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Miralgia Parasthesia after surgery
Wondering if anyone has experienced this problem after surgery and how long it took to resolve. This is numbness at the surface of the outer quad muscle extending from the hip to the knee. My surgeon seemed to expect they had traumatized the left femoral subcutaneous nerve because they checked for the numbness on initial…
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It is with great sadness I am posting Susan Rago's obituary.
Our Queen of Cheese lost her battle with this d*mn illness. She fought so hard but is now free from pain and in the arms of the angels. https://www.ramsaygroupfs.com/obituaries/Susan-H-Harrow-Rago?obId=19303823 My heart is broken. Love, Eldri
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gyn oncologist in California Uterine Carcinosarcoma (MMMT)
Hello Everyone I'm so glad this forum exist, there's so little information about Carcinosarcoma My lovely wife who is 40 years old was just diagnose with Carcinosarcoma, last week she was bleeding and went to ER and they discovered a big tumor in the Cervical area they did a D&C, they told us first it was a cervical cancer…
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Shortness of breath
I have just finished 4 of 6 planned chemo cycles and it seems each cycle I've had increased shortness of breath just walking short distances (like to the bathroom) I did have a bit of a rough go in that my very first chemo, I went into anaphylactic shock from the paciltaxel. I was allergic to the additive Cremophor in the…
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Rash
I'm currently in chemo Carbo/Taxol for a recurrence. I had my third chemo a week ago which is really chemo #9 and yesterday started a rash on my chin and lower face. Has anyone else experienced this? I called my doctor and the nurse said to take benydral and keep an eye on it. Benydral does seem to help but does not…
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Lymphedema in right leg
It has been awhile since I've updated after going off Keytruda/Lenvima. The lymphedema started last July in my right ankle. It gradually became worse, spreading from my toes to my groin area only on the right side. I only had 4 lymph nodes removed during my hysterectomy and they were on the left side. So we are thinking…
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Merry Christmas!
Merry Christmas, dear sisters. Thank you for yet another year of loving and supporting and teaching and learning. We have surely been through some sadness and fear this year, and some great losses as well. But there is joy and hope and strength and victory too. May God bless each of you as you have so beautifully blessed…
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New, worried about my mom
Helllo, My mom has had bleeding off and on for a few months and went to the doctor last week. They did a biopsy and the doctor called today to tell her it is uterine cancer. I am devastated. Tomorrow morning, she will be calling the oncologist for next steps and the ultrasound. I sincerely appreciate all of the posts and…
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Symptoms.
Hi all. Still here :) Just wondering if those of you that had or have a recurrence, what were your symptoms? If any? Besides that, I'm okay. Having chemo tomorrow where i start up on series 3. Then a scan but suapect that this chemo is not working. I still have options, thank god!! :)
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Solid tumors, mRNA, and two of the COVID vaccines
Reuters published this today: mRNA Vaccines May Need More Study for Treating Some Cancer Patients COVID-19 vaccines that employ new messenger RNA (mRNA) technology to fend off the illness may require further testing before it becomes clear they are safe for cancer patients with solid tumors, cancer treatment experts say.…
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Has anyone heard from CheeseQueen57 (Susan)?
I see she hasn't been on the board since December 2nd and at that time was not doing very well. I texted her but she hasn't answered. I'm hoping she's just recuperating and regaining her strength after going off treatment, but I'm worried. Love, Eldri
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Potential Covid exposure.... be extra careful!
My husband manages our own small rental property business. Four full days ago, he and a young friend went to check out a potential HVAC problem in a rental building's basement - and the friend developed symptoms that night. Friend called tonight to tell us he tested positive. They had traveled separately, were both always…
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Has anyone had Serous Uterine cancer + Positive Peritoneal wash and decline Radiation?
Hi Ladies I was just at my Post op check up appt today and they said they want to go with the 25 full torso radiation treatments and the 3 rounds of Chemo because my UPSC was in the Uterine lining as well as a tumor inside 4.5 cm. It had not gone into the muscle or middle layer of the Uterus. It was not in my lymph nodes…
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Dear Sisters,
In an earlier thread, Diane the Fighter, asked for some imput as to whether or not she should have radiation as part of her treatment. It's a struggle that evokes a sense of deja vu in many of us as well as empathy for her needing to make a decision regarding something that she is not an expert in. As is often the case in…
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Queen of Cheese (Susan), how did the Keytruda go?
How did your Keytruda infusion go yesterday? Please keep us updated if you feel good enough to do so! Love, Eldri
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Complimentary treatments adjuvant to Chemotherapy or as a stand alone treatment
I am 58 years old woman who lives in Toronto, Canada. I underwent surgery on October 19/20 , for preoperative diagnosis of serous cancer of the endometrium. This included a laparoscopic hysterectomy, bilateral saplingo-oophorectomy, bilateral pelvic sentinel lymph node dissection, paraaortic node dissection on the right…
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The "Outlier" persists....
