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WED to NED
I finally had my post treatment CT scan and check up. It is just 3 weeks shy of a year from my diagnosis and surgery for UPSC stage 3B. The verdict is that I am Without Evidence of Disease as my Dr. calls it, or as the ladies here say, No Evidence of Disease. I will admit to a bit of anxiety leading up to the scan, with a…
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Another question
I saw on my follow up report that the radiation is of the vaginal cuff...HDR Anyone can give a guess on how many treatments that may take....do they do that everyday? I know I am jumping ahead but I am the type that does not like Surprise! lol Thank you for all your help! Gail
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Bad news for Janee cancer in moles
I just typed this and it didnt send so i will try again. Ive got some bad news. I dont like to send bad news. I myself like hearing the good news. But today im glad this site is for bad news too. I know this is for uterine cancer but i wanted to tell you because my friends whether old or new are on here. Two of the moles…
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Burning Rash from Doxil
I am currently on Doxil for Uterine Cancer, second go round, I am having the severe rash burning spots under arms, thighs, elbow, anywhere where pants bands rub me, etc. I am a big busted women so not wearing a bra is out when going to work. I thought about double layering clothes but then I get hot again and that effects…
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28 Radiation Treatments DONE!
1st, i‘d like to acknowledge Lou Ann’s passing. My condolences to her family & friends. This past Fri (4/6), I finished 25 external & 3 internal (vaginal) treatments. Yay!! I continue to be blessed with no ill side-effects. My medical team at Rush Copley Hospital (Oswego,IL) has been amazing. i completed my 6 cycles of…
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bone pain following carbo taxl
I just completed the third out of 6 carbo taxl rounds and 3-4 days after the tx, I experience a great deal of pain in legs,knees,feet,hips,lower back. My oncologist recently prescribed cymbalta. Even tho it is an anti-depressant it is also prescribed for neuropathy which he believes will help. However, I have been on…
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Not right. Just not right. Re: funding
https://moffitt.org/take-charge/take-charge-story-archive/federal-funding-lowest-for-gynecological-cancers/ Ovarian, endometrial and uterine cancers kill far too many women for funding to be this low. And while I read encouraging reports of survival re adanced stages in endometrial, uterine and ovarian cancer, the…
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Post Surgical Update
Hi Everyone! Just a little update after sugery on 3/27/18. I had a complete hysterectomy, lymph node debulking, omentum removal, vaginal biopsy, and other technical procedures. My surgery took over 10 hours. Blood donors are unsung heros, without them I would not be here today. Even as a person without any health issues,…
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Peach fuzz
Just wondering if you ladies know if it is common for your hair to start growing back if you had the sandwich treatment. My break was only 4 1/2 weeks and a week after my 4th treatment I got peach fuzz all over my head even when my eyebrows and eyelashes continued to fall out. If it is normal will it also fall out again?…
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Low white blood cell count
Checkup wasn't bad. My CA-125 went from 17 to 12 post-surgery (six weeks out), so that's good. It's the lowest it's been throughout this whole cancer journey. May it hit the single digits by the time of my sixth (and HOPEFULLY last) chemo session. I'm itchin' to ring that bell! That in combination with a boring,…
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Chris (aka Editgirl) Celebration of Life
I was able to attend Editgirl’s (aka Chris) Celebration of Life on Thursday, February 22nd. It was held at a beautiful winery called Viaggio, in Acampo, California. There were many in attendance, celebrating with complimentary wine, which Chris loved, and a beautiful lunch served outdoors. As we had come to know, through…
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Drug Reaction
My scalp started itching in January. I went and saw my PA. I thought he'd tell me the itching was a side effect of the Metformin I've been taking to try to prevent a recurrence of my UPSC, but instead, he told me I had psoriasis. He recommended Neutrogena T-gel shampoo, which I bought. When I first used it, I thought it…
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Biopsy date
I have a date for my D&C/biopsy/hysteroscopy. It is April 10. I was given a choice of 5 dates ranging from April 10 to June 28. While my first instinct was to take the latest one, I decided to take the earliest and get it over with. I am still scared as all get-out but hoping I will go through with it.
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Commercials
Is it just me...I just hate those commercials that portray those women with metastatic breast or lung cancer living a normal life. Running, working full time jobs, looking normal. My bet that’s not the reality for most. I worked for a pharma company and are very familiar with those dopey, naive marketing people and their…
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Question for those who have undergone radiation
Has anyone tried those donut pillows for vaginal/labia pain? I was just wondering if they work for that (I know they are made for hemmorhoid pain), if the hole is big enough to cover that part of the anatomy. I'm trying to deal with an irriated labia and I have cream that helps but it's not going to go away as long as I…
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Brand of probiotic?
