acute lymphoblastic leukemia

Nadhu
Nadhu Member Posts: 1 Member
edited June 11 in Leukemia #1

Thank you all for sharing your life stories. As a mother whose 6-year-old son has been diagnosed with ALL, I understand the need to be strong for him. It's natural to question why this happened, especially when we've been so careful. When my son asked me in the middle of the night if he has cancer, I was at a loss for words. I'm here to learn how I can help him believe in himself and seek any recommendations on supporting him physically and mentally through this journey.

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  • CCManser78
    CCManser78 Member Posts: 3 Member
    #2

    I’m sorry that you are going through this. My oldest daughter was diagnosed on her 5th birthday. Ironically I was diagnosed with the same ALL last month, 22 years later. I would like to share a couple things that I learned, in hindsight.

    I was very young when my daughter was diagnosed. I tried to be “perfect” for her. I hid my emotions, tried to be cheerful and supportive for her. I wouldn’t leave her room or the hospital. It’s traumatic to watch your child suffer. I wish someone had explained that to me. I pushed down my feelings and kept going, that was a mistake. When you fly, they tell you to put on your oxygen mask first, and then your child’s. Taking care of yourself is taking care of your child. By acknowledging your feelings you give your child space to acknowledge their feelings.
    Secondly, the care team told me to treat my daughter normally, because if she survived she would become an adult. Boundaries, rules, etc. are very important. That is something that helped me a lot. My daughter grew into a beautiful woman. She is kind, and speaks up for herself.
    A child therapist can help you navigate age appropriate conversations. And help you answer questions that your child has.
    I wish you all luck on your journey!

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