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Acceptance
I had uterine cancer that had spread to the cervix. I had a radical hysterectomy in September 2008, followed by radiotherapy and brachytherapy which finished in January 09. The surgeron thought it had spread and was in the lymph Nodes and told me so after the surgery, but we had to wait for the path report, which would…
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Arthur (From Public Broadcasting TV) Special Show w/Lance Armstrong- Helping kids cope when someone
Today I went to the WGBH Studio in Boston for a special screening of an Arthur episode that will air tomorrow, Monday 10/19. The epsiode is about helping kids cope when someone has cancer and features Lance Armstrong. The school nurse at my childrens elementary school called me the other day to tell me about it and put me…
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Radiation Colitis
Another question, sorry I recently ended up in hospital again, with severe stomach cramps, nausea etc, and after 5 days on Morphine etc, had a CT scan,an a colonoscopy. They finally decided that for a better want of a diagnosis they would call it radiation colitis (say the radiotheapy had caused a narrowing of the bowel,)…
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When is my "1 Year Survivor' date? When do we count back from?
When people say they are a '1 year survivor', or '5 years cancer-free', what date do you use to figure out your 'anniversary date'? The day they first used the word 'cancer'? The day of your diagnosis? The day you started treatment? The day you finished treatment? I don't want to miss an anniversary celebration! HA! Anyone…
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H1N1 and other vaccines
Ladies, Have you checked with your doc re: need to get this vaccine?? I did and he said "YES" - I am considered in high risk group. I am nearly 8 months post treatment. I also got the regular flu shot and recently pneumonia and shingles vaccines. All covered by insurance. Stay healthy everyone - keep washing the hands and…
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Any FaceBook ladies out there?
I just joined FaceBook, something I resisted since I have enough distractions to keep me from getting my work done. But it's my brother's preferred way of keeping in touch, so I went in and created a profile. Anyone other FaceBook-ers here? Want to be my FaceBook friend? If so, please search for me there (I live in…
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I was interviewed and quoted about Online Support Groups for Uterine Cancer Survivors
A couple of months ago I received a call from the people who administer this website, asking if I would be willing to talk to a writer for an online Health magazine about online Discussion Boards as a support option for uterine cancer survivors. I said I was willing and I spoke with the writer on the phone. I just came…
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B17 - Help Claudia!!
Has anyone heard of this? I see that one person posted about her mother taking this and it was helpful for her stage 4 cancer. Apparently this is the same or similar to laetrile - the controversial apricot seeds that years ago people were going to foreign countries to get. The person that told me about this mentioned that…
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Billed cost of treatments (chemo, CT-scans, PETs, radiation, Neulasta)??
I'm just curious what everyone's insurance is billed for various treatments. My insurance had been paying pretty good, aside from my crazy-high deductible, but I am shocked at what they are billed for each treatment. Each round of carbo/taxol was billed at close to $16,000. Each CT-scan was billed at approximately $11,000…
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Good news for Mom today
As you may know my Mom has inoperable uterine cancer. She has recently started on weekly doses of Taxol. The first three week cycle has finished and no ill effects. Her H&H this week is 10.5 & 31.5. She didn't even need Procrit this week! Her platelets are 102,000 which is great for her! The lymph nodes in her neck have…
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My Mother in remession on first check up
Hello Everyone, Helping me lot. I am too young to learn all these things but i just did for my mother. As you she was diagnosed 3c grade 1 endo adenco... she was due her checkup today and her scan becomes clear and CA125 is 5.6. I am so happy for her and i prayed for you guys also. God helps us. I am feeling relaxed here…
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10 months NED!!!!
