-
diagnosed in 2007 and still not in remission
having such a hard time with this one.. cause I have a very complicated medical history... have thyroid cancer stage 3 papillary which made my total thyroidrectomy almost in possible to do cause the cancer was wrapped around my vocal cords and esophagus... now after 5 years, my vocal cords are paralyzed... swallowing is a…
-
Tenderness/pain in thyroid bed way past TT-this happen to anyone else?
Hi, I had two surgeries in Nov 2010 to complete TT. I was diagnosed with papillary carcinoma-follicular variant. Cancer was encapsulated and very small. No lymph node involvement. In March 2011 I elected to do an ablation dose of radioactive iodine. Whole body scan was clear and thyroglobulin was very low. Saw the doctor…
-
Tenderness/pain in thyroid bed way past TT-this happen to anyone else?
Hi, I had two surgeries in Nov 2010 to complete TT. I was diagnosed with papillary carcinoma-follicular variant. Cancer was encapsulated and very small. No lymph node involvement. In March 2011 I elected to do an ablation dose of radioactive iodine. Whole body scan was clear and thyroglobulin was very low. Saw the doctor…
-
Pap thyca in a lymph node in the breast?
I am 18 months out from TT/RAI. I had + nodes that were removed in TT. Last January, (at my 6 months testing) they found a + node that they called a mutation. They were hoping to get it with my tracer dose of RAI at the one year mark. It didn't respond, so I have a consultation with a surgeon along with my next batch of…
-
Papillary?
So I had my biopsy slides reviewed by UCSD Cancer Center for a 2nd opinion... This is what the report said. Thyroid, left superior, fine needle aspiration, outside slide review - Atypical follicular lesion consistent with follicular variant of papillary carcinoma. Does that mean I have papillary or follicular? I need to…
-
I am curious about a few things
Does everyone have to get a Pet scan after the RAI? And if you do, can someone please tell me that their results were ok. I know everyone is different, but I am really getting myself sick over this. Not sure if the Dr, is going to call tomorrow or wednesday, When I got the original diagnosis of thyroid cancer last year, I…
-
Waiting for the results of the PET scan
I had it done Friday. We are going on vacation Saturday and I am trying to be positive, but fear of the unknown is the worst. I am so sick of people saying the same thing about Thyroid cancer being the "good one", but this not knowing is very stressful. Reading some of the other posts about where it spread is very scary.
-
Throid cancer and dental x rays?
My mom randomly asked me if I thought my thyroid cancer could be linked to dental x rays, and I looked it up - some conflicting info online, but some does support a link. Has anyone heard about this? I have had many dental x rays due to routine checkups/changing dentists and having braces multiple times. Any other cancers…
-
Kidney Tumor
Hi -- I am four years with Pap Thyroid Cancer (also, 2 of 6 lymph nodes in the neck were positive for cancer). I now have a 1.5 cm tumor on my left kidney. Options were to wait three months and do another CT scan to see if it has grown in size or have a biospy with my history of thyroid cancer. Have decided to do the…
-
Translation?
I go back to my dr. on Jan. 4th. I was looking at my pathology report online. Too many medical terms that apparently change meaning when followed or are following another term. I get that the two lymph nodes (which I don't recall them telling me they removed) are negative for cancer. But what does the rest of it mean? (A)…
-
What's Next?
I went to the Dr. today and got pathology report stating I have papillary carcinoma follicular variant confined to thyroid. My actual dr wasnt there so I dont know what is next for me. During surgery I had JUST my isthmus removed-not my right or left lobe. Since on the report it says its confined does that mean I will not…
-
Confusing Situation
So I had melanoma last year and it was successfully removed last April. In July I began to rapidly lose weight and then I lost my voice. I had ultrasounds of my thyroid area due to having a "full" neck. The ultrasound showed nine enlarged nodules. Next they did an FNA that came back negative. We also did a thyroid function…
-
ENT or Endocrine Surgeon
I was recently diagnosed with papillary cancer a few months ago. My nodule is 1.3 cm and was told I should have a TT. I'd rather take the whole thing out than chance a second surgery. I'm trying to decide if I should proceed with an ENT who specializes in Head/Neck tumors/disease or go with an Endocrine Surgeon. Have meet…
-
More surgery?? but my thyroglob. # is decreasing!
I am a 29 y/0 woman -- -diagonosed 6/2011 w thyroid cancer, had surgery 7/2011 -- removed thyroid and 21 nodes on both sides of neck -- all positive for papillary. -had RAI 9/2011 -It's now 6 months later and I found a lump in my neck -- had biopsy few weeks ago, at first glance cells just looked like a hematoma (that…
-
TSH level
My Endo. just called and told me my TSH was 1.8. Had the thyrogen shots and body scan last week. He wants me to go for PET scan on friday. I know the ideal # is 0.5,, but is my number way off?
