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Post Escophagectomy Testing/Surveillance
Thank you all who post on this forum. Very valuable information is provided. This is my first posting. I was diagnosed with EC (Stage 3) in January 2013. I had my esophagectomy (MIE) in May 2013 with major complications. Because of the compliacations, I subsequently had to have a colonic interposition (a portion of my…
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HER2 positive esophageal cancer : latest update
hello, here is the latest info on my husband FEB 17 '14 PET SCAN : STABLE no new areas of uptake but the ones there have not diminished or disappeared FEB 20 '14 visit with oncologist : continue HERCEPTIN , two more infusions of folfox THEN herceptin ONLY to avoid neuropathy with Folfox He feels good and is very active .…
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Brent not getting better
Anyone have swelling and infection in the throat after chemo and radiation for larnyx cancer? His last treatment was November 19, started feeling better, was able to eat (still had PEG tube in) then to the ER because he couldn't breath. Had to have a trach put in several weeks ago. Still can't eat, throat feels swelled and…
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feeling of starvation and sick to my stomach
i am wondering if anyone has feelings of intense starvation till you eat, and then you become sick to your stomach. then you feel like your starving again and it cycles over and over again all day. it is so troubling that i asked my doctor, if i could get a feeding tube re-installed. i had half my stomach and my esophagus…
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REAL FOOD! - Meant to put on H&N board - but its good news - so I'll share here!
On Wednesday, I got the go-ahead to eat ANYTHING I WANT! This is after the total laryngectomy and rebuilt esophagus. I was on PEG tube feedings before going in the hospital, and on continuous feed since then. So, I went from continuous feed right to REAL FOOD! Food is so delicous. It has been a long time. I have to watch…
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Planned CSN Outage Tonight
Dear Users, CSN will be down for routine maintenance tonight from around midnight to 3:00 AM Eastern Time. We apologize for any inconvenience. The site will be up and running as quickly as possible. Thank you for all you do for CSN! CSN_Nick
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New user query: Post-op distended 'stomach' - why is it so low in my abdomen?
Hi - Glenn here. I'm new to the site...as a participant at least. Diagnosed 5 months ago with S3N1 EC...had nine weeks relatively trouble-free chemo, then just under three weeks ago had esophagectomy at Brisbane's (Australia) Mater Private. Had a few early hiccups (flirted with pneumonia, nasal gastric tube re-inserted)…
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Vocal Cord Cancer
March, 19,2009 My husband was diagnosed with Vocal Cord Cancer on November 7th 2008. He was about to start radiation that would have left him barely able to speak above a whisper and with no option but voice box removal were the cancer to return, when we found a new procedure using a KTP Laser at Massachusetts General. The…
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3 year check up
Just got the results of my 3 year check up. Everything looks good, cancer free so far.
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New Pet Scan results
Hey all it been a few months but here is my latest PET Scan Not sure what to make of it But i take it as good news I think. I have my Doctors appointment tomorrow any insight would be good.
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The Battle
Today I am 2 years cancer free. As I look back upon the horrors and hell I went through to get to this point, I found a letter I wrote to God when I was first diagnosed. It was a way I expressed myself at the time and thought I should share it. If you are newly diagnosed, I pray for you. If you are battling, I hope you…
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Starting the battle and wondering?
Hi, I'm Mark, 53 year old male with a newly diagnosed esophougous cancer and scared to say the least, came here looking for hope and advice on how to win this battle. Been having heartburn issues that got worse and loosing weight since I had a gall bladder removal in June 2013. Pain never really went away as eating became…
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reliv
This is all new to us. Husband just diagnosed. My head is swimming. Heard about juicing. Would like info on that. Keep hearing about a product called reliv. Anyone ever hear of that? I may flood the board with questions. Hope you dont mind.
