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B17 - Help Claudia!!
Has anyone heard of this? I see that one person posted about her mother taking this and it was helpful for her stage 4 cancer. Apparently this is the same or similar to laetrile - the controversial apricot seeds that years ago people were going to foreign countries to get. The person that told me about this mentioned that…
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Billed cost of treatments (chemo, CT-scans, PETs, radiation, Neulasta)??
I'm just curious what everyone's insurance is billed for various treatments. My insurance had been paying pretty good, aside from my crazy-high deductible, but I am shocked at what they are billed for each treatment. Each round of carbo/taxol was billed at close to $16,000. Each CT-scan was billed at approximately $11,000…
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Good news for Mom today
As you may know my Mom has inoperable uterine cancer. She has recently started on weekly doses of Taxol. The first three week cycle has finished and no ill effects. Her H&H this week is 10.5 & 31.5. She didn't even need Procrit this week! Her platelets are 102,000 which is great for her! The lymph nodes in her neck have…
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My Mother in remession on first check up
Hello Everyone, Helping me lot. I am too young to learn all these things but i just did for my mother. As you she was diagnosed 3c grade 1 endo adenco... she was due her checkup today and her scan becomes clear and CA125 is 5.6. I am so happy for her and i prayed for you guys also. God helps us. I am feeling relaxed here…
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10 months NED!!!!
Mom had her 10 month follow up - last treatment was on Dec 2008. Pelvic exam and Ca 125, all good. We are waiting for the PAP test, but not many worries for that. For those whose ca125 is going up, PLEASE do not let number dominate your lives, mom's ca 125 went up from 14 to 21 and then 24, but the last one is 22. Good…
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Questions about my mom
Hello.. My Mom may have uterine cancer according to her Ct scan of her abdomen. She is having a hysterectomy on 8/26 with biopsies, it will be done by a gynecologic oncologist. She said she is shocked by this tentative diagnosis. She has been working full time as a nurse up until 2 weeks ago when she landed in the ICU for…
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10 days post first chemo treatment
Hi, First time posting except on roll call. Had my staging surgery April 1st, and great news,,,no positive nodes, biopsies negative, and washings negative!! Received first carbo/taxol treatment on April 29th. Had horrific bone and joint pain, slight nausea and general yuckiness from the following Thursday thru Sunday.…
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I found a comparison of Intensity Modulated Radiation Therapy (IMRT) with Conventional Radiotherapy
There was recently some discussion on whether there were any benefits for using the more costly IMRT as opposed to the conventional radiation for external pelvic radiation. Since I started IMRT today, I did some research this afternoon and came across this article that seems to justify seeking IMRT as your external…
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Lying to children: a funny true story
My 8 year old granddaughter saw my dilator and lubricant lying on my bed stand this afternoon, and asked "What's this, Grammy?" I answered "It's for my cancer, honey", hoping she'd let it go. No chance. "What do you do with it?" Channelling my own grandmother, (who told me as a child that the big box of Kotex and little…
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update
I have been going back and forth with my dr since Feb. Ultrasounds, blood work, lap, D&C, and hysteroscopy (sp?). Had another appt with gyno yesterday and he says its time to do a hysterectomy. He actually said we probably should've went that route first, instead of doing all these other tests and procedures. The last…
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Celebrating another 3 months of living NED
Aloha All passed my THIRD 3 month check up with oncologist...no evidence of disease; CA 125 went up one point (11 from 10, but the one before was 11 so Dr considers it stable); doing better overall but the anxiety just before the appointment got out of control and I was not pleasant; plan the next time to hide for a couple…
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Newbie questions
I was dx with uterine cancer sept.24 09. I am only 38 years old.I am obese. . It was a total shock. I did not expect this at all.I have to boys w/ autism and one has a seizure disorder just DX . I go to the cancer doctor on Oct. 5 09 to find out about surgery. This is what I know .My uterus is 8cm or larger in size normal…
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Alternative and complementary care
Is anyone here using alternative or complementary care for your cancer? Do you know of any cases of people who have? Have you researched info about other modalities, such as Traditional Chinese Medicine (acupuncture), hormones, nutrition, exercise, biofeedback, etc., and have information or references you can share with…
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Has anyone taken cisplatin, doxorubicin and cyclophosphamide? Please share your experiences.
