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I am semi-back
Hello everyone, I am back...mostly and trying to find another "new normal". I want to thank all of you for the prayers and kind thoughts. I could feel the love and it did help! I have been checking on all of you just to see if you all were ok, but didn't want to post because I knew all of you could see how low I was. We…
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A time to be thankful
I know it is hard sometimes to be dealing with our cancer, and looking for a silver lining in it all seems laughable. But what are you thankful for this year? I'll start. I have been blessed with the most amazing people in my life (including all you ladies). I am thankful for my talented doctors, but especially for the…
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Chemo: Hair and skin
Question ladies: When you went through Chemo, do you remember when your hair started to fall out? Did you notice skin changes ( I feel like my scalp/body is on fire, or has a sunburn) I have cut my hair short already, and am pondering if this is a sign to go shorter. It has only been 9 days since my first Chemo. Crystal
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Sugary drinks linked to increased risk of endometrial cancer
Interesting article: http://www.medpagetoday.com/HematologyOncology/OtherCancers/43086
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Surgery in the morning
I go for my surgery in the morning. We have to leave the house at 4am so we can arrive for my 530am check in. Surgery begins at 8am. I am just hoping that all the bowel prep stuff is settled by the time we have to get in the car. LOL. I am taking my kindle with me so that I can let people know how I am doing ASAP after I…
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update
Good evening ladies :) It's been a while since I've been on. Since We 'spoke' last.. Endometrial Adenocarcinoma, Stage 2 (move than 50% invasion) I've started chemo and met my Radiologist (Who is a very nice, smart and knowing man) Chemo, three rounds, one down, next one on Dec 4th Radiation, 5 rounds, twice a week, HDR…
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Advice needed, please
I am 15 months out from the standard treatment for UPSC, stage 1a. I just had a 3 month check and everything was ok except my pap smear was unsatisfactory because there weren't enough cells. My dr recommends waiting to repeat it in 3 months. Out of my 3 previous paps, 2 were ascus (HPV negative). I would like to hear how…
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help with diagnsis of recurrence
I am four weeks from surgery for my recurrence. First diagnosis one year ago with total hysterectomy and three radiotherapy treatments. I thought I was home free then. Now I don't know what to expect. I started HER yesterday and had radiation evaluation today. I cried all day. I am very frightened. I have read so much that…
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6 mo checkup - Now looking for new doctor - :-(
Ok. So I had my six months check-up yesterday. My appointment takes a 3 1/2 hour drive from my house. We get there a little early. My appointment is for 10:20 a.m. I am told at the reception area that the doctor is running an hour behind. It ended up more like and hour and forty-five minutes behind. I got in the exam room…
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UCLA reports new two-punch therapy for endometrial cancer
Saw this was published Nov 12, 2013, and while it won't apply to all of us, it may help some warriors: http://www.examiner.com/article/ucla-reports-new-two-punch-therapy-to-treat-endometrial-cancer
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long term side effects
Hello all! I have reached my 5 year cancer-free mark. Yay! But I'm wondering about the long term effects of the treatment. I had a total hysterectomy/oophrectomy, 6 treatments of Taxol/Carboplatin, then 25 external radiation treatments, with 5 treatments of Cisplatin, then 3 intermal radiation. I was 42. I'm trying to find…
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Where is the best hospital/ dr. in the Baltimore or Washington Dc Area for Carcinosarcoma mmmt?
Would like to get a second opinion regarding the carcinosarcoma Ive had for the last 2 and 1/2 years.It has now metastasized to my liver.Two lesions smaller than a centimeter in liver,and 1.4 centimeter on exterior of liver.My drs.don't seem to want to operate to take them out,but chemo certainly isn't getting rid of…
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Fermentation
Hello Uterine sisters, I've read about the benefits of salt brined vegetables - Probiotic, good bacteria, and nutrients. Now that I'm retired and have more time than money I'm thinking of trying fermentation at home. Wondering if anyone has experience with fermenting? I'm looking at the jars on www.pickl-it.com. Thanks,…
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Guides for buying produce, skin care products, etc
No doubt the "regulars" are aware, but want to share this with newcomers. There are useful guides online for buying produce and other products at www.ewg.org/consumer-guides. The produce guide lists the "dirty dozen plus" - for pesticide; go organic on these. If you are on a limited budget, there is a clean 15 list of…
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ROLL CALL - borrowing from our Ovarian sisters!
