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treatment completed
Husband just finished 5 weeks of chemo and radiation. Have to wait 5 weeks till PET scan. What can we expect during this time?
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Doctors in Chicago
Just wondering if anyone has any experiences with the Dr's in Chicago? My dad saw Irvin Waxmann, Marco Patti and will be seeing Victoria Villaflor and Renuka Malik all out of Univ. of Chgo. Carolyn
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Duke University Cancer Center
I have been referred to Duke University Cancer Center for surgical treatment of my EG junction cancer. That will be after 6 weeks of chemo and 28 radiation treatments (I am receiving in my home town) that I will start next week. Has anyone on this board had experience with Duke? Would love to hear your comments! Thanks!…
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Spam Emails
We have been made aware of another round of spam emails being sent to users. While we try to have security in place to handle such emails, we cannot always catch them all. If you have received an email asking for money, please do not respond to the email or the private email address that was given by the sender. Please…
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Anyone have expericence with Carcinoma Menigitis from EC
Dad was recently dx with Carcinoma menigits, orginating from EC. VERY RARE we were told. Also told he as 4-8 weeks left. Looking to see if I can find anyone that has had it and what treatments were done.
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24hrs post Esophagectomy
So today dad (47 yo T2N1M0 Esophagus cancer patient) is 24 hours post removal of his esophagus. Essentially, they removed the esophagus and pulled his stomach up to replace it. We have been dreding and at the same time praying for this day since he was diagnosed in November. It has been scary, and tiring and overwheling…
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We think my mom has cancer again :-(
My mom was diagnosed in November 2011 with stage 2 esophageal cancer. She urwent 3 rounds of chemo, surgery, 5 weeks of radiationa and then 2 more rounds of chemo. She had clear margins after her surgery. She had clear PET/CT scans and endoscopies. She caught pnuemonia really bad last year and also got thrush and c-diff.…
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update on her2 positive EC treatment + question to others
hello, Although Claude's oncologist said that he was going to get herceptin only on his visit with her 20 feb , they decided at their staff meeting March 13 that they should add LV5FU2 again . so the treatment is now again Herceptin + LV5FU2 she feels there is not enough data on using herceptin alone to control EC. Could…
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Stage IV spread to liver
Morning all, My name is Lucy last week my dad was diagnosed with Oesophagus cancer and his key worker said it was early stage one and nothing to worry about. They done another scan im sure it’s called the Pep scan and found more cancerous cells in his body and it has spread to his liver so they won’t operate and say that…
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In Denial
Sadly, this is so true of my life in this last year. My husband was diagnosed with Espphageal Cancer stage 4... which has metastased a year ago this last December. Through this, we went through shock, dismay, anger, tears, and then positive energies. The denial came when we felt our love could beat this! It came when for 5…
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stage 4 surgery or not?
A family member has been diagnosed with Stage 4 esophageal cancer with mets to the spine and hip. He received chemo and radiation. The pet scan has shown that the spine lesion is gone. The hip lesion has shrunk considerably. The esophageal cancer has decreased greatly. The doctor is suggesting surgery. Has anyone with…
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New to site - Diagosed 8/11 - treatment nearly complete - SLEEP PROBEMS ABOUND
Hi, I'm Donald Boothby, aka Raleighdon. I am 61 years old, an endurance cyclist (average over 10,000 miles per year) and love old Raleigh bikes, hence the name. I was diagosed with EC (Stage IV) on August 11th. Survived two 5-day inpatient chemo stays 3 weeks apart commencing on 8/29 (very fast I'm told to be able to get…
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Yearly check up
Just returned from Mayo for my yearly ct scan and check up. NED. I am four years out from dx and IL surgery and follow up chemo (cisplatin + 5FU). I am grateful and humbled and continue to pray for all of us fighting this disease. I was dx stage2N1M0. Keep on fighting! Gerry
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planned CSN maintenance this morning
Planned maintenance will be done on CSN this morning between 5:00 and 8:00 Eastern Time. There may be one or more outages during this time. We apologize for the inconvenience. Greta
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Help please! scared.
