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Some tips from CSN
Welcome to the CSN! Below are some tips to help you get started following and posting on the boards. You can follow your preferred discussion board to get notifications of new topics and comments. To follow a board, navigate to your preferred board and then select the bell at the top, followed by your notification…
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R U just diagnosed and overwhelmed? Some info for you
Diagnosed about 5 months ago and I couldn't believe that I had to make the final decision about what option (surgery / radiation ) to choose. So I am going to list some info hopefully to make it easier to understand what questions you have to ask. My journey. High PSA 8.5, up from 4.0. Urologist orders MRI. MRI comes back…
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Chemo & Prostate Cancer-Any experience?
my cancer has spilled outside of my prostate to my lymph nodes. I have gone to chemotherapy and and have gone from one chemo to taxotere. It appears that the cancer is growing. Does any one have anyone have any experience with chemo and prostate cancer?
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What do you wish you'd asked? + ED after more than 3 years
Hi all, I'm 56. Was diagnosed last year Gleason 3+3 and chose active surveillance. That has progressed this year to Gleason 3+4 in 2 cores with some cribriform patterning. Decipher is 46 with intermediate risk. I have to choose a treatment and hate all options. I find that doctors don't give you the whole picture and I am…
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1st post Prostatectomy PSA after sixty days
I just received my first PSA 2 months after my prostatectomy. It was .04. Is it normal so soon after the prostatectomy for it to be at that level and will it continue to fall more. What were others 1st PSA and subsequent one. Thanks Wheel
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Interested in speaking to people have had the prostectomy and post op Hormone therapy and radiation
I'm 54 years old. Diagnosed at 52. Had the prostectomy in July 2022. Only to find out ther was still cancer present. 0.22 PSA, followed up treatment with hormone therapy and radiation. Radiation ended in January 2023. My last hormone injection was February of 2024. Looking to connect with people have had the same path.
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Radiation+Lupron: wicked one-two punch
PCa diagnosed 9/2015, LRRP performed 11/2015 at MD Anderson in Houston (the mothership). 50+ lymph nodes removed, with three having cancerous cells. Post-op PSA <.1. Incontinent for about 1 year but then bone dry. Sep 2019 PSA increased to .2. In Feb 2020 doctor referred me to Radiology, where I underwent one year of…
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Pain when urinating
I am 10 months post cyberknife treatment and continue to get what I think are side effects of the radiation treatment. The latest one is pain while urinating. It seems to be worse earlier in the day. I have restarted taking Flo max, which seems to help and Tylenol appears to take the edge off it. Does anyone else have this…
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Incontinence question
Four weeks post RARP today. I know there is no identical timeline, but just wondering at what point those of you who have been through this started noticing significant improvement in incontinence. I'm to the point now I'm good sitting down, even if I cough or sneeze most of the time. However when I stand it's pretty non…
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Appointment wait time
My name is Retha and i have a question. My husband recently had an MRI and was told he had 2 lesions with PI RADs of 4 on each and that they needed to be biopsied. That was on the 7th of October, its now the 1rst of November and we haven't heard from anyone about an appointment for the biopsies, is this normal .
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Finished IMRT, now what?
I was diagnosed with stage 4a prostate cancer gleason 9 (4+5) a few months ago. Spread to a couple of pelvic lymph nodes. I went through HDR Brachytherapy in late July followed by 25 sessions of IMRT. I just finished my last session on Thursday. I am on orgovyx and zytiga for 2 years. My last PSA test was .10. So, as I…
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PSA now present first time 9 yrs after radical prostatectomy
Robotic prostatectomy in 2015; PSA 14, Gleason 4-3, no lymph or seminal vesicle involvement, clean PET scan. Serial blood tests every year no PSA detected. In 2023 PSA 0.1, this year 0.44. Haven't had urology consult yet. Looking for comments from others who had an uneventful course for years, then raising PSA. What…
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Prostate Cancer Survivor, Regrets
So. I had it out in 2019. Nothing has been the same. I have had neuropathy quite bad right after the surgery for months (doctor rejected my claims of pain and weakness in the leg for whatever reason and said my cure from cancer outweighed whatever), zero sexual anything and serious problems peeing for five years. I have…
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Never Ending Urine Tests
I've never seen this posted before and have a concern I can't figure out. I had a RALP six years ago. My PSA was very low, but I didn't care I just wanted the cancer out of me. The surgery went fine but I am probably incontinent for the rest of my time above ground. Every six months I go in for another urine sample and…
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PSA Test with Covid
My PSA went up from 1.9 to 7.6 within 6 months. But that second test was a few days after having Covid. Has anyone had a PSA test with Covid? I'm worried I might have an aggressive cancer with such a fast rise (it runs in my family). Will make doctor appt next week. Thanks.