It turns out I have to have external radiation. I have seen many posts about taking probiotics during treatment, but not much on which brands were used. Could you all share what brand of probiotics you are using? Thanks!
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POLE ultra-mutated endometrial cancer and immunotherapy
In addition to ultra-mutated endometrial cancer due to microsatellite instability (MSI), it seems if the tumor has the POLE exonuclease domain mutations then they would make good candidates for immunotherapy. It seems 10% of the endometrial cancer (both types) gets this mutation. If you have this mutation in your genomic…
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There is hope beyond cancer
Just got back from my yearly exam with the oncologist. I am not officially 8 years cancer free from USPC. They said I am one of the longest survivors there office has ever had with this kind of aggressive cancer. I have done nothing special besides doing the chemo & interanal radiation that they advised me to have. Just…
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Anybody heard from Amatullah?
Has anybody heard from Amatullah? I sent her a PM back at the beginning of the month but haven't heard back. It looks like she hasn't been online since February 28th, I hope she's okay...
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Let’s talk about Cannibas
So, I got my medical marijuana card and visited the dispensar. I’ve tried a few products (tictured, joints, gummies) and they have had absolutely no effect on me. It’s amazing how these things operate without giving a you any direction. I’ve resorted to taking advice from a few pot heads I know. I didn’t do this when I was…
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UTI’s
Thank you de Maus for the tip about using a spray bottle for these infections. I have just finished my 4th round and since I started using one I have had no signs. I used to get them regularly and it has been at least three weeks. I think you are on to something.
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The "new normal"
Do you ever get accustomed to this "new normal?" It's like I'm on the Wheel of Fortune every day. Each morning I get up and spin the wheel. Will it be a good day, a not-so-good day or a horrible day? Tuesday was a not-so-good day but I was at least functional. Yesterday was a horrible day - so dizzy I could hardly walk,…
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If you were me
Hi. I really need to rely on all of you and the immense knowledge you possess. My body just can’t handle cancer treatments. Hysterectomy last May, diagnosed stage 3c, grade 1. Began chemo early July. Total of 6 weeks delays due to significant neutropenia and low platelet counts which resulted in 3 hospitalizations. Dosage…
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POLE ultra-mutated endometrial cancer and immunotherapy
This is the third time I am trying to post this message. It seems if I add a hyperlink the post is deleted. In addition to tumours that have Micro Satellite Instability, it seems tumours that have the POLE exonuclease domain mutations are also good candidates for immunotherapy. If the genomic profiling of your tumour…
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POLE ultra-mutated endometrial cancer and immunotherapy
Hello, In addition to tumours that have Micro Satellite Instability, it seems tumours that have the POLE exonuclease domain mutations are also good candidates for immunotherapy. If the genomic profiling of your tumour indicated the POLE mutation and you are experiencing a recurrence please check with your doctor to see if…
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POLE ultra-mutated endometrial cancer and immunotherapy
It is my understanding that if a cancer has high mutation burden (like lung, melanoma) they are better candidates for immunotherapies. As far as I know ovarian cancer is a low mutation burden type of cancer and hence typically may have limitations in targeted therapies. Here is an article discussing that. Up until now I…
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Final chemo 3 weeks ago - still feel like a wet noodle...
Hi all, it has been a while since I posted - something to celebrate is that I finished my 6th and final taxol/carbo treatment! However, it has been a rough road since: I landed in the hospital with a fever and borderline neutropenia last week, and the weakness is incredible and does not go away. It has been 3 weeks, and I…
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How has Cancer changed you?
I have to ask. Many of you warriors know that I was and still am traumatized to think I had uterine cancer. What the hell? I never smoked, don't drink, didn't do anything except put a little transdermal patch on my body for hot flashes which are sooo bad. And according to my gyno oncologist, my tumor was estrogen driven.…
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Update Janae
Hey guys. There is so many new people and im glad this forum is still full of love and support. What a bleesing to not be alone. Im not on here as much as befor but was thinking about cancer and wanted to write. About two weeks ago i had another cancer update. My CA 125 was in normal range. Cant remember the number for…
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NED from Stage IV metastatic endometrial cancer
Hi, This is my first posting to this site. After reading many of the entries on this site, I felt I had to join. August 2014 - experienced post-menopausal bleeding - had ultrasound- endometrial lining was .8-.9cm-double what it should be(normal is .4cm) Sept 2014 - endometrial biopsy was not totally conclusive but…