The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Mediastinal lymph node metastases

mesteve
mesteve CSN Member Posts: 1
in Thyroid Cancer #1

Quick summary: total thyroidectomy, 3 neck dissections, RAI negative. Lung metastases since 2002 that grow slowly and don't respond to radioactive iodine.  Thyroglobulin 350.  Until now the plan was always "watch and wait". I haven't tried any experimental treatments yet.  I recently found out that I have 10 - 15 mediastinal lymph nodes (behind the breast bone) that light up on a Petscan.  My thyroglobulin has not jumped recently... just sluggishly increasing, as always.  Therefore, my doctor thinks that maybe it is a new cancer, like lymphoma, or the papillary thyroid cancer has become undifferentiated, hence the lack of Thyroglobulin response.  She says that it is very strange to just have lungs mets that spread to the mediastinal lymph nodes 16 years later... another reason why she thinks it might be lymphoma.  Has anyone had this happen?  I'm a bit bewildered at the thought of fighting a second cancer.

Like Care

Comments

Discussion Boards