HellieC thinking of you

Ro10
Ro10 Member Posts: 1,561 Member
in Uterine/Endometrial Cancer #1

Wondering how your results from you latest CAT scan or PET scan showed from your cyber Knife?  I hope the tumor shrunk and you are still pain free.  Have not heard from you for quite some time.  I hope everything is okay.   in peace and caring.

Comments

  • HellieC
    HellieC Member Posts: 524 Member
    #2
    Bless you, Ro - I'm still here!

    Bless you, Ro - I'm still here!  Sorry to have caused worry!  Haven't been on the boards much for the last few weeks - to be honest, I don't know where the time has gone! 

    The MRI scan showed that the tumour has shrunk a little and there are "signal changes" in the images, indicating post Cyberknife changes still going on.  I am pleased that there has been a response and I continue to be pain free.  My oncologist says that the mass will never disappear completely, as it is composed of scar tissue as well as tumour and the only way we will know whether the Cyberknife has completely "nuked" it will be if we get 5 years down the line and it still hasn't grown.  I guess we learn to live with these less than perfect answers, don't we? I am going to see if she will agree to another MRI scan later in the year, perhaps 12 months after the treatment, so we can see what things look like then.  In the meantime, I am feeling well.

    How is your cough?  Did you find that it was the Lisinopril that was exacerbating it?  I wish I had known you were taking it as I could have jumped in earlier and suggested it as a cause - I worked on the drug development of lisinopril in the UK and coughing was a common side effect.  My friend had it and when she changed to another ACE inhibitor it stopped.  I do hope you are more comfortable and managing to get a better night's sleep.

    Wishing you a peaceful Easter.
    Kindest wishes
    Helen xx

     

  • RoseyR
    RoseyR Member Posts: 471 Member
    #3
    HellieC said:

    Bless you, Ro - I'm still here!

    Bless you, Ro - I'm still here!  Sorry to have caused worry!  Haven't been on the boards much for the last few weeks - to be honest, I don't know where the time has gone! 

    The MRI scan showed that the tumour has shrunk a little and there are "signal changes" in the images, indicating post Cyberknife changes still going on.  I am pleased that there has been a response and I continue to be pain free.  My oncologist says that the mass will never disappear completely, as it is composed of scar tissue as well as tumour and the only way we will know whether the Cyberknife has completely "nuked" it will be if we get 5 years down the line and it still hasn't grown.  I guess we learn to live with these less than perfect answers, don't we? I am going to see if she will agree to another MRI scan later in the year, perhaps 12 months after the treatment, so we can see what things look like then.  In the meantime, I am feeling well.

    How is your cough?  Did you find that it was the Lisinopril that was exacerbating it?  I wish I had known you were taking it as I could have jumped in earlier and suggested it as a cause - I worked on the drug development of lisinopril in the UK and coughing was a common side effect.  My friend had it and when she changed to another ACE inhibitor it stopped.  I do hope you are more comfortable and managing to get a better night's sleep.

    Wishing you a peaceful Easter.
    Kindest wishes
    Helen xx

     

    I'M STILL HERE AS WELL! MISS ALL OF YOU!

    Hellie and Ro,

    So sorry I've been away from CSN for a year and a half; between my full tiime job and a web site run by a group of women who are all seeing the same naturopath from Colorado, I've had little time to check back into CSN.

    But I do think of many of you fondly and am always hoping you're still here and doing well.

    So it was fabulous to find that you, Ro, and Hellie, are still here contributing wonderful comments for all to profit from.

    In the meantime, suffice to say that despite my diagnosis of MMMT utterine cancer in 2010 (stage IB), after six rounds of taxol and carbo and 25 pelivc reatiation treatments, I am, four years after finishing treatment, feeling GREAT and as far as I know, have had no recurrence yet.  (Or maybe I HAVE and don't know it as I've chosen, wisely or foolishly, NOT to have regualr CT scans as they damage the very DNA we need to fight our cancer.  I decided based on my own research NOT to have a single one unless I was experiencing serious symptoms of something awry.  In the meatnime Ive been udner Dr. Winter's care (via hone consultation) and am feeling quite well.

    Hellie and Ro, do you know of any longterm survivors of MMMT uterine cancer (now called "uterine sarcoma" or "uterine cardinosarcoma" that could give hope to all of us?  I recall a woman named "MadHouse" who had posted long ago but can't fiind any recent posts from her

    I hope to check into CSN at least once a month from now on and remember all of you so fondly.  Losing Jan half a year ago was of course a major loss; she was such a courageous and stawart champion for hope and resilience and taking charge of one's life instead of being a hapless vicitm; I honestly suspect that Doxil, when she weighted only 95 pounds, was not the right choice for her when she had her first recurrence a year ago.  

    Thinking of all of you with love and fondness,

    RoseyR

     

  • artist49
    artist49 Member Posts: 87
    #4
    RoseyR said:

    I'M STILL HERE AS WELL! MISS ALL OF YOU!

    Hellie and Ro,

    So sorry I've been away from CSN for a year and a half; between my full tiime job and a web site run by a group of women who are all seeing the same naturopath from Colorado, I've had little time to check back into CSN.

    But I do think of many of you fondly and am always hoping you're still here and doing well.

    So it was fabulous to find that you, Ro, and Hellie, are still here contributing wonderful comments for all to profit from.

    In the meantime, suffice to say that despite my diagnosis of MMMT utterine cancer in 2010 (stage IB), after six rounds of taxol and carbo and 25 pelivc reatiation treatments, I am, four years after finishing treatment, feeling GREAT and as far as I know, have had no recurrence yet.  (Or maybe I HAVE and don't know it as I've chosen, wisely or foolishly, NOT to have regualr CT scans as they damage the very DNA we need to fight our cancer.  I decided based on my own research NOT to have a single one unless I was experiencing serious symptoms of something awry.  In the meatnime Ive been udner Dr. Winter's care (via hone consultation) and am feeling quite well.

    Hellie and Ro, do you know of any longterm survivors of MMMT uterine cancer (now called "uterine sarcoma" or "uterine cardinosarcoma" that could give hope to all of us?  I recall a woman named "MadHouse" who had posted long ago but can't fiind any recent posts from her

    I hope to check into CSN at least once a month from now on and remember all of you so fondly.  Losing Jan half a year ago was of course a major loss; she was such a courageous and stawart champion for hope and resilience and taking charge of one's life instead of being a hapless vicitm; I honestly suspect that Doxil, when she weighted only 95 pounds, was not the right choice for her when she had her first recurrence a year ago.  

    Thinking of all of you with love and fondness,

    RoseyR

     

    Dr. Winters facebook group

    Please contact me via this forum! I have

    sent you a private message. Thank you in advance

    This message is for RoseyR.

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