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Carcinosarcoma presumptive 4B
O boy where do I begin ? I been looking at this page since March 24 everyday for hours at a time so I decided to just join and hopefully find some comfort . My mother was diagnosed with Uterine Carcinosarcoma and it feels like my heart and soul have been ripped from my chest , i don't want to take to anybody and I am just…
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Promising Lynch Article
https://www.mdanderson.org/publications/cancer-frontline/aacr-phase-i-trial-show-naproxen-promotes-immune-activation-in-lynch-syndrome-patients.h00-159381156.html?fbclid=IwAR0hvSlwvgJ_H7Q1s9BRAEuvOm2zhjWJc66tzdeHnNXHOGDrpAMroi3Y6Rg Good morning Ladies! More good news for those of us with Lynch. I hope everyone is having a…
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New article by the New England Journal of Medicine Endometrial cancer
https://www.nejm.org/doi/full/10.1056/NEJMra1514010#.X7cGIUBYvR4.twitter
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Biopsy negative, but still turned out to have cancer?
Hi All, I am a breast cancer survivor (10 years!), but this is my first time on the Unterine board. I was hoping you could help me with advice- I am 59 years old, post menopausal. Six months ago, an ultrasound revealed I had an ovarian cyst. My GYN told me it should be followed up again in 6 months. In the mean time, I had…
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Sanexas Therapy For Neuropathy
Hi everyone! Has anyone tried Sanexas therapy for Neuropathy. I looked it up and it sounds interesting and insuranance may cover it. Has anyone tried this, if so has it helped with your neuropathy? Here is a link to some information about the therapy.…
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Multiple Second Opinions
My mom has clear cell endometrial cancer and adenocarcinoma. After a hysterectomy followed with carbo-tax chemotherapy and radiation, she had a clear PET scan last summer. However, she had some intestinal trouble last November and learned that the cancer had recurred, presenting in her small intestine. She had part of her…
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Lung metastasis
Haven't done an original post since this started. I will update with most recent since I have posted my treatment side effects on other posts. I also searched through old postings on this subject but didn't find what I was looking for. Here goes. Had surgery for stage 3C2, G3 endometrial adenocarcinoma on 1 Dec 2020.…
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Fluff
I just learned that Fluff passed away Friday. She was in a Facebook group I'm in. So sad.
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Pelvic soft tissue mass on CT
Hi everyone. I'm here to support my mom (Stage IV UPSC). I've gotten so much good information from the posts, so I wanted to add in case anyone else has a similar situation. A little background--cancer was found last May, surgery in July (everything out including omentum), optimal result. 6 rounds carbo/taxol done in…
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My Recurrence Journey
It was seven years ago that I was diagnosed with UPSC stage 3 and I really thought I beat it when severe pelvic pain sent me to my local ER last August. The CT scan there showed 3 enlarged pelvic lymph nodes. I notified my gyn/onc and he immediately ordered the scan results and sent me in for a CA 125 which was in the…
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Carsinosarcoma 3 C
Need information please! My mom, age 88, has uterine cancer--carsinosarcoma Stage 3C1. She's had a hysterectomy and now has declined follow up treatment. I respect and understand this decision. From what I have read this is an aggressive cancer with poor prognosis. Can anyone help me understand what's ahead and how fast it…
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Farewell to Donna Faye
Not long after our dear Donna Faye bid us goodbye in her last post at https://csn.cancer.org/node/322878, she passed away amongst her beloved family. Her obituary is at https://www.articobits.com/obituaries/american-cremation-and-funeral-service-durham-nc/faye-gregory-obituary. It's a beautiful tribute to the woman we got…
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Lung metastasis
Haven't done an original post since this started. I will update with most recent since I have posted my treatment side effects on other posts. I also searched through old postings on this subject but didn't find what I was looking for. Here goes. Had surgery for stage 3C2, G3 endometrial adenocarcinoma on 1 Dec 2020.…
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14 pound overnight
Is 14 pound weight gain after hysterectomy normal. I just got home from the hospital and stepped on the scales - I have gained 14 pounds between going to the hospital yesterday and arriving home today. My stomach is bloated but my hands and feet aren’t swollen. the Only thing I have had to eat in 4 days is corn flakes this…
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Early stage Serous Endometrial Cancer article
This topic is discussed a lot on the board. I found this very recent article from the Mayo Clinic. I cannot post a live link so maybe someone else can. It confirms what we have discussed. https://pubmed.ncbi.nlm.nih.gov/33622859/
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Persistent unilateral hip/pelvic pain - could it be a met?
