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Can some one help me regarding thyrogen shots
Hii everyone. I know there is a shortage of the thyrogen shots but I was wondering if anyone has been able to order this themselves or even have found this drug. If so where? i live in Monroe, Connecticut. The np at my doctors office has mot found it for me and when I tRy to call around to see if I can locate it she gets…
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Synthoid and thyrogen
Hello, First, I appreciate reading everyone's comments. Thanks to you I fought and finally got Thyrogen. I am due to have the RAI on 4/25. There has been debate between the nuclear medicine dept and my endocrinologist as to whether I need to go off the synthoid and cymotel before my thyrogen I njections and RAI. I wanted…
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Vision Problems After RAI Treatment
I had RAI treatment in November after a total thyroidectomy in August for thyroid cancer. I have had vision problems ever since the RAI treatment. Is it related? Has anyone else experienced this? It is terrible -- I saw an optometrist, who said it is an "autoimmune problem" but offered no solutions. If anyone has…
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had RAI pill last week-are you in isolation now? if so lets chat
home in isolation in my living room. was told to use same plate & utensils all week rather than disposables. have 1 trash bag I am keeping for trash that i will then keep till end of month before throwing out. watching LOTS of tv which is kind of fun because i don't usually have time for that. stayed on rai diet for 3 more…
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Anxiety med, post TT?
Hi everyone I had TT in late March 2011, and RAI in late august. My endo keeps my TSH -1 (0,0..) , and I've been too anxious, with palpitations and tired the last few months. It is a long story, but a psychiatrist prescribed my 40mg of paroxetine (Paxil). I don't want to take it, because it is too much and I don't want to…
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how to find the best surgeon and treatment team
I was just diagnosed with thyroid cancer three days ago. I had a complete physical in October of 2011, and all my blood work was good. I had no health problems at all. My doctor said that I didn't have to come back for a year for my next check-up. About a week ago, I noticed a lump in my neck. I went to my PCP who ordered…
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Not only do we battle our cancer but..
Not only do we battle our cancer but we have to battle the companies who sell us the drug to save our live. I am soo angry.. http://www.msnbc.msn.com/id/46814168/ns/health-health_care/
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External Beam Radiation for Aggressive Papillary?
First some background: I'm a 26 year old female Background: Diagnosis of Papillary Thyroid Cancer March 17, 2011 Treatments: Radical Neck Dissection on March 22, 2011. The surgery took 8 hours. They removed my entire thyroid, one of my jugular veins, and 55 lymph nodes ranging from the base of my skull to my breast bone on…
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Childhood Radiation
As an infant I was radiated in 1946 for an enlarged thymus gland in the mistaken belief that this would prevent SIDS. The amount of radiation I absorbed was equal to ten common CT studies today. This treatment was commonly used in major hospitals and even pediatricians’ offices across the country. Thousands of infants and…
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If you are new to thyroid cancer, read this.
I found my nodule around 10/06/11 had first ultrasound 10/17/11 which lead to a fine needle aspiration on 11/11/11 which is the same day my doctor called with the cancer diagnosis. I tried to find the right people to help but no one would answer any questions. I found some real useful websites that I will post later. While…
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Wondering if it's normal to be exhausted after a total thyroidectomy
Hi, I hope someone can shed some light who's at the end of their therapy on my topic and give me a bit of hope. I'm 34, married to a Naval Officer and I have 2 small kids. I found out my nodule was suspicious of papillary carcinoma right after Thanksgiving of last year. Had my first surgery on the 13th of December when the…
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Very concerned
I came to this site in January by way of Kidney Cancer, but due to neck swelling/knot and pain that I have had for a while and ignored, I went last Friday and had and ultrasound of my neck. (my dr insisted) I am supposed to go this friday for the results, but because of the last ultrasound I had showing I had kidney cancer…
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New to the group, new to cancer and new to how confusing this is...
