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Dangers of Tamoxifen: Tell your story with the drug
Hi everyone, This year my mom developed breast cancer and the doctor prescribed Tamoxifen. Thankfully her network of friends warned her away from this drug. And as I learned more about it, it made me wonder how many women were taking the drug without fully understanding the extreme risks involved? My mother's doctor…
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MMMT re CA125 tests and hormonal sensitivity
My own onc has never suggested that CA125 is particularly useful for monitoring MMMT tumors; do your own oncs agree with that? Nor has she suggested that this is a hormonally sensitive tumor. (I finally asked her last month whether this tumor is hormonally sensitive, and her reply was "Usually, not.") Does this information…
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Speaking of Tamoxifen, what about Pelvic Radiation?
Have been following the posts about that double-edged sword, Tamoxifen. Sure, it may delay recurrence of certain breast cancers, perhaps even prevent recurrences, but it's also associated with higher than usual risk not merely of uterine cancer, but of the most aggressive of them, including carcinosarcoma (MMMT) and…
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Recurrent UPSC
My mom has recurrent UPSC and has been treated with carbo/taxol. Her recent CT scan suggested mets to the liver. Anyone have success with drugs other than these? Thank you.
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To Hell And Back - Proved My Doctor Wrong
OK. The thread title is a bit provocative. And, I think my doctor would not agree that he has been proved wrong: it would take a completely clean scan to convince him. But, I think my story may help some people, so I am using an eye catching title. It’s lengthy. Those of you who just want a summary can skip to the last…
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Tamoxifen
Help! Has anyone on here gotten Uterine Cancer from the drug Tamoxifen? I beat 2 different forms of Metastic Breast Cancer already, plus I am Her2/nue positive but allergic to the Herceptin (Anti-body) and I have HPV. They put me on Tamoxifen almost 4 years ago and during chemo they put me into full blown menopause with…
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SUSAFINA---THANK YOU
Oh My Great God Susafina you hit me right on the head. Yes I am devastated and overwhelm with fear, but I am beginning to accept and calm down. You post has made a tremendous difference. Thank you and may our Great God protect you and grant you good health. june
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Anyone battled with Medicare to pay for CA 125 testing ?
Since it has been a reliable early warning indicator, my doc has tested me regularly the last few years. I went on medicare 6-1 and have now noticed medicare is declining to pay for CA 125 tests. Since lab was not billing me, I just noticed as I started to gather year end receipts,etc.My old insurer only paid thenm $11 of…
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Recurrent UPSC
Sorry about the duplicates...I'm new to this! :)
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Recurrent UPSC
My mom has recurrent UPSC and has been treated with carbo/taxol. Her recent CT scan suggested mets to the liver. Anyone have success with drugs other than these? Thank you.
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Recurrent UPSC
My mom has recurrent UPSC and has been treated with carbo/taxol. Her recent CT scan suggested mets to the liver. Anyone have success with drugs other than these? Thank you.
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Recurrent UPSC
My mom has recurrent UPSC and has been treated with carbo/taxol. Her recent CT scan suggested mets to the liver. Anyone have success with drugs other than these? Thank you.
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Recurrent UPSC
My mom has recurrent UPSC and has been treated with carbo/taxol. Her recent CT scan suggested mets to the liver. Anyone have success with drugs other than these? Thank you.
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Cancer found in Moms Vaginal wall
So the Doctor found a lump in Moms vaginal Wall.That must have been the reason for her CA 125 Rise.She will go in On the 12 for Radiation Consult. Any one else had this?Why didnt this show up on her scan I wonder.
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Post Op question - Help please
I had my laproscopic surgery on 11/21 I have constant chills all day long; can't seem to warm up. I don't have a fever; just bad chills. Does anyone know if this is normal? I was post menopausal 7 years prior to surgery and so no hot flashes; just cold.....help! Thank you Sabina
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Do ovaries really have to go?
