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New Study - Pet/MRI scan - Has anyone had this?
There is a new scanning technique in the works. It has been out since summer of 2013 I think. Instead of a Pet CT this is a PET/MRI. It is supposed to be the best in scanning. If you are in the study, they will do a PET/CT then they will do the PET/MRI right after. They will use the same tracer for both tests. You still…
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Has this happened to anyone with UPSC
Hi Ladies, I have USPC. I had surgery and treatment in 2011 and have been NED since then. I have not posted in while. My husband recently passed away from melanoma and I have been having a rough time of things. I went to my GYN for a pap a week ago. I had a message on my answering machine tonight to call his office. I knew…
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NED after 3 month check up!
Hi everyone - I hope you are all having a good weekend. Just thought I would share that my mom had her first 3 month check up and she is still NED! Her CA-125 went down a little and is still well within the normal range. All her test results were good and her treatment team was really happy with how everything looked. We…
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Just diagnosed with UPSC
Hi, my name is Sandy. I was just diagnosed with UPSC and have not yet seen a gyn oncologist. I am really frightened! I have been reading some of the posts here as well as researching online and it doesn't look good. I am wondering what the next step will be, how long treatment will take and what are my chances?? I have not…
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MMMT with bone mets, anyone with similar case?
Hi All, My mom was diagnosed with MMMT stage I in Sep 2012 at the age of 72, after the hysterectomy she had 4 rounds of Chemo (Carboplatine/Endoxan). Two months ago and after she hit her head a small mass started growing and the recent MRI results mentioned that it is most probably bone mets in the skull. The tumor is…
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49, no symptoms, abnormal pap, D&C polyp result positive - what should I ask my gyn oncologist at vi
Hello everyone. So happy to have found this forum. I know you be such a valuable resource and support for me. My main reason for posting is that I want to know what to ask my gyn onc when I see him this week, pre hysterectomy. What would be helpful for me to know at this early stage? I know he did blood work when I went in…
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Hi All, polyp, horrible symptoms surgery in March
I have been reading some of your posts and I think you are all very strong. I haven't been diagnosed yet so I wasn't going to post but I need someone to talk to. Three years ago, I was told I had a fibroid, the only symptom was heavy bleeding. The bleeding got worse and pain accompanied it. I let it go for three years…
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HAVE YOU HEARD OF LDN--LOW DOSE NALTREXONE?
Sorry that my prior message misspelled the name of this medication, LDN (low-dose naltrexone), just suggested by my integrative doctor to minimize chances of recurrence. Its web site shows success in treating a range of disorders--decreasing the severity of autoimmune diseases, bolstering the immune systems of HIV AIDS…
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New Here -Just Diagnosed
Hello! I am 46 and have been post menopausal for about 2 years. 3 weeks ago I was diagnosed with uterine cancer from a endometrial biopsy. I have had off and on spotting for a little over a year, whichi I wrote off to part of menopause, and then my primary doctor wrote it off as "probably a small fibroid or something".…
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Help confused and scared. With complicated case, massive pain and no answers.
.I have had a light dull lower back ache for about 4 months now that increased in pain a bit toward the end of december. A month ago I wound up in the ER, treated for what they said they didnt think was but had no other explaination for a UTI, The next night back to the Er the pain so bad I could not stand and a CT Scan…
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dr visit 2 1/2years Ned
Just came from my Dr appt. I was told that all test show NED. It has been 2 1/2 years since last chemo treatment so dr said shw would see me ::) n six m ok nths. Yeah! No more every 3months. Just need to get the hernia fixed. Working on that. I have been waiting for this day. Trish
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Planned CSN Outage Tonight
Dear Users, CSN will be down for routine maintenance tonight from around midnight to 3:00 AM Eastern Time. We apologize for any inconvenience. The site will be up and running as quickly as possible. Thank you for all you do for CSN! CSN_Nick
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Cancer Center of America?
