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Update from the newbie
Hi All - I am the newbie recently diagnosed who started a different thread about being scared and needing help. Everyone was great last weekend. I did talk to my doctor this week and got more info. I asked her about grade after D&C and hysteroscopy last week and she said this was not conclusive but the radiologist opinion…
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Urine Cytology in Detection of Endometrial Cancer with Dr. Emma Crosbie
In this episode of the IJGC podcast, Editor-in-Chief, Dr. Pedro Ramirez, is joined by Dr. Emma Crosbie to discuss urine cytology in detection of endometrial cancer. Dr. Crosbie is an NIHR Advanced Fellow, Professor and Honorary Consultant in Gynaecological Oncology at the University of Manchester. Her research focuses on…
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Scan time coming up...
- and im trying to be cool about it. Having blood work done tomorrow, scan Monday. Result 12 days later. It’s a long wait. In Denmark, scan results as well as result on blood work will be in my patient portal after some days. It’s hard times ahead. Wondering if any habe tried getting a recurrence 3-4 months after…
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Other Sites Or Groups?
Me again. Not that I wwnat to overload myself but are there any other support/user foorum websites or secure FB groups that are recommended. Thanks.
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Is There A Way To Get Email Notifications When Anyone Replies To Your Post
I have tried to find if there is somehwere where I can set my profile to get emials whne anyone replies to a pots or commnet I make so that I don;t have to keep logging onto te webiste and lookimng for my post but with no success. If anyone can guide me I'd appreciate it.
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Carcinosarcoma presumptive 4B
O boy where do I begin ? I been looking at this page since March 24 everyday for hours at a time so I decided to just join and hopefully find some comfort . My mother was diagnosed with Uterine Carcinosarcoma and it feels like my heart and soul have been ripped from my chest , i don't want to take to anybody and I am just…
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Promising Lynch Article
https://www.mdanderson.org/publications/cancer-frontline/aacr-phase-i-trial-show-naproxen-promotes-immune-activation-in-lynch-syndrome-patients.h00-159381156.html?fbclid=IwAR0hvSlwvgJ_H7Q1s9BRAEuvOm2zhjWJc66tzdeHnNXHOGDrpAMroi3Y6Rg Good morning Ladies! More good news for those of us with Lynch. I hope everyone is having a…
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New article by the New England Journal of Medicine Endometrial cancer
https://www.nejm.org/doi/full/10.1056/NEJMra1514010#.X7cGIUBYvR4.twitter
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Biopsy negative, but still turned out to have cancer?
Hi All, I am a breast cancer survivor (10 years!), but this is my first time on the Unterine board. I was hoping you could help me with advice- I am 59 years old, post menopausal. Six months ago, an ultrasound revealed I had an ovarian cyst. My GYN told me it should be followed up again in 6 months. In the mean time, I had…
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Sanexas Therapy For Neuropathy
Hi everyone! Has anyone tried Sanexas therapy for Neuropathy. I looked it up and it sounds interesting and insuranance may cover it. Has anyone tried this, if so has it helped with your neuropathy? Here is a link to some information about the therapy.…
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Multiple Second Opinions
My mom has clear cell endometrial cancer and adenocarcinoma. After a hysterectomy followed with carbo-tax chemotherapy and radiation, she had a clear PET scan last summer. However, she had some intestinal trouble last November and learned that the cancer had recurred, presenting in her small intestine. She had part of her…
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Lung metastasis
Haven't done an original post since this started. I will update with most recent since I have posted my treatment side effects on other posts. I also searched through old postings on this subject but didn't find what I was looking for. Here goes. Had surgery for stage 3C2, G3 endometrial adenocarcinoma on 1 Dec 2020.…
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Fluff
I just learned that Fluff passed away Friday. She was in a Facebook group I'm in. So sad.
