-
Off remission
Hello all, I am back from being away for a out time from cancer. Well that ended yesterday when I got the results from my ct scans. I am now on Doxil every 4 weeks for how long who knows for sure. I knew it would be back but it hit me like a Sledgehammer" like someone else said on one of the boards. You know it will come…
-
scheduled CSN outage tonight
The site will be down tonight from 1:00 to 5:00 a.m Eastern Daylight Time for scheduled maintenance. Greta Your CSN staff
-
Roll Call and Privacy
I have one problem wiht roll call - privacy. I wouldn't mind sharing things if we were in a group that was protected. Anyone can access this information and sometimes I think that is a little worrisome. I wish our information we share here was more protected. While I think our stages and grades show what we are coping with…
-
Motivated people telling them our ca125
Hi Ladies, I have noticed most people are worried abt ca125.Please tell everyone ca125? Thanks Kumar
-
ONE YEAR!!
Went to the Oncol on Wed. for my three month and was presented with a one year survivor pin... My chest x-ray is normal and clean, CA125 went up alittle but they are not concerned, it's that time of year with my arthritis and inflammation. Just waiting for pap results but doc says everything looks great... She said I can…
-
Privacy and Roll Call
I get a little uneasy posting alot of personal information on this very open forum. It really is open to the public. I wish we could be a group with some other privacy factors built into this system. Sometimes I would be more open but think about anyone reading this; such as employers, disability claims offices, etc. Does…
-
Feels like a UTI but it's not
Hello ladies, I hope everyone is doing well. I have a question for y'all. I had my second and last brachy radiation over a week ago on Sept. 24. To back up a little more, during the last couple of weeks of my external radiation, I had what felt like the beginning feeling of a urinary tract infection (UTI). Just a little of…
-
Posts not posting again. Anyone else?
I typed 2 replies to posts that never appeared. Is it the 2 pre-bedtime glasses of wine I just had, or is there a problem posting again?
-
New member - stage 2 grade 2b - ? on recurrance
Hi all - am from Michigan. Have been through TAB hysterectomy, chemo, external radiation, and 3 rounds of internal radiation. Finished everything almost a year ago. Have been back to Doctors a couple of times. Next appointment is the 14th of this month. Am wondering what symptoms show up with recurrance? Are there symptoms…
-
Play "Pirates of the Chemotherapy"
I saw a local play (written by a local person here; a man actually). It is about women under going chemo for breast cancer. I laughed and laughed and even cried some. I recommend it if you ever get a chance to see it. He had an experience with a woman undergoing chemo for breat cancer; she always wore a scarf and big hoop…
-
last chemo yesterday!
well thought id update on what is happening here, got my last chemo treatment, at another infusion clinic, my GP convinced me to never go back to the rude negative doctor I have had since june, and set me up with last chemo elsewhere and new doctor, he is not a gyn/oncologist so he transfered me (after chemo) to the…
-
surgery 2 and a half weeks ago scarred of recurrence
Hi I am 38 and had a complete hysterectomy a couple weeks ago. I am feeling great as had robotic, sore still, hormonol but ok. My Dr said pathology report said stage 1b, less than 50% invasion, no tx needed, paps every 3 months for 2 years. Is this normal to not do radiation? I am going to get actual report so I can read…
-
UPSC recurrance notes - went to Stanford support group for gynological cancer
Today, Thursday, I went to a support group for gynocological cancer at Stanford University Hospital in Palo Alto, California, near my home. As expected, the others were ovarian cancer, although the membership roster shows some uterine cancer, unspecified type. I asked the woman who added me to the roster to put UPSC, not…
-
Updating our personal profiles. Thanks Sharon.