Fellow warriors! Let's check-in on eachother! Give us a brief "hello" and how are you doing for all newbies and long-time (I know you ladies are out there) warriors. I'll start: DX: April 2012 - UPSC, Stage 1A Finsished Chemo/radiation/chemo treatment December 19 2012 Doing and feeling great. Thank you all for your support.
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Blessed
God has blessed me once again even as I carry on my sinful affair with NED! All joking aside, this was my 3 1/2 year check up for UPSC. All is good, some new issues, some old ones, but I am enjoying the after- glow right now and will take care of the other issues as I feel like it! Basicly, everything else can go to H@#44…
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Wonderful Cancer Retreat Center in North Carolina, and other resource suggestions
Gyn sisters, I want to share 2 resources: There is a wonderful Cancer Retreat Center in North Carolina - Wind River. www.windriverservices.org It is a small, peaceful, special place - home of 2 amazing folks, Shannon and Dave. They share their home to facilitate residential retreats in the Spring and Fall for cancer…
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Is there a good Cancer Clinic in LA?
Is there a good cancer clinic in LA for uterine cancer?
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Depression long after diagnosis...
Ladies, I was wondering if any of you have gone through a period after your diagnosis and recovery where you become depressed and/or frustrated? I don't know if it is my age, my mental health, the hormonal result of my hysterectomy or certain aspects of my life in general, but I am very frustrated with not being in the…
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Two Year Anniversary for UPSC - Still NED
Hello Everyone: Just wanted to let everyone know that I just celebrated my 2 year anniversary today of Ending Chemo. Yeah! I had my last Cat Scan in late June of 2013 and am still with NO evidence of disease so I am Very Happy and Very Grateful. Also, my CA 125 as of June 2013 was No. 7. I go back and see my oncologist in…
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Mood swings
Good evening ladies, Hope you are all doing well!! Ok, here goes... I've become Sibil since my surgery. lol, but really I'm having the WORST mood swings. Angry as hell one minute, laughing and or crying the next. I really don't feel like the old Crystal anymore. I'm having trouble staying asleep, body aches, and at times a…
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what to expect during 25 chemo treatments
Starting series of 25 radation tx to pelvis on monday. This is My 1st reoccurence after dx one year ago. Will i be a le to drive myself 30 minutes to facility and have tx the drive myself home every day for the next five weeks? What can i expect to feel as time goes on? Will this be it or can i get this Again? Should i try…
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My mom is NED!
Hi - Just thought I would share the wonderful news my mom got yesterday afternoon. She finished up with her 6th chemo treatment early October. She had a scan and a blood test earlier this week and the scan showed no evidence of cancer and her CA-125 was well within the normal range. We are so happy! All my best, Lisa
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Xoft isotope free treatment by iCAD
Hello fellow lovlies, Has anyone heard of or have data/ RCT research on this means of treatment for endometrial cancer? It is indicated for intraoperative gyn cancers, skin, breast and gyn cancers and spares surrounding tissues. According to the i CAD Xioft info sheet, it is approved by the FDA, but I have not seen the…
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Got bad news and need help!
Hi. Eighteen months ago I had uterine and cervical cancer. I was treated at Sloan but never had any follow-up scans, even though I went to all my follow-up appointments. In the last week of August, I was having some diarrhea and a doctor in Jersey ordered an abdominal scan. The results showed that there was a 2 mm nodule…
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Jan here...I'm back.....
Hey there warriors! Well I definitely need to apologize for not getting on these boards for quite a while. I'm the first to blast someone in my situation to realize everyone worries and come back and let the warriors know what's happending. Don't quite remember where I left off from my post a while back, but yes it's…
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Newly Diagnosed
Hi everyone. On August 1st, I was diagnosed with endometrial adenocarcenoma stage 1. This came as quite a shock to me. For as long as I can remember my periods only occured about once or twice a year. About two and a half years ago, I started getting them on a monthly basis and thought my body was finally getting itself…
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What are your thoughts
Warriors, I work with a woman who has an aggressive, stage three cancer. She was very fortunate to find a clinical trial to participate in locally and I am thrilled for her. Here is the thing. She came in to tell me the doctor told her: "I am going to cure you." Ladies, I was a little taken aback. I had stage 1a UPSC and…
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Apples
Friends and Fellow Survivors, Happy week-end to all. I just read that apples help ward off 7 or 8 types of cancer. Love and Healing to all!
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Collagen
Does anyone take collagen supplements? If so, which one? I am trying to find collagen to help me with my skin deterioration due to lack of estrogen.