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Pelvic soft tissue mass on CT
Hi everyone. I'm here to support my mom (Stage IV UPSC). I've gotten so much good information from the posts, so I wanted to add in case anyone else has a similar situation. A little background--cancer was found last May, surgery in July (everything out including omentum), optimal result. 6 rounds carbo/taxol done in…
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My Recurrence Journey
It was seven years ago that I was diagnosed with UPSC stage 3 and I really thought I beat it when severe pelvic pain sent me to my local ER last August. The CT scan there showed 3 enlarged pelvic lymph nodes. I notified my gyn/onc and he immediately ordered the scan results and sent me in for a CA 125 which was in the…
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Carsinosarcoma 3 C
Need information please! My mom, age 88, has uterine cancer--carsinosarcoma Stage 3C1. She's had a hysterectomy and now has declined follow up treatment. I respect and understand this decision. From what I have read this is an aggressive cancer with poor prognosis. Can anyone help me understand what's ahead and how fast it…
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Farewell to Donna Faye
Not long after our dear Donna Faye bid us goodbye in her last post at https://csn.cancer.org/node/322878, she passed away amongst her beloved family. Her obituary is at https://www.articobits.com/obituaries/american-cremation-and-funeral-service-durham-nc/faye-gregory-obituary. It's a beautiful tribute to the woman we got…
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Lung metastasis
Haven't done an original post since this started. I will update with most recent since I have posted my treatment side effects on other posts. I also searched through old postings on this subject but didn't find what I was looking for. Here goes. Had surgery for stage 3C2, G3 endometrial adenocarcinoma on 1 Dec 2020.…
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14 pound overnight
Is 14 pound weight gain after hysterectomy normal. I just got home from the hospital and stepped on the scales - I have gained 14 pounds between going to the hospital yesterday and arriving home today. My stomach is bloated but my hands and feet aren’t swollen. the Only thing I have had to eat in 4 days is corn flakes this…
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Early stage Serous Endometrial Cancer article
This topic is discussed a lot on the board. I found this very recent article from the Mayo Clinic. I cannot post a live link so maybe someone else can. It confirms what we have discussed. https://pubmed.ncbi.nlm.nih.gov/33622859/
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Persistent unilateral hip/pelvic pain - could it be a met?
I'm a little bit worried, and hoping I might get some feedback. I've been having right sided hip pain for perhaps three months. It's intermittent - occasionally I'll have a day or two without it. It is not present when I'm lying or sitting down. Starts up about 15 minutes after I start walking around. It is sharp, twingy,…
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Medicare story
I want to share this slightly off topic story because many of us have Medicare. I recently had spinal fusion surgery and stayed one night. I am an RN and can manage my care at home, and I am concerned about the risk of hospital borne infection, especially MRSA and COVID. I have Medicare and Regence Blue Shield…
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Sad news - our dear Abbycat2
Ladies, and especially for those who have been fortunate to be around a few years, I have some sad news to share. We have lost our dear Abbycat2, Cathy. Below is her picture from her profile here on CSN. I had been in touch with her over all the years, having had the chance to meet her when she came through Indiana in…
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How to determine NED
Hello dear ladies, My mom is currently undergoing chemo: Carbo/Taxol and is in a Keytruda trial. She has finished 3 treatments so far and had a CT scan last week which showed some shrinkage of the tumors. I am trying to be optimistic and praying hard. When her planned 6 treatments end, she will have a CT scan. How do the…
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Hi im new and I have a supplements ?
Hi Im Izzy and im not a cancer patient but my mother has stage 4 and I know it has spread to lungs and lymph notes. she was diagnosed september 2020 and she had complication from a surgery she had so she didnt start first round of chemo until at the end of January. BTW my mom is a diabetic and was told her cancer was…
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Have I pissed of the universe?????
I must have done something wrong. I'm being punished..... :( So you all know I had a rough time after Christmas. And it just went from bad to worse. At the end, I was bedridden all day and I couldn't keep anything down. So at one point, I thought. This is not good. Went to the ER and they committed me to the hospital On…
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Nigella Sativa
I ran several searches and only saw the black seed oil (nigella sativa) mentioned in here in passing. Because I feel fairly new at this, I hesitate to say too much. I still have so much to learn and I don't know what's been discussed. I'm wondering if any of you have tried the nigella sativa (black seed oil) or know anyone…
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Promising news for serous cancer survivors
Dana Farber Cancer Center has some good results in a Phase 2 trial for recurrent serous endometrial cancer. I thought I would pass it along. This is their press release. The research is in a clinical journal cited in the article for those who wish more detail.…
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Hurting and waiting..
I had the biopsies last friday.. They didn't hurt, minor bit of cramping, but it lasted most of the day. Every day the spotting got a little worse, as did the pain. Today I switched from pantiliners to pads and the pain is steady.. Normal? Still no results, she told me they would be here Monday or Tuesday but plan on…
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Endometrium Biopsy
Hi Ladies I just found this forum last night. I appreciate all of your thoughtful answers. Here is my situation- maybe you can give me your opinions. I am 41 years old. I am not menopausal. Actually, my periods are very regular overall. However, in December, my period became super heavy with giant clots ( size of your…