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5 year anniversary
Well it’s hard to believe today marks 5 years since my final chemo infusion and end of treatment. My external radiation was done in the beginning along with chemo, vs sandwiched in or at end of chemo. I was diagnosed at age 54 with Stage IIIC1, Grade 3, Mixed 50% Endometrioid Adenocarcinoma (EAC) and 50% Uterine Serous…
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Waiting results
Hope it's ok to ask a few questions here. I have not been diagnosed with cancer. I am 63, 10 years post menopause, had some bleeding, saw Dr--transvaginal ultrasound showed thickened something-- had biopsy today waiting results should be here Monday or Tuesday. From her experience looking at ultrasound pictures she said…
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Pelvic Lymphedema
Has anyone acquired lymphedema in their pelvic area (below the belly button)? if so, how long after surgery and what are you doing for it?
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Winter is long this year
Hi ladies, My laptop gave out, and it was so hard reading this site from my phone that I drifted away for a while. But I have a rare night to myself, and I've been thinking of you all so often. I noticed that this place is pretty quiet lately, and I just wanted to come in and turn the porchlight on and dust everything off…
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Hi girls ;)
It’s been a while since my last post. To be honest, I’ve been miserable.... Actually like I’ve never been before, in this crap journey. So about 2 months ago, I noticed that my left leg was thicker than the other. About 3 inches. At that point, that was all. Only the swelling. But oh my gosh, that changed. I’m in total…
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New Here and Very Frustrated with Kaiser Permanente
So to make long story short going on my second D&C in 3 year. Last one was negative for cancer had pendunculated fibroid or polyp removed in February 2019. Two years forward history of spotting and recent clotting and bleeding again and I am 55 and post menopausal. Had ultrasound last time and the stripe was enlarged or at…
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AFib
Anyone develop AFib during chemo? If so, how long did it take to go away? I had it through 6 cycles and was scheduled for a cardio conversation last Monday and when I went in to get that done, I for the first time in months was in normal sinus rhythm. So they sent me home and for almost a week, I go in/out of AFib. Next…
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What year and age dx?
What year were you diagnosed at, and at what age? What type of uterine cancer do you have?
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Alternate Chemo treatment Serous cell
Hi Guys, My wife has just had an MRI and it looks like the Paclitaxel/Carboplatin treatment is not being effective at fighting a reacurrence. My wife was originally diagnosed with Stage 1 high grade and had a full hystorectomy in June of last year. They staged the cancer as Stage 1A, but as 15% of cells were Serous they…
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Awaiting biopsy results
Hello everyone, hope it is ok for me to post on here. Not diagnosed, but waiting on results of biopsy. Still wrapping my head around it. I'm 46, but already postmenopausal (early). For about 4 years my period was 11 months apart, finally was at 2.5 years so officially considered post menopause. For the last couple months I…
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How quickly things change
I have done very well since deciding no more treatment and joined hospice to have someon to contact. Up until January 15. Was prefectly fine and then cancer hit with a vengence. Thankfully they put me in a hospice care unit for 7 days. Felt awful and frankly was ready to call the game, but alas they got me stable and sent…
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Question about treatment and keeping ovaries
Hi, this is my first time posting and I am glad to have found these boards. One year ago I had my uterus and fallopian tubes removed and found out that I had endometrial cancer, adenocarcinoma, FIGO stage 1. I had 2 D & C's prior to the surgery that came back inconclusive. I kept my ovaries because I did not know that I…
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Recurrence update
i received my first diagnosis of UPSC stage IIIc in April of 2014 and received the gold standard of treatment at the time surgery, 6 rounds of carbo taxol, 25 rads and brachytherapy. I was NED after the first infusion and remained that way until this past September when severe lower abdominal pain sent me to my local ER…
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MMMT
I have stage 3A Carcinosarcoma of the endomtrium. Had a hysterectomy and found that the fallopian tubes, right and left positive for tumor bilaterally. Had three lymph node removed. One positive for metastatic carcinosarooma. Ovaries, right and left negative for tumor. Getting ready to take three rounds of chemo, then 6…
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Neuropathy
For those who have finished chemo, did your neuropathy in your feet go away or has it been permanent? While you were going through chemo is there anything that gave you relief? I tried ice therapy and it gave me some relief early on, it does not help with the neuropathy at night in my feet which affects my sleep.
