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Help confused and scared. With complicated case, massive pain and no answers.
.I have had a light dull lower back ache for about 4 months now that increased in pain a bit toward the end of december. A month ago I wound up in the ER, treated for what they said they didnt think was but had no other explaination for a UTI, The next night back to the Er the pain so bad I could not stand and a CT Scan…
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dr visit 2 1/2years Ned
Just came from my Dr appt. I was told that all test show NED. It has been 2 1/2 years since last chemo treatment so dr said shw would see me ::) n six m ok nths. Yeah! No more every 3months. Just need to get the hernia fixed. Working on that. I have been waiting for this day. Trish
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Planned CSN Outage Tonight
Dear Users, CSN will be down for routine maintenance tonight from around midnight to 3:00 AM Eastern Time. We apologize for any inconvenience. The site will be up and running as quickly as possible. Thank you for all you do for CSN! CSN_Nick
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Cancer Center of America?
Hello everyone hoping you all are staying strong in these difficult journies we unfornately must encounter..it's been a very long hard and trying year with my Mom being sick and diagnosed with Stage IV Uterine Cancer it feels as if things never get better either and it becomes very discouraging at times..we are looking to…
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Searching for a Naturopath with training/experience in Oncology
Hello, Reading Jazzy and other women's experiences with Oncologic Naturopaths, this sounds like a wonderful way to go. I'm truly frustrated with haivng my body treated as "parts" rather than a provider working with the my body as a whole. I'm hoping others can help with suggestions/referrals/advice. Unfortunately North…
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newly dignosed mixed endometrioid and mucinous types g1
Hi, I was newly diagnosed in January. I will see the oncologist Friday. I have had spotting and discharge for months. But I didn't do anything because I thought it was due to my perimenopause. How were you staged, after the surgery or through CT or MRI? What tests or procedures you anticipate I am going to have? After the…
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I need your help please - Words of Inspiration Needed
Hello!! I come from the breast cancer forum, dx at the age of 32. I want to reach out to all of you because I'm working on a project for my aunt, who was diagnosed with AML (leukemia) at the age of 46. She means a lot to me because she has been like a mother to me. She is having a hard time with support and health care.…
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Just Curious
Anybody ever heard of Dr. Mark Stangler and his "Amazing" Bible Code Cure? I know it's all smoke and mirrors mixed with snake-oil. but Hope floats! Best, Debrajo
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multiple unrelated cancers in the same individuals
Is anyone aware of research into multiple unrelated cancers in the same individuals? In the last five years I have had uterine cancer, thyroid cancer, and a melanoma skin cancer without family history or apparent environmental or behavioral risks.
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28yrs old and needing advice
I just recently had a uterine biopsy done. I am very nervous because I just called to see why my results were taking so long and if they hand them. The lady answers and tells me a nurse can give me the results to just hold on. The nurse answered and says yes she can give me the results to let her look up my report. That's…
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GYN CANCER RETREAT IN WINSTON-SALEM, NC
Dear Gyn cancer sisters, The Wonderful folks at Windriver Cancer Retreat Center in North Carolina will be facilitating the 3rd Annual GYN Cancer Retreat in March, 2014 in Winston-Salem, North Carolina. http://www.windriverservices.org/ The retreat is paid for by grants and Athena's Run, Forsyth Cancer Center. If you are…
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Hrt and endometrial thickness question
Hi Ladies, I'm 53 and postmenopausal. LMD was March 2012. I've been on hrt for about 1.5 years. It's been fine then in December I started spotting. This went on for 3-4 weeks on and off. Then stopped for 3 weeks and last week started up again. Had an TVUS that showed the endo stripe was 8.12mm. Gyno said it was borderline…
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CA125 remains stable
I had my repeat lab this week. 9 weeks ago my CA 125 was 534, this time it was 707. But in September it was 712. So we will continue to observe and repeat the lab the end of March. I still have no symptoms and continue to feel good. I am continuing the Aromasin every day. I do have joint pain and thinning hair from the…
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2nd PAP - still ASCUS - Interviewing new doctor - need list of questions
Just got a call from the PA from my gyne/onc's office to say that my PAP came back again with abnormal cells (ASCUS). She asked if I was having any problems. I guess no one ever saw the intake nurses notes from my visit nor did they ask me when I was there at my appointment on November 15th. (At my appointment, I had given…
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PET vs CT scan, which one is better
My mother has UPSC Stage 3, and her oncologist prefer CT Scan. I was wondering if anyone knows what is the difference?