I'm a little bit worried, and hoping I might get some feedback. I've been having right sided hip pain for perhaps three months. It's intermittent - occasionally I'll have a day or two without it. It is not present when I'm lying or sitting down. Starts up about 15 minutes after I start walking around. It is sharp, twingy,…
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Medicare story
I want to share this slightly off topic story because many of us have Medicare. I recently had spinal fusion surgery and stayed one night. I am an RN and can manage my care at home, and I am concerned about the risk of hospital borne infection, especially MRSA and COVID. I have Medicare and Regence Blue Shield…
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Sad news - our dear Abbycat2
Ladies, and especially for those who have been fortunate to be around a few years, I have some sad news to share. We have lost our dear Abbycat2, Cathy. Below is her picture from her profile here on CSN. I had been in touch with her over all the years, having had the chance to meet her when she came through Indiana in…
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How to determine NED
Hello dear ladies, My mom is currently undergoing chemo: Carbo/Taxol and is in a Keytruda trial. She has finished 3 treatments so far and had a CT scan last week which showed some shrinkage of the tumors. I am trying to be optimistic and praying hard. When her planned 6 treatments end, she will have a CT scan. How do the…
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Hi im new and I have a supplements ?
Hi Im Izzy and im not a cancer patient but my mother has stage 4 and I know it has spread to lungs and lymph notes. she was diagnosed september 2020 and she had complication from a surgery she had so she didnt start first round of chemo until at the end of January. BTW my mom is a diabetic and was told her cancer was…
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Have I pissed of the universe?????
I must have done something wrong. I'm being punished..... :( So you all know I had a rough time after Christmas. And it just went from bad to worse. At the end, I was bedridden all day and I couldn't keep anything down. So at one point, I thought. This is not good. Went to the ER and they committed me to the hospital On…
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Nigella Sativa
I ran several searches and only saw the black seed oil (nigella sativa) mentioned in here in passing. Because I feel fairly new at this, I hesitate to say too much. I still have so much to learn and I don't know what's been discussed. I'm wondering if any of you have tried the nigella sativa (black seed oil) or know anyone…
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Promising news for serous cancer survivors
Dana Farber Cancer Center has some good results in a Phase 2 trial for recurrent serous endometrial cancer. I thought I would pass it along. This is their press release. The research is in a clinical journal cited in the article for those who wish more detail.…
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Hurting and waiting..
I had the biopsies last friday.. They didn't hurt, minor bit of cramping, but it lasted most of the day. Every day the spotting got a little worse, as did the pain. Today I switched from pantiliners to pads and the pain is steady.. Normal? Still no results, she told me they would be here Monday or Tuesday but plan on…
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Endometrium Biopsy
Hi Ladies I just found this forum last night. I appreciate all of your thoughtful answers. Here is my situation- maybe you can give me your opinions. I am 41 years old. I am not menopausal. Actually, my periods are very regular overall. However, in December, my period became super heavy with giant clots ( size of your…
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5 year anniversary
Well it’s hard to believe today marks 5 years since my final chemo infusion and end of treatment. My external radiation was done in the beginning along with chemo, vs sandwiched in or at end of chemo. I was diagnosed at age 54 with Stage IIIC1, Grade 3, Mixed 50% Endometrioid Adenocarcinoma (EAC) and 50% Uterine Serous…
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Waiting results
Hope it's ok to ask a few questions here. I have not been diagnosed with cancer. I am 63, 10 years post menopause, had some bleeding, saw Dr--transvaginal ultrasound showed thickened something-- had biopsy today waiting results should be here Monday or Tuesday. From her experience looking at ultrasound pictures she said…
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Pelvic Lymphedema
Has anyone acquired lymphedema in their pelvic area (below the belly button)? if so, how long after surgery and what are you doing for it?
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Winter is long this year
Hi ladies, My laptop gave out, and it was so hard reading this site from my phone that I drifted away for a while. But I have a rare night to myself, and I've been thinking of you all so often. I noticed that this place is pretty quiet lately, and I just wanted to come in and turn the porchlight on and dust everything off…
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Hi girls ;)
It’s been a while since my last post. To be honest, I’ve been miserable.... Actually like I’ve never been before, in this crap journey. So about 2 months ago, I noticed that my left leg was thicker than the other. About 3 inches. At that point, that was all. Only the swelling. But oh my gosh, that changed. I’m in total…