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Remission Scanning - How often?
I am wondering how often scanning is being recommended by your oncologists once you have completed treatment. I find some women have every three months, every six months, yearly and some none at all. I am not sure if there is not a recommended protocol or if insurance is dictating how often this followed once treatment is…
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The Best News Ever about my Mom!
Hi Ladies, I just wanted to finally update the board on my Mom's pathology report. There are NO signs of cancer!!!! Just to refresh...my Mom was hospitalized for sepsis in August. While there, they did a CT of her belly. It showed several masses in the uterus and outside the uterus. It suggested a disseminated sarcomatous…
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Hot Flashes: Any remedies!!!!!
I had my hysterectomy on Aug 26th and the last week I've been getting major hot flashes. Hormone Replacement is out of the question since my Mom is in remission from breast cancer. I've looked online for herbs but can't use anything with estrogen. This rules out: Black Cohosh, Chasteberry, Flaxseed. I'm not sure about Dong…
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Harry Connick Jr, my first Brachytherapy & a bad cold
On monday I went for my first Brachytherapy session in Boston and it was by far much easier than I expected and without a doubt the easiest of all the treatments- surgery, chemo, and external radiation. I am being seen by the Chief, Gynecological Radiation Oncology and Assistant Professor of Radiation Oncology Harvard…
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Positive attitude helps
In 1999 after a complete hysterectomy, I was told that I had Stage 1 Uterine cancer. I was devistated at first, but then I decided that I was not going to let this disease beat me. I did not die, I still had God, and I still had family and friends who loved me. It has been ten years now, and I am still cancer-free, and I…
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Peach fuzz face
A while back I remember people talking about when their hair grew back, they ended up with alot of peach fuzz all over their face. Well I have longish peach fuzz, thank God it is very light in color. My "sideburns" came in darker. This peach fuzz is also on my shoulders and back. It is quite noticable to me. Does anyone…
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Deanna how are you?
Deanna it has been a long time since we have heard from you. I hope everything is okay and you are busy getting on with "life". Did you get the results of your second Biopsy? Did you go for a second opinion? You were waiting for results the last I remember. Hope you are doing well and your hair is returning. Hope you are…
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surgeon said probably fibroid, path report says endometrial polyp
I have been on this site as my mother had uterine cancer and is doing well but I was having abnormal bleeding and went to the gyne that did a hysterosonogram/ultrasound and the report came back a 3.5 cm uterine polyp( no endometrial thickening) so I had a hysteroscope and afterwards the gyne said he could not get it out…
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How long after chemotherapy - radiation you feel back to normal?
Hello all! My mom completed 4 cycles of carbo-taxol, on September 28th 2008 - almost a year now. Radiation treatment was completed on December 15, 2008. She still complains of numbness in her feet and feeling not back to her previous self. Getting tired more easily, muscle tightness. Very vague, nonspecific symptoms which…
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Good news on port adjustment today
Today they did a port adjustment in radiology. It took much more time than anticipated, but he was able to get the catheter out of the smaller vein and put it where it will draw blood. I was happy that procedure worked. As long as it took him, I kept waiting for him to say it would not work, but luckily it did work.…
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Ro, How are you?
Ro, I am wondering how you are? I may have missed you last posts........
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Another setback
I just got off the phone from my Mom's oncologist. The results of her CT scan show enlargement of the uterus and enlargement of the neck lymph nodes along with enlargement of several other nodes. The radiation oncologist noted swelling in her left neck node about a month ago. The good news is no nodules were found in her…
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wanted-long time surviors of endometrial cancer that left lymphnodes inside ...my doctor forgot to d
I HAVE ISSUES//I NEED TO KNOW YOUR TREATMENT IF NODES LEFT INSIDE U THE TEAM WANTS TO TREAT ME WITH JUST RADIATION.... WE HAVE NO CLUE AS TO THE PELVIC LYMPH NODES? THEY WERE NOT TESTED AFTER HYSTERECTOMY... I WANT TO ASSUME THEY HAVE CANCER AND TAKE CHEMO AND RADIATION... ENDOMETRIUM CANCER IS TREATED LIKE NOT SO BAD…
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The roller coaster continues
My mom could only tolerate one week of radiation. Her white count and platelets dropped to 1.6 and 57,000 with her treatment. The radiation oncologist feels it is not safe enough to proceed. On top of all this, they found an enlarged node in the left side of her neck. Because of the bleeding risk they don't want to do a…
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RADIATION DOC TOMORROW 9AM
STILL FUSSING WITH THEW CONSTIPATION..I AM NOW ABLE TO GO...USING SUPPLEMENTS SUGGESTED MIRALAX ONCE A DAY FIBER CON 2 TABLETS A DAY Organic Smooth Move® SENNA...SUGGESTED BY MY SISTER WHO TOOK CARE OF A STAGE 4 COLON CANCER PATIENT.... DRINKING APPLE JUICE I TOOK THE TEA LAST NITE ..I WAS UP AT 6AM....I THOUGHT I WAS…
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For Daisy366 and serous research (and anyone else interested)
I found this interesting article on researching serous ovarian cancer which my Gyn Onc says is extremely similar to uterine serous cancer. They are treated the same. These guys are doing some great research. I am trying to find out who is doing research on our cancer; my dream would be to fund raise and help them. But we…
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post hysterectomy/cancer surgery and pain one year later
Hello, My mother was diagnosed with stage 3c cancer one year ago. The docter said the majority of the "cancer" was in her omentum. She had a complete hysterectomy and removal of the omentum. After the surgey the doctor said she still had small spots on the lining of her liver and kidneys. He thought her cancer orginated in…
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3 INTERNAL RADIATION IS ALL I NEED
MET THE NEW RADIATION DOC DR LAMONT...HE SEEMED VERY NICE... HE SPENT TIME DISCUSSING MY CANCER FROM INCEPTION TILL TODAY....SAID HE THOUGHT I WAS CORRECT IN HAVING 2ND SURGERY TO BE SURE NO LYMPH NODE INVASION... SAID HE RECOMMENDED THE INTERNAL RADIATION TO THE VAGINAL CUFF...I WILL START ON 9/16/09 HE SAID HE FELT THAT…
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Has anyone taken single agent doxorubicin for recurrent UPSC?
