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Some tips from CSN
Welcome to the CSN! Below are some tips to help you get started following and posting on the boards. You can follow your preferred discussion board to get notifications of new topics and comments. To follow a board, navigate to your preferred board and then select the bell at the top, followed by your notification…
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Fiancé left me due to the pressure and the future
Hi, I am new here. My name is STUART and I just had surgery to remove my prostate cancer on July 16. Since then, my recovery is going well, but 2 days ago my fiancé has decided it was too much for her to handle and left me. I don’t know where to reach out to or who else to speak to about the constant depression and feeling…
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Advice
I'm a 65 year old recently diagnosed. My PSA was 5.34 in April and my urologist recommended an MRI. MRI in June showed showed prostate volume 38cc. T2 hypointense lesion involving the the left posteromedial mid gland peripheral zone measures 0.3cm and demonstrates focal restricted diffusion and low ADC with early focal…
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Waiting 6 to 7 months for Prostate surgery
Hi friends I am new to this forum. Husband diagnosed with Prostate ca Gleason 7 (3+4) stage II. MRI and PSMA pet scan show it is contained within the prostate. We liven Canada and have a long Queque, so surgery will only 6 to 7 months frm date of diagnosis. Scared to wait so long for surgery. Amy opinions/advice? Has…
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New Prostate biopsy results
I’m a couple of months from 65th birthday. Just received results from biopsy: Gleason 3+3=6, Category 1 cancer - most common, low risk. It shows perineural invasion, which may slightly raise the concern for spread, but the overall Gleason 6 cancer is usually considered low risk. MRI showed PiRads 4 lesion contained…
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On_A_Journey's journey
PART ONE Hello all, I joined this forum recently, asked some questions and made some comments, but until now I’ve only given a brief description of what brought me here. I will treat this thread as my own personal blog by telling my story and providing any updates as they happen. I am 59 and from Australia. I have a strong…
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I have questions... new member
I am 53 and might be dealing with prostate cancer. heres my story. I have had my large intestine removed in 2008 from ulceritive colitis. I kept having microscopic blood in my urine and still do to this day. Also in past had a growth on my kidney that they did a cryoablation on 8 years ago and followed up with MRI for 5…
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Good news source
just an FYI - Some people may not like the source, but I’ve found that the GROK3 app gives me good and reliable answers to my questions about my surgeries and treatments Just saying Have a GREAT weekend 🚜🐝🚜
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Post Treatment Results
Had good news last week. My PSA was less than detectable However, they did another CT scan to look at an anomaly from my first one. Seems there was a dark spot on my third left rib Have Not heard from doctor yet. So, hopefully it wasn’t anything Headed to San Antonio in a few weeks to celebrate my oldest sons 50th 🎉🎉🎉 Hope…
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Deciding to end treatment or not?
My husband has been through a lot over the last 5 years ( he is currently 63) but we are now at the point where we really need to decide if focusing only on comfort care is best. Since February things suddenly became very bad with spinal metastasis, which then turned into fractures one pressing on his spinal cord putting…
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Has Prostate Cancer Been Cured?
Geez! Several days without anyone posting. Seems unusual. Maybe my computer is acting up?
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Erections
I am four years out from radiation therapy for prostate cancer. I am unable to achieve an erection sutable for intercourse. I am able to obtain ejaculation by watching my wife and self stimulation. What is the experience of others regarding this issue?
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Fighting Back: How To Tune Up Our Attitude And Outlook
I am a Stage 4 prostate cancer survivor, Gleason Score 9, with the BRCA 1 Gene. I've had surgery, chemo, and radiation. Also…3 PSMA PET scans. What helps me plow through this battle is a focused and determined outlook. If you would like a few tips on how to stay mentally strong as you confront these challenges, please send…
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Looking for Honest post-surgery ED expectations / feedback
Hi members- I'm new and this is my 1st post…I had DaVinci assist radical prostatectomy…I am 14 months out and still no firm erections even though I check off all the boxes on someone who should be up and running by now (healthy, not overweight, 57 at time of surgery, doc said both nerves were spared, non-smoker, not a big…
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Post radical prostatectomy sex.