Hello everyone hoping you all are staying strong in these difficult journies we unfornately must encounter..it's been a very long hard and trying year with my Mom being sick and diagnosed with Stage IV Uterine Cancer it feels as if things never get better either and it becomes very discouraging at times..we are looking to…
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Searching for a Naturopath with training/experience in Oncology
Hello, Reading Jazzy and other women's experiences with Oncologic Naturopaths, this sounds like a wonderful way to go. I'm truly frustrated with haivng my body treated as "parts" rather than a provider working with the my body as a whole. I'm hoping others can help with suggestions/referrals/advice. Unfortunately North…
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newly dignosed mixed endometrioid and mucinous types g1
Hi, I was newly diagnosed in January. I will see the oncologist Friday. I have had spotting and discharge for months. But I didn't do anything because I thought it was due to my perimenopause. How were you staged, after the surgery or through CT or MRI? What tests or procedures you anticipate I am going to have? After the…
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I need your help please - Words of Inspiration Needed
Hello!! I come from the breast cancer forum, dx at the age of 32. I want to reach out to all of you because I'm working on a project for my aunt, who was diagnosed with AML (leukemia) at the age of 46. She means a lot to me because she has been like a mother to me. She is having a hard time with support and health care.…
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Just Curious
Anybody ever heard of Dr. Mark Stangler and his "Amazing" Bible Code Cure? I know it's all smoke and mirrors mixed with snake-oil. but Hope floats! Best, Debrajo
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multiple unrelated cancers in the same individuals
Is anyone aware of research into multiple unrelated cancers in the same individuals? In the last five years I have had uterine cancer, thyroid cancer, and a melanoma skin cancer without family history or apparent environmental or behavioral risks.
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28yrs old and needing advice
I just recently had a uterine biopsy done. I am very nervous because I just called to see why my results were taking so long and if they hand them. The lady answers and tells me a nurse can give me the results to just hold on. The nurse answered and says yes she can give me the results to let her look up my report. That's…
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GYN CANCER RETREAT IN WINSTON-SALEM, NC
Dear Gyn cancer sisters, The Wonderful folks at Windriver Cancer Retreat Center in North Carolina will be facilitating the 3rd Annual GYN Cancer Retreat in March, 2014 in Winston-Salem, North Carolina. http://www.windriverservices.org/ The retreat is paid for by grants and Athena's Run, Forsyth Cancer Center. If you are…
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Hrt and endometrial thickness question
Hi Ladies, I'm 53 and postmenopausal. LMD was March 2012. I've been on hrt for about 1.5 years. It's been fine then in December I started spotting. This went on for 3-4 weeks on and off. Then stopped for 3 weeks and last week started up again. Had an TVUS that showed the endo stripe was 8.12mm. Gyno said it was borderline…
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CA125 remains stable
I had my repeat lab this week. 9 weeks ago my CA 125 was 534, this time it was 707. But in September it was 712. So we will continue to observe and repeat the lab the end of March. I still have no symptoms and continue to feel good. I am continuing the Aromasin every day. I do have joint pain and thinning hair from the…
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2nd PAP - still ASCUS - Interviewing new doctor - need list of questions
Just got a call from the PA from my gyne/onc's office to say that my PAP came back again with abnormal cells (ASCUS). She asked if I was having any problems. I guess no one ever saw the intake nurses notes from my visit nor did they ask me when I was there at my appointment on November 15th. (At my appointment, I had given…
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PET vs CT scan, which one is better
My mother has UPSC Stage 3, and her oncologist prefer CT Scan. I was wondering if anyone knows what is the difference?
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Talcum Powder
I heard a guy representing the Goldwater Law Firm in Scottsdale, AZ last night on TV. He was looking for people who had been diagnosed with ovarian cancer who had used talcum powder. He said it could be Johnson's Baby Powder, Shower to Shower, or any other brand of talcum powder. He was implying that the talcum powder…
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White discharge
I was wondering if anyone of you ever had a mild, white discharge years after histerectomy. I am having one. I went to the doctor, and he took a sample for a culture to check on vaginal diseases. It came back negative, than God. However, I would like to play safe and find out more, since the culture was for vaginal…
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ca125 back up after 8 rounds
My mom has stage 4 grade 3 upsc that has moved to the abdominal lining and colon. She finished 8 rounds of taxol/carbo 2 months ago that took her ca125 numbers from 12000 to 125. In the 6 weeks since chemo her number is already back up to 1800. CAT scan done today with no results yet. Just really nervous that her numbers…
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My mom
My mom was diagnised with UPSC stage 3C and it took the hospital 5 weeks to strat the treatment. I think it's disgracefull. We live in Canada and the public system is free but there is a long waiting list. I wish we had come to US. I fear we waited too long. Then they start with chemo and radation and no surgery…
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Just diagnosed, supposedly "very early stage"
Hello everyone I was just told yesterday I have early endometrial cancer. I had laparoscip surgery almost 2 weeks ago for exploratory abdominal pain and while I was under they removed a cervical polyp. My Dr did a d&c while there but it wasn't a part of the plan originally. I'm lucky she did and found the cancer, who knows…
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Support for recurrence
We just found out my mom has a recurrence of endometrial cancer. She had a hysterectomy in March 2012 and we were told it was stage 1a. She did not have any follow up treatment like chemo or radiation. I felt like that part of our lives was over. For months she has been complaining of a pain in her ribs, which developed…