Pump

Submariner682

I’m looking for some feedback on using the pump

I am at the 24 month point and since summer I only use it once a week and have noticed a decrease in length of about 1/2” sound right?

Haven’t had an erection since before the surgery, so I guess that’s it for me. Still taking the 5mg tadafill

Any thoughts?

jc5549

Use it religiously to maintain what length you have. There is an excellent publication discussing much more aggressive dosing of PDE-5 inhibitors than the 5mg dose of Cialis (attached for review). I started max dose Viagra daily without the results I was looking for at 24 months, but better response than 5mg Cialis which I was on previously. I did move to needle injections and have a normal erection with the shot. Not my favorite thing to do but it does work

Good luck to you,

jc

Penile, rehab post nerve sparing, prostatectomy, meta-analysis, 2020.pdf

Submariner682

Thanks appreciated

At 72, not too disappointed from loss of sex life. More interested in maintaining the length for general use 🤣

Injections 😳. No thanks

Again, thanks and have a GREAT future 🚜🐝🚜

VascodaGama

Hi,

The pump is a more "natural" way to increase the blood supply at the cavernous area of the penis, but it doesn't help in increasing or maintaining the length after prostatectomy.

Typically they cut off 2 to 2.5 cm which is the diameter length of the dissected prostate. To have it back the surgeon must free the area cutting some muscle holding the flesh at the tip of the bladder.

A shorten penis is a problem when peeing. It points front wards ejecting allover the place when we are seated.

Regrets_59

https://csn.cancer.org/discussion/comment/1725148#Comment_1725148

I hate what my prostate therapy has done to my weiner. Between the weight gain from Prednisone and the shriveling effect from Orgovyx and Nubeqa it made my fleshy appendage reduce in size to an alarming degree.

Of course it's a blow to my male ego but like the post above mentioned, their are many practical reasons to want to avoid this alarming side effect.

Submariner682

I took everyone’s advise and got a pump on line. Used it every other day at first, but am down to once a week now

As far as before and after size in the pump, I’ve lost about 1/2” in 2 yrs

But I have to admit on an every day basis I’m working with half of what I used to have 😩

Positive thing is I’ll probably live to see 80 for that I’ll take the reduction

But, I do miss my old buddy 😂😂😂

Wheel

Happening to catch up on this thread and just want to reiterate some things mentioned before. Yes, most patients seem to lose penile length as VascodaGama writes and the reason. This being the need to cinch up and reattach the urethra to a now bladder that had its Puboprostatic Ligament cut and not where it was. Almost all Surgeons do surgery this way and it is easier, however a new surgery procedure, not really new, it has been around a number of years now having come from Europe is that they go into remove the prostate doing surgery from coming in behind the bladder, to gain access to the prostate and no need to cut the ligament . Not only do you not lose penile length as the reattachment is right back to the place where the stable bladder is still positioned and it was cut, but it seems according to most literature on this most patient’s have almost immediate continence. These certainly are two major concerns of patients I always read about regarding surgery. The third concern is the sexual function more involved with nerve sparing and alot of that involves a surgeon’s skill. Even if the cancer has seem to leave the capsule, a surgeon can spend extra time delicately getting to a negative more and as in my case , nerves spared one side, half the other and 18 months post surgery, early 70’s, I am good to go fully erect penetration in the morning on an empty stomach after 4 pills sildenifil (20mg a piece) total 80mg and waiting 75 minutes. Many people don’t realize or even know of this approach. This really shows how important it is to research your surgeon and see what he does. You really have to look for this specific surgeon and consult with or call around the major hospitals to see if they have surgeons doing this technique. This still by far is not the most common but is gaining substantially more traction each year as newer surgeons who are staying up to date on the latest technology and techniques. It will likely become the standard over time due to the success in reducing side effects. Most major hospitals have at least one surgeon trained this way, it’s just finding that Surgeon. It’s like rectal biopsies are slowly becoming less and less as more urologist’s have become trained to do perianal biopsy.

On another note Submariner682, you mention your current current 5mg tadafil, are you able to try a larger dose on am empty stomach and see what happens one morning.

Submariner682

I was told to go for 20mg. Sound right??

Old Salt

Will they ever learn (from a song most of you will recognize)?

What I am wondering about is whether a surgeon with considerable experience with the older prostatectomy procedure will take the time and effort to learn the newer (Retzius sparing) method. This is not something one can learn by attending a weekend seminar 😊.

Wheel

I really think it will likely depend on the Surgeon’s age and the hospital providing it’s support . I think the Surgeon’s that are forward looking with years ahead of themselves will see the future and the need to commit to this totally or begin to lose new patients. It is surprising that you still can read about open prostatectomy from surgeons not trained on robotic surgery. Even on the Davinci robotic model for single port, the hospital has to decide to invest massively in the new technology, its not cheap why many surgeons are still limited to the access of a multi port robot. I don’t know if this surgical procedure is best on a single port or milti port, i imagine the model would not make a difference.