Lung adenocarcinoma with lung metastasis stage 4

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OneDayAtATimexxx111
OneDayAtATimexxx111 CSN Member Posts: 20 Member
in Lung Cancer #1

Hello all haven’t posted a new post since March. I was diagnosed with stage 3a lung adenocarcinoma in January 2025, I had chemo/ radiation in March then had my follow up in May. My lung tumor shrank considerably and my lymph nodes were clear, but there were several growths in my liver. I just had an MRI on July 23, and have 2- 3 cm tumors, one on each side of my liver, which puts me at stage 4 b or 4 a not sure till I see my oncologist next week. I have the egfr gene mutation, so tagrisso is an option, but I don’t know what else they may want to do. I just finished chemo radiation at the end of April, and it’s only July, so I’m extremely anxious as I still haven’t completely got over my prior treatment?. Any thoughts, information , or good wishes would be appreciated, thank you , one day at a time, Dave

Comments

  • BattleStar
    BattleStar CSN Member Posts: 4 Member
    #2

    Take everything one day at a time. I have stage four non small cell metastatic carcinoma. your cancer sounds similar to mine. metastatic likes to spread. it did so in me and by the time I was diagnosed with cancer it was stage 4. hopefully treatment will beat the cancer back. well wishes and God bless

  • eDivebuddy
    eDivebuddy CSN Member Posts: 149 Member
    #3

    Sorry it’s turned out this way, Dave. My carboplatin and paclitaxel worked wonders on my l liver met. Just more proof we all respond differently.

    One thing I’ve been wondering, why haven’t they already started you on Tagrisso?
    It’s now standard of care for both EGFR-mutated NSCLC that responds to chemoradiation and Stage 4 EGFR positive NSCLC.

    Unless it’s a rare EGFR mutation not sensitive to Tagrisso, I don’t understand the delay.

    Just my opinion, but if the guidelines say:

    Start Tagrisso within 6 weeks after finishing chemoradiation, or

    Start Tagrisso for EGFR-mutated Stage 4,
    Then you should have already been on it months ago.

    I while liver metastases are common in EGFR-positive lung cancer, so are benign liver lesions. So until you hear it directly from your oncologist, it’s okay to hold onto some hope that these spots may not be what they seem.

    But if they are cancer Tagrisso is very effective, including in the liver. Many people have had long-lasting responses and good quality of life on it. Hopefully your team gets you started on it or some other effective treatment option soon.

  • OneDayAtATimexxx111
    OneDayAtATimexxx111 CSN Member Posts: 20 Member
    #4

    hi DB nice to hear from you, and it sounds like you are doing great! When I was diagnosed Jan 27 of this year there was nothing in my liver it was clear, no brain of bone Mets either . Had treatment from March tenth through April 25, still no liver Mets but I hadn’t had my after treatment scan yet. This is Maine, remember the speed of a town like Mayberry ( Andy Griffith), and that’s the speed of health care up here lol. Had after scan (May 25th) . Tumor in lung was a third of the size now about an inch and my three nodes shrank, and seemed to be still shrinking! Unfortunately they found three masses in my liver, middle one cyst, and one on each side .Met with oncologist on July 30th, and meeting with radiation oncologist August 5th. We’re going to do some SBRT as it works really well with 8 masses or less ,smaller than 3 cm. My oncologist had already gotten the ball rolling on the Tagrisso so I will be starting pretty soon with that I’m not sure if in conjunction with the radiation or after, I’ll find out very soon!!! She was basing her decision on the fact that I had no liver Mets at the time and the cancer had stopped growing in lung and lymph nodes,I was still 3a until July 23 rd officially, so i understand her thought process. I have another mutation can’t remember but it’s in one of my earliest posts? People with liver metastases in conjunction with lung adenocarcinoma Have the worst numbers vs having bone or brain Mets. tagrisso works way better if I had brain or bone Mets. I think I read , the average is about 10 to 18 months before the Tagrisso stops working with the liver Mets vs up to 3 years plus with the metastasis elsewhere. I told my oncologist I need to do some flying and bus riding to visit relatives and friends, and she said probably the beginning of September as I have to do the SBRT, and I have to be monitored while starting tagrisso for 3 weeks or so to see if there are any issues. I am sorry I didn’t keep messaging you, as you are extremely knowledgeable and positive towards helping everyone in here from what I see. I do have one person on here that I have been communicating with on a regular basis, which helps a lot, as I am going through this solo for the most part. I will know all when I talk to my radiation oncologist in 5 days! Thanks for the thoughts and help DB, sincerely Dave

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