Six weeks ago, I had a radical prostatectomy due to prostate cancer. After my resent doctor's appointment (over the phone) he gave me the green light to have sex. My question is, what will it be like? Will having an orgasm be painful? Will getting and maintaining an erection be a problem? What consideration should I bestow…
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biopsy results
Hi everyone...I would like to share the results of my biopsy which I did on April 14th 20025 Biopsy URONAV MRI fusion ultrasound transrectal and I have cancer. If anybody needs details how biopsy goes… you can ask me Diagnosis K Prostate (ROI 1), core biopsy: Prostatic acinar adenocarcinoma, Grade Group 2, Gleason score…
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still learning and more
Hey all, I was told I was posting on old comments so hopefully this is to a more recent arena. I was diagnosed on 12/2023. Started as 4+3 later changed to 3+4. Have a quite a bit of cores that are cancerous, but low PSA, no symptoms. I've had Prolaris done, came back Intermediate Unfavorable, but very low prognosis for…
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does Eligard ever wear off
Can any body shed some light on how long the side effects of Eligard last. Its been 15months since partners last injection and he is still the person Eligard changed him into. Stll hot flushes fatigue apathy disengaged impotence and zero libido. His PSA and testosterone are both still negligable...I keep trying to find out…
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TrueBeam radiation treatment system
Is the TrueBeam system accurate enough for treatment if no fiducials and no hydrogel are used as my radiation oncologist recommends. I don’t think it does real time monitoring and adjusting for position changes during a session?
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The little stuff (hints and tips): life after surgery
How about sharing practical tips for post surgery life. Look forward to reading everyone’s tips. Here is what is working for me 8 weeks out dealing with incontinence. Doing my Kegels and pretty happy with my progress but I occasionally leak or have a small squirt of urine when I cough, sneeze, laugh, stand up, bend down,…
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Update to earlier post "Looking for Honest Post-Surgery ED Feedback...."
Hello men who might want an update to my earlier post…. so I was disheartened at the slow pace of progress for someone who checked all the boxes for a healthy (and I thought), speedy recovery for Davinci-assisted Nerve Sparing Radical Prostatectomy….my previous post asked others to be honest in their outcome/progress…. I…
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Can’t decide course of treatment… help!
Hi everyone- I’m writing as support for my husband who was recently diagnosed with PC. So much info has been thrown at us yet at the same time it feels like this treatment decision is just up to us without much guidance. The “gray areas” are killing us. My hubby’s info: 68 years old, very fit and active (runner, physical…
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Radiation after surgery
husband was officially diagnosed November 2024 Gleason 7 (3+4) after several increasing PSA numbers, MRI and biopsy. After PSMA Pet scan results, he decided to go for removal of the prostrate. His thinking was let’s just get this out and move on. Rough surgery, nearly 6 hours, but all pathology reports came back with clear…
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opinions and experience? time of day taking Relugolix (Orgovyx)
Hi y'all. I had a heckuva time deciding on treatment, having had several options. I settled on ADT, HDR brachy and photon radiation. If I recall correctly I'll get 65 gray total radiation. and I'll start with ADT - Orgovyx for 6 weeks before radiation starts. I was advised to take the pills any time of day I choose, but be…
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Summer Temps
So, it’s 93F here today with about 60% humidity I was working outie from 9a-2p and had a pretty serious hot flash while cutting some 4x8 plywood panels in half i Was okay until the flash started. Then I found that I couldn’t concentrate. Managed to get inside say something cross to the kids and grandkids and hopped into a…
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Will United HC drop me eventually because of my expensive meds?
I am 70 years old andhave stage four prostate cancer, which is metastasized to my bones. I was diagnosed one and a half years ago, have been through four months of chemotherapy, and then was started on Nubeqa which I took for about four months before it stopped working. My oncologist recently started me on Lynparza, which…
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Should I have surgery sooner???
I am a seven-year-old diagnosed with aggressive prostate cancer, this is my situation am I waiting too long to have surgery July 30, 2025 when I was diagnosed after the biopsy May 12, 2025? May 12, 2025 Biopsy reported PROSTATIC ADENOCARCINOMA. GLEASON'S SCORE 9 (GRADES 4 + 5) NOTED IN 1 OUT OF 1 SUBMITTED PROSTATE CORE…
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Inability to ejaculate
I finished treatment a year ago (radiation). My orgasms now are very weak and, of course, I don't ejaculate anymore. I did at first but it's gradually gone away. This has made me damaged goods. All I hear is "did you ****?" or "are you ever going to ****?" or "why can't you ****?" I dread having sex but (not bragging) I'm…
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Alcohol
I am a rum drinker. Nothing from February thru May. But had some beginning of this month Next few days were rough. That’s a new thing for me. Any others experience same Hate to have to stop doing the one thing that gives me a little pleasure. Love having an aged rum on ice. I’m a neat sipper of anything over $100 Thoughts…
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disclosure
thanks in advance… I'm about to put my house on the market - planned before my diagnosis. but… I wonder if I should disclose it to my realtor. I don't know any legal requirement, but?
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Later onset incontinence after initial continence
Has anyone experienced sudden onset urine leakage (completely unprovoked—no lifting, straining, coughing, etc) after being completely dry after surgery? Prostatectomy was nearly 3 months ago. There was a single episode of incontinence overnight around 2 weeks after surgery. Then completely dry even with exertion until two…