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Prostate Cancer

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SBRT with ADT or no ADT
Hello, I have been diagnosed with localized prostate cancer this past summer . PSA 7.2 Gleason 3+4 .decipher 0.49 My Father died of Prostate cancer 2007 at 72 . I am 66 . I have decided on SBRT rather than Radical Prostatectomy . The oncologist suggested ADT ( Androgen Deprevity Treatmant ) or I can decline at this time .…
Will HBO do the trick?
Hi to all, I have received a message from Hunter inquiring how I am doing. And, yes I am in default with a late update from my last entry in this forum. Well, everything seems to be under control. Since my last post (below) in this forum that I had a series of "encounters" with health issues, particularly due to bladder's…
AMS 800™ Artificial Urinary Sphincter
has anybody had this done. I’ve heard good things about it. It seems pretty simple but then when I dig deeper, you know it takes six weeks to heal a lot of swelling and needs to be replaced every 7 to 10 need some time and adjustment to get used to but I like to hear it from the horses mouth I mean, I go through a pad or…
Post RALP PSA
So, on a whim, I got a PSA test ahead of yearly scheduled due in Feb. Normally at labcorp, my results were < 0.1. I did this one out of pocket at Quest and got 0.09. So, its still < 0.1 and I'm not sure if Quest normally reports value or < #? Guess my question would be how long to wait for a retest? I'm thinking a month…
Anyone had Artificial Sphincter/Penile Implant at same time?
Over a year later still struggling with incontinence and ED. Saw my Urologist a couple weeks ago for an unrelated issue but brought it up during the visit and he said to give it til February and we’d talk then about one or both procedures. I’ve read it’s beneficial to do both at once since it’s one surgery and one…
Prostate cancer treatment following colon cancer surgery
I am interested to hear from list members who may have experienced prostate cancer treatments on the heals of colon cancer surgery. Ihad a routine PSA test in May 2025, which came back with 13. A urologist sent me for MRI in August 2025, which gave a pirads of 4. The clinic's only biopsy probe was broken, so my biopsy was…
PSA 4.5 after IRE
i am shocked that my psa is 4.5 three months after IRE procedure. I did have the blood drawn the same day I had sex- not knowing ejaculation could alter the results. But 4.5 is very high…not sure what is next.
Urinary Incontinence after surgery
My partner recently removed his catheter and has essentially no control over his flow — constant dripping, fills 5 maximum-absorbency Depends underwear in 24 hours. We were expecting leaks, but not like this. Based on my research online, he even did Kegels before surgery. Has anyone ever recovered to anything approximating…
Post op PSA rise
I would like to know if anyone has experience with this. I go to the same provider for lab results to analytical method the same. (quest). My Radical Prostatectomy was in May of 2024. Gleason Score 4+3 = 7. 3 lymph nodes negative and no indication it escaped capsule. Post op PSA was < 0.04 then 0.05 or 0.04 for duration…
Have you had Radiation Treatment for Prostate Cancer?
Hello all, male in mid 70s here, Have you had Radiation Treatment for Prostate Cancer? What is your current status? History. Outcomes? What has changed? Are you cancer free? What is your PSA? How is your sex life? Have ED? Are your ejaculations the same or have they changed? The color of your semen changed. How? Any blood…
What Next?
I would appreciate your thoughts and insights on what I might expect: I am a 78 year old who was diagnosed in 2022 with a Gleason score of 8/9. Put on hormone therapy, which lasted for 18 months. Bone scan was clear but lymph nodes were involved. Radiation treatment – 26 in August/September 2022. PSA was almost indictable…
New to Reluctant Brotherhood
Thanks to this great forum as I am learning lots about things I wish I never had to learn. 65-yr old living with my wife on Cape Cod. I am recently diagnosed with 7 of 15 cores malignant, (6 cores 3+3 and one 4+3 at target lesion found on MRI, plus two cores list “High-grade PIN”), in left mid core “Perineural invasion is…
New incontinence boxer briefs being advertised as better that pads or full coverage depends, etc.
Has anyone tried these. I keep seeing ads pop up claiming they’ll save a lot of money over buying pads, etc. to use once and throw away. At $50 for one or $99 for three, it seems to me that the money you save over Depends with be “washed” away in the laundry. But I a, curious. .. are they worth a try?
hernia post RALP
I understand inguinal hernias are a common side effect of RALP. Anybody have experience with this? I found a couple of threads >5 years old, but looking for personal experiences. Looks like I have that problem, totally unexpectedly, 18 months post surgery.
I have not told family I have Prostate Cancer.
I'll be 67 this December and was diagnosed with prostate cancer 2+ years ago. I was on active surveillance for the past two years. About 7 months ago my PSA went up to 4.8 and I received my second biopsy. It showed the cancer was growing and I was started on Lupron. I'm a fat guy and need to lose another 10 lbs before the…