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Biopsy results
Hello: Received results this morning. Any informed comments would be appreciated. Final Diagnosis View trends A. Prostate, right posterior medial, needle core biopsy: Prostatic tissue, negative for carcinoma B. Prostate, right posterior lateral, needle core biopsy: Prostatic tissue, negative for carcinoma C. Prostate,…
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My experience with Akeega
Akeega is the only FDA-approved treatment with BRAC+ metatstatic castration-resistant prostate cancer. In other words, if you are one of the 1% of men with the BRAC gene the chemical castration drugs will not work against your Prostate cancer. Check with your doctor to find out if you have the BRAC gene. Don't assume that…
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What if radiotherapy fails
Just about everything I've been reading indicates modern radiation treatments properly administered are statistically superior to Radical Prostatectomys concerning quality of life issues. Sounds like they're equally effective. I've now been advised by two different radiologists that 5 weeks IMRT is a good first course of…
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URETHRA
I'm not sure if this is a new question, but I had my operation 2 years ago and I still do not feel anything in my urethra when I urinate. Has this happen to anyone else? Thank you
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Will I need diapers post-prostatectomy?
Hi, I will be having the robotic prostatectomy just before Thanksgiving. I understand that I’ll have a Foley catheter in place until the one-week post-op appointment, but will I have zero bladder control immediately following catheter removal and need to be prepared to walk out of the urologist’s office in a diaper? Will I…
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My Story Consolidated
I have started several threads but thought I'd do a new one as a summation and then just keep this one to update going forward. A brief review: I'm 52 and diagnosed with prostate cancer last month. Family history is bad: father and maternal grandfather died of prostate cancer; mother and her sister died of breast cancer;…
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Decipher testing
Is this considered standard of care when a biopsy is taken?
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Nanoknife my journey
Hello everyone! I had my Nanoknife procedure performed on August 29, 2023 and I am reporting back my experience. To make it easy to follow I will use sequential numbers below. For detailed background check previous postings. On another note, using this site is not an easy task for me. Procedure time about one hour under…
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Treatment Decision
Am 63 and have been dealing with a rising PSA that started at 5.5 over the last couple of years. In 22 I had a Biopsy done with no Cancer cells found. PSA continued to rise and hit 10.5 this year. Biopsy found Cancer cells in 20% of the right side samples. Gleason score came back as 4+4. Options are Surgery without Nerve…
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6 months post salvage surgery
most of you know my story for those of you that don’t was first diagnosed at age 57 glarson score 7 PSA 8.1 decided to do radiation not a good thing. The cancer was of Cribiform and apparently Cribform is radiation resistant don’t let anybody tell you different, .. 1 year ago PSA creeping up three straight test to 1.7 from…
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Advice
I'm a 65 year old recently diagnosed. My PSA was 5.34 in April and my urologist recommended an MRI. MRI in June showed showed prostate volume 38cc. T2 hypointense lesion involving the the left posteromedial mid gland peripheral zone measures 0.3cm and demonstrates focal restricted diffusion and low ADC with early focal…
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On_A_Journey's journey
PART ONE Hello all, I joined this forum recently, asked some questions and made some comments, but until now I’ve only given a brief description of what brought me here. I will treat this thread as my own personal blog by telling my story and providing any updates as they happen. I am 59 and from Australia. I have a strong…
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8 months post radiation and Cyberknife and 3 months post 12 months firmagon
Husband just recently finished treatment for prostate cancer with me. Gleason score was 8. Starting PSA was 2.8 before treatment. 3 months past Cyber PSA was .044. 6 months past Cyber PSA is .064. Does this indicate a concerning rise? And is there a need to worry? Messaged urologist and he said to come back and test in 6…
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increase in PSA post seeding
Had seeding done 8 years ago here in Atlanta (no radiation-PSA 3.75) Cancer confirmed with biopsy. Post seeding PSA was.5. Has gradually risen until last test 3 weeks ago showed 1.47 (Oct 2024) (Mar of 2024 was 1.14). I will be 87 in Dec-should I be concerned?
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ADT Side Effects & Different ADT Drugs
My brother-in-law has recurrent prostate cancer (he was originally diagnosed with stage 4a) and his oncologist wants him back on ADT drug he took for 2 years. Thing is the side effects were horrendous. From what I've read (NCI, ACS, etc.), side effects can vary some between the various ADT drugs. His oncologist said they…
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Fenbendazole
has anyone hears of this or tried it to fight cancer ,i have read it has helped many cancer patients