My mom's doctor recommend this combination for recurred UPSC. Please share your side effects and whether the drug works for you. Thank you
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Depression
I was diagnosed with cancer of the uterus 5 weeks ago and had a complete hysterectomy 4 weeks ago. I also went off all hormone therapy and quit smoking. The biopsy of the organs and lymph nodes that were removed showed cancer in the uterus only but not in the lymph nodes. My doctor said that I might want to consider…
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Newbie with concerns
I haven't been diagnosed with uterine cancer and hopefully wont but would like some advice. Briefly, I had an ablation with D&C 5 yrs ago where they found adenomyosis deep in myometrial. The Doctor was surprised by this as she was just expecting to find a polyp which was what the ablation and D&C were for. Anyway, she…
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echo
anybody here?!!
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Back where I started!??!!!???
Went for my check up with the dr and basically was told that the biopsy he took from the area of suspision was inadequate. He said there was too much scar tissue in the way from the ablation to surgicaly fix it during the hysteroscopy. He also left a cyst on my ovary that is about the size of a softball. why? because he…
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RED SPOT ON VAGINAL CUFF......YEEKS OR NOTHING-internal radiation..no pain..no problem
WENT FOR FIRST INTERNAL RADIATION PROCEDURE WAS PAINLESS BUT STARTED OUT GETTING A BIOSY..BACAUSE RADIOLOGIST SAW A RED SPOT ON THE CUFF.... THEY R HOPING THAT IT IS GRANUAL TISSUE-SCAR TISSUE....AT LEAST THEY DID THE RAdiation.... it was not so bad..a pelvic exam..follow by catscan...lie flat on gurney completely covered…
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How to know if Cancer has spread
I am wondering what type of symptons would we have if the cancer started spreading. I read Frans post where she said by the end of the day her bra hurt and that was from the cancer in her lungs. I will have a full body scan around the one year anniversary from my surgery and lots of follow up appointments with all my…
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teeny tiny transparent EYELASHES have sprouted! I'm THRILLED!
This must prove what a shallow human being I am, but I was soooo happy to see tiny (and I mean TINY) eyelashes beginning to sprout on my naked eyelids at LAST! I ran down all thrilled to show them to my husband, but he just said "I can't see them". Well, I can only see them in perfect light, as they are almost transparent…
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sleeping problems
Hi everyone, happy spring to us all. I don't know if this has been discussed but I need to ask anyway. Is anyone else having problems with sleeping unless they take a sleeping aide? I go to bed but I just lay there, I don't drink caffeine before going so that's not it. I don't nap during the day either. It's just a hour…
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Oncology review☆
I just got the transcript of the "Management of women with uterine papillary serous cancer: A Society of Gynecologic Oncology (SGO) review" 2009. I haven't gotten through it yet it is pretty long and technical. Since we all know how limitied info on UPSC is I thought many of you might be interested, but I am not sure how…
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Para aortic lymph nodes
OK. We all know how important is to have lymph nodes taken during the surgery for staging. Not only the number but also the location of the lymph nodes is important. My mom had 20 lymph nodes taken, 2 of those were positive for micrometastasis. However there was no para aortic lymph node taken - because the surgeon thought…
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No chemo today for me. Blood transfusion instead. :(
My platelets were down to 27 (need to be 100 to get chemo) when I went in early this morning for blood worrk with the hopes of getting my last round of chemo in me. So, no go. But I need to head back there in a few minutes for 2 units of blood which should almost guarantee (I hope I'm not jinxing myself here!) that I will…
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CYBER HUGS
Just felt I needed to send cyber hugs to all new comers and everyone on this discussion board. You are all wonderful, strong, amazing women and you are all in my prayers everyday. GOD BLESS! MIND, BODY AND SOUL.
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Liver size
Hey, Lets talk about liver size for women 50 yrs old. Please tell me in cm . My mother digonised with uterine cancer stage 3c. Lymph node and omentum free of cancer but she had mets to colon. No tumor in tube and cervix. But metastic to ovaries. Endo adenco garde 1 Help please ...Kumar
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Who is good soul and help me and advise
Hi All, I am not getting response because i am asain boy. My mother has digoinsed with Endometruim adenco stage 3c and completed 6 rounds of chemo.Her mouth has tasted becomes bad. Anyone has same experineced and please advise me. She finsihed her treatment and waiting for first check up on 12 oct. Please pray for me. Last…
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October 8
Tomorrow I will sit back and reflect on what one year has done to my life. As I hold my Granddaughter I will feel blessed and thankful for all that are in my life. Tomorrow will be one year since I was told I had cancer. And as I sit and reflect I will hold one finger in the air and tell cancer **** you, you didn't get me…
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anyone on Adriamycin, Cisplatin, and Taxol
is anyone on these three drugs ? I have noticed that most are on Taxol and Carboplatin. I have grade 4b stage 3 endometrial cancer. I just finished my 5th chemo 1 more to go, then one month and get a ct scan, and then wait 3 months for next visit. anyone else have other tests done after chemo. I am discouraged by this…