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Lung Cancer

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Lung cancer survivor
Diagnosed with NSLC in 2019, staged 3d . After oral chemotherapy, Alecensa to shrink cancer spread, followed by radiotherapy , chemotherapy and immunotherapy I have been cancer free for 6 years now. Stay positive and hopeful.
Looking for folks taking repotrectinib for ROS1 mutation
My husband was initially diagnosed in 2016 with non small cell adenocarcinoma. He underwent a right lower lobectomy, chemo, and radiation. Fast forward nine years and it is back, this time it has metastasized. He has the ROS1 mutation, the only option for us is a TKI. He started taking repotrectinib April 2. Anyone else…
Looking for others with NSCL BRAF mutation
Hello, I was just wondering if anyone is on Braftovi and Mektovi and how is your experience with these medications. I have been on them for 1 month now and have had quite an improvement in my symptoms. I do have fatigue and some muscle pain in the evenings, but not enough to stop my day. Just wanted to connect with people…
Very cold air conditioning
Can very cold a/c be detrimental to a recovering lung cancer patient? Both my dad (at age 68) and my uncle (at age 71) died from lung cancer. My brother (age 61) now has been fighting it for 2y6m. The last 3 cat scans show cancer is in remission. His cancer numbers are up in the 70s. He has a hard time to breathe and an…
Chemo
Does Anyone know if you can use nicotine replacement products during chemo? Thanks.
diagnosed with congestive heart failure with reduced lung function and clogged arteries after treatm
I was diagnosed with stage 3 Squamish nsclc in my right lung may of 23. After an aggressive treatment plan chemo with Keytruda 1 7hr treatment once a month for 4 months then 30 days radiation with chemo and Keytruda once a week then immunotherapy that attacked my lungs had to be sterorided off three times i was…
Abdominal cramps after chemo
my husband gets chemo and immunotherapy every three weeks. The days after his treatment he has constipation and cramps. I give him preparation h with lidocaine for the external but can anyone please recommend something to help with the pain from the cramping. It occurs quite often
cbd topical cream
Has anyone tried cbd cream to help manage nerve pain, and did it work?
Nerve pain
I had segmendectomy 3 weeks ago. I started to have side pain on my right side that I had the surgery. The surgeon said this is due to intercostal nerve being affected. He said to give it another month and if it persists he would start me on gabapentin, which I don’t want to start. Anyone out there have a similar situation…
New here
I was diagnosed with stage 1b adenocarcinoma of the upper right lung. Tumor was 1.3 cm, poorly differentiated with visceral pleural invasion, no nodes involved. I had a segmendectomy 2 weeks ago. I was told by my surgeon I will need to have chemo and or immunotherapy, haven’t seen the oncologist yet. In my research for…
4.5 cm posterior left lower lung nodule
I am a 5 year tongue cancer survivor recently had a CT scan on abdomen and pelvis. 63 year old female findings on lower chest. The lower bases reveals centrilobular emphysema. Mild subsegmental atelectasis is seen in the lingula. Of 4.5 cm posterior left lower lung subpleural nodule is present. I don't know what all this…
newly diagnosed lung cancer
please. i need someone to talk to. i just found out that i have lung cancer. im scheduled for a pet scan on 11/7/24. to determine what phase. am i dying?
Adenocarcinoma removed but new Ground Glass Opacities Showing
Hi, I'm new here. I had a glass opacity turn into an adenocarcinoma. I had a lower left lobe lobectomy in Sept. of 2024. My new Cat scan this week shows a new glass opacity in my right lung. I worry that this new opacity will also turn into lung cancer. Should I insist on further treatment? I'm not comfortable just…
Nodule
just was told 1.3 cm. Right upper lobe nodule was “ nothing, probably just infection “ I had no sign of lung infection ( fever, elevated WBC, etc) I think Dr is being too cavalier about it- what do other people think?
Fighting Cancer Essentials
Hello! My mom was "diagnosed" with cancer this past week. Biopsy still to come. However, there is great confidence it is cancer as the PET scan showed hypermetabolic activity. My mom is going to fight! I am looking for a list of supplies every cancer patient should have. Food, items, essential oils, etc.; you name it! She…
Financial resources for help with my cancer
