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in surgery right now
My husband is undergoing Ivor lewis surgery right now. It took us a,while to decide to do this. I hope we are making the right choice. My husband,was so scared this morning. If anyone has positive stories please post. Also what should we expect in the next few weeks? Will he be able to talk fairly easily or will he be…
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EC with no symptoms?
Hello everyone. I was posting a couple of years ago on the head and neck board when I had HPV-related SCC tonsillar cancer. Two years now and no sign of recurrence. However, I was recently hospitalized with recurrent pneumonia and a lung abscess. On CT scan they found a bronchoesophageal fistula. I was informed that this…
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Diet
Im close to 5 years post op, and Im having problems with nausea and throwing up. When I do it seems to be alot of flem, is there a diet out there to reduce this? What diets are out there for 5 years post op?
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HELP! Adenocarcinoma of Esophagus, Stomach & Liver
Hi All! The 27-year-old boyfriend of a dear friend has been diagnosed with stage 4 adenocarcinoma. The tumor stretches from his esophagus into his stomach and has spread to his liver. All the info I have so far is what I posted above, and this screenshot that she emailed me. Anybody dealt with this? Any advice? Anything…
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erbitux-rare cancer
looking for any experiences with metastatic SCC. this cancer presents now with cannonball mets to the lungs. Chemo started last fall, cicplatin, 5FU and erbitux. 5 rounds....then a 5 week break for inability to tolerate. then two more rounds. chemo completed april 2015. dr said expect regrowth 6-12 mths. it jas been two…
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Surgery
Does anyone have any experience with the best surgeons at Memorial Sloan Kettering or Mt. Sinai, whether they perform minimally invasive or open?
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Pain after a Stent?
Has anyone had severe back pain after having the eophageal stent put in and if so, did it go away? Thanks.
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End of Chemo?
My friend will get chemo in July, his last treatment, but the cancer isn't gone. He has Stage 4 EC recurrance in his stomach, and 2 tumors on his back. The first time he had EC, he had 3/4 of his esophagus removed along with 1/4 of his stomach. The oncologist doesn't think that surgery is an option because of that, but is…
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Recovery / Pschological
Last year I was diagnosed with stage 3 borderline 4 EC. I am only 35 and haven't met too many to have this in my age range. I wnet through chemo / radiation and had surgery in September of last year. At first my recovery was going great, I was even back at work 2 months after surgery. Since then I've had 2 other surgeries…
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I'm Scared!
My husband was diagnosed March 20, 2015 with T3N1M0 esophageal cancer. He just completed 28 days radiation, and 6 rounds(1 per week) of chemo. He is 51 years old and his tumor is 10cm at the base of the esophagus, none in stomach. He did have 2 lymph nodes that were positive. He will be having the Esophagectomy surgery in…
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cannabinoids
Hello, My name is Phil and I had surgery on April 9, 2010 for esophagael cancer. Four years later I'm cancer free. I was lucky that I didn't need chemo or radiation treatment. I just wanted to post this link on the cannabinoid system and how it reacts to cancer. Cannabinoids can be found in marajuana and industrial hemp.…
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stent after ivor lewis surgery for stricture of anastmosis
Stent
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New Diagnosis--How advisable is a stent prior to the treatment?
Hi, My fiancé has diagnosed with late-stage esophageal cancer. We don't know much yet and the treatment hasn't started. Now, they tried to dilate his esophagus during the scoping but, as he was conscious, the pain was almost unbearable. Now they want to put a stent in, but we're worried it'll lead to constant pain. Isn't…
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Still Crazy After all These Years
I noticed the CSN EC forums didn't seem to indicate that EC can be survived and it is possible to actually do this and have a fairly normal life following the surgery. I also have noticed that even though ablation can now wipe out Barrett's Esophagus cells there really has been no guidelines published to say when an…
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Children of Parent with EC
Hello my family! I say that because I was on this board almost 24/7 when my mom was diagnosed. I don't recognize many names. I have a question that I think I know from deep in the recesses of my mind. My question is what is the protocol for kids of parents who were diagnosed with EC. Is it hereditary? Is it something that…
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Trouble with Nutrition
My father is having a terrible time getting any calories down during his chemo treatment. We are having to do nutritional shakes but he indicates he is too sick to his stomach to eat or drink anything. He has lost WAY too much weight. Any hints????
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dilatation for strictures
Can someone who has gone through dilatation for stricture after surgery share their experience how often it needs to be done.
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Esohogectamy and cancer returned
Hello. My dad had a complete esophogectamy 3 years ago. Had 100 lymph nodes tested after surgery and showed nothing. So did not receive any Chemo/radiation after surgery. He has been doing great for 3 years. December of 2014 he had a CT scan. Nothing showed. Lately he has not been feeling well so had a complete work up…
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new to site-seeking friends
My Husband has recently been diagnosed with stage T3, N2, M0 adenocarcinoma. We are still in shock! He is 36 years old and this is his second bout with cancer. He is a 4 year survivor of brain cancer (oligodendroglioma, stage 2). I would like to make some friends who have experience with esophageal cancer. We just had his…
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What really to expect
My dad, age 62, was diagnosed with stage 3 (T3, N1, N0) esophageal cancer March this year. it has taken me this long to even post without breaking down. This reality is shocking to us all and we are all doing our best to stay strong. He will go under his second round of chemo next week, concurrently running radiation for…
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Barrett's Esophagus
I wanted to share a positive story for anyone just being diagnosed or faced with the prospect of surgery. My husband was diagnosed with Barrett's with low grade dysplasia around 2002. By summer of 2005 it had progressed to high grade and surgery for removal of the esophagus was recommended. The surgery was performed in…
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Chemo and radiation at same time?
My husband is currently having irinotecan (third line treatment) for stage 4 oesophageal cancer, he has it once a fortnight. He has developed extensive lymphadenopathy in the right supra clavicular fossa which is causing a lot of arm and shoulder pain, we are hoping he might be able to have some targeted radiotherapy to…
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In shock
I have been on this site since March of last year, when my dad was diagnosed with esophageal cancer. I tell my family's story, which has just come to an end, not to scare anyone but to seek support as I deal with the loss of my dad tonight. My dad went through chemo and radiation and had Ivor Lewis surgery in July. He did…
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heart problems
My brother is having some problems with his heart now. He had a esophagectomy on March 5. He did have some complications but is doing better. Butnow his heart is in arrtyhmia beatng faster than it should so now is taking medication for that. He is also suppose to go back for chemo the end of May. He is thinking that…
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Surgery complication
My brother was diagnosed with E C stage 2 in Oct 2014 and went through chemo and radiation treatments. He had a transhiatis esophaectomy on March 5 2015. The surgery lasted 5 hrs and everything went well and was discharged 10 days later. He had a very large opening in his abdomen tbat needed a dressing change 2 times a day…
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nutrition
Does anyone have any good nutrional snacks or meals
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activac wound vac
My brothet Butch is at homr with an activac wound vac and the dressing changes have been very painful. Has anyone experienced this? Any suggestions? Thank you
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post op follow up
Husband had surgery recently. Dr told us follow ups will be done every 6 months . I am wondering what is the experience of other people. 6 months seems to be too long.
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cough/sleeping problems
My brother is having problems with a cough and not able to sleep after his surgery. Does anyone have any suggestions
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her 2 gene
Is