Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Lymphoma (Hodgkin and Non-Hodgkin)

Resource for latest NLPHL studies
I stumbled across a Twitter feed called GLOW (Global nLPHL One Working Group), which is a community of hem/onc docs who treat and conduct research around Nodular Lymphocyte Predominant Hodgkin's Lymphoma (or whatever you want to call the disease now). Here is the link: https://twitter.com/glow_nlphl. It seems to be a good…
Sevondary Cancers
Just wondering if anyone has any experience or knowledge of secondary cancers which may have been caused by their treatment for Lumphoma.
Am I a horrible caregiver?
I’ve been giving care to my mom with lymphoma this past year. For the most part, it’s been an honor to provide support. It has been a lot of appointments, calling providers, getting medications, managing side effects, talking through issues, all of it. Now I am burnt out. I have the small kids including a newborn. I have a…
New Dx -- Reaching Out For Support
Hi, I'm Tom, and I'm very scared. So, I've just got the initial diagnosis of CLL yesterday, and I'm reeling. I'm alternating between depression ("what's the point? I'm just going to get sicker and sicker, until I die...") and anxiety ("oh god, every new ache and pain is the cancer taking over!"). I am not religious, but I…
Newly diagnosed
Hello. I was just diagnosed with small lymphocytic lymphoma. I see a medial oncologist September 7th. I’m not sure what to expect. I’m not sure how to even feel about things until this appointment or even afterwards. Any suggestions or help. Especially with my anxiety! Thank you
Newly Diagnosed with MZL Lymphoma BUT aggressive (55 years old)
Hello, Starting chemo on Monday. pola r chp will be my treatment plan for six cycles. Looking for advice, encouragement, and wonderful connections. BTW, I'm scared. And I'm scared of relapsing since it's slow-growing lymphoma but aggressive. It seems I will be living with lymphoma.
Nutrition and the Cancer Patient
I have come to the conclusion (opinion only - I am not a doctor) that one of the biggest misconceptions about cancer is that it is treated as some kind of foreign invader when in fact it is not foreign at all. Cancer is part of you just the same as healthy tissue. This struggle is a civil war - brother against brother.…
Any survivors of follicular lymphoma out there
Hi Any survivors of follicular lymphoma and for how long? I was diagnosed last april and have since been in remission. Do the doctors know if they can retreat the disease if it relapses? Real life experiences mean more than what statics say. Thanks Richard
Neuropathy
My last chemo was in July 2018 but after 5 years I still experience neuropathy. It is mostly at night and interferes with my ability to sleep. It always starts in my toes and front part of both feet. It is a weird tingling/numb feeling. Occasionally it goes all the way to my knees. Hot baths help but the gabapentin my doc…
Any survivors of Non-Hodgkin's lymphoma lymphoma out there??
Are any survivors of Non-Hodgkin's lymphoma out there? Anyone from India or Bangladesh?
Para Aortic Lymph Node Cancer
Hi, My mother had endometroid and serous carcinoma about 6 years back. During hysterectomy pelvis lymph node dissection was done and cancer was found in one of the node. Followed with Chemo (3 week cycle) and Radiation (weekly for 26 weeks). No issues for till 2-3 months back when she started getting slight back pain. When…
Possible secondary cancer post advanced stage Hodgkins Lymphoma w/ splenectomy. Depressed, worried
Is there a one else who may share a similar concern about my topic? It would be nice to chat w/ someone with same concerns:) I’m
T-Lymphoid markers positive
Hi Everyone, I am new to this forum. My brother (Age-32) who is in India had a Flow Cytometry test and the T-Lymphoid markers came positive.To be specific CD3,CD5,CD 7 -positive ,CD4,CD8- double positive ,CD 10 is positive The doctor ruled out Leukemia and is suspecting T cell Lymphoma. The CT scan report of the chest also…
Hair loss and chemo question among other things.
Around the first of the year I was diagnosed with non Hodgkin’s lymphoma. In a few days I will start my 5th treatment. Each treatment is 21 days and I’m scheduled for one more If all goes well. Anyways, around my second treatment I noticed if I even touched my beard or hair that I would see hair coming out. It got so bad…
Fourth cancer