I have stage 4 adenocarcinoma where I have a lung tumor, brain tumor, and metastisized to the lymphatic system. This was my diagnosis 2 yrs ago. With me the drug Ketruda is what I have to maintain the rest of what life I have left. The insurance companys quit paying saying they only would pay for 2 years. My heart broke…
Looking for guidance on a 7.5cm lung mass found in my mom's lung.
Hello, yesterday my mom went to stat-care to treat a cough she has had since November. The Dr. ordered an X-ray, and the results showed her having a 7.5cm lung mass in her right lung with well-defined margins. The stat-care Dr. said it was probably cancer, given the size. A pulmonologist contacted her, and she has an…
Chemotherapy before or after surgery
Hi, I am new here. My father was recently diagnosed with NSCLC. It’s at least stage 2b. We have seen two oncologists in Northern Virginia. One suggested to have surgery now and do systemic treatment after. The other oncologist suggested chemo and immunotherapy before the surgery. Given my dad is 80 and qualify of life is…
Anxious
I have recently been diagnosed with stage 1 non small cell lung cancer and am heading into surgery in 12 days. I am so fearful and am experiencing a terrible sense of doom. Has anyone else had this type of surgery? I am also breast cancer survivor and have been a caregiver for my sister for the past 9 years during her…
Recently diagnosed. What treatment?
Nodule happened to show on an MRI doctor ordered. CT scan, PT scan, interventional radiology biopsy done = upper right lobe cancer. Not metastatic, 1.a - 1.b. I've seen oncologist, radiation oncologist, thoracic surgeon. Luckily I live near a big hospital complex which includes a cancer center. 'Bout time for me to decide…
SCLC, Irinotecan treatment, and Budesonide Advice Requested
You can see from my other post the general situation. I'm asking now if anyone has been on Budesonide and can discuss their experience. I would appreciate it very much. Thanks. Jeremiah
Irinotecan and diarrhea - Any advice?
I previously had irinotecan treatment but it caused a lot of damage with diarrhea and then colitis. We took 2 moths to recover. Lower dose irinotecan was thought to be still benenificial and we had a second opinion on that from Mass General Brigham. I'm on lomotil but I'm still having regular diarrhea. Any advice on what…
What can I expect as family caretaker
My dad is going to begin 8 weeks chemo and radiation for stage 3 non small cell lung cancer. He is 85 and also has congestive heart failure. He has been taking care of his Alzheimer's wife by himself in their own home. They are both somewhat incontinent. Until now, he's resisted all forms of help. We get along great, and…
Is this the end for my mom
My mom has been fighting metastic lung cancer for 2 years . She did chemo and immunotherapy for 1 year . Stopped chemo kept up Ketruda . Went along 6 months pretty good- tumors starting growing again suggested chemo. One treatment and things went down hill awful. She can’t even brush her own teeth. She’s so weak 98 lbs.…
survivors of Terminal Stage 4 lung cancer
Dear Members, Please let me know if there are ANY survivors out there with Stage 4 Lung Cancer, (Terminal)taking radiation. God Bless All Stardust
Kras and Her2
Hi More biopsy results are coming in for my mom and I am still waiting for the Dr to call. Does anyone else have Her2 positive and Kras positive adenocarcinoma?
Scared-Need Help Stage 1 Lung Cancer diagnosis possible
Recently had a low dose CT screening. 8MM nodule in right upper lobe with Mat Lymphs enlarged, largest 7mm. Going for a C Pet Scan next week. I am scared to death of the disease. I am wondering if I am diagnosed and surgery is an option. What is can I expect? What was the surgery like, the recovery, the setbacks, the…
Lost for words
Hello - I just learned my 83 mother has cancer in her lungs and lymph nodes. She has a PET scan on 16 Dec to see if it has spread in other places. We are praying it hasn’t. On top of this news she also had a heart attack in Feb 2024 and has been struggling to recover. She is weak and with this treatment I know she will…
Bronchoalveolar carcinoma - mucinous adenocarcinoma with BAC
Two weeks ago my wife was diagnosed with mucinous adenocarcinoma with BAC features. As the biopsy surgery wounds failed to heal and air kept leaking surgery was done Friday after MRI of the brain, CT scans of all other, and the bone scan were negative. The BAC appeared to be confined to the left lower lobe. Prior to the…
New Member
Hello! I am a New Member and a spouse to my husband who was recently diagnosed with lung cancer. I am here to connect with other caregivers and to hear ways to make his life better as we move forward in this journey. Thanks for taking the time to read this.

Lung Cancer

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