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The Battle
Today I am 2 years cancer free. As I look back upon the horrors and hell I went through to get to this point, I found a letter I wrote to God when I was first diagnosed. It was a way I expressed myself at the time and thought I should share it. If you are newly diagnosed, I pray for you. If you are battling, I hope you…
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Starting the battle and wondering?
Hi, I'm Mark, 53 year old male with a newly diagnosed esophougous cancer and scared to say the least, came here looking for hope and advice on how to win this battle. Been having heartburn issues that got worse and loosing weight since I had a gall bladder removal in June 2013. Pain never really went away as eating became…
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reliv
This is all new to us. Husband just diagnosed. My head is swimming. Heard about juicing. Would like info on that. Keep hearing about a product called reliv. Anyone ever hear of that? I may flood the board with questions. Hope you dont mind.
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http://theninthcat.blogspot.de/
Just begun Dentritic Cell Therapy in Germany with a blog to follow progress This is a new therapy developed by Australian bio team. http://theninthcat.blogspot.de/
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Juicing & Sugar
I notice an increasing number of posters who are juicing, and doing well. I'm one myself. I'm interested in what people think about juicing sweet fruits. Personally I don't, I've been of the opinion that sugar, including from fresh fruit, is not one of our friends. Is this over the top? I do know that a lot of informed…
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anyone heard of TACE treatment
My husband diagnosed EC STAGE IV with liver mets 8/2012. So far had 10 radio sessions and 3 cycles of chemo, rescan result today show no change. Oncologist now wants to try TACE radio. Anyone heard or had this. We r devastated with rescan results as he is looking and feeling good, gained 5kilos in past week no pain or…
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update her2 positive esophageal cancer treatment
update on my husband. he had a third MRI JAN 11 . It confirmed a very small vascular lesion, not metastasis. so now he is seeing the cardiologist and getting an angiography scan this coming week . he is still on herceptin and folfox and will have another pet scan FEB 17 to evaluate treatment. He is feeling very good,…
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Mom's cancer fight
My mother is diagnose with stage 4 Esophageal cancer in February 2013. When she diagnosed she had 4-5 mets in her liver and multiple mets in her spleen. She didnt have any problem with the swallowing or appetite. And she didnt have any weight loss when she was diagnosed. after this time she had 6 cycle of Chemo with…
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CSN survey FAQ
Please excuse the long post. A number of members have posed questions on the discussion boards or emailed me for more information about the CSN study that has been underway since November 2013. I thought it might be helpful to post the most common questions and my answers. What is the CSN survey? What is its purpose? The…
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Ivor-Lewis Esophagectomy Recovery
Hello! i am a speech pathologist. I will soon be treating an individual who has recently had an Ivor-Lewis Esophagectomy. if anyone has some input regarding swallow recovery following this procedure, I will be very appreciative! Thank you, Kelley J.
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Help in St Louis Please
I'm usually on the Head and Neck Cancer discussion board - treatment ended in 2007. But, now I have SCC in my esphagus, right at the top. FIrst 11 dilations (closing off because of radiation scar tissue), nothing, then 12 & 13 something started to appear. I'm in St. Louis - has anyone been treated here? ANy recommendations…
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her2 positive esophageal cancer : just an update
Hello, My husband is feeling good and continuing his activities as normal. below is the latest: NOV 25 '13 double vision after sneeze. went to emergency , suspicion of stroke MRI normal/ NOV 27'13 echo doppler normal/ DEC 9 '13 MRI BRAIN small lesion seen /DEC 10 visit neurologist doesn't know if lesion is vascular or…
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stage IV--anyone out there?
My younger brother (only 38) was just diagnosed with stage IV esophageal cancer and he's scheduled to start chemo next week. I'm wondering if there's anyone out there who is currently being treated for this or has successfully been treated in the past. I know what the statistics say, but I would love to pass on any…
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Esophageal adenocarcinoma
My father recently diagnosed with esophagus adenocarcinoma. Since he had history with barretts esophagus he found the adenocarcinoma in hes annual endoscopy (he had no symptoms). The doctor took samples from the cancer and it showed that it has good differentiated, he also did a endoscopic ultrasound and showed that the…
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2nd time around
Well it's been a while since I posted although I do follow the board. This friday will be port placement day and Monday starts the first round of chemo for recurrecnt EC. Radiation seemed to knok it back a bit but not good enough. So on with Cisplatin and Taxotere. I'm really kinda spooked about this one, I just can't…
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Peace, Strength and Love to All
Wishing everyone a moment of peace, strength and love. I know how difficult it can be to find joy and happiness when we are struggling to win our battle against cancer. Last Christmas my husband was waiting for his surgery. He couldn't swallow due to the radiation. We were so frightened. But he is still with me and, for…
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double vision : can seeing double be a side effect of chemo has anybody got any information on this?