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http://theninthcat.blogspot.de/
Just begun Dentritic Cell Therapy in Germany with a blog to follow progress This is a new therapy developed by Australian bio team. http://theninthcat.blogspot.de/
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Juicing & Sugar
I notice an increasing number of posters who are juicing, and doing well. I'm one myself. I'm interested in what people think about juicing sweet fruits. Personally I don't, I've been of the opinion that sugar, including from fresh fruit, is not one of our friends. Is this over the top? I do know that a lot of informed…
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anyone heard of TACE treatment
My husband diagnosed EC STAGE IV with liver mets 8/2012. So far had 10 radio sessions and 3 cycles of chemo, rescan result today show no change. Oncologist now wants to try TACE radio. Anyone heard or had this. We r devastated with rescan results as he is looking and feeling good, gained 5kilos in past week no pain or…
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update her2 positive esophageal cancer treatment
update on my husband. he had a third MRI JAN 11 . It confirmed a very small vascular lesion, not metastasis. so now he is seeing the cardiologist and getting an angiography scan this coming week . he is still on herceptin and folfox and will have another pet scan FEB 17 to evaluate treatment. He is feeling very good,…
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Mom's cancer fight
My mother is diagnose with stage 4 Esophageal cancer in February 2013. When she diagnosed she had 4-5 mets in her liver and multiple mets in her spleen. She didnt have any problem with the swallowing or appetite. And she didnt have any weight loss when she was diagnosed. after this time she had 6 cycle of Chemo with…
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CSN survey FAQ
Please excuse the long post. A number of members have posed questions on the discussion boards or emailed me for more information about the CSN study that has been underway since November 2013. I thought it might be helpful to post the most common questions and my answers. What is the CSN survey? What is its purpose? The…
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Ivor-Lewis Esophagectomy Recovery
Hello! i am a speech pathologist. I will soon be treating an individual who has recently had an Ivor-Lewis Esophagectomy. if anyone has some input regarding swallow recovery following this procedure, I will be very appreciative! Thank you, Kelley J.
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Help in St Louis Please
I'm usually on the Head and Neck Cancer discussion board - treatment ended in 2007. But, now I have SCC in my esphagus, right at the top. FIrst 11 dilations (closing off because of radiation scar tissue), nothing, then 12 & 13 something started to appear. I'm in St. Louis - has anyone been treated here? ANy recommendations…
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her2 positive esophageal cancer : just an update
Hello, My husband is feeling good and continuing his activities as normal. below is the latest: NOV 25 '13 double vision after sneeze. went to emergency , suspicion of stroke MRI normal/ NOV 27'13 echo doppler normal/ DEC 9 '13 MRI BRAIN small lesion seen /DEC 10 visit neurologist doesn't know if lesion is vascular or…
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stage IV--anyone out there?
My younger brother (only 38) was just diagnosed with stage IV esophageal cancer and he's scheduled to start chemo next week. I'm wondering if there's anyone out there who is currently being treated for this or has successfully been treated in the past. I know what the statistics say, but I would love to pass on any…
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Esophageal adenocarcinoma
My father recently diagnosed with esophagus adenocarcinoma. Since he had history with barretts esophagus he found the adenocarcinoma in hes annual endoscopy (he had no symptoms). The doctor took samples from the cancer and it showed that it has good differentiated, he also did a endoscopic ultrasound and showed that the…
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2nd time around
Well it's been a while since I posted although I do follow the board. This friday will be port placement day and Monday starts the first round of chemo for recurrecnt EC. Radiation seemed to knok it back a bit but not good enough. So on with Cisplatin and Taxotere. I'm really kinda spooked about this one, I just can't…
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Peace, Strength and Love to All
Wishing everyone a moment of peace, strength and love. I know how difficult it can be to find joy and happiness when we are struggling to win our battle against cancer. Last Christmas my husband was waiting for his surgery. He couldn't swallow due to the radiation. We were so frightened. But he is still with me and, for…
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double vision : can seeing double be a side effect of chemo has anybody got any information on this?
Hello, I was wondering if anyone had any information about chemo or radiotherapy causing bouts of double vision? My husband saw everything double Monday morning, went to emergency , had an mri of the brain but the mri was normal. His vision is back to normal but he's going to have more tests to rule out vascular problems.…
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Scans are in
Hi friends, After waiting a week and a half for results Jeff finally got his primary care doctor to give him a call back with the results. ALL CLEAR!! :) This is Jeff's two year scan, which from what we have been told is a pretty big milestone. Next scan will be in six months, we get to take a breather for awhile. We have…
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I HAVE A DREAM...
...that one day we will have a pink heart shape pill that cures all cancers and our biggest complaint will be that it comes only in 6 different flavors. Please, join me in this dream and until then god bless us with nothing but happy hopeful days. Laz
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My mom has passed-Thanks to new & old friend from this board
Dear old and new friends, my mother passed away a couple weeks ago from Squamous Cell EC. She courageously fought for 2 years and the cancer stayed stable for a while w/ continuous chemo, but things went downhill in July. We completed hospice at her house for 2 months. She was a fighter and the most important person in my…