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Insomnia
Hello everyone, and thank you all for your replies on my topic of sleep issues, I'm now sleeping somewhat better, as we found out what may be the cause of the insomnia. My GP hadn't sent me for a full blood workup since 2011 and i asked for one. \it showed my B!2 levels were extremely low. I've been taking shots weekly and…
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Feeding tubes
Hello, My mother has a feeding tube since last week, so far no weight gain. What are the experiences regarding this topic from this group? Thanks!
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Wanted to share something possibly helpful--also posted on FB
Ed has been in our regional hospital since Weds with multiple issues that inluded severe coughing, an out-of-alignment mediport and most significantly an "erupting" j-tube that was leaking copious bile. The j-tube has been a lifesaver over the past year--helping him get back to 184 from 154 and he never regretted getting…
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Her2 positive
My dad who has recently been diagnosed as stage IV EC is able to take herceptin. He will start in the next day or two! We are hoping this will help him.
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hydration
I don't really know how to use this forum. I don't use the computer alot. My husband is sruggling with any food or drink by mouth, due to the cancer. This feeding tube stuff sounds really overwelming. I would be scared I would do something wrong. So many people seam so knowledgeable.
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Stent Questions/Advice Request
Hello, My father was diagnosed a couple of weeks ago with stage 4 esophageal cancer (adenocarcinoma) that is apparently inoperable. He had a stent put in on Monday morning (two days ago) and got back to his home yesterday. I just spoke with my mother and he is too weak to get out of bed, has only been able to drink water…
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Recovering after chemo and Radiation
Hello, I am new on this board. My dad was DX in July '13 with stage IIB EC. It is apparently not opperable due to its location near the vocal cords. He has just completed 2 rounds of chemo (Cisplatin and 5-FU) and about 5 weeks of radiation. He has been completely flat out in the hospital since about a week after his last…
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inconclusive Biopsy
I posted earlier this week about my dads recent diagnosis and we now have some progress. Tuesday dad was told he is T2N1M- still unknown. We are set for 5 weeks of chemo and radiation. He goes for the full CT and PET scan wednesday next week. However, we have been asking about the pathology reports we were told that the…
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Squamous Carcinoma In-Situ
Hi All, First of all thank you for sharing your stories. Some of my problems have bee pretty lame by comparison. Other than my problem trying to get off of the reglan & stomach issues I guess I have been doing pretty well. I think the mental thing has been the hardest for me to digest. I never thought I would get Cancer. I…
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Herceptin
There are posts on this site that recommends that we insist on having my father be tested for Herceptin. (He is stage 4 with lymph node involvement) My mom asked his doctor today and he said he already sent off for the test and we should know the results next week.
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KADCYLA ( TDM1 ) APPROVED BY EU FOR HER2 POSITIVE BREAST CANCER
KADCYLA APPROVED BY EU FOR HER2 POSITIVE BREAST CANCER START A CONVERSATION ▼ Started by daniele about 12 hours ago also considered for EC "Kadcyla has been approved for the treatment of adult patients with HER2-positive, unresectable locally advanced or metastatic breast cancer who previously received Herceptin(R)…
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Rainbow of Hope?
I'm brand new to the forum and just wanted to say Hi! I was diagnosed with stage IV esophageal cancer mets to the liver in July of this year. Thankfully I've never had any issues with swallowing so I think even though my cancer is inoperable I'm at much earlier stage than a lot of folks when they find out they have EC. I'm…
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Help with Stage 4 EC new to this
Hello, I have been able to read a little from these discussions in the attempt to find out more about esophageal cancer. My father, age 66, was diagnosed this week with stage 4 EC with lymph node involvement (no organ involvement). About 7 years ago he was diagnosed with Hodgkins lymphoma and beat it! My mom gave me this…
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Combining other drugs/supplements with Chemo?
I have a very close friend who was diagnosed 2 months ago. While yesterday's scan revealed a 50% shrinkage in the distant lymph nodes and liver, his prognosis is still poor...as in less than 12 months. I've been doing A LOT of reading and wondering if any of you or your loved ones combined chemo with: - Naltrexone -…
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Newbie
My wife of 43 yrs Linda was diagnosed with EC back in Febuary She is finished with Kemo and Raidation Surgery is in 2 weeks She is at Sloan in NYC I am tempoaraly unimployed and her care giver PLEASE someone give me help to get through this I know it is not easy to do I am doing my best Just need some advice here She is MY…
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Good News!!