Pathology report states squamous cell carcinoma. Not a blood cancer, but posted here as fellow blood cancer patients are my second family. Apparently confined to the skin. So an excision and topical chemo (my 21st!) for 2 weeks then watch and wait. At least I'm tapering off. 🙄
Pet scan not clean
I just received my pet scan on line. It should my lymphoma in my lymph nodes gone. Nbut it shows activity in my sternum w hi hi I haven’t heard before. I had breast cancer 10 years ago and had a bilateral mastectomy and lots of radiation. Did it come back. I’m terrified. gio
Issues again
6 months ago I started running low grade fevers nightly and a hacking cough. Lost 50 lbs over a 3 month period. I go for a pet scan today. I worked in the printing industry since 1989 and been exposed to that. Back in 2012 my adranline grand was removed for being enlarged. After 4 CT test said postive for cancer and pet…
Side effects from RCHOP a year after treatment
Hi I'm new to posting but here goes. Last April through July I went through 6 rounds of RCHOP for non Hodgkin's lymphoma. The treatment was effective and as of last scan no active disease present. I'm grateful for that but for several months now I have been dealing with occasional waves of nausea, joint pain that doesn't…
Update Hodgkin’s Lymphoma
Hi all, I cannot remember how to navigate through this site, as I have not been on here in at least a year. Anywho, for those I had conversations with during my initial diagnosis of Hodgkin’s, and throughout chemotherapy I just want to give an update. I had my most recent PET scan in April after finishing chemo in December…
Pet scan results
Can some please help me understand my husbands pet scan?
Why do we still differentiate between Hodgkin's and Non-Hodgkin's?
How many indolent lymphoma relapses is enough?
My history: Oct 1996: Diagnosed and treated for nodular lymphocyte predominant Hodgkin's lymphoma* in abdomen and pelvis. NED after six cycles of ABVD. June 2018: Diagnosed with NLPHL again, treated with Rituximab. NED Sept 2020: Relapsed, treated with Bendamustine with Rituximab. NED March 2023: Relapsed, treated with…
When is a bone marrow biopsy necessary?
Dave's bloodwork shows slightly low levels of RBC, hemoglobin, hematocrit, platelets, and monocytes... his WBC dips in and out of low/normal range. His LDH and beta 2 microglobulin and most all the other numbers are within normal range. We are in the process of getting diagnosed right now (retroperitoneal biopsy done…
Still waiting on my results... terrified
2 months ago i had a ct which showed an 8 cm(3.1 inch) mass in my mediastinum and two other smaller 2 cm lymphoadenopaties ( i assume these are swollen lymph nodes ) I also can feel pea sized lymph nodes under my jaw. I am 31 and been losing a lot of weight in the last few months, i look really skinny now. No real other…
Large B-cell lymphoma
HI! My dad is 63 years old today, and last week was diagnosed with NHL Large b-cell lymphoma in stage 3-4. He is currently on CHOP and Rituxin. i was just wondering if there was anyone his age that has survived this specific type of lymphoma.....and any advice on how we can get it into remission fast? :) thanks, I'm just…
funding
hello new to the group. my son in law is in the hospital with burkitt lymphoma cancer. my daughter will be the only one working now. where on the amc website can she look up to get help for herself and him. thank you god bless you all
Lymphoma (N.H.L ) T cell
Hi everyone My son have 2.5 yers old He have lymphoma non hodgkin T cell on stage4 How Can help me? What is this 😭😭😭
I need clarification
Dear wonderful people, I am here once again because state health wouldn't assist me. I have taken my mum to the medical unit ever so often and all they do is a full blood count. I had to insist that a private doctor would do a blood test to check out all her organs. Everything else looked fine but her liver has some damage…
First treatment this week (rCHOP) - And Scared
I thought it might be helpful to post here. I am a 35 year old male with 2 beautiful daughters (3.5 and 1.5 Years old) and a most beautiful wife. I am scared that I wont get to see them grow up. I have a really good disposition on life and I am relatively healthy. I haven't had any symptoms from my Nodular Lymphocyte…
Boom Boom Radiation Therapy
What a dumb name and I refuse to use it from now on, but has anyone here had this type of low-dose radiation treatment (4Gy/2), presumably for some form of indolent NHL?

Lymphoma (Hodgkin and Non-Hodgkin)

Discussion List

Discussion Boards