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Uterine/Endometrial Cancer

Pls Help Me Quiet the Hamster Wheel of My Mind
Hello - I have been lurking on this board all day and love how supportive everyone is. Here's my background - I pretty much stopped having a period from about 40 years old to 48. I attributed it to early menopause. I started bleeding heavily last year and was diagnosed with endometrial hyperplasia. It was not atypical. I…
New to Forum
Hi Everyone! I tried to post a new thread to introduce myself yesterday but kept getting an error message...hoping this works...I'm not usually such a tech mess-up... I'm new here although I have been fighting UPSC for a year now...I am Stage IVB. I had a complete hysterectomy in November 2016, 6 rounds of…
Not giving up!!
Ive just booked an appt with my GP, to discus some repurposed drugs I've found. LDN, dipyridamole and disulfiram. I hope he will prescribe it to me. Already on the COC protocol. I refuse to give up. I have so much to live for still. All 3 children are still living at home. I need to stickl around for them as long as…
Message from Susan, the Queen of Cheese
I just got a text from CheesyQueen57 (Susan). She said she wasn't up to posting yet but was ok with me sharing this with you all. "I’m doing better. The tummy bloating seems better and I’ve been able to control the nausea. Let’s hope the treatment works at least for a little while." I'm praying the treatment works!! Love,…
Still around 9 year survivor MMMT
Good Morning Everyone, It has been awhile since I posted. I was contacted by No Time for Cancer and she said I needed to post as some of the long timers were wondering if I was still around. Yes I am still here. It has been 9 years since my last chemo treatment Aug 22 2011 from Stage 3c1 Carcinoma sarcoma Uterine cancer…
Wait until there is vaginal bleeding?
Hello, I am so grateful to find this amazing community and am humbled by your strength and fellowship. I do not have a diagnosis of endometrial cancer, but did have a concering transvaginal ultrasound result. I was wondering if anyone here could comment. I am 53 and postmenopausal. I have been feeling very bloated, but…
UPSC new study results
https://ascopubs.org/doi/abs/10.1200/JCO.20.00549 Molecular Classification of the PORTEC-3 Trial for High-Risk Endometrial Cancer: Impact on Prognosis and Benefit From Adjuvant Therapy I have the p53 mutation, 70% of serous have the p53 mutation which has a poorer prognosis. Does this explain why some UPSC survive and so…
Six years, still NED from metastatic EC
It’s been awhile since I last posted, but wanted to let you know that I am still here and it is now six years since I was diagnosed with advanced, then metastatic endometrial cancer, and I’ve been NED for over five of those years. It is hard to believe it has been six years already. Congratulations to all who have…
FIVE YEARS and I'm still alive!!
Five years ago today I had my hysterectomy. When I went in for my first doctor visit, he gave me the bad news I had UPSC. He ordered an MRI and x-rays to see if it had spread beyond the cervix. Based on those test results he decided not to go back in and take lymph nodes. That's why I was given a Stage II/III, Grade 3…
This is just to make you laugh
My lymphedema in my right leg began to swell about a month ago. Because it swells all the way to the top of my leg, my PT has been wrapping the leg and I leave it for 48 hours. It has begun to get much better but he says I need support hose. We tried the knee highs but that made the thigh worse; we tried the thigh high but…
Decision time
Update: Met with Hospice and now better understand their role. Guess I am not ready for it, so they say. In order to keep my lymphedema PT, I need to remain free agent ( : ????Just got a phone call from Hospice super and she says I can keep PT and the nurse just check every few weeks.??? So guess you will have to wait and…
CT ok (I think), granuloma
I just had my 6 month CT, see below (finished chemo and radiation in 6/2018 for stage 3a). Although the fluid and spot he identified are described as unchanged, this is the first time they've been noted (4th CT altogether). He only mentions the last scan, which makes me wonder about the earlier ones. No growth in 6 months…
Update from me...
Hi all. Ive been away for a while. I'm doing weekly Topotecan. 3 times weekly, one week off. Just had my #4 yesterday. My CA125 was 600 before treatment started. Had my blood drawn on August 28th. Its now 1410 after the first 3. 18 chemos planned.. So I guess it is not working. Unless this topotecan is taking some time…
Stage 1 Grade 1 Adenocarcinoma
Good Morning ladies... Been a very long time , since I have posted on the board however, I know this site and our group is amazing for advice, support and comfort. I was dx Nov 1 2017, full hyst and BSO on Dec 8 2017 and placed into remisson Jan 2018 after staging results where returned and confirmed with the tumor board.…
How to deal with waiting?
Hi ladies, a few days ago my gyno called me in to tell me a polyp she removed is suspicious for adenocarcinoma. I am scheduled for a CT scan on the 11th and will be scheduled for a hysteroscopy with biopsy ince my period arrives (based on my body signs, within a week). While she has told me thst signs point to it being at…
