-
looking for information
I was diagnosed with stage I papillary in June 2011. I had a TT but didn't do RAI. I started taking levothyroxcine and when I did blood work in November my TSH levels were .4 but this month when I did them they were 2.5... My endo didn't really give me much info as to whether I should be worried or not, just asked if there…
-
Protandim
Is anyone out there taking Protandim? http://www.protandim.com/ I have a friend with Hashimoto's and other issues that says this stuff has changed her life. Thanks!
-
Hurthle Cell Back Again
My original diagnosis of hurthle cell carcinoma was in Sept. '06. I had a TT. My TG levels have never gone up. I had 3 tumors in my neck that were removed in 2010. RAI was not affective and I had 6 weeks of EBR. Now I have another recurrance under my clavical/sternum and a 2cm mass in my lungs. I am currently being treated…
-
Lessons Learned? Papillary Cancer
I found out that I have papillary cancer late Friday. I am just diving into finding out what all this means for me, but I wanted to ask those that have been there for a little advice or "lessons learned" or "wish I would have done that from the begining". They are going to do another ultrasound this week to see if they can…
-
Pets during RAI treatment
I am having RAI on feb 20 2012 and I have four cats. I've heard both ways as far as isolating them just like people. Does anyone have any suggestions on what i can do and how I can take of them while on isolation. Removing them from the house temporarily is not an option. Thank you.
-
anyone being treated at HUP?
Hello, After a battle with UPSC (uterine Papillary Serous Carcinoma) I find I also have papillary thyroid cancer and after much testing will undergo surgery soon. I have been reading the posts here, and wonder, is anyone being treated in Philadelphia at HUP? MinnieJan
-
Alcohol Ablation - is it really safe and appropriate for recurrence?
I may have a recurrence in 2 small lymph nodes; waiting to have the biopsy done. I've heard conflicting things about alchohol ablation. I've heard it is not good; or that it may not help with lymph node recurrence. I've also heard it could be a great alternative to surgery. I've already had my TT, Right and Left Radical…
-
Hospital Admittance for RAI
When admitted to the hospital for RAI can anyone tell me what essentials I need to bring? I haven't recieved anything from the doctors office and would like to begin preparing. I should be admitted Mon or Tue next week. My emotions are so up and down at this point, excited to begin this phase of treatment, but scared of…
-
birth control
Did anyone have issues with birth control and synthroid? I tried it for one month and immediately had a reaction including extremely dry eyes (painfully dry), alternating with anxiety. It is so strange, and has never happened to me before - but it definitely began when I started the BC; I have since discontinued it, but…
-
Aches and Pains. . .
Hi All - I am 4 months (9/9/11) post-op total thyridectomy for papillary carcinoma. I had my Thyrogen and RAI body scan October 2011 and was told all it good. Now, for the past 3 weeks or so I am so tired, every muscle and joint hurts. I take my calcium 3 times a day and my Synthroid (150 mcg) daily. I am not due to go…
-
Need Help CALCIUM
Hey Everyone First of all I apologise for the erratic post your about to read. I had my Thyroidectomy Jan.10th. Surgeon said all went well. Parathyroids not damaged be out of hospital the next day. Well its now the 13th and i'm still not home they can't get my calcium levels to say up.They've had to switch the iv site…
-
Anyone has experience with thyroid cancer treatment at UCSF?
My wife was just diagnosed with thyroid cancer over the holidays. We'd like to see a doctor at UCSF since we live in the Bay Area and have heard good things about its capability in cancer/endocrinology. One thing we're concerned about is the wait time to get an appointment there. Does anyone have experience with UCSF…
-
diagnosed in 2007 and still not in remission
having such a hard time with this one.. cause I have a very complicated medical history... have thyroid cancer stage 3 papillary which made my total thyroidrectomy almost in possible to do cause the cancer was wrapped around my vocal cords and esophagus... now after 5 years, my vocal cords are paralyzed... swallowing is a…
-
Tenderness/pain in thyroid bed way past TT-this happen to anyone else?
Hi, I had two surgeries in Nov 2010 to complete TT. I was diagnosed with papillary carcinoma-follicular variant. Cancer was encapsulated and very small. No lymph node involvement. In March 2011 I elected to do an ablation dose of radioactive iodine. Whole body scan was clear and thyroglobulin was very low. Saw the doctor…
-
Tenderness/pain in thyroid bed way past TT-this happen to anyone else?
Hi, I had two surgeries in Nov 2010 to complete TT. I was diagnosed with papillary carcinoma-follicular variant. Cancer was encapsulated and very small. No lymph node involvement. In March 2011 I elected to do an ablation dose of radioactive iodine. Whole body scan was clear and thyroglobulin was very low. Saw the doctor…
-
Pap thyca in a lymph node in the breast?
