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UPSC recurrence notes - You are doing so well ..."
The doctor said, “You are doing so well, I think we'll give you another three chemos.” “Gee, thanks, doc.” said I, Mary Ann. Context: I am 73 years old. I have had a recurrence of UPSC after two years. I had another series of taxol and carboplatin, 6 infusions, three weeks apart. CT scans before the first and after the…
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Unusual Case - Third Opinion?
Hi All: New to this site. Many brave and wonderful people here. It is nice to finally have someone who can relate and where you don't feel so isolated. Here's my story: Hope someone can help. (By the way I am 49 years old now and I have a wonderful husband and three sons) 2004 - pain - colonoscopy (clear) vaginal sonogram…
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Emotional Help
I was diagnosed with endo cancer at the age of 28. I was told after my complete hyst. that there was no treatment necessary. The cancer was only staged at 1B and hadn't made it through the lining of the uterus. I have gone faithfully to my ob/gyn since this time. Every 3 months then 6 months. Every time holding my breath…
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snotty Oncologists - thank goodness for this site!
OK...I'm ranting & apologize in advance..... but.... am I the only one whose Oncologists won't provide anything but vague replies & absolutely nothing positive? I understand I live in a "lawsuit happy" state....but...sheeesh! The only answer I get when asking specific questions regarding side effects,etc. is "Everybody Is…
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what did I miss?
I saw a couple of threads with deleted posts. Just curious what happened??
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Frans most recent post on facebook
Hi everyone, doing better but keyboarding with right hand isn't strong yet. Thanks for all the nice notes, prayers and thoughts. Dr. says I am responding real well and I let him know today that all options better be on the table for my treatment. I think I got his attention. He was encouraging. I do read email and…
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Weight loss
I was diagnosed with uterine cancer last week. In doing research, my husband found there is a link between excessive estrogen from being obese and this cancer. He is now asking me to lose weight. I have been obese since childhood and never successfully maintained any weight loss. He says I need to optimize my nutrition…
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hormone therapy?
My doctor wants me to go on hormone therapy to control my tumor. Does anyone know about Anastrozole (Arimidex)? He says it's used frequently to control breast cancer and helps reduce estrogen. Do you know of anyone who has taken it - and anything about the results? I'm already in pain and hesitate to take something that…
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CA 125 rising
I finished my 6th and last chemo treatment on 8/4/09. I had the sandwich treatment with 3 chemo and the radiation therapy (both external and internal) and then 3 more chemo. I had lab on 9/1 and the CA 125 was 18 (normal is below 35). I had lab drawn on 10/20 and the number was 39.9. I had had a colonoscopy earlier that…
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Finished Treatment but have a lot of body aches. Has anyone had this??
So I finished up my treatment plan which was surgery, chemo, external radiation and 4 sessions of Brachytherapy. I finished the last of my treatments about 3 weeks ago and just recently started getting lots of body aches, legs, lower back, upper back. What is making me nervous is that Fran posted not too long ago that her…
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URLS ON INFO HOW CANCER SPREADS
http://www.mayoclinic.com/health/cancer/MM00638 http://www.healthcastle.com/cancer_general_mets.shtml http://www.cancerhelp.org.uk/about-cancer/what-is-cancer/grow/how-a-cancer-spreads…
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Thickning of endometrial wall Could it be cancer)
Hi everyone im new to the site and im after a bit of advice or wanted to know if anyone else had these symptoms. I recently had a ultrasound/internal scan on my uterus this was due to me having very heavy periods and my iron level being 4 instead of being 10 (think thats what it should be). Anyway my results came back as…
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Off remission
Hello all, I am back from being away for a out time from cancer. Well that ended yesterday when I got the results from my ct scans. I am now on Doxil every 4 weeks for how long who knows for sure. I knew it would be back but it hit me like a Sledgehammer" like someone else said on one of the boards. You know it will come…
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scheduled CSN outage tonight
The site will be down tonight from 1:00 to 5:00 a.m Eastern Daylight Time for scheduled maintenance. Greta Your CSN staff
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Roll Call and Privacy
I have one problem wiht roll call - privacy. I wouldn't mind sharing things if we were in a group that was protected. Anyone can access this information and sometimes I think that is a little worrisome. I wish our information we share here was more protected. While I think our stages and grades show what we are coping with…
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Motivated people telling them our ca125
Hi Ladies, I have noticed most people are worried abt ca125.Please tell everyone ca125? Thanks Kumar
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ONE YEAR!!
