Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Uterine/Endometrial Cancer

Recurrence update
i received my first diagnosis of UPSC stage IIIc in April of 2014 and received the gold standard of treatment at the time surgery, 6 rounds of carbo taxol, 25 rads and brachytherapy. I was NED after the first infusion and remained that way until this past September when severe lower abdominal pain sent me to my local ER…
MMMT
I have stage 3A Carcinosarcoma of the endomtrium. Had a hysterectomy and found that the fallopian tubes, right and left positive for tumor bilaterally. Had three lymph node removed. One positive for metastatic carcinosarooma. Ovaries, right and left negative for tumor. Getting ready to take three rounds of chemo, then 6…
Neuropathy
For those who have finished chemo, did your neuropathy in your feet go away or has it been permanent? While you were going through chemo is there anything that gave you relief? I tried ice therapy and it gave me some relief early on, it does not help with the neuropathy at night in my feet which affects my sleep.
Shortness of breath
I have just finished 4 of 6 planned chemo cycles and it seems each cycle I've had increased shortness of breath just walking short distances (like to the bathroom) I did have a bit of a rough go in that my very first chemo, I went into anaphylactic shock from the paciltaxel. I was allergic to the additive Cremophor in the…
New Year's Resolution Suggestion - Update Your Profile
As mentioned by No Time for Cancer and Forherself recently, it's very helpful when a member includes some information about her diagnosis and treatment in her profile. Sometimes others forget that information when responding to a post, which may make our suggestions or experience less useful than intended. So please…
2021 Is this the year they'll find a cure?
I know a lot of us here have a high-grade cancer. For most uterine cancer victims, a hysterectomy does the trick especially if it's in its early stages. They come here for help when they're diagnosed and we help them through the surgery but then they're gone. Don't get me wrong, I am extremely happy for them. But for most…
MMMT Chemo / Radiation Regimen
For MMMT, has anyone had a regimen of Carbo/Taxel (C/T), then radiation, then Ifosfamide/Taxel (I/T) as first line treatment? I think I remember reading member CMB had this regimen. There have been a number of studies on C/T vs I/T and while C/T has not been found to be superior, it is now the standard of treatment. I…
Endometrial cancer
Hi I wanted to know if any woman who past menopausal or in menopause have been dx with endometrial cancer? I am stage 3 a which isn't great. I am a bit down today cause my CA 125 has gone up again. I finished radiation in July 2020 and since it went from 20 to 44 and yesterday I found out it is now 86. My Dr feels it's…
acupuncture for neuropathy
I am sorry I don't remember who suggested that acupuncture might help with neuropathy. Awhile back I posted about my problems with neuropathy becomming worse and the things recommended by the neurologist were not working. Well, I completed 8 sessions over 4 weeks. I would have continued but ran out of $$. Its been 12 weeks…
MMMT Uterine Cancer
Miralgia Parasthesia after surgery
Wondering if anyone has experienced this problem after surgery and how long it took to resolve. This is numbness at the surface of the outer quad muscle extending from the hip to the knee. My surgeon seemed to expect they had traumatized the left femoral subcutaneous nerve because they checked for the numbness on initial…
It is with great sadness I am posting Susan Rago's obituary.
Our Queen of Cheese lost her battle with this d*mn illness. She fought so hard but is now free from pain and in the arms of the angels. https://www.ramsaygroupfs.com/obituaries/Susan-H-Harrow-Rago?obId=19303823 My heart is broken. Love, Eldri
gyn oncologist in California Uterine Carcinosarcoma (MMMT)
Hello Everyone I'm so glad this forum exist, there's so little information about Carcinosarcoma My lovely wife who is 40 years old was just diagnose with Carcinosarcoma, last week she was bleeding and went to ER and they discovered a big tumor in the Cervical area they did a D&C, they told us first it was a cervical cancer…
Shortness of breath
I have just finished 4 of 6 planned chemo cycles and it seems each cycle I've had increased shortness of breath just walking short distances (like to the bathroom) I did have a bit of a rough go in that my very first chemo, I went into anaphylactic shock from the paciltaxel. I was allergic to the additive Cremophor in the…
Rash
I'm currently in chemo Carbo/Taxol for a recurrence. I had my third chemo a week ago which is really chemo #9 and yesterday started a rash on my chin and lower face. Has anyone else experienced this? I called my doctor and the nurse said to take benydral and keep an eye on it. Benydral does seem to help but does not…
Lymphedema in right leg
