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PET scan question
I was diagnosed with papillary thyroid cancer almost 1 yr ago. I had a total TT and underwent I131 treatment. On September 23rd I had my year out scan. The scan came back clean but my bloodwork was elevated (4.7). I then had a mapping ultrasound, which also came back clean. (My endo ordered all of the follow up tests). I…
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thyrogen required?
Is it required that you take Thyrogen before you start your RAI treatments? I looked it up on my insurance website and it is not covered and they estimate that it is $2045.00 per shot. Can you "get ready" for RAI without it?
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I can't pass the "iodine free" blood test to start treatment
I've been on the iodine free diet for 3 weeks now and I'm starting to lose my mind. Not because of the food exactly, but because I did the diet to the best of my ability and I failed my first blood test...the results showing that I'm not even 1/2 way to being iodine free. I think I figured out what I did wrong...I recently…
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What is classed as an early thyroid cancer find?
I received quite a few head x rays at the age of 12 and at the age of 15-17 I had lumps in my neck, after a biopsy at 25 years old I found out it was papillary with mixed follicular. People say as long as its caught early prognosis is very good, I had mine for at least 10 years unknowingly and still show uptake now. What…
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Is it normal to get cranky and short temepered all the time.
I was diagnosed with papiallry nov 2010 and had thyroidctomy and RAI on december. i m ok now. my last test came out clean. but i m still struggling to fix the dose of medicine to keep my TSH down. what i have noticed lately that i loose my temper very easily. and has become very short tempered and i am cranky all the time.…
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Thyrogen shots before RAI
Does anyone know about these shots? I am waiting for the drug to arrive. There is a shortage of it. I was told that I will get 2 shots one day after another. My insurance does not cover this and the cost is about $1000.00 a shot. Can anyone give me any info about this. Thank you Barbara
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meeting with my oncologist
I have my first meeting scheduled for the radiology oncologist to get ready for the RAI. Are there any particular questions that I need to ask?
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Thyrogen shots before RAI
Does anyone know about these shots? I am waiting for the drug to arrive. There is a shortage of it. I was told that I will get 2 shots one day after another. My insurance does not cover this and the cost is about $1000.00 a shot. Can anyone give me any info about this. Thank you Barbara
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MRI shows white spots
Hi everybody. I had an MRI done on my arm and neck a couple of weeks ago. My arm has been hurting since July. I finally saw an orthopedic dr. that ordered the MRI. The nurse told me to call back the day after to get the results. I did. But they said, the dr. hadn't finished his notes yet and they would call me back. They…
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Can thyroid regenerate?
I got test results today for recent ultrasound of thyroid area and it shows I have a fairly normal sized thyroid. How can this be? I had my thyroid removed in July 2010 and RAI treatment in August followed by scan after it was determined I had papillary and follicular cancer (different kind on each side). An ultrasound in…
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Surgery number 3 coming up...sigh...
Well, met with my surgeon today to review my PET scan results. He has to go back in again to try to remove two more nodes. That makes 3 surgeries in a year...4 if you count the biopsy. Then likely I need to do a 5 week session of radiation. Anyone else gone through multiple surgeries and radiation? I want this to just go…
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Need advice from long term survivors!!
Just had my follow up PET scan - doctors sent me because the neck ultrasound showed 2 suspicious nodes in my neck. There are definately 2 more to worry about - one kind of under my jaw near the end of the jaw bone, the other just above my collarbone - both right side. The rest of my neck and body remain clear. I've been…
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Mets to the thyroid question
Hi I've been a regular on the Kidney Cancer board, and am running a bit scared at this time. On my most recent CT a month ago, there was enough change that I've already had the ultrasound and the next test will be a nuclear scan of the thyroid. Has anyone had another type of cancer metastacize to the thyroid? And has…
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Normal to not have hormone therapy after TT?
This is all moving so fast. Saw an Endo for the first time two weeks ago, ultra sound that day, biopsy two days later, pre-surgery consult yesterday and surgery scheduled for Oct. 5th. They are going to do a total thyroidectomy. My question is....is it normal to not see an Endo until a month after surgery? What about…
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do i need an anti-depressant ?
hello everyone, its been 1 year and 1 month since i ve had my hyroid surgery anf from then on i have been only on my thyroid supplements. i am not having any tablets other than thyroxin and i have krimson - 35 ( contraceptive pills ) to regularise my periods. i feel depressed, sad and lonely most of the time. i feel…
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So is the low iodine diet worse than rai ?????????????