Went to the Oncol on Wed. for my three month and was presented with a one year survivor pin... My chest x-ray is normal and clean, CA125 went up alittle but they are not concerned, it's that time of year with my arthritis and inflammation. Just waiting for pap results but doc says everything looks great... She said I can…
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Privacy and Roll Call
I get a little uneasy posting alot of personal information on this very open forum. It really is open to the public. I wish we could be a group with some other privacy factors built into this system. Sometimes I would be more open but think about anyone reading this; such as employers, disability claims offices, etc. Does…
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Feels like a UTI but it's not
Hello ladies, I hope everyone is doing well. I have a question for y'all. I had my second and last brachy radiation over a week ago on Sept. 24. To back up a little more, during the last couple of weeks of my external radiation, I had what felt like the beginning feeling of a urinary tract infection (UTI). Just a little of…
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Posts not posting again. Anyone else?
I typed 2 replies to posts that never appeared. Is it the 2 pre-bedtime glasses of wine I just had, or is there a problem posting again?
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New member - stage 2 grade 2b - ? on recurrance
Hi all - am from Michigan. Have been through TAB hysterectomy, chemo, external radiation, and 3 rounds of internal radiation. Finished everything almost a year ago. Have been back to Doctors a couple of times. Next appointment is the 14th of this month. Am wondering what symptoms show up with recurrance? Are there symptoms…
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Play "Pirates of the Chemotherapy"
I saw a local play (written by a local person here; a man actually). It is about women under going chemo for breast cancer. I laughed and laughed and even cried some. I recommend it if you ever get a chance to see it. He had an experience with a woman undergoing chemo for breat cancer; she always wore a scarf and big hoop…
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last chemo yesterday!
well thought id update on what is happening here, got my last chemo treatment, at another infusion clinic, my GP convinced me to never go back to the rude negative doctor I have had since june, and set me up with last chemo elsewhere and new doctor, he is not a gyn/oncologist so he transfered me (after chemo) to the…
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surgery 2 and a half weeks ago scarred of recurrence
Hi I am 38 and had a complete hysterectomy a couple weeks ago. I am feeling great as had robotic, sore still, hormonol but ok. My Dr said pathology report said stage 1b, less than 50% invasion, no tx needed, paps every 3 months for 2 years. Is this normal to not do radiation? I am going to get actual report so I can read…
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UPSC recurrance notes - went to Stanford support group for gynological cancer
Today, Thursday, I went to a support group for gynocological cancer at Stanford University Hospital in Palo Alto, California, near my home. As expected, the others were ovarian cancer, although the membership roster shows some uterine cancer, unspecified type. I asked the woman who added me to the roster to put UPSC, not…
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Updating our personal profiles. Thanks Sharon.
After hearing Sharon's story I asked about her treatment. Instead of repeating this for me and I imagine many more after me, she directed me to her profile - just click on her picture. And viola!!!! there is was. Sharon took the time to update this for all of our benefit. It is a great way for all of us to share info about…
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Post surgery-cancer has spread
Hi all...learned that my cancer has spread to lymph nodes. Docs are recommending 6 rounds of chemo then 30 sessions of radiation both internal and external... I'm TERRIFIED of chemo and probably just as concerned about radiation...can you all tell me what side effects you've had...specifically HOW DO YOU FEEL? How sick…
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Question for those of you that finished External Radiation
On Wednesday I finished 5 weeks of External Radiation but have been dealing with an awful side effect and want to know if others had this happen as well. I woke up last Tuesday and went in for my early morning radiation but soon after it I started getting the symptoms of a UTI. On Wednesday for my last treatment I was put…
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Newly diagnosed pending surgery
Hi - Feel fortunate to find this site as a hit when googleing nutrition and uterine cancer! I was diagnosed 10/26/09 with uterine cancer following an entrometrial biopsy. They say it is Grade or Class 1 (not sure which, maybe someone on the board will know!?!?) and PAP normal, pelvic ultrasound normal. I just turned 59 and…
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For 'newbies': the SEARCH feature of this Discussion Board
I wanted to make sure that those newly diagnosed or those entering a new phase of their initial treatment protocol are aware of the SEARCH feature of this discussion board. It's really such a WONDERFUL tool, as it allows you to 'key-word-search' through all of the archived posts ever made here to the Uterine Cancer board.…