It has been awhile since I've updated after going off Keytruda/Lenvima. The lymphedema started last July in my right ankle. It gradually became worse, spreading from my toes to my groin area only on the right side. I only had 4 lymph nodes removed during my hysterectomy and they were on the left side. So we are thinking…
Merry Christmas!
Merry Christmas, dear sisters. Thank you for yet another year of loving and supporting and teaching and learning. We have surely been through some sadness and fear this year, and some great losses as well. But there is joy and hope and strength and victory too. May God bless each of you as you have so beautifully blessed…
New, worried about my mom
Helllo, My mom has had bleeding off and on for a few months and went to the doctor last week. They did a biopsy and the doctor called today to tell her it is uterine cancer. I am devastated. Tomorrow morning, she will be calling the oncologist for next steps and the ultrasound. I sincerely appreciate all of the posts and…
Symptoms.
Hi all. Still here :) Just wondering if those of you that had or have a recurrence, what were your symptoms? If any? Besides that, I'm okay. Having chemo tomorrow where i start up on series 3. Then a scan but suapect that this chemo is not working. I still have options, thank god!! :)
Solid tumors, mRNA, and two of the COVID vaccines
Reuters published this today: mRNA Vaccines May Need More Study for Treating Some Cancer Patients COVID-19 vaccines that employ new messenger RNA (mRNA) technology to fend off the illness may require further testing before it becomes clear they are safe for cancer patients with solid tumors, cancer treatment experts say.…
Has anyone heard from CheeseQueen57 (Susan)?
I see she hasn't been on the board since December 2nd and at that time was not doing very well. I texted her but she hasn't answered. I'm hoping she's just recuperating and regaining her strength after going off treatment, but I'm worried. Love, Eldri
Potential Covid exposure.... be extra careful!
My husband manages our own small rental property business. Four full days ago, he and a young friend went to check out a potential HVAC problem in a rental building's basement - and the friend developed symptoms that night. Friend called tonight to tell us he tested positive. They had traveled separately, were both always…
Has anyone had Serous Uterine cancer + Positive Peritoneal wash and decline Radiation?
Hi Ladies I was just at my Post op check up appt today and they said they want to go with the 25 full torso radiation treatments and the 3 rounds of Chemo because my UPSC was in the Uterine lining as well as a tumor inside 4.5 cm. It had not gone into the muscle or middle layer of the Uterus. It was not in my lymph nodes…
Dear Sisters,
In an earlier thread, Diane the Fighter, asked for some imput as to whether or not she should have radiation as part of her treatment. It's a struggle that evokes a sense of deja vu in many of us as well as empathy for her needing to make a decision regarding something that she is not an expert in. As is often the case in…
Queen of Cheese (Susan), how did the Keytruda go?
How did your Keytruda infusion go yesterday? Please keep us updated if you feel good enough to do so! Love, Eldri
Complimentary treatments adjuvant to Chemotherapy or as a stand alone treatment
I am 58 years old woman who lives in Toronto, Canada. I underwent surgery on October 19/20 , for preoperative diagnosis of serous cancer of the endometrium. This included a laparoscopic hysterectomy, bilateral saplingo-oophorectomy, bilateral pelvic sentinel lymph node dissection, paraaortic node dissection on the right…
The "Outlier" persists....
Good day, Ladies. I am posting today mostly because I do think it help others newly diagnosed to hear life experiences that challenge the generalized statistics that we all know and dislike. I am a 15-year survivor of endometrioid adenocarcinoma who has been up to bat three times so far in the treatment sphere, likely…
Serous endometrial cancer (UPSC) - please give me hope
Dearest members! I'm from Stockholm Sweden. My 71- year old mother was diagnosed with UPSC stage II B for about 3 months ago. She underwent surgery and will have her fourth cycle of chemotherapy next week. During the chemotherapy a CT scan was performed and further investigation showed that had positive cytology in one of…
Happy Thanksgiving
While Thanksgiving will be very different this year than what we're used to, I hope everyone has a peaceful and safe holiday. And for those members who don't celebrate this U.S. holiday, extending warm wishes to you and your loved ones as well.
Peritoneal Cancer - After Endometrial
Good Morning ladies... Happy Sunday! Wondering anyone on here, was dx with peritoneal cancer, after endometrial? If so, what were your symptoms... I know it is possible, even after a complete hyster/bso. Thanks.

Uterine/Endometrial Cancer

Discussion List

Discussion Boards