Looks like it’s the end of the line. I went into Hospice two months ago.
https://youtu.be/C2owEGUNas4?si=TJy23OUankauJMD_
Testicular AND Prostate Cancer???
Hello: I'm new here. I wonder if anyone else has heard of this: my daughter's father had testicular cancer (was also in all in lymph nodes) 13 yrs ago; operated & chemo/etc, cancer free all these yrs, til now. He was just diagnosed with Prostate cancer. He told my dtr something about having "12 biopsies", or something like…
Pump
I’m looking for some feedback on using the pump I am at the 24 month point and since summer I only use it once a week and have noticed a decrease in length of about 1/2” sound right? Haven’t had an erection since before the surgery, so I guess that’s it for me. Still taking the 5mg tadafill Any thoughts?
My dad was just diagnosed with prostate cancer
Hi everyone, I have been so thankful to find this forum. It has brought me a lot of hope during one of the hardest moments in my adult life. I wanted to share my dad's story for some guidance on what to expect next: My dad- very healthy 69 year old male. Had all normal PSAs through his 50's; last one checked was 1.3 at age…
The little stuff (hints and tips): life after surgery
How about sharing practical tips for post surgery life. Look forward to reading everyone’s tips. Here is what is working for me 8 weeks out dealing with incontinence. Doing my Kegels and pretty happy with my progress but I occasionally leak or have a small squirt of urine when I cough, sneeze, laugh, stand up, bend down,…
PSA Anxiety
After ADT, and pelvic IMRT earlier this year another PSA test is coming up at the end of the week. Last two were .04 which is great but I've been really stressing these last few weeks about this upcoming test. I guess the worry of recurrence just goes with the territory. Does this worrying diminish somewhat for those of…
Zytiga
Diagnosed in 2014 Gleason score 9. PSA off the chart. 44 radiation treatments and Lupron. PSA went down. Fast forward late 2021. PSA 24. Super scan PC spread to lymph glands above and below waist. Started Zytiga in 1/22 with 6 month Lupron. 4x250mg once a day. Reduced to 2x250mg this year. PSA .04 since 2/22. Each month…
Advice
I'm a 65 year old recently diagnosed. My PSA was 5.34 in April and my urologist recommended an MRI. MRI in June showed showed prostate volume 38cc. T2 hypointense lesion involving the the left posteromedial mid gland peripheral zone measures 0.3cm and demonstrates focal restricted diffusion and low ADC with early focal…
No orgasm after radical prostatectomy Davinci Robotic sugery
Hello, I had the radical prostatectomy surgery in August of 2024 so it's been a year since the surgery. I experienced a handful of orgasms which contained regular spasms with the orgasm in the first 6 months that had 40% feeling compared to before surgery. So I was hopeful. Now a year later I don't have only have only…
Massive PSA increase!
Hi guys, I'm new to this group. I have been on TRT for the past year, my baseline PSA was .51. I just had my follow up test and today my PSA is 12.93. That is a 2,431% increase in one year. From what I'm reading, that is highly suggestive of cancer! I have seen the results through patient portal and I haven't even talked…
Surgery with Gleason 6 and PSA 2.5?
First post here……I'm 50 years old and recently diagnosed. Half of the biopsy samples came back as a Gleason 6 and it's bilateral. I've had my PSA checked for the last 6-7 years and it was always around 1.5. At the last physical it jumped to 2.5. I decided to meet with a urologist and now here we are. The kicker for all of…
1.5 years after salvage surgery
I am sooo blessed ..I just received my PSA results and I am still undetectable ..side effects Are 1-2 pads a day which I don’t think is that big a deal and I can still get an erection radiation and salvage surgery i did lose a little length about an but all in I am very pleased with the outcome. God gave me a second chance…
progress report...
yesterday, October 14, I had my final radiation treatment so I thought I'd share my experience so far. I'm 67, in good health with elevated risk for colon cancer (it took my Dad and I've had colonoscopies since my early 40s, dozens of benign polyps removed through the years since, I have one of the risky genes.) Taking…
Incontinences During Radiation Treatment
Hello, I just started (2 treatments) Protron Therepy radiation treatment for my prostate cancer. Part of the process is to fill your bladder before the treatment. I'm having a very difficult time being able to hold a full bladder long enough to get through the treatment completed. As most of you know you are required to…
Why does a prostrate cancer get more awareness like breast cancer?
as we all know this is breast cancer awareness month ..my work is having all kinds of events to raise money. You see commercials for breast Cancer ..it is not good and I know it affects women at alot younger age than it does for men, but I still think it’s wrong that BC gets all the attention. In the United States in 2025…

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The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Prostate Cancer

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