I went into the hospital last month feeling so sick, and hurting in my chest , they did a ct scan on everything in my lower extremities with contrast and seen nothing, said it was gerd. I then went back in about a week later for terrible pain in my chest, they did a chest x ray , back x ray , ct scan of my neck and head ,…
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c24/7
Has anyone heard or used the c24/7 supplement for cancer? My husband had an esophogectymy in June2012 and is not getting better. He is still on a feeding tube and continuse to lose weight. He has lost almost 60 lbs which he didn't need to lose. I am desperate to help him! any wisdom you can impaert would be welcome.
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liquid anatacids
Out of curiosity, would mint flavor anatcids burn your chest if you have esophageal cancer?
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just starting out
Just diognosed 12/18/13. I am a 52 year old female, very athletic, thin and never realized I had acid reflux. I just had trouble swallowing, and some stomach cramps. Now my PET scan shows a tumor at the juntion to the stomach and LN near the stomach and pancreas. Still in shock , talk about a life changer. I have not…
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Dad Just Starting Out at 90
Right before Christmas my dad, 90 years young was diagnosed with esophageal cancer. It is the AC type, associated with his Barrett's esophagus. His pet scan showed no other effected areas, thank goodness. His tumor is small and low in his esophagus. His doctors discussed radiation and chemo at the same time but are just…
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feeding tube
Anyone have a J tube? Does the pain ever subside? Best way to deal with it. Thanks
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Post Escophagectomy Testing/Surveillance
Thank you all who post on this forum. Very valuable information is provided. This is my first posting. I was diagnosed with EC (Stage 3) in January 2013. I had my esophagectomy (MIE) in May 2013 with major complications. Because of the compliacations, I subsequently had to have a colonic interposition (a portion of my…
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HER2 positive esophageal cancer : latest update
hello, here is the latest info on my husband FEB 17 '14 PET SCAN : STABLE no new areas of uptake but the ones there have not diminished or disappeared FEB 20 '14 visit with oncologist : continue HERCEPTIN , two more infusions of folfox THEN herceptin ONLY to avoid neuropathy with Folfox He feels good and is very active .…
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Brent not getting better
Anyone have swelling and infection in the throat after chemo and radiation for larnyx cancer? His last treatment was November 19, started feeling better, was able to eat (still had PEG tube in) then to the ER because he couldn't breath. Had to have a trach put in several weeks ago. Still can't eat, throat feels swelled and…
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feeling of starvation and sick to my stomach
i am wondering if anyone has feelings of intense starvation till you eat, and then you become sick to your stomach. then you feel like your starving again and it cycles over and over again all day. it is so troubling that i asked my doctor, if i could get a feeding tube re-installed. i had half my stomach and my esophagus…
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REAL FOOD! - Meant to put on H&N board - but its good news - so I'll share here!
On Wednesday, I got the go-ahead to eat ANYTHING I WANT! This is after the total laryngectomy and rebuilt esophagus. I was on PEG tube feedings before going in the hospital, and on continuous feed since then. So, I went from continuous feed right to REAL FOOD! Food is so delicous. It has been a long time. I have to watch…
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Planned CSN Outage Tonight
Dear Users, CSN will be down for routine maintenance tonight from around midnight to 3:00 AM Eastern Time. We apologize for any inconvenience. The site will be up and running as quickly as possible. Thank you for all you do for CSN! CSN_Nick
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New user query: Post-op distended 'stomach' - why is it so low in my abdomen?
Hi - Glenn here. I'm new to the site...as a participant at least. Diagnosed 5 months ago with S3N1 EC...had nine weeks relatively trouble-free chemo, then just under three weeks ago had esophagectomy at Brisbane's (Australia) Mater Private. Had a few early hiccups (flirted with pneumonia, nasal gastric tube re-inserted)…
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Vocal Cord Cancer
March, 19,2009 My husband was diagnosed with Vocal Cord Cancer on November 7th 2008. He was about to start radiation that would have left him barely able to speak above a whisper and with no option but voice box removal were the cancer to return, when we found a new procedure using a KTP Laser at Massachusetts General. The…
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3 year check up
Just got the results of my 3 year check up. Everything looks good, cancer free so far.
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New Pet Scan results
Hey all it been a few months but here is my latest PET Scan Not sure what to make of it But i take it as good news I think. I have my Doctors appointment tomorrow any insight would be good.