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Caregiver for husband who is a totally different person now.

Peedad
Peedad Pre-Moderated Member, CSN Member Posts: 4 *
in Caregivers #1

My husband has Myelodysplastic syndrome. He has been given 1-3 years. He talks to me so mean now. He never smiles or laughs. He sits in his recliner with the heated blanket and sleeps or stares at the blankly at the tv. I have tried to hold it together and ignore the mean and hateful thinks he says to me but it is really hard. When he first started this it would result in yelling matches. Than I realized it wasn't helping anything and he isn't listening to me anyway. I feel so lonely and lost. I would love to hear from other people going through this.

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Comments

  • csjeske
    csjeske CSN Member Posts: 1 *
    #2

    I totally understand where you are coming from…..If you want to talk more let me know…. this has been back in April so don't know if you still need to talk, need support… I feel that no one can understand where I am at and dealing with. This is the most difficult thing I have ever had to deal with..

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  • evonnenewcombe
    evonnenewcombe CSN Member Posts: 2 *
    #3

    I see this is old, but I wanted to reply as well. When I have had to take care of cancer patients, I have noticed that they do the irritable behavior to piss you off. Why? They think that if you are pissed at them, you won't hurt or miss them as much when they are gone. Don't let them. Love him just as much as the day you married him. You are not going to hurt less by him trying to alienate you. Tell him that it will just make it harder.

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