I am 18 months out from TT/RAI. I had + nodes that were removed in TT. Last January, (at my 6 months testing) they found a + node that they called a mutation. They were hoping to get it with my tracer dose of RAI at the one year mark. It didn't respond, so I have a consultation with a surgeon along with my next batch of…
-
Papillary?
So I had my biopsy slides reviewed by UCSD Cancer Center for a 2nd opinion... This is what the report said. Thyroid, left superior, fine needle aspiration, outside slide review - Atypical follicular lesion consistent with follicular variant of papillary carcinoma. Does that mean I have papillary or follicular? I need to…
-
I am curious about a few things
Does everyone have to get a Pet scan after the RAI? And if you do, can someone please tell me that their results were ok. I know everyone is different, but I am really getting myself sick over this. Not sure if the Dr, is going to call tomorrow or wednesday, When I got the original diagnosis of thyroid cancer last year, I…
-
Waiting for the results of the PET scan
I had it done Friday. We are going on vacation Saturday and I am trying to be positive, but fear of the unknown is the worst. I am so sick of people saying the same thing about Thyroid cancer being the "good one", but this not knowing is very stressful. Reading some of the other posts about where it spread is very scary.
-
Throid cancer and dental x rays?
My mom randomly asked me if I thought my thyroid cancer could be linked to dental x rays, and I looked it up - some conflicting info online, but some does support a link. Has anyone heard about this? I have had many dental x rays due to routine checkups/changing dentists and having braces multiple times. Any other cancers…
-
Kidney Tumor
Hi -- I am four years with Pap Thyroid Cancer (also, 2 of 6 lymph nodes in the neck were positive for cancer). I now have a 1.5 cm tumor on my left kidney. Options were to wait three months and do another CT scan to see if it has grown in size or have a biospy with my history of thyroid cancer. Have decided to do the…
-
Translation?
I go back to my dr. on Jan. 4th. I was looking at my pathology report online. Too many medical terms that apparently change meaning when followed or are following another term. I get that the two lymph nodes (which I don't recall them telling me they removed) are negative for cancer. But what does the rest of it mean? (A)…
-
What's Next?
I went to the Dr. today and got pathology report stating I have papillary carcinoma follicular variant confined to thyroid. My actual dr wasnt there so I dont know what is next for me. During surgery I had JUST my isthmus removed-not my right or left lobe. Since on the report it says its confined does that mean I will not…
-
Confusing Situation
So I had melanoma last year and it was successfully removed last April. In July I began to rapidly lose weight and then I lost my voice. I had ultrasounds of my thyroid area due to having a "full" neck. The ultrasound showed nine enlarged nodules. Next they did an FNA that came back negative. We also did a thyroid function…
-
ENT or Endocrine Surgeon
I was recently diagnosed with papillary cancer a few months ago. My nodule is 1.3 cm and was told I should have a TT. I'd rather take the whole thing out than chance a second surgery. I'm trying to decide if I should proceed with an ENT who specializes in Head/Neck tumors/disease or go with an Endocrine Surgeon. Have meet…
-
More surgery?? but my thyroglob. # is decreasing!
I am a 29 y/0 woman -- -diagonosed 6/2011 w thyroid cancer, had surgery 7/2011 -- removed thyroid and 21 nodes on both sides of neck -- all positive for papillary. -had RAI 9/2011 -It's now 6 months later and I found a lump in my neck -- had biopsy few weeks ago, at first glance cells just looked like a hematoma (that…
-
TSH level
My Endo. just called and told me my TSH was 1.8. Had the thyrogen shots and body scan last week. He wants me to go for PET scan on friday. I know the ideal # is 0.5,, but is my number way off?
-
Metastasis under jaw line - any similar experiences?
Hi All, I am trying to be a bit more active in this forum to not only support others but continue to voice some ongoing concerns in my own health. Recently I noticed a small hard lump under my left jaw line. It is not on the surface but rather in the hollow inside the jaw (think if you pushed your thumbs up under your jaw…
-
HELP...
I am 7 days post RAI ablation. My lymph nodes under my chin are terribly sore and swollen. I feel horrible today. I have absolutely no energy and do not even feel like sitting up for a long period of time. Has anyone else had this happen to them? I have felt good up until now. I was always a little tired but this is…
-
Is it ok to take cytomel long term?
Hello~ I had a TT and I131 treatment a year ago. Had to go off synthroid in order to have the year out scan done. After it was finished, my doctor put me on cytomel (25 mg) and synthroid (125mg). After some time I felt really good (like I use to before I had a TT). My doctor refuses to refill the cytomel even though I told…