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Shortness of breath
I have just finished 4 of 6 planned chemo cycles and it seems each cycle I've had increased shortness of breath just walking short distances (like to the bathroom) I did have a bit of a rough go in that my very first chemo, I went into anaphylactic shock from the paciltaxel. I was allergic to the additive Cremophor in the…
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New Year's Resolution Suggestion - Update Your Profile
As mentioned by No Time for Cancer and Forherself recently, it's very helpful when a member includes some information about her diagnosis and treatment in her profile. Sometimes others forget that information when responding to a post, which may make our suggestions or experience less useful than intended. So please…
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2021 Is this the year they'll find a cure?
I know a lot of us here have a high-grade cancer. For most uterine cancer victims, a hysterectomy does the trick especially if it's in its early stages. They come here for help when they're diagnosed and we help them through the surgery but then they're gone. Don't get me wrong, I am extremely happy for them. But for most…
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MMMT Chemo / Radiation Regimen
For MMMT, has anyone had a regimen of Carbo/Taxel (C/T), then radiation, then Ifosfamide/Taxel (I/T) as first line treatment? I think I remember reading member CMB had this regimen. There have been a number of studies on C/T vs I/T and while C/T has not been found to be superior, it is now the standard of treatment. I…
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Endometrial cancer
Hi I wanted to know if any woman who past menopausal or in menopause have been dx with endometrial cancer? I am stage 3 a which isn't great. I am a bit down today cause my CA 125 has gone up again. I finished radiation in July 2020 and since it went from 20 to 44 and yesterday I found out it is now 86. My Dr feels it's…
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acupuncture for neuropathy
I am sorry I don't remember who suggested that acupuncture might help with neuropathy. Awhile back I posted about my problems with neuropathy becomming worse and the things recommended by the neurologist were not working. Well, I completed 8 sessions over 4 weeks. I would have continued but ran out of $$. Its been 12 weeks…
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MMMT Uterine Cancer
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Miralgia Parasthesia after surgery
Wondering if anyone has experienced this problem after surgery and how long it took to resolve. This is numbness at the surface of the outer quad muscle extending from the hip to the knee. My surgeon seemed to expect they had traumatized the left femoral subcutaneous nerve because they checked for the numbness on initial…
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It is with great sadness I am posting Susan Rago's obituary.
Our Queen of Cheese lost her battle with this d*mn illness. She fought so hard but is now free from pain and in the arms of the angels. https://www.ramsaygroupfs.com/obituaries/Susan-H-Harrow-Rago?obId=19303823 My heart is broken. Love, Eldri
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gyn oncologist in California Uterine Carcinosarcoma (MMMT)
Hello Everyone I'm so glad this forum exist, there's so little information about Carcinosarcoma My lovely wife who is 40 years old was just diagnose with Carcinosarcoma, last week she was bleeding and went to ER and they discovered a big tumor in the Cervical area they did a D&C, they told us first it was a cervical cancer…
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Shortness of breath
I have just finished 4 of 6 planned chemo cycles and it seems each cycle I've had increased shortness of breath just walking short distances (like to the bathroom) I did have a bit of a rough go in that my very first chemo, I went into anaphylactic shock from the paciltaxel. I was allergic to the additive Cremophor in the…
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Rash
I'm currently in chemo Carbo/Taxol for a recurrence. I had my third chemo a week ago which is really chemo #9 and yesterday started a rash on my chin and lower face. Has anyone else experienced this? I called my doctor and the nurse said to take benydral and keep an eye on it. Benydral does seem to help but does not…
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Lymphedema in right leg
It has been awhile since I've updated after going off Keytruda/Lenvima. The lymphedema started last July in my right ankle. It gradually became worse, spreading from my toes to my groin area only on the right side. I only had 4 lymph nodes removed during my hysterectomy and they were on the left side. So we are thinking…
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Merry Christmas!
Merry Christmas, dear sisters. Thank you for yet another year of loving and supporting and teaching and learning. We have surely been through some sadness and fear this year, and some great losses as well. But there is joy and hope and strength and victory too. May God bless each of you as you have so beautifully blessed…
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New, worried about my mom
Helllo, My mom has had bleeding off and on for a few months and went to the doctor last week. They did a biopsy and the doctor called today to tell her it is uterine cancer. I am devastated. Tomorrow morning, she will be calling the oncologist for next steps and the ultrasound. I sincerely appreciate all of the posts and…