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Talcum Powder
I heard a guy representing the Goldwater Law Firm in Scottsdale, AZ last night on TV. He was looking for people who had been diagnosed with ovarian cancer who had used talcum powder. He said it could be Johnson's Baby Powder, Shower to Shower, or any other brand of talcum powder. He was implying that the talcum powder…
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White discharge
I was wondering if anyone of you ever had a mild, white discharge years after histerectomy. I am having one. I went to the doctor, and he took a sample for a culture to check on vaginal diseases. It came back negative, than God. However, I would like to play safe and find out more, since the culture was for vaginal…
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ca125 back up after 8 rounds
My mom has stage 4 grade 3 upsc that has moved to the abdominal lining and colon. She finished 8 rounds of taxol/carbo 2 months ago that took her ca125 numbers from 12000 to 125. In the 6 weeks since chemo her number is already back up to 1800. CAT scan done today with no results yet. Just really nervous that her numbers…
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My mom
My mom was diagnised with UPSC stage 3C and it took the hospital 5 weeks to strat the treatment. I think it's disgracefull. We live in Canada and the public system is free but there is a long waiting list. I wish we had come to US. I fear we waited too long. Then they start with chemo and radation and no surgery…
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Just diagnosed, supposedly "very early stage"
Hello everyone I was just told yesterday I have early endometrial cancer. I had laparoscip surgery almost 2 weeks ago for exploratory abdominal pain and while I was under they removed a cervical polyp. My Dr did a d&c while there but it wasn't a part of the plan originally. I'm lucky she did and found the cancer, who knows…
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Support for recurrence
We just found out my mom has a recurrence of endometrial cancer. She had a hysterectomy in March 2012 and we were told it was stage 1a. She did not have any follow up treatment like chemo or radiation. I felt like that part of our lives was over. For months she has been complaining of a pain in her ribs, which developed…
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Lung nodules
Cathy, I saw your post and hope your cardiac problems are mild. Let us know. I recently had another CT lung scan and had a wonderful report of no additional growth and three had decreased in size. I asked the doctor if this means they are not cancerous since they are to small to biopsy still. He said it's just something…
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Question about chemo "rounds" "cycles," *added* recurrence question...
What, exactly, is a "round" of chemo? What is a "cycle?" I'm not sure how to describe the treatment I'm receiving so people understand me. During September-November, I received 6 treatments with Cisplatin. Would that be a round. Would each of the 6 treatments with Cisplatin be a round? Next week I start a…
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Newly Diagnosed and Looking for Support
Well, I guess I'll just jump right in. I was diagnosed on September 24th with Stage 4 Endometrial Cancer. It all started in late August - I think. I'll try to explain here. In August of 2011 I was diagnosed with multiple, bi-lateral PE's, which came from DVT's in my leg after an injury. I was started on Coumadin and did it…
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CSN study FAQ
Please excuse the long post. A number of members have posed questions on the discussion boards or emailed me for more information about the CSN study that has been underway since November 2013. I thought it might be helpful to post the most common questions and my answers. What is the CSN survey? What is its purpose? The…
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The truth about lymph node removal
Latest CT scan came back showing the tumors as reduced in size, so I'm good to go for a full hysterectomy following my 6th chemo treatment (just had 5th this week). Here's my concern . . . . It is contained in the uterus with the exception of one right groin lymph node. Pet scan and recent CT showed no further spreading,…
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Kathy G
Haven't heard from you in awhile. Everything ok?
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The truth about lymph node removal
Latest CT scan came back showing the tumors as reduced in size, so I'm good to go for a full hysterectomy following my 6th chemo treatment (just had 5th this week). Here's my concern . . . . It is contained in the uterus with the exception of one right groin lymph node. Pet scan and recent CT showed no further spreading,…
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Jan, thinking of you
Have not heard from you in a while. How are you doing? I hope you are tolerating your treatment without too many problems. Sendings you a BIG cyber hug. Please drop us a note when you can. In peace and caring.
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still kicking stage 4 b endometrial cancer part 2
just thought Id peek in and see how everyone is doing, praying for all just got back from the doc and was told cancer free , this is 3 years now, so wish I could go tell my first doc off, as he told me I would be dead in 1 to 2 years ! love the doc I have now, so positive, which is what everyone needs! if your doc is being…