Hello everyone, I haven't posted for a while, but got good news on my MRI..no tumor!! But i do have a question for anyone out there, i suffer from chronic insomnia since my surgery in April of 2010. Does anyone else suffer from this? Thanks for your time...Sharon
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Also new to this... what comes next
So, ive been reading many of your stories and I would like to start off by saying thank you. Thank you for being here and sharing, seeing that so many are doing okay give me some relief to this unknown situation. Heres my story, its similar to some of yours.... My dad, age 47, has been a long time sufferer of GERD, takes…
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More chemo if no existing disease is present?
Curious if any of you have had additional rounds of chemo just to prevent possible reoccurance or mets? My dad as some of you might remember really got knocked down by his chemo/radiation treatments as he is a non surgical canidate. But...on the great side there is no existing disease at the moment. His doc is recommending…
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Diaphragmatic hernia?
Hello, My latest ct-scan showed I have a diaphragmatic hernia (hole in diaphragm) that has allowed part of my bowel to pass into my chest cavity and in-turn not allowing my left lung to inflate properly. I’m three years post MIE and this has just started over the past year and is now in need of being repaired. I was…
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IMPORTANT! Eating information you WANT TO READ THIS!!!
Hello All, I am a 7 year EC survivor. I am 39 years old. I wis my doctors had given me all this information. This explains a lot and will help you understand your new digestive system. Godspeed, David Hillsboro, OH SPECIAL EATING PROBLEMS FOR SOME ESOPHAGEAL CANCER PATIENTS "Dumping Syndrome", an Esophagectomy Related…
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More good news
I think it's important to share the 'good news' stories. My Dad had his second endoscopy and CT scan last week and got the all clear today. I realise he is not out of the woods yet, but our confidence is growing. He has not had surgery due to his age, but a full-on combination of chemo and radiation which has done the job…
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Dissabiltiy Question???
I had to go on dissability do too over radiation, my espogaus is the size of apencil, and i clogged for air, and stress my lungs for air, but when resting for a few, can replenish my lungs. I can;t pick up anything, this triggers me to urinate, and go to the bathroom, if they stretch me, I was told per cancer doctor i…
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Over 2 1/2 years after surgery..mets to intestines, anyone else?
Well after 2 1/2 yrs of clean scans a bowel obstruction surgery showed the esophageal cancer had spread. Dr. Says it's a rare place to spread. Just wondering if anyone else has had this. Starting chemo on Monday. Hoping to slow this train wreck down.
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Reglan
I just passed the one year anniversary of my esophogectamy (Spelling?). My surgeon put me on reglan 10mg/day after the surgery. My regulary Doctor has strongly suggested that I get off of it because of some long term side effects. She also discovered that I have a serious vitamin deficiency & has put me on 2000 mg of…
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Mayo appointment
Clint and I are going to Mayo next week. We will be meeting with oncologist Dr. Grothey and surgeon Dr. Allen. Anyone know anything about these docs? We have an appointment with Dr. Urba at U of M this Thursday so at least we will have some idea where she wants to go with treatment. We are still waiting for appointments at…
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New developments 2
Hello everyone, i posted on Oct. 8th about new developments in my ongoing fight with the after effects of " esophagectemy" . I thought i was well on the road to being cancer free. three and a half yrs and was doing great. Now i'm having problems..the posting i had on about my neck was minor compared to this. I don't show…
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My Jim has passed
on Sept 10 early in the am hours my Jim lost his fight with cancer,,we did the hospice for the last two weeks and i can't even begin to say how horiffying the end was,,i watched him as he battled something called terminal restlessness,,i watched the light leave his beautiful blue eyes,,my house is so empty now,,i don't…
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Cellquest??? Check out this video and discuss....
Hi all, Stumbled on this video from youtube the other night- http://www.youtube.com/watch?v=xIpOmRhDKc0&feature=related About a stage four man who took a supplement called Cellquest. Apparenently it worked wonders for the gentelmen who took it (cancer free) and the report seems credible as it was a local news broadcast.…
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Really scared
Clint and I went in for his pre-surgical consult today with Dr. Lin at U of M. A couple of hours earlier he had a CT scan. All seemed well as we went over procedures and questions for the scheduled Oct. 9 surgery. Then Dr. Lin came in and said there were problems seen on the CT scan. 1) Clint has a small pulmonary…
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I lost my husband in 3months
My husband was diagonsed with Esphogas Cancer on May 09, 2013, the dr had told him a month ago it was just acid reflux and dont worry they would fix it with the scope procedure. But before May 09, 2013 he started vomiting and not able to swallow. He had troubles digesting food before, for about a 2 months but thought it…