Mom had her 10 month follow up - last treatment was on Dec 2008. Pelvic exam and Ca 125, all good. We are waiting for the PAP test, but not many worries for that. For those whose ca125 is going up, PLEASE do not let number dominate your lives, mom's ca 125 went up from 14 to 21 and then 24, but the last one is 22. Good…
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Questions about my mom
Hello.. My Mom may have uterine cancer according to her Ct scan of her abdomen. She is having a hysterectomy on 8/26 with biopsies, it will be done by a gynecologic oncologist. She said she is shocked by this tentative diagnosis. She has been working full time as a nurse up until 2 weeks ago when she landed in the ICU for…
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10 days post first chemo treatment
Hi, First time posting except on roll call. Had my staging surgery April 1st, and great news,,,no positive nodes, biopsies negative, and washings negative!! Received first carbo/taxol treatment on April 29th. Had horrific bone and joint pain, slight nausea and general yuckiness from the following Thursday thru Sunday.…
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I found a comparison of Intensity Modulated Radiation Therapy (IMRT) with Conventional Radiotherapy
There was recently some discussion on whether there were any benefits for using the more costly IMRT as opposed to the conventional radiation for external pelvic radiation. Since I started IMRT today, I did some research this afternoon and came across this article that seems to justify seeking IMRT as your external…
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Lying to children: a funny true story
My 8 year old granddaughter saw my dilator and lubricant lying on my bed stand this afternoon, and asked "What's this, Grammy?" I answered "It's for my cancer, honey", hoping she'd let it go. No chance. "What do you do with it?" Channelling my own grandmother, (who told me as a child that the big box of Kotex and little…
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update
I have been going back and forth with my dr since Feb. Ultrasounds, blood work, lap, D&C, and hysteroscopy (sp?). Had another appt with gyno yesterday and he says its time to do a hysterectomy. He actually said we probably should've went that route first, instead of doing all these other tests and procedures. The last…
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Celebrating another 3 months of living NED
Aloha All passed my THIRD 3 month check up with oncologist...no evidence of disease; CA 125 went up one point (11 from 10, but the one before was 11 so Dr considers it stable); doing better overall but the anxiety just before the appointment got out of control and I was not pleasant; plan the next time to hide for a couple…
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Newbie questions
I was dx with uterine cancer sept.24 09. I am only 38 years old.I am obese. . It was a total shock. I did not expect this at all.I have to boys w/ autism and one has a seizure disorder just DX . I go to the cancer doctor on Oct. 5 09 to find out about surgery. This is what I know .My uterus is 8cm or larger in size normal…
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Alternative and complementary care
Is anyone here using alternative or complementary care for your cancer? Do you know of any cases of people who have? Have you researched info about other modalities, such as Traditional Chinese Medicine (acupuncture), hormones, nutrition, exercise, biofeedback, etc., and have information or references you can share with…
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Has anyone taken cisplatin, doxorubicin and cyclophosphamide? Please share your experiences.
My mom's doctor recommend this combination for recurred UPSC. Please share your side effects and whether the drug works for you. Thank you
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Depression
I was diagnosed with cancer of the uterus 5 weeks ago and had a complete hysterectomy 4 weeks ago. I also went off all hormone therapy and quit smoking. The biopsy of the organs and lymph nodes that were removed showed cancer in the uterus only but not in the lymph nodes. My doctor said that I might want to consider…
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Newbie with concerns
I haven't been diagnosed with uterine cancer and hopefully wont but would like some advice. Briefly, I had an ablation with D&C 5 yrs ago where they found adenomyosis deep in myometrial. The Doctor was surprised by this as she was just expecting to find a polyp which was what the ablation and D&C were for. Anyway, she…
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echo
anybody here?!!
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Back where I started!??!!!???
Went for my check up with the dr and basically was told that the biopsy he took from the area of suspision was inadequate. He said there was too much scar tissue in the way from the ablation to surgicaly fix it during the hysteroscopy. He also left a cyst on my ovary that is about the size of a softball. why? because he…
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RED SPOT ON VAGINAL CUFF......YEEKS OR NOTHING-internal radiation..no pain..no problem
WENT FOR FIRST INTERNAL RADIATION PROCEDURE WAS PAINLESS BUT STARTED OUT GETTING A BIOSY..BACAUSE RADIOLOGIST SAW A RED SPOT ON THE CUFF.... THEY R HOPING THAT IT IS GRANUAL TISSUE-SCAR TISSUE....AT LEAST THEY DID THE RAdiation.... it was not so bad..a pelvic exam..follow by catscan...lie flat on gurney completely covered…
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How to know if Cancer has spread
I am wondering what type of symptons would we have if the cancer started spreading. I read Frans post where she said by the end of the day her bra hurt and that was from the cancer in her lungs. I will have a full body scan around the one year anniversary from my surgery and lots of follow up appointments with all my…
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teeny tiny transparent EYELASHES have sprouted! I'm THRILLED!
This must prove what a shallow human being I am, but I was soooo happy to see tiny (and I mean TINY) eyelashes beginning to sprout on my naked eyelids at LAST! I ran down all thrilled to show them to my husband, but he just said "I can't see them". Well, I can only see them in perfect light, as they are almost transparent…
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sleeping problems
Hi everyone, happy spring to us all. I don't know if this has been discussed but I need to ask anyway. Is anyone else having problems with sleeping unless they take a sleeping aide? I go to bed but I just lay there, I don't drink caffeine before going so that's not it. I don't nap during the day either. It's just a hour…
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Oncology review☆
I just got the transcript of the "Management of women with uterine papillary serous cancer: A Society of Gynecologic Oncology (SGO) review" 2009. I haven't gotten through it yet it is pretty long and technical. Since we all know how limitied info on UPSC is I thought many of you might be interested, but I am not sure how…