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port use
dear linda and sisters, i'm almost through with chemo, and am seriously considering removing my port. what do people think about that, and have any of you had yours removed. if, god forfend, i need it again, i could have another put in. i got the impression from my surgeon that there were not additional things medicine…
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Back from my Post-Op Appt.
Hello Ladies, Just returned from my Post-Op Appt. My incisions are healing well, except for that one above my navel. That one is so sore, but apparently that one is the deepest one. I can return to work when I want (originally she signed off on a month), but I am able to work from home and I am losing my mind. I am a…
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Just Diagnosed
I was just diagnosed with Uterine Cancer a little over a week ago. I had my ct scan last week and Have an appointment with the oncologist on Nov 4. I don't know much of anything other than I have Uterine Cancer. BTW I am 56 years old and have not started menopause because of this. I have bad lower back pain, pain in my…
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Please tell all what is our ca125 to motivate others
My mother ca125 was 117 u/ml now it is 6 u/ml and your s please post. Kumar
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For those of you who want to know things to look for post surgery
Here's a url to copy and paste: http://www.wdxcyber.com/nbleed13.htm
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Raditation followup not sure---
Hello everyone! It's been a while since I've been away from this post and now I'm back to ask you guys for your experience or opinion about this. This past summer I only had one chemotherapy and got bad side effects that I got colon infection and abscess so they've decided to stop the treatment. I got better few months…
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Questions regarding urinary incontinence
Look for a complete discussion in the thread Question after radition therapy or something like that. Here is what I put in the Google search to find these references: radiation treatment incontinence and these are some of the reports that showed up. If you look farther on the page of the report for references, you can find…
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Something still wrong with the boards??
Seems like my posts are still not showing up...anyone know what is going on?? Laurie
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NED
I had my first 6 month CT scan on Monday (I finished treatment at the very end of March). I was due for my physical and results this Monday, but I worked myself into such a dither -certain I was on my way to a full blown panic attack (never had one before, but I can only assume that is what was happening to me). Decided to…
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Grading
Joined: Oct 2009 October 19, 2009 - 9:41pm New Zealand v America I had cancer of the uterine and cervix. Hi I am interested to know if anyone knows whether the stages etc are rated the same in New Zealand as America. I was classed as Grade2 T2b which I think is the same as your grading, but wasn't give chemo as as far as…
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Resources
When I got my diagnosis and found out I would need chemo and radiation treatments, the nurse gave me multiple booklets and printed information. She suggested that I register with the American Cancer Society. She said they would send me information in the mail. I called the number the nurse gave me. The American Cancer…
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Confirming--replies are not posting
It does appear that the replies are not posting. I will send a message to CSN Karen
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Acceptance
I had uterine cancer that had spread to the cervix. I had a radical hysterectomy in September 2008, followed by radiotherapy and brachytherapy which finished in January 09. The surgeron thought it had spread and was in the lymph Nodes and told me so after the surgery, but we had to wait for the path report, which would…
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Arthur (From Public Broadcasting TV) Special Show w/Lance Armstrong- Helping kids cope when someone
Today I went to the WGBH Studio in Boston for a special screening of an Arthur episode that will air tomorrow, Monday 10/19. The epsiode is about helping kids cope when someone has cancer and features Lance Armstrong. The school nurse at my childrens elementary school called me the other day to tell me about it and put me…
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Radiation Colitis
Another question, sorry I recently ended up in hospital again, with severe stomach cramps, nausea etc, and after 5 days on Morphine etc, had a CT scan,an a colonoscopy. They finally decided that for a better want of a diagnosis they would call it radiation colitis (say the radiotheapy had caused a narrowing of the bowel,)…
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When is my "1 Year Survivor' date? When do we count back from?
When people say they are a '1 year survivor', or '5 years cancer-free', what date do you use to figure out your 'anniversary date'? The day they first used the word 'cancer'? The day of your diagnosis? The day you started treatment? The day you finished treatment? I don't want to miss an anniversary celebration! HA! Anyone…
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H1N1 and other vaccines
Ladies, Have you checked with your doc re: need to get this vaccine?? I did and he said "YES" - I am considered in high risk group. I am nearly 8 months post treatment. I also got the regular flu shot and recently pneumonia and shingles vaccines. All covered by insurance. Stay healthy everyone - keep washing the hands and…
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Any FaceBook ladies out there?