I'm having robotic davinci Tuesday at Sloan-Kettering. My diagnosis is complex atypia with hyperplasia bordering on well-differentiated adenocarcinoma. I'm a figurative sculptor and it's been difficult for me to accept my cervix which I'm rather fond of will be gone but I finally can face it. Now I'm working on losing my…
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Mammogram - I've got dense breasts~
Completed my yearly mammogram a week ago and today spoke with RN at docs office. She informed me of my results --- have dense breasts and need diagnostic testing to look at the left side image closer. Didn't mention anything about mass or lumps, but after reading about dense breasts this opens up more reading on my part.…
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Newbie with a question,scared and unable to function
Hello ladies,I'm Angie. I am 34,will be 35 in December. I have been glued to my computer screen for days on end now,and can't seem to get the information I need. Bear with me and let me give you the summary of my situation,and please offer help if you can. I went for a PAP smear,on September 29 of this year. Came back…
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Just diagnosed - MMMT Uterine Cancer
My name is Kathy, 59 years old and living in Kansas. Had biopsy Nov 2010, hysterectomy performed Dec 22nd and pathology report noted Stage 1A MMMT grade 3 cancer. I had consult with oncologist last week and will be having six rounds of chemo (Paclitaxel and Carboplatin) - once every 3 weeks starting in a couple of weeks.…
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questions about discharge
After my dx of stage 2 breast cancer in 2005 and treatment with chemo and rads, I took tamoxifen for 3 years. I then took evista for the remaining 2 years. I am now 58 yrs old and experiencing post menopausal bleeding. I have had this for almost a year. My gyn suggested it was vaginal atrophy, but on doing an internal last…
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TIGERSDOBOUNCE, DOUBLE WHAMMY, RO10, GRACIEGOLD AOUT MYMOM-Its not lymphoma-Its acute leukemia HELP
Its two years since my surgery for endo cancer and I still do not feel very well still haveing roving pains and in stomach. Anyway, my daughter is diagnosed with acute Leukemia. Please give me some feed back and let me know your thoughts on this dreaded disease. she is waiting for a bone marrow results and then we will set…
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Smoking and Chermotherapy
I start chemo treatments on Tue. 11/29 and heard smoking during treatments is bad. I usually smoke about a pack a day but have cut way back to 2-3 cigarettes a day. Did anyone smoke during their treatments? From what I read, smoking interferes with the effectivenss of chemo. Hope that 2 or 3 cigarettes a day won't do too…
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Who here is using food to better their prognosis, either in conjunction with other therapies or even
Does it seem to be working, in your opinion? What types of things are you doing? Books you've relied on or different types of doctors you have used to guide you. Another question goes like this. If you have been doing "x", "y", and "z",then you get cancer, have treatment and continue doing whatever "x" etc,were, do you…
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MY SWEET DAUGHTER JUST HAD PRELIMINARY DIAG OF LYMPHOMA (can the preliminary be wrong, please help)
Hi Guys: Can you believe this my 45 year old daughter was having pains in her legs and back since September. She was haveing regular physio and did not help. Last Friday she was running a fever and went to ER. Cat Scan showed nothing but the MRI showed lesions on the liver, biopsy showed preliminary lymphoma. I am totally…
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Surgery is over - what now?
Hi All I had my laproscopic total hysterectomy on 11/21. I stood at the hospital overnight and am home recuperating. The doctor said the cancer was contained and it was very early stages of uterine cancer. I won't know if I need any treatment until the pathologist report comes back but the doctor said all looked as good as…
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a week of great sadness and great relief........
This week has been so mixed for me. Firstly, the sad news of Linda's passing, which hit so many of us so badly. But, today, the news that my latest PET/CT scan is clear - no uptake anywhere. We had ordered it to try and determine whether the "mass" on the left side of my pelvis was recurrence or fibrosis - it turns out to…
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Confused with 2 different diagnosis and treatment options for 1A - Grade 3
Hi, I am a newbie, having been recently diagnosed in August, 2011 and have been reading the other posts trying to get information related to UPSC. I have found the ladies on this site to be the most helpful and the most understanding. After reading a lot of the posts, I feel this is the best place to get my information…
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I am freaking out
Okay, I am totally freaking out because I just found out I have a one inch "blastoma" lining my uterine wall. Geez, no one in the ER used the word "cancer" and after the finding (from vaginal and pelvic unltrasound), everyone's behavior changed from professional to plain "odd". Hmmmm....I am going to see whether my OBGyn…
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Linda P
There's a new post from Linda's daughter on the UPSC thread that she passed away this morning. I'm in tears. Suzanne
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Bleeding for no reason?
I had uterine cancer in October 2010. Full hysterectomy and no followup treatments as the cancer had not spread. Wasn't really given a "stage" but after looking on the internet I would say it was 1B and Grade 2. In May of this year I wiped and found blood. It stopped and I dug my head in the sand and decided to tell no…