring me she was getting my dad an appointment she says today the insurance won't pay enough!! I'm beyond frustrated and don't know what to do next. Where else should we go??? This had been the only place we looked into and had no idea this would come up!…
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Stage IV GE Junction, metastasis
My husband is an otherwise healty 64 year old who was diagnosed with Stage III, N1, M0 in Feb 2013. He had the standard protocol chemo for this, then radiation. Surgery removed the tumor and several nodes in October at UAB. He did really well, then did the follow up chemo starting in Jan (I think--I'm a bit scattered right…
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Deferred Pain?
Hello, All. My dad had an esophagectomy about two months ago. He has been doing relatively well in terms of recovery from the surgery - but still has a cough and hoarseness - but he developed extreme lower back pain about 4 weeks ago. We've been to numerous doctors, physical therapy, physical medicine, etc. and all say…
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Anyone treated at MD Anderson in Houston?
Hi All, I am new to this site. I have found so much peace already from reading everyones posts. My Dad was diagnosed this past December with Stage 2 EC. He did cemo and radiation as well as sugery. He was cancer free for a few months. We just found out that the cancer has spread to his spine and to his hip. We are looking…
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Insurance won't pay for treatment
The insurance denided the chemo pills. We was ready to start the chemo and the day before we got the call insurance wouldn't cover it. Now they have to reschedule everything. They said they are going to put a port in his chest and half to go get chemo every 2 weeks. But now we have to wait again to hear from them to see…
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Post-Surgery
Hello, All! My dad had an esophagectomy almost four weeks ago and has done really well. He is currently having some difficulties with recovery, though, and I thought I'd check in with you all to see if you have any suggestions: *The coughing - which I know seems to be very common with many of you who have experienced this…
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Feeling hopeless
my husband has stage 3 esophagus cancer, it is in the lymp nodes and stomach and made it to his back. Doctor gave him 2 to 4 months. he started on Radiation 3 days ago. are the doctors close on how long you have to live?
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Domperidone
Is anyone else on domperidone, or have you been on it in the past? I failed using Reglan, it caused headaches, so I was just put on domperidone. 3rd day, not a noticable change, but no side effects . I take it for gastroparesis. I have no problem with nausea or vomiting. As a side, its now my 1st year anniversary of my…
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Lary Surgery woin't heal
Almost 8 Months from total larengetomy and thyroidectomy. Small hole on top of stoma tunnell just won't heal.Any tips or suggestions? The help would be appreciated. delforbesy@yahoo.co.uk. Thank you,Del.
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layngeal cancer
Hey everyone any info on rotatable larynectomy survival I'm only 51 thank u for any response
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What is the longest anyone can have chemo???
What is the longest anybody ever had chemo? My husbands doctor told us today he is going to take chemo permanently. How can you keep putting poison in your body? Should he do this? he don't know what to do?
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Surgery next week
Hello, everyone. My dad is scheduled for an esophagectomy next week. He's gone through five weeks of radiation (5 days a week) and chemotherapy (once a week for the 5 weeks) and has done really well with all of it. Still, we are terrified right now. I know that he has to do this. He's in great shape and has always been…
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My dad's esophageal cancer metastasized to lungs
My dad has been living with esophageal cancer since spring 2013. He recently was given news that the cancer has spread to his lungs. My stepmom is his primary caregiver and, to be quite honest, neither of them really want to divulge much on anything. I hear from my sister, who is the person my stepmom vents to the most,…
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Private Message Spam
Hello everyone, Some of you know that we have had previous problems with a particularly tenacious scammer named sarah, and unfortunately she has struck again. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If…
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Just starting on this unknown journey
A routine endoscopy told us the terrifying news, my husband has this dreaded cancer. It has only been a week and I feel as if I have lived a life time. We have all of the tests in place, except for the PET scan on Monday. We have met with an amazing team and are scheduled to start treatment after Thanksgiving. I am scared,…
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Dr. Miguel F Alvelo-Rivera
Hello - My father had an esophagectomy alomst two years ago at Karmanos in Detroit, Michigan. His surgery was conducted by Dr. Alvelo-Rivera. We recently received a letter from Karmanos stating that he is no longer there but they will not provide information as to why or where he went. Has anyone heard of him joining the…
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pls help me
Hi Mishti, can u pls share the address and contat details of the place in varanasi where they trat cancer. Also kiindly share your experience.. was your dad cured? regards
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Beware of scammer
I am sure most people on this forum are smart enough not to be scammed. But just incase please beware of rosemarysankoh@e-mail.ua. This person got my name of off this site and has really pissed me off. She claims to have EC and wants my help in dispersing funds, or should I say stealing my funds. Who in there right mind…
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my wife
my wife has stage 4 esophageal cancer she is only 42 She is very weak all the time can't seem to get her out of bed what do you think of her beating this very nasty thing.she has don two chemo treatments doctor said he was doing this to maintain the quality of life does this mean what I think it does
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EC Back in the Liver after 4 1/2 years
Hi All, I have been Cancer free for the past 4 1/2 years was doing extremely well and then as I was undergoing my 5 year CT scan, boom…Cancer is back in the liver. I have two lesions and I just underwent a needle biopsy to confirm the type etc. Has any one on this board dealt with a similar situation and/or know any better…
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Reglan
I was just wondering, Im 3 years post op and the doctor still has me on Reglan. How many others here are still or are on Reglan?
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update on recurrent her2 positive EC
Hello , here is an update 30/5/14 PET SCAN : PROGRESSION again 2 new cervical lymph nodes: something near heart pericardium , something larynx Whenever the oncologist stops the oxaliplatin and just keeps herceptin + LV5FU2 as maintenance there is progression. she doesn't want to give too much oxaliplatin at one time to…
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Update and questions
I haven't been on here in a long time. I converse with many of you on the FB site. If anyone out there has had success after recurrence to lymph nodes please share.
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help
Hi I was recently referred for urgent endoscopy following chest painand pain between my shoulder blades and feeling a lump after eating as though food was trying to come back up - the endoscope revealed irregularity where the esophagus meets the stomach aparently it should be round and smooth awmd mine was a bit jagged ane…
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Update on Tom T3N1M0, MIE surgery at MSKCC in May 2011
Hi everyone, I have not been here for nearly two years, but I am so HAPPY to see a lot of old names but SAD to see new ones. I thought I would stop by and post an update on my husband, Tom. The story starts like any other - weight loss and anemia late 2010 --> check up November 2010 --> diagnosis December 2010 Tom (37 yo…
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My dad has Esophogas Cancer
We found out my dad has Esphogas Cancer on April 1st. We just got the PET scan results today and he has Stage 2 cancer. The treatment he will be getting is radition 5 days a week and chemotherapy once a week for 5 weeks. Then they will give him 6 weeks off before they perform a surgery to remove a part of his esophogas…
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All CSN members are invited!
It’s finally happening! We are happy to announce that as early as tonight, a new Chat application is being launched on CSN. It is NOT Java-based and it DOES support members using mobile devices. To access chat, you must be a CSN member and logged on. Once logged on, all you have to do is click chat in your left navigation…