Caregiver for husband who is a totally different person now.

Peedad

My husband has Myelodysplastic syndrome. He has been given 1-3 years. He talks to me so mean now. He never smiles or laughs. He sits in his recliner with the heated blanket and sleeps or stares at the blankly at the tv. I have tried to hold it together and ignore the mean and hateful thinks he says to me but it is really hard. When he first started this it would result in yelling matches. Than I realized it wasn't helping anything and he isn't listening to me anyway. I feel so lonely and lost. I would love to hear from other people going through this.

csjeske

I totally understand where you are coming from…..If you want to talk more let me know…. this has been back in April so don't know if you still need to talk, need support… I feel that no one can understand where I am at and dealing with. This is the most difficult thing I have ever had to deal with..

evonnenewcombe

I see this is old, but I wanted to reply as well. When I have had to take care of cancer patients, I have noticed that they do the irritable behavior to piss you off. Why? They think that if you are pissed at them, you won't hurt or miss them as much when they are gone. Don't let them. Love him just as much as the day you married him. You are not going to hurt less by him trying to alienate you. Tell him that it will just make it harder.

adellmarie

Hi, my hubby is on Lupron and Abiraterone+Prednisone 5mg. He has been on the 2nd meds for 2 weeks, this is his 2nd Lupron dose and he is changing so much with his personality, feelings, emotions, fatigue, low down feeling. I try to be supportive but it's getting harder because he is so emotional about EVERYTHING. He just got mad and went to bed because he said I wanted to be alone? I'm not paying attention to him and he gets all out of Wack. I walk on egg shells right now so he's ok. I don't know how long I can do this and its not going away. He has 6 more years of Lupron and who knows how long he can do this. Is there anyone I can talk to just on my own to get help for this caregiver position I am in now.

adellmarie

everyone tells me to be supportive, positive, uplifting. We seem to get on each other's nerves so easy now. We seem to always be on edge. We do have good days, normal days, but I feel like I am under a time bomb. I never know what will set him off to be mad at me. Just now he got mad cause I wasn't let him help me do something and went off to bed mad. I went to him and tried to apologize for ???? but nope, so let him be. I'm not supposed to drink Alcohol but he's driving me there.