-
I am new, but am barging ahead.
I have found a wealth of information on this site. I am so grateful and hope I will be able to support others here in the future as I gain more knowledge and experience. For now I am too new to be of much help. I am more afraid than anything, but am trying to moderate my fear by getting good info. Here is my personal info,…
-
Lung biopsy
I will have my lung biopsy tomorrow at 1pm. I am very scared of the outcome and procedure. Hopefully it will be fine. I'm asking for your prayers.
-
Is cheese on the LID a mistake?
I posted the diet I was given yesterday, and it specifically lists cheese, butter, mayo as "ok" foods in one area, and says no dairy in another but allows 1 cup of milk per day. I think the cheese (with no limits - NIH states 1 oz of cheeze is allowable by some practices) is a mistake, but who am I to say anything to them?…
-
Question before low iodine diet
I am about to do my treatment of RAI. I am starting my low-iodine diet this monday. My question to anyone out there is I know salt has iodine, and sea salt is also a no no. But when you read the label on sea salt it states it has no iodine. Is there any thing you can use for a salt substitute. Also is there a milk…
-
hair loss after 1 year scan?
Hi folks! Just had the 1 year scan in August, but I've been experiencing a lot of hair loss (did the thyrogen). Is this something attributed to the Thy Ca stuff, or not? I did lose a good bit of hair after surgery as the levels were getting stable, so I anticipated that. But this was not expected...?
-
Hospital stay length?
I had my TT in December, but no cancer. However, my housekeeper (whom is like family) does have thyroid cancer. She is very poor and not eligible for any benefits. She had her TT today and they sent her home hours after the procedure! They did not verbally explain any of the complications she should look for as far as…
-
Tg is 102 4 months post RAI
I just saw my ENT the other day and got my latest labs. My Tg is going down, but it is still 102 4 months after RAI. It started out around 1500. My TSH is 1.2 and not quite low enough as well. Doc said that if my Tg doesn't come down significantly he may want me to have another RAI. Is it normal or usual for ones…
-
Thyroglobuin raised from 1.1 to 1.6
Hello. My 57 year old mom was diagnosed with stage 3 papillary carcinoma thyroid cancer in January 2012. She had her total thyroidectomy and cancerous lymph nodes removed in February, followed by radioactive iodine treatment in March. Her WBS came back clean after treatment. A couple of blood tests after treatments showed…
-
Meddie?
HI- I am a 33 yr old mother of 2 young boys. I just had a biopsy that found my right 3.5 cm thyroid nodule is "suspicious for a neoplasm and concerning for medullary carcinoma". It further notes that numerous spindled cells and material concerning for amyloid are present. I have scheduled and appointment with an oncologist…
-
Radioactive Iodine
Hi, Iam new to this site. I am due to have Radioactive Iodine treatment and have been told that I am to be kept in isolation from my family afterwards. Can I ask how people got home from the hospital after their treatment? And can I go outside afterwards too away from other people? What happens to my bed linen etc? Luv…
-
mucus problems
Hello everyone I am a daughter of a survivor who is seeking help on behalf of her dad. My Father was diagnosed with Papillary Thyroid Cancer in May 2012. He is a 64 year male and has already had a full thyroidectomy (July 2012) all lymph nodes removed, very small part of his esophagus removed, radioactive iodine (Aug 2012)…
-
Question
I normal on the breast cancer board . They found a 4.2 nodule on my thyriod I had a FNA of it and it hurts. How long does it stop hurt or does it. I was told 24 hrs before the results now I got a 5 day wait .