Three
Dear sisters: Today I picked up the results of my CT scan which marked three years since the end of treatment for Stage IVB, Grade 2 endometrioid endometrial adenocarcinoma. Before I began to post tonight, I went back and read my first post here (Feb of 2018 after reading every post on this site beginning in April of 2017…
Letrozole + Ibrance for ER+ endometrial cancer
Saw this announcement today and thought I'd share it with you all. It's a small study but with promising results for advanced or recurrent estrogen receptor positive endometrioid type endo cancer (those of you with serous should also read it). CDK4/6 Inhibition Boosts PFS in Endometrial Cancer
Getting a port on Friday
So I went for my second Adriamycin treatment for my breast cancer. I had talked to my oncologist early in the morning about a need for the port because the MRI guy had a hard time finding a good vein the week before. The nurse warmed up both hands to find a vein and she got one on left hand, but did advise that since I…
Re Nine and a Half Years Cancer Free!
Hello Ladies: I saw my oncologist this past Monday, August 24th. My CA No. is 14. It was the same number last year. My oncologist wants to see me next year in August and he said that my UPSC Stage 1 Cancer that I was diagnosed with in February of 2011 (Nine and a half years) is Unlikely to come back. That is very much a…
5 year anniversary survived stage IIIC endometrioid adenocarcinoma
Hi, just wanted to post some hope for those going through a scary time. I just passed my five year anniversary since my treatment began for Stage IIIC, grade 2 endometrial cancer (endometrioid adenocarcinoma). It had spread to my pelvic lymph nodes, which boosted up my initial "don't worry about it" Stage 1 version of no…
Reoccurence
I happily posted last December that I was five years cancer free following treatment and then out of the blue the cancer is back. UPSC is certainly sneaky. I was having severe lower abdominal pain last week that I thought might be diverticulitis but no the only thing they found on the CT scan were enlarged pelvic lymph…
3 Years NED with Uterine Carcinosarcoma (MMMT)
I'm conflicted in posting this. On the one hand I know how important it was for me when I was first diagnosed to learn that some women with my type/stage of cancer (Stage 3B, Grade 3 uterine carcinosarcoma or MMMT) did survive longer than the typical statistics. On the other hand, I feel so badly for those women who…
Medicare Drug Plans
With the change period on the horizon I'm starting to think about drug plans. I have traditional Medicare and plan F for my supplement which I chose at the time because of my cancer background. My drug plan did well for the couple meds I'm on. But now with the recurrence things have definitely changed. Have any of you…
Checking in and saying "Hello!"
Hi Everyone: Sending you all hugs! Its been a few months since I check in. I'm hanging in there. I have a scan coming up in November. However, my work changed our insurance in September so now none of my cancer doctors or centers is covered. One good thing is that my doctor who left in April of this year and went into a…
Thank you for all your comforting words
Thank you for everyone thinking of me during this most difficult time in my life. Tears are running down my face as I read your responses and all the love and care and heartfelt emotions that you were giving to me. I can't even tell you how much that meant to me. My husband ended up with double sepis after a failed…
YAY! Port removal.
Had my port removed one week ago today. Everything went well. I finished treatment in March of 2019. All is well. Now, if only this damn virus would go away, I want to travel.
So... I checked my portal...
And the bloody beast is back. :( Iys in my abdominal wall/muscles, and there is a bit of both peritoneal carcinomatosis and a small amount of asctis... CA125 was 32 4 months ago. Now it's 600 :O Firwt though was... I'm gonna die. That peritoneal carcinomatosis is not so good though. Right? That part killed you in the old…
What do you do during infusions?
If you're icing your hands and feet, what do you do to pass time? I understand there's a few hours of this. The first time I would probably be too worried, thinking and overthinking, worrying about reactions. But when you're not doing this, how do you cope with inactivity?
hip and leg pain after chemo
I finished 6 rounds of chemo April 5, 2012. A week later I began to feel pain all over and now it is getting worse. Especially in my hips, buttocks and knees. I thought it was because I hadn't worked out, but the pain is waking me in the middle of the night. Even my hands hurt to make a fist. Is anyone going through this?…
VAT assisted lung biopsy
Hi all. Hope you are all doing well in these crazy times. I was diagnosed with endometrial cancer last year; grade was 3 so I had a hysterectomy really fast on April 15. I was staged 1A. The pre-operative scans revealed 2 lung nodules (stable at 3mm each up till now), but also a section that is 0.9cm of ground-glass…

Uterine/Endometrial Cancer

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