Good day, Ladies. I am posting today mostly because I do think it help others newly diagnosed to hear life experiences that challenge the generalized statistics that we all know and dislike. I am a 15-year survivor of endometrioid adenocarcinoma who has been up to bat three times so far in the treatment sphere, likely…
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Serous endometrial cancer (UPSC) - please give me hope
Dearest members! I'm from Stockholm Sweden. My 71- year old mother was diagnosed with UPSC stage II B for about 3 months ago. She underwent surgery and will have her fourth cycle of chemotherapy next week. During the chemotherapy a CT scan was performed and further investigation showed that had positive cytology in one of…
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Happy Thanksgiving
While Thanksgiving will be very different this year than what we're used to, I hope everyone has a peaceful and safe holiday. And for those members who don't celebrate this U.S. holiday, extending warm wishes to you and your loved ones as well.
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Peritoneal Cancer - After Endometrial
Good Morning ladies... Happy Sunday! Wondering anyone on here, was dx with peritoneal cancer, after endometrial? If so, what were your symptoms... I know it is possible, even after a complete hyster/bso. Thanks.
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Lynparza
Ok so I am 8 years out! I’ve had 2 surgeries on my lung because of recurrence from UPSC ! I have also had radiation at the beginning and 2 sets of chemo! Carbo and Paclitaxol. I am suppose to start Lynparza because o have an mutation in my BRCA sequence. I’m not necessarily BRCA positive! Probably from chemo! I am afraid…
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My Internist of 11 years will not accept MediGap insurance anymore
Aaarrrhhhh! She got me thorugh my dx of cancer, has been a wonderful doctor who has been dealing with me as I degenerate into a puddle of old age complaints. Now I learn that she will not accept my Medicgap plan anymore. I cannot sign up for a Medicare Advantage plan because we live in two states, and I do not want to be…
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Medicare supplemental or advantage advice?
Well, I've defied the odds for long enough that I will be going on Medicare as of March. I live in CT, and would like to have access to Dana Farber and/or Sloan Kettering. Annual medical bills are likely to be high (although who knows, with no recurrence of uterine, and if the lymphoma stays in remission, all I'd have is…
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Uterine Biopsy and delayed bleeding???
Hi all. Posted several days ago that I had to have a biopsy done for a 14mm thickness. All went welll. Very minimal spotting. On day three I began to bleed. Lightly. Day 4, have to change my pad about two times, now today- day 5- I wake up with heavy bleeding!!! I called my dr yesterday and was told she would return my…
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Icing and increased pain in toes
Tomorrow I have my second round of chemo and after first round I experienced neuropathy in hands and feet. So I'm trying out the ice booties and hand mitts and am having a hard time tolerating the feet booties especially. The only thing that makes it more tolerable is to wear a thin sock. I find my toes are…
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UPSC and hormone replacement update - MA Bound
I had my 3-month check up a couple of weeks ago and, as expected, my gyn/onc recommended against hormone regulation. So, I'm trying the eggshell that MA Bound recommended, and I wanted to thank you for the information. It isn't something I found on my own. Also, a friend mentioned my neuropathy to his podiatrist who said…
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Comparison of Universal Genetic Testing vs Guideline-Directed Targeted Testing for Patients With Her
Interesting study about genetic testing in cancer patients. https://jamanetwork.com/journals/jamaoncology/fullarticle/2772576 Findings In this multicenter cohort study of 2984 patients with cancer, 1 in 8 patients had a pathogenic germline variant, half of which would not have been detected using a guideline-based…
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Fallopian tube girl on your uterine page
I'm sorry, Ladies to be on your board, but the PFTC boards (threads) are very quiet and "cmb" replied to my original post and kindly suggested I come here! I'm very impressed by the love and support you all give each other.❤️ Here's my original post: alicia2020 Posts: 1 Joined: Sep 2020 Sep 06, 2020 - 11:14 pm Hi, Ladies…
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New, Scared and full of questions
Hi everyone - Not loving I'm here, but it is what it is. Brief history: 54 , female (haha) February of '19 had a GUSHHHHING period so bad I ended up in the ER. Had a D&C w/hysteroscopy. Everything came back ok. Fast forward to June. Heavy period with massive clots lasting 40 days. Nine day break, then a 17 day period. Gyno…
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Needing help
Hey y'all. How is everyone today? I am a Uterine/Ovarian Cancer survivor. I will have been in remission 3 years this December. My health is starting to get bad again and I'm afraid with this corona virus being so rampant. I was wondering if anyone knows of any kind of Grants or donations for survivors. If so,please let me…