-
depression
hi everyone, 2 years ago i've done total thyroidectomy and after 1 year i'm suffering severe depression.i research for the internet and i found out i'm having bipolar disorder. is there anyone who can advice me what to do i'm having low energy and no interest to do anything that was funny for me before.i'm having treatment…
-
Tg is 102 4 months post RAI
I just saw my ENT the other day and got my latest labs. My Tg is going down, but it is still 102 4 months after RAI. It started out around 1500. My TSH is 1.2 and not quite low enough as well. Doc said that if my Tg doesn't come down significantly he may want me to have another RAI. Is it normal or usual for ones…
-
Thyroid tumor-right side/colon cancer worried please help
Hello-I am so worried about thyroid cancer. I am stage 4 colon cancer and have had two surgeries for lung and liver mets. (Feb. and April)I I finally had the courage to read my last cat scan and I have a 12 mm tumor on the right side. My oncologist said we'll take care of the thyroid later. I am worried sick of course. Its…
-
Going for Biopsy tomnorrow and would love some feedback
Hi, I have nodules on my thyroid that were discovered through a CT Scan with Dye. An ultrasound was done and it was determined one was begign, one very small one was likely benign and the largest one was heterogenous, hypoechoic with unknown cells and indeterminate. I would not be too worried as my research shows that most…
-
swollen and pain in the parotid gland
I had Bells Palsy 6 years ago, a year after I started having pain in my parotid gland below the ear. The pain comes and goes,now I am face with a problem, I am not sure about getting the RAI treatment. I understand from the doctor and the research I have to eat sour candy to keep the salivary glands active, I can't, sour…
-
Recurrent thyroid cancer
I had my total thyroidectomy in August 2010 with papilliary cancer. I have had my yearly blood work and ultra sound. This time they told me that they noticed a lumph mode that they had not seen before and the the report said could be malignant or benign and doctor says to wait six months and see if any change as my blood…
-
Tg rising..now what
I just came back from my 6 month check up. I had neck ultrasounds done, plus Thyrogen stimulated blood work. The ultrasounds were clear, my TSH fine, everything was great EXCEPT that my Tg has gone from 5.5 to 7.1 (both tests at different labs though) So what do I do from here. My doctor has advised another check in 6…
-
Baking for Low Iodine Diet
Hello everyone, I am a pastry chef and a friend of mine has asked me to bake stuff for her while she's on the LID. This is her second time through and she says finding treats is almost impossible. She also wants me to bake her some bread to eat with the peanut butter she makes using the recipe from the ThyCa cookbook. If…
-
MTC thyroid specialist in Asia
Hello, I am a MTC patient in India and need help in finding a MTC specialist doctor/clinic in Asia. Let me briefly describe my treatment summary. I was diagnosed with medullary cancer of thyroid in 2009. I had surgery for total thyroidectomy, bilateral and mediastinal node dissections requiring sternotomy. After a few…
-
Looking for Surgeon
Hello!My name is Elena and I am new to this blog. My 16 year old child was diagnosed with "suspicious" for thyroid cancer. Her doctor recommended surgery. I am looking for recommendations for great surgeons in California. Thank you for your help. In the meantime, she is taking PolyMVA and some vitamins. She is eating a lot…
-
Internal scar tissue problems
I had my first operation, to remove the right hand side of my thyroid and a large tumour, in April 2011. A second operation, on the same scar site, to remove the remaining thyroid took place a month later. Following difficulties with my blood results, and being unable to have RAI, a small remnant of thyroid was found and…
-
Recurrent thyroid cancer
I had my total thyroidectomy in August 2010 with papilliary cancer. I have had my yearly blood work and ultra sound. This time they told me that they noticed a lumph mode that they had not seen before and the the report said could be malignant or benign and doctor says to wait six months and see if any change as my blood…
-
RAI
I had to get a small dose of 2-4 mCi for a scan. I was just wondering if anyone knows what the breakdown of it would be in hours/days. Would it be safe to go for a blood test after only about 36-48 hours? I have been drinking a lot and using the bathroom more then once per hour at times to get it out of my system but I'm…
-
New, PTCFV, Question about enlarged lymph nodes
I'm new here, I had papillary TC follicular VariNt in 2010, thyroidectomy in Oct. 10., RAI in Nov. 10. Ever since, I've had bouts of hoarseness, fullness in my throat, as if my food hasnt completely settled into my stomach, or like I have a pill stuck in my throat....much like I had before the TT surgery. I have episodes…
-
Ear pain
I have recently been diagnosed with papillary thyroid cancer. I've had an ear ache and swollen face and neck on same side as cancer. The dr. says they are not necessarily related. Anyone else have these symptoms?
-
Confused about Tg Antibodies
I had thyroid cancer back in 2009, and all tests done up to this year showed that I had No Antibodies present and that all the thyroid tissue was gone after the radioactive iodine treatment. Suddenly about three months ago I tested positive for Tg antibodies. I thought this was impossible, and I am totally confused how…
-
Newcomer with high antibodies
Hi folks... I'm new and trying to sort info while waiting for my specialist appointment. I have been diagnosed so far with 'thyroid disease'. I have high antibodies (value over 1000) and nodules on my thyroid. (hypothyroid) When I pressed the dr. for a more specific diagnosis, he refused and referred me to the specialist…
-
Armour Thyroid
Is anyone out there taking Armour Thyroid? I was on 250 mcg's of Levothyroxine and while my TSH on paper was fine at 0.7 I still was having some issues with body aches and tiredness so my doctor thought my body wasn't converting the medicine to T3 so he changed me to 180 mcg's of Armour Thyroid. I've been on it almost 3…