I just joined FaceBook, something I resisted since I have enough distractions to keep me from getting my work done. But it's my brother's preferred way of keeping in touch, so I went in and created a profile. Anyone other FaceBook-ers here? Want to be my FaceBook friend? If so, please search for me there (I live in…
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I was interviewed and quoted about Online Support Groups for Uterine Cancer Survivors
A couple of months ago I received a call from the people who administer this website, asking if I would be willing to talk to a writer for an online Health magazine about online Discussion Boards as a support option for uterine cancer survivors. I said I was willing and I spoke with the writer on the phone. I just came…
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B17 - Help Claudia!!
Has anyone heard of this? I see that one person posted about her mother taking this and it was helpful for her stage 4 cancer. Apparently this is the same or similar to laetrile - the controversial apricot seeds that years ago people were going to foreign countries to get. The person that told me about this mentioned that…
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Billed cost of treatments (chemo, CT-scans, PETs, radiation, Neulasta)??
I'm just curious what everyone's insurance is billed for various treatments. My insurance had been paying pretty good, aside from my crazy-high deductible, but I am shocked at what they are billed for each treatment. Each round of carbo/taxol was billed at close to $16,000. Each CT-scan was billed at approximately $11,000…
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Good news for Mom today
As you may know my Mom has inoperable uterine cancer. She has recently started on weekly doses of Taxol. The first three week cycle has finished and no ill effects. Her H&H this week is 10.5 & 31.5. She didn't even need Procrit this week! Her platelets are 102,000 which is great for her! The lymph nodes in her neck have…
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My Mother in remession on first check up
Hello Everyone, Helping me lot. I am too young to learn all these things but i just did for my mother. As you she was diagnosed 3c grade 1 endo adenco... she was due her checkup today and her scan becomes clear and CA125 is 5.6. I am so happy for her and i prayed for you guys also. God helps us. I am feeling relaxed here…
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10 months NED!!!!
Mom had her 10 month follow up - last treatment was on Dec 2008. Pelvic exam and Ca 125, all good. We are waiting for the PAP test, but not many worries for that. For those whose ca125 is going up, PLEASE do not let number dominate your lives, mom's ca 125 went up from 14 to 21 and then 24, but the last one is 22. Good…
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Questions about my mom
Hello.. My Mom may have uterine cancer according to her Ct scan of her abdomen. She is having a hysterectomy on 8/26 with biopsies, it will be done by a gynecologic oncologist. She said she is shocked by this tentative diagnosis. She has been working full time as a nurse up until 2 weeks ago when she landed in the ICU for…
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10 days post first chemo treatment
Hi, First time posting except on roll call. Had my staging surgery April 1st, and great news,,,no positive nodes, biopsies negative, and washings negative!! Received first carbo/taxol treatment on April 29th. Had horrific bone and joint pain, slight nausea and general yuckiness from the following Thursday thru Sunday.…
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I found a comparison of Intensity Modulated Radiation Therapy (IMRT) with Conventional Radiotherapy
There was recently some discussion on whether there were any benefits for using the more costly IMRT as opposed to the conventional radiation for external pelvic radiation. Since I started IMRT today, I did some research this afternoon and came across this article that seems to justify seeking IMRT as your external…
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Lying to children: a funny true story
My 8 year old granddaughter saw my dilator and lubricant lying on my bed stand this afternoon, and asked "What's this, Grammy?" I answered "It's for my cancer, honey", hoping she'd let it go. No chance. "What do you do with it?" Channelling my own grandmother, (who told me as a child that the big box of Kotex and little…
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update
I have been going back and forth with my dr since Feb. Ultrasounds, blood work, lap, D&C, and hysteroscopy (sp?). Had another appt with gyno yesterday and he says its time to do a hysterectomy. He actually said we probably should've went that route first, instead of doing all these other tests and procedures. The last…
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Celebrating another 3 months of living NED
Aloha All passed my THIRD 3 month check up with oncologist...no evidence of disease; CA 125 went up one point (11 from 10, but the one before was 11 so Dr considers it stable); doing better overall but the anxiety just before the appointment got out of control and I was not pleasant; plan the next time to hide for a couple…