My mom cancer recurred 3 months in her abdomen only after she finished her carbo/ taxol treatment. She refused to take the Ciplatin/ taxol/ doxrubicin (TAP) combination because of her worsening neuropathy from last chemo. She now started single agent doxrubicin this week after discussing with several doctors. I am…
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My Mom was diagnosed with UPSC, stage IVB in April
Hi everyone, I'm looking for some info. to help my Mom. She's 71. I'm new to this site. See my profile for details. Thanks.
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5 weeks after 2nd surgery when i cough or laugh i have pain and when i bear down to poo -normal
hi ladies finally got the constipation under control using supplements and moving around but as is the norm for me..i feel like a baby always asking about something... when i go to bathroom i am not straining yet i feel pain..bearable pain next when i laugh or cough i feel abdomenal pain... i can walk but not for long…
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Stage IV Uterine Cancer
Hello, my name is Cheryl. My mother was diagnosed with stage IV Pappilary Serous Cancer a few weeks ago. She has undergone major surgery and starts chemo this week. Are there others out there who have survived this advanced cancer. She is currently taking natural suppliments as well as B17 (apricot seeds) and Essiac tea…
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I love your artwork for California Artist
Claudia, sometimes when I am on this site my heart aches for all of the suffering and anxiety we all struggle with. I look at your art work and it always gives me a lift. I am glad you are painting again. You are very good! Your bright colors in the paintings always remind me that we are all more than our cancer. Diane
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Washing is Negative
Hi: My surgery was last week and I spoke to the doctor's office this morning. Still waiting for the final pathology report. I was told that the washing is negative. What exactly does this mean? From research it appears that during surgery they use salt water and send it to path. Thanks for any information regarding this.…
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Could it be cancer?????
Hi all! For the last few years I have had severe bone and muscle pain and have worried what if it is some sort of cancer. Also, I have had so many female problems- heavy periods, sometimes months at a time of bleeding, pain, etc. My mom was diagnosed with breast cancer last year. That prompted me to make a few appointments…
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Update from my Mom's surgery
Hello all... My Mom had her hysterectomy yesterday. They were suspecting uterine sarcoma based on a cat scan report. My Mom has had huge fibroids for years (she's 54), and apparently the radiologist interepreting the report did not know about the history of these fibroids. Whether this makes a difference or not, I don't…
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EMOTIONAL ROLLER COASTER...GUESS I READ TO READ THE BOKKS RECOMMENDED
i was in a accident ..hit by drunk 5 years ago... I HAVE BEEN IN PAIN FOR SO LONG..I GUESS I GET USED TO IT..I WAS TAKING MOBIC SO I HAD LOOSE BOWELS FOR YEARS, LOWEH BACK PAIN BOTH SIDES, AND ABPUT A YERA AGO MY HIP BONES HURT I WAS TOLD IT WAS BRUSITIS I TOLD MY HUBBY THAT I THOUGHT I HAD BONE CANCER ... THEN IN MAY I…
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constipation persoified.....will i ever poo on my own...pss i am at he beach for 4 days....i am bles
hi this is maryellen.... man i have not had chemo or radiation yet and i have all these residual quirks from 2 surgeries... my appetite is lousy...i eat so much less but no weight loss to speak of.... i take the colace, i drink the miralex and i need milk of magnesia to go... someone told me flaxseed oil i got that…
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My surgery Aug 26th
Hi: I had my surgery last Wednesday, the 26th and was home early Thursday afternoon. Fortunately, I had the robotics and the operation went extremely well. According to the doctor he did not see any other cancer cells outside the uterus but we're waiting for the pathology report. He did tell my husband that it appears that…
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What's your 'Remission' style, when you see 3 months of no doctoring stretching before you?
I am trying to guess how I will be as my remission gets 'less new'. It is so thrilling and strange to be out of treatment, and then to have my check-ups, and the next appointments set for NOVEMBER! I am almost giddy with the freedom of having my DAYS returned to me without the constant interruption of treatment…