Help, need to learn more about my Uterine Cancer 1C,

gerri66

Hi everyone i am a 66 year old women and live in Niceveille Florida. i have a hard time explaning what i need any way i will use
a bullet format.


-30th June 2009, had a D&C, i had some spotting so i went and checked it out. Lab report was a bit suspicious, my doctor recomend
a hysterectomy.


-13 July 2009, had my hysterectomy..Because i was not overweight and in good health she did not ask for an oncology doctor to be
present. She was surprised when the lab showed a 1C, uterine cancer. Next she sent me to an oncology doctor.


- 24 Sep 2009, I had a Para aortic lymph node dissscetion. I had a choice of Robotic Surgery, Laparoscopic Surgery, or Abdominal
Surgery. He removed 28 lymph nodes all 28 were negative thanks to the Lord. So i am coming up on 4 months since i had surgery.
Recentlty here in Florida has had a freeze warning. The last week i have been feeling tender (a bit painful) on my abdominal.

Has anyone else experience this? I have a doctors appointment on 27 January 2010, which is my first 3 months visit i pray all goes
well.

The reason i choose the abdominal is i thought my doctor would be able to see every thing if something might be hidden. I did
know healing would take longer.



I would be happy to hear from as many folks as possible, thank all of you very much. God Bless to All


Blessings,
gerri

kellyw314

HI Gerri,
I was diagnosed
HI Gerri,

I was diagnosed with 1-C uterine cancer 3.5 years ago - the "c" staging suggested that the cancer had spread in my case (60%) thru the uterine lining - I think more than 50% penetration places you in the "c" category - my gyn-onc said I was in the 95% cure range and did send me to radiology for another opinion - that radiologist said my job is to bump you to a 98% cure range if you will give me 25 days of your life for external rad treatments - she was also recommending 3 internal or brachy treatments - mid-way thru my treatment she suggested 2 more external treatments and eliminating the brachy because my cancer had been confined to the upper third of my uterus -gyn-onc had said most likely spot for recurrence was the vaginal cuff - I had the treatments and for the first 2 years met with gyn-onc every 3 months for a complete internal - last year, visits have stretched to every 6 months -at surgery 42 lymph nodes were removed and all negative for cancer

I had a discomfort on my left side - intermittent sharp stabbing pain which did last for 6 months past surgery - gyn-onc was not alarmed and said it was the healing process - kept reminding me I had major surgery and it takes a full year to recuperate

hope this helps you

kelly

daisy366

Hi Gerri
Welcome to this site. I think abdominal was a good choice so the lymph nodes got a good checking. It sounds good that you had no positive lymph nodes and you did not mention chemo or radiation so I'm assuming you have the more common cancer.

I also had total abdominal hysterectomy in Sept 2008. It took me about 7 weeks to return to work. I had some sensitivity which the doc attributed to adhesions. If it was me - I would call my doctor or his nurse and explain the symptoms and see what he/she says. I wouldn't assume anything at this point.

Blessings to you too, Gerri. It's always OK to ask questions and advocate for yourself. It's your body and your treatment. Mary Ann

gerri66

daisy366 said:

Hi Gerri
Welcome to this site. I think abdominal was a good choice so the lymph nodes got a good checking. It sounds good that you had no positive lymph nodes and you did not mention chemo or radiation so I'm assuming you have the more common cancer.

I also had total abdominal hysterectomy in Sept 2008. It took me about 7 weeks to return to work. I had some sensitivity which the doc attributed to adhesions. If it was me - I would call my doctor or his nurse and explain the symptoms and see what he/she says. I wouldn't assume anything at this point.

Blessings to you too, Gerri. It's always OK to ask questions and advocate for yourself. It's your body and your treatment. Mary Ann

Thank you Daisy.
I am going


Thank you Daisy.


I am going to call my doctor and see what he says...........I thank you for your time and help.. I am new to this site.
After all the surgeries my Doctor (Dr. Deceaser gave me a choice to have the vaginal cuff radiation, i told that i won't do it now but if it
comes back then we can do the radiation. I have prayed all the time if i am making choices.