Hello, I was wondering if anyone had any information about chemo or radiotherapy causing bouts of double vision? My husband saw everything double Monday morning, went to emergency , had an mri of the brain but the mri was normal. His vision is back to normal but he's going to have more tests to rule out vascular problems.…
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Scans are in
Hi friends, After waiting a week and a half for results Jeff finally got his primary care doctor to give him a call back with the results. ALL CLEAR!! :) This is Jeff's two year scan, which from what we have been told is a pretty big milestone. Next scan will be in six months, we get to take a breather for awhile. We have…
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I HAVE A DREAM...
...that one day we will have a pink heart shape pill that cures all cancers and our biggest complaint will be that it comes only in 6 different flavors. Please, join me in this dream and until then god bless us with nothing but happy hopeful days. Laz
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My mom has passed-Thanks to new & old friend from this board
Dear old and new friends, my mother passed away a couple weeks ago from Squamous Cell EC. She courageously fought for 2 years and the cancer stayed stable for a while w/ continuous chemo, but things went downhill in July. We completed hospice at her house for 2 months. She was a fighter and the most important person in my…
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Positive Lymph Nodes discovered during Esophagectomy
Diagnosed with Esophageal Cancer in late june of 2013. Completed Chemo (Cisplatin and 5FU) and Radiation treatments with very little side effects. Pet Scan showed clear with complete response to treatment. Had a Ivor Lewis Esophagectomy in November and have recovered from that fairly well with minimum side effects…
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laryngitis hoarseness
I am a cancer survior by one year and one month. i had chemo and radiation at the sametime in june and july 2012. I has esophageaectomy on November 5, 2012. I think I have done wonderful. I went back to work full time January 2013. I have had my three month scopes and scans and all have been great. I have my first six…
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Some good news
Just wanted to update and share some good news. Clint had an endoscope last Monday at U of Michigan (after his 1st round of Oxapliation and Xeloda). There was no residual cancer found in his esophagus! There is Barrett's but overall looks good according to the pathologist. He will have at least two more rounds of chemo…
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Insomnia
Hello everyone, and thank you all for your replies on my topic of sleep issues, I'm now sleeping somewhat better, as we found out what may be the cause of the insomnia. My GP hadn't sent me for a full blood workup since 2011 and i asked for one. \it showed my B!2 levels were extremely low. I've been taking shots weekly and…
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Feeding tubes
Hello, My mother has a feeding tube since last week, so far no weight gain. What are the experiences regarding this topic from this group? Thanks!
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Wanted to share something possibly helpful--also posted on FB
Ed has been in our regional hospital since Weds with multiple issues that inluded severe coughing, an out-of-alignment mediport and most significantly an "erupting" j-tube that was leaking copious bile. The j-tube has been a lifesaver over the past year--helping him get back to 184 from 154 and he never regretted getting…
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Her2 positive
My dad who has recently been diagnosed as stage IV EC is able to take herceptin. He will start in the next day or two! We are hoping this will help him.
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hydration
I don't really know how to use this forum. I don't use the computer alot. My husband is sruggling with any food or drink by mouth, due to the cancer. This feeding tube stuff sounds really overwelming. I would be scared I would do something wrong. So many people seam so knowledgeable.
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Stent Questions/Advice Request
Hello, My father was diagnosed a couple of weeks ago with stage 4 esophageal cancer (adenocarcinoma) that is apparently inoperable. He had a stent put in on Monday morning (two days ago) and got back to his home yesterday. I just spoke with my mother and he is too weak to get out of bed, has only been able to drink water…
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Recovering after chemo and Radiation
Hello, I am new on this board. My dad was DX in July '13 with stage IIB EC. It is apparently not opperable due to its location near the vocal cords. He has just completed 2 rounds of chemo (Cisplatin and 5-FU) and about 5 weeks of radiation. He has been completely flat out in the hospital since about a week after his last…