Irinotecan and diarrhea - Any advice?

Jeremiah16
Jeremiah16 Member Posts: 3 Member
in Lung Cancer #1

I previously had irinotecan treatment but it caused a lot of damage with diarrhea and then colitis. We took 2 moths to recover. Lower dose irinotecan was thought to be still benenificial and we had a second opinion on that from Mass General Brigham. I'm on lomotil but I'm still having regular diarrhea. Any advice on what to try? I really need help. Thanks.

Comments

  • Arx001
    Arx001 Member Posts: 30 Member
    #2

    Hello, my suggestion would be to try prebiotics (not probiotics) as it would harmonize and calm the intestines. I was given prebiotics during the RT to reduce the number of my visits though I rarely had diarrhea. But I guess you would know about it.

  • Jeremiah16
    Jeremiah16 Member Posts: 3 Member
    #3

    Thanks, I'm putting together foods to change by diet already. Hoping for progress.

  • eDivebuddy
    eDivebuddy Member Posts: 57 Member
    #4

    I don't have any experience with irinotecan but have way too much experience with colitis and diarrhea. Have they not recommended pre and pro biotics? That generally keeps things quiet but still like a teeter totter. Then regular immodium. Talk to your oncologist first but works mostly wonderfully for me. They may have a recommendation on which strains try.

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