primary serous peritoneal carcinoma

Sandra99
Sandra99 Member Posts: 2
in Uterine/Endometrial Cancer #1

Hello Fellow Warriors!

I had surgery February 9th - removal of 9.5 x 7 x 3 cm tumor on the omentum.  When I saw the color photo of my doctor, Dr. Chen-Chi Hou and Dr. Yen-Yin Chiang I was floored - it was a huge thing - the omentum and the bulbulous, nutriton sucking, hemorraghing alien!  The photo brought to mind my photos with students!  They also removed the uterus, ovaries, fallopian tubes, cervix, 19 lymph nodes (all found cancer free).  On October 20 my CA 125 was 388 ...on Jan 8 it was 13.2.  After surgery it was 26.  I had my first chemo with lipodox and carboplatin on Feb 16 (14 hours b/c I have to have a slow drip).  My first five chemos were taxol/paxol.  Then the little tumor appeared lower left abdomen.  It is a devastating diagnosis - I was on a mountain on Sunday, went to my village hospital ER Monday night - they did a CT and saw only air in my lungs and poo in my colon.  The Thursday before I picked up an A+ health report for school.  In September I donated blood.  On October 13 my friend urged me to get to a hospital out of my village so I went into Taipei to the ER at National Taiwan University Hospital.  The next morning I was meeting bone and soft tissue oncologist Dr. Ruey-Long Hong.  I was in such a fog:  "can I donate my organs?"  Him:  "They usually don't want organs from people with cancer."  Me:  "Oh yeah."  I just could not believe it.  The docs have been EXCELLENT.  Got right on it.  By the time of my second chemo in December I was xenophobic, paranoid, terrified.  I made it over that hurdle.  I worked for the first 2 chemos - 12 hours a day.  Then when my contract was over Dec 31 I decided to really take care of me.  I had been on the endothelium food plan (basically the same foods as healthy cancer eating).  The surgery took a lot more out of me than I expected.  My path friend just confirmed the primary serous peritoneal carcinoma diagnosis b/c somehow I got the idea that it was still ovarian.  But it really is not.  I wanted HIPEC but was not told until 24 hours b4 surgery that it was six thousand bucks....no time to gather the cash.  I would have been a suitable candidate I now know b/c Dr. Chen took out all six feet of poop shoot (colon) examining the organ for tumor, tissue, mass, 'sticky.'   And he put them back in (just thinking about this gives me the creeps - lol).  Anyway Dr Chen told me a very uplifting story of a woman who lived ten years with this diagnosis.  That's the kind of thing I want to hang with not the doom and gloom.  The bottom line is we could all kick the boat tonight - I use public transporation (saving the planet before I kick the bucket) and the bus could crash on the way to chemo and I could die - so I need to do my part and be positive and grateful for every day I have regardless of what happens.  Self pity is more damaging to our 72 trillion cells than any cancer cell - so fellow cancer'ettes and cancers - here we are to love, and moan, and educate each other.  I write a gratitude list every day.  What are some of your strategies to cope?  My besties just took me for 24 hours of pure love - homemade waffles for breakfast, dinner at a New Zealand burger joint with killer milkshakes (being true to my cancer foods I had a TASTE of salted carmel - yummmm)...See's Candies....walks with dogs...snuggles with dogs while sleeping on a memory foam mattress....doesn't get much better than this (I live in a fishing village about 2 hours from 'civilization' called Taipei)....going for my THIRD shower since surgery February 9th.  Anxious to hear from you guys b/c it does help to talk to others on this journey.  x Sandra99

 

Comments

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,814 Member
    #2
    Sandra

    Hi Sandra,

    Welcome to our board. Glad you found us. Putting cancer in the background... It sure sounds like you have led an exciting life. Good for you!  I'm originally from Calif. and love See's candy! I live in FL now and only get it online for special occasions.  Better for my waistline!

    I hope you continue to heal from your surgery and find treatments that are easier on your body.  I also have a gratitude list that I create just about every day. And, I know I am one of the luckier ones on this journey so far.  One thing I have learned is that every day is special. Nothing is taken for granted and I am thankful to wake up happy and healthy each morning.

    Take care of yourself and let us know how you are doing.

    Love and Hugs,

    Cindi

  • Nellasing
    Nellasing Member Posts: 528 Member
    edited February 2017 #3
    Welcome Sandra

    So glad that you found this group.  So much good info to be had here and like you said, a great place to come and share our journey. 

    You sound like you have all the right things going on to make the rest of your life, the best of your life.  I too remind myself on a dailly basis that TODAY is the day each of us has and we need to LIVE it.  Counting my blessings, looking for them and being one to as many people as I can, getting excited about the simple things that one might have run past on their way to "busy". 

    I love spending time with my husband and our two doggies- we take long walks with them and enjoy the trails and watching them explore and enjoy.  I cuddle up with our two kitties for quiet time.  Animals are my happy place.

    Looking forward to sharing more of your journey- come back often and let us know how you are doing.   (((HUGS)))

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