After hearing Sharon's story I asked about her treatment. Instead of repeating this for me and I imagine many more after me, she directed me to her profile - just click on her picture. And viola!!!! there is was. Sharon took the time to update this for all of our benefit. It is a great way for all of us to share info about…
-
Post surgery-cancer has spread
Hi all...learned that my cancer has spread to lymph nodes. Docs are recommending 6 rounds of chemo then 30 sessions of radiation both internal and external... I'm TERRIFIED of chemo and probably just as concerned about radiation...can you all tell me what side effects you've had...specifically HOW DO YOU FEEL? How sick…
-
Question for those of you that finished External Radiation
On Wednesday I finished 5 weeks of External Radiation but have been dealing with an awful side effect and want to know if others had this happen as well. I woke up last Tuesday and went in for my early morning radiation but soon after it I started getting the symptoms of a UTI. On Wednesday for my last treatment I was put…
-
Newly diagnosed pending surgery
Hi - Feel fortunate to find this site as a hit when googleing nutrition and uterine cancer! I was diagnosed 10/26/09 with uterine cancer following an entrometrial biopsy. They say it is Grade or Class 1 (not sure which, maybe someone on the board will know!?!?) and PAP normal, pelvic ultrasound normal. I just turned 59 and…
-
For 'newbies': the SEARCH feature of this Discussion Board
I wanted to make sure that those newly diagnosed or those entering a new phase of their initial treatment protocol are aware of the SEARCH feature of this discussion board. It's really such a WONDERFUL tool, as it allows you to 'key-word-search' through all of the archived posts ever made here to the Uterine Cancer board.…
-
port use
dear linda and sisters, i'm almost through with chemo, and am seriously considering removing my port. what do people think about that, and have any of you had yours removed. if, god forfend, i need it again, i could have another put in. i got the impression from my surgeon that there were not additional things medicine…
-
Back from my Post-Op Appt.
Hello Ladies, Just returned from my Post-Op Appt. My incisions are healing well, except for that one above my navel. That one is so sore, but apparently that one is the deepest one. I can return to work when I want (originally she signed off on a month), but I am able to work from home and I am losing my mind. I am a…
-
Just Diagnosed
I was just diagnosed with Uterine Cancer a little over a week ago. I had my ct scan last week and Have an appointment with the oncologist on Nov 4. I don't know much of anything other than I have Uterine Cancer. BTW I am 56 years old and have not started menopause because of this. I have bad lower back pain, pain in my…
-
Please tell all what is our ca125 to motivate others
My mother ca125 was 117 u/ml now it is 6 u/ml and your s please post. Kumar
-
For those of you who want to know things to look for post surgery
Here's a url to copy and paste: http://www.wdxcyber.com/nbleed13.htm
-
Raditation followup not sure---
Hello everyone! It's been a while since I've been away from this post and now I'm back to ask you guys for your experience or opinion about this. This past summer I only had one chemotherapy and got bad side effects that I got colon infection and abscess so they've decided to stop the treatment. I got better few months…
-
Questions regarding urinary incontinence
Look for a complete discussion in the thread Question after radition therapy or something like that. Here is what I put in the Google search to find these references: radiation treatment incontinence and these are some of the reports that showed up. If you look farther on the page of the report for references, you can find…
-
Something still wrong with the boards??
Seems like my posts are still not showing up...anyone know what is going on?? Laurie
-
NED
I had my first 6 month CT scan on Monday (I finished treatment at the very end of March). I was due for my physical and results this Monday, but I worked myself into such a dither -certain I was on my way to a full blown panic attack (never had one before, but I can only assume that is what was happening to me). Decided to…
-
Grading
Joined: Oct 2009 October 19, 2009 - 9:41pm New Zealand v America I had cancer of the uterine and cervix. Hi I am interested to know if anyone knows whether the stages etc are rated the same in New Zealand as America. I was classed as Grade2 T2b which I think is the same as your grading, but wasn't give chemo as as far as…
-
Resources
When I got my diagnosis and found out I would need chemo and radiation treatments, the nurse gave me multiple booklets and printed information. She suggested that I register with the American Cancer Society. She said they would send me information in the mail. I called the number the nurse gave me. The American Cancer…
-
Confirming--replies are not posting
It does appear that the replies are not posting. I will send a message to CSN Karen