-
Metastasis under jaw line - any similar experiences?
Hi All, I am trying to be a bit more active in this forum to not only support others but continue to voice some ongoing concerns in my own health. Recently I noticed a small hard lump under my left jaw line. It is not on the surface but rather in the hollow inside the jaw (think if you pushed your thumbs up under your jaw…
-
HELP...
I am 7 days post RAI ablation. My lymph nodes under my chin are terribly sore and swollen. I feel horrible today. I have absolutely no energy and do not even feel like sitting up for a long period of time. Has anyone else had this happen to them? I have felt good up until now. I was always a little tired but this is…
-
Is it ok to take cytomel long term?
Hello~ I had a TT and I131 treatment a year ago. Had to go off synthroid in order to have the year out scan done. After it was finished, my doctor put me on cytomel (25 mg) and synthroid (125mg). After some time I felt really good (like I use to before I had a TT). My doctor refuses to refill the cytomel even though I told…
-
7 days post op and feeling great !
HI everyone, I had a total thyroid (Papillary Carcinoma) on 12/13. I am only 7 days post op and I have to say I am feeling pretty good. I am currently taking cytomel and not feeling any weird side effects that I hear others speak about. I just want to let others know that there are a lot of negative posts all over the…
-
I'm back after TT
I had my TT on December 9th. My incision is just beautiful. MD Anderson is amazing. I went in thinking they were going to just take the right side (the one with the 3.3cm nodule) since it had caused some damage to my right vocal chord. The dr. didn't want to risk damage to the left if that nodule was fine. However, I woke…
-
Did you have pain with your hurthle cell cancer?
Hi, I am 38 years old and for almost two months I developed some symptoms in my neck/throat area. It began with just some difficulty swallowing initially but now is full blown pain in neck/throat. I have pressure in my ears, a sensation something is stuck in my throat and numbness/tingling in my jaw on left side. Pain is…
-
Not feeling so alone anymore.
when I was diagnosed with papillary carcinoma I felt totally alone. Like I was the only one. I am so thankful to have found this site so I can share my journey with others in the same situation......Total thyroid scheduled for 12/13...I'm going to ask Santa for a new thyroid...
-
Quick question...
I just had my tracer dose of RAI and I have had a severe headach since about 35 minuites afterwards it is going on 19 hours now and tylenol is not cutting it. Is this common? If so.. when I get the higher dose on friday will the headache be worse?
-
i am just a little confused
I know on every label and product they have the sodium content, but never say iodine. My dr. said if i need to use any i can use kosher salt. Are the recipes on Thyca.org safe to make?
-
side effects of the no iodine diet
I was supposed to have the injections in August 2011, but the supply was low and had to be re-scheduled. When i started the diet, after a week my blood pressure went very low. Called the Endo. dr and asked if I should still take my blood pressure medicine with my bp that low. He said yes. Now I am scheduled for the shots…
-
Insular Thyroid Cancer
Hi, everyone. I was wondering if anyone else here have been diagnosed with insular thyroid cancer? I was diagnosed with this about 5 years ago and have had 3 RAI treatments. Now my thyroglobulin level is rising. Was 8 in 2010, 11 in 6-2011 and now it is 16. I think I have had my lifetime max of RAI, and I am just wondering…
-
After the thyrogen shots
That is Monday and Tuesday. On wednesday I have to get an ultrasound and then take the pill. For some reason, it says I have to fast from 2:30 am. Does that mean fasting until I get the body scan on Friday?
-
tired of hearing -"good cancer"
I am sitting in isolation typing to you.I have had two surgeries and just did the drink!I am starting to get frustrated with people telling me I have "good" cancer.....do people think before they say that? It is cancer! I feel alone.
-
Need Advice Please
Hi. My name is John and I am a first time poster. I had my TT 3 years ago after having surgery to remove a benign tumor on one side that turned out to be ptc. Recently I had a ultrasound which showed small growth on one side. 7mm by 3mm. About two weeks after the scan I began feeling sick. I have been sick for five days…
-
Can a PET be inaccurate for thyroid cancers
Hi all: I had a PET several weeks ago which indicated a possible reoccurance in two more lymph nodes in my neck. The PET had been preceeded by an ultrasound which showed the same concerns. My Tg levels are at about 4.5 - I had my last round of RAI last May... AFter consulting with my endo and surgeon, we felt the best…