Enjoyed talking..........HAVE A GREAT DAY

Blessings,
gerri

gerri66

kellyw314 said:

HI Gerri,
I was diagnosed
HI Gerri,

I was diagnosed with 1-C uterine cancer 3.5 years ago - the "c" staging suggested that the cancer had spread in my case (60%) thru the uterine lining - I think more than 50% penetration places you in the "c" category - my gyn-onc said I was in the 95% cure range and did send me to radiology for another opinion - that radiologist said my job is to bump you to a 98% cure range if you will give me 25 days of your life for external rad treatments - she was also recommending 3 internal or brachy treatments - mid-way thru my treatment she suggested 2 more external treatments and eliminating the brachy because my cancer had been confined to the upper third of my uterus -gyn-onc had said most likely spot for recurrence was the vaginal cuff - I had the treatments and for the first 2 years met with gyn-onc every 3 months for a complete internal - last year, visits have stretched to every 6 months -at surgery 42 lymph nodes were removed and all negative for cancer

I had a discomfort on my left side - intermittent sharp stabbing pain which did last for 6 months past surgery - gyn-onc was not alarmed and said it was the healing process - kept reminding me I had major surgery and it takes a full year to recuperate

hope this helps you

kelly

YES it helps


Hello Kelly, this is amazing we both have the same 1-C . I did not do the vaginal cuff radiation, he did give me my choice but if it comes back i will have the radiation. I know i will see him every 3months for 3 years. Then every 6 months for 2 years.....Then see if all is
well. I need to do it one day at a time and get depressed.


I thank you for taking the time to read and write me, it is so nice to have a place to ask questions be supported by all you loving
people...........would lik to keep in touch. How many years since you started your cancer? Good luck.......



Blessings,
Gerri

gerri66

kellyw314 said:

HI Gerri,
I was diagnosed
HI Gerri,

I was diagnosed with 1-C uterine cancer 3.5 years ago - the "c" staging suggested that the cancer had spread in my case (60%) thru the uterine lining - I think more than 50% penetration places you in the "c" category - my gyn-onc said I was in the 95% cure range and did send me to radiology for another opinion - that radiologist said my job is to bump you to a 98% cure range if you will give me 25 days of your life for external rad treatments - she was also recommending 3 internal or brachy treatments - mid-way thru my treatment she suggested 2 more external treatments and eliminating the brachy because my cancer had been confined to the upper third of my uterus -gyn-onc had said most likely spot for recurrence was the vaginal cuff - I had the treatments and for the first 2 years met with gyn-onc every 3 months for a complete internal - last year, visits have stretched to every 6 months -at surgery 42 lymph nodes were removed and all negative for cancer

I had a discomfort on my left side - intermittent sharp stabbing pain which did last for 6 months past surgery - gyn-onc was not alarmed and said it was the healing process - kept reminding me I had major surgery and it takes a full year to recuperate

hope this helps you

kelly

YES it helps


Hello Kelly, this is amazing we both have the same 1-C . I did not do the vaginal cuff radiation, he did give me my choice but if it comes back i will have the radiation. I know i will see him every 3months for 3 years. Then every 6 months for 2 years.....Then see if all is
well. I need to do it one day at a time and get depressed.


I thank you for taking the time to read and write me, it is so nice to have a place to ask questions be supported by all you loving
people...........would lik to keep in touch. How many years since you started your cancer? Good luck.......



Blessings,
Gerri

kellyw314

gerri66 said:

Thank you Daisy.
I am going


Thank you Daisy.


I am going to call my doctor and see what he says...........I thank you for your time and help.. I am new to this site.
After all the surgeries my Doctor (Dr. Deceaser gave me a choice to have the vaginal cuff radiation, i told that i won't do it now but if it
comes back then we can do the radiation. I have prayed all the time if i am making choices.


Enjoyed talking..........HAVE A GREAT DAY

Blessings,
gerri

HI Gerri,
I was diagnosed in
HI Gerri,

I was diagnosed in May 2006 thru a D & C due to spotting and an ulta-sound which showed a mild thickening of the endometrial lining- I had abdominal hysterectomy and recovered quickly - began radiation in mid-August thru mid-Sept -- had minimal issues with rad and used imodium as needed - bowels totally recovered within year of completing rad -- good luck on your journey

kelly