Saw this in another website..... there are so many complaints about the low iodine diet and how it "sucks". But it looks okay to me. Will see when it starts. Seems people think it is worse than rai. So really, are most people having no symptoms from the rai ? I hate nausea. Haven't had nausea in 30 years.
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Must Read Regarding Aspartame
I posted this in response to another post on "Canadian Red Dye" and felt very strongly about informing everyone of the dangers of Aspartame, an artificial sweetener in over 6000 products that never should have been approved by the FDA. If you are using it and you don't know it's in your food it might explain some…
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How many hours or days after I131 does one go off the low iodine diet for maximum 131 effect ?
I've heard one day, two days, and five days. Which did your doc recommended ? Do you stay on it longer than recommended ?
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pernicious anemia
Has anyone else been diagnosed with Pernicious Anemia after Pap. cancer?
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WBS random question
Very random question - does the WBS just show where there was RAI uptake, or would it show anything else (like other tumors in the body)? Just curious - my report just noted uptake areas.
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Gastric pain while on LID?
Going through prep for annual scan. Had complete thyroidectomy two years ago and have been through LID twice. First two times, went hypo but this time doctor will use thyrogen. Now going through LID again. This year, having lower gastric pain much earlier in the diet. I still have 19 days to go. Anyone else had this?
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Blood work (tumor marker) shows 4.7 should be 2
Had my year out scan 2 weeks ago. Immediately after the scan, I went and had a blood draw that was sent to CA as a "back up"/baseline. The scan was clean, but the bloodwork came back as 4.7. The doctor said it should be less than 2 (I am assuming this was a test for thyroglobulin). I am going for a mapping ultrasound on my…
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Just when you think you're in the home stretch.......
Just thought I'd share..... I'm scheduled for RAI tomorrow (3pm) and WBS on 10/20. My ENDO was good with providing instructions on stopping Cytomel, LID, RAI appt but I never asked about resuming normal diet, starting on levothyroxine and returning to see her. So I emailed the ENDO and although I wasn't pleased with her…
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List of fresh fruits and grains that provide iodine
hmmm, thought oatmeal was OK. what the heck can I have for breakfast now? Fresh Fruits, Vegetables, Grains, Herbs and Nuts that Stimulate the Thyroid According to The Merck Index 14th Edition 4, the key fresh foods that provide iodine in gently stimulating amounts are those listed below: fruits – pineapple, coconut,…
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LID/No thyroid medication
I took my last Cytomel pill on Tuesday (6th of OCT) and will be off any/all thyroid medicine until my I-131 scan on the 18th pending bloodwork on the 14th. I have been on the LID for 16 days and must stay on the LID until the scan is completed on the 18th. I have actually lost 12 pounds on the LID because I can't eat…
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Anyone had their blood or urine iodide measured ?
My friend's doc in New York suggested he collect 24 hour urine to check his iodide level at the end of his low iodine diet. Has anyone here done that ?
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What is considered "slow growing"
I had a CAT scan for a separate issue May 31st and was told I have a lump on my thyroid. Went to my regular doctor 2 days later, had an ultrasound 4 days later and was set up with an endo and had my first biopsy by the end of 2 weeks. That all happened so fast. The biopsy came back inconclusive. They scheduled another with…
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Has anyone here had I131 and had NO side effects ?
Replies in another thread were few and inconclusive.
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Dizzy after TT
It has been a week after my surgery and I am officially released to go back to work....the problem is I am sooo dizzy. I am going to take a few extra days without pay hoping it will help. How long does it take for that to go away? Is it normal? Haven't seen too many posts on dizziness as a side effect.
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Thyca and your employer
It's been a while since I have been on these boards. I was diagnosed with papillary carcinoma follicular variant in November 2010. I had a TT a week after diagnosis and I am just now getting ready to do my ablation RAI treatment. Why you ask? Well, a bunch of incidents that just lead to this! I requested a 2nd opinion…