Quick background: I am a 26 y/o male, and I have aggressively pursued treatment of my thyroid and thyroid cancer. Here is my story and then my major question. Nov. of 2011 I went for a check-up because I was having problems focusing, getting out of bed, having energy and motivation through the day and gaining weight. Was…
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change synthroid - not good
New here. I am a 16 year cancer survivor. My medicine has always come from one place and I have always taken it the same, Until. About a year ago I began to feel bad: aching bones, low energy, sinus infection, whole body inflamation. Found a lump, ended up having an hysterectomy - not cancerous. Spring came, I felt a…
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Very Worried.
Hi Everyone, I found out some news today that i'm needing some advice on. I had my TT Jan.10. Found out Papillary Carcinoma Feb. 9th, Found out today that I'm pregnant!? So naturally I am very worried and scared. We've wanted another baby for a long time, but now is not when we were thinking. I'll be calling my doctor…
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lymph node
I had my 6 month post treatment ultrasound and there was a small lymph node ~5mm there. Doc said 'not to worry' so of course, I worried. She said it did not have any characteristics of cancerous lymph nodes, but I'm concerned why it might be slightly larger. Anyone know more about that? I am still paranoid that everything…
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Hürthle cell carcinoma
Hi everyone.. I was just recently diagnosed with Hürthle cell carcinoma. I am now on my second opinion on how it should be treated. I had my right thyroid removed on Aug 30, 2011. And it came back witha positive diagnosis of Hürthle cell carcinoma. The first surgeon said he wanted to take the wait and see approach for…
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Thyroglobulin at 2....do RAI again?
I had my total thyroid taken out and multiple lymph nodes taken out. Both my thryoid and some of the lymphnodes tested positive. Before I took the RAI my thyroglobulin level was at a 22 and my scan showed that I had activity in my neck. After 1 year, my scan came back clear but my Tg level is at a 2. So my question is...do…
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looking for information
I was diagnosed with stage I papillary in June 2011. I had a TT but didn't do RAI. I started taking levothyroxcine and when I did blood work in November my TSH levels were .4 but this month when I did them they were 2.5... My endo didn't really give me much info as to whether I should be worried or not, just asked if there…
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Protandim
Is anyone out there taking Protandim? http://www.protandim.com/ I have a friend with Hashimoto's and other issues that says this stuff has changed her life. Thanks!
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Hurthle Cell Back Again
My original diagnosis of hurthle cell carcinoma was in Sept. '06. I had a TT. My TG levels have never gone up. I had 3 tumors in my neck that were removed in 2010. RAI was not affective and I had 6 weeks of EBR. Now I have another recurrance under my clavical/sternum and a 2cm mass in my lungs. I am currently being treated…
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Lessons Learned? Papillary Cancer
I found out that I have papillary cancer late Friday. I am just diving into finding out what all this means for me, but I wanted to ask those that have been there for a little advice or "lessons learned" or "wish I would have done that from the begining". They are going to do another ultrasound this week to see if they can…
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Pets during RAI treatment
I am having RAI on feb 20 2012 and I have four cats. I've heard both ways as far as isolating them just like people. Does anyone have any suggestions on what i can do and how I can take of them while on isolation. Removing them from the house temporarily is not an option. Thank you.
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anyone being treated at HUP?
Hello, After a battle with UPSC (uterine Papillary Serous Carcinoma) I find I also have papillary thyroid cancer and after much testing will undergo surgery soon. I have been reading the posts here, and wonder, is anyone being treated in Philadelphia at HUP? MinnieJan
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Alcohol Ablation - is it really safe and appropriate for recurrence?
I may have a recurrence in 2 small lymph nodes; waiting to have the biopsy done. I've heard conflicting things about alchohol ablation. I've heard it is not good; or that it may not help with lymph node recurrence. I've also heard it could be a great alternative to surgery. I've already had my TT, Right and Left Radical…
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Hospital Admittance for RAI
When admitted to the hospital for RAI can anyone tell me what essentials I need to bring? I haven't recieved anything from the doctors office and would like to begin preparing. I should be admitted Mon or Tue next week. My emotions are so up and down at this point, excited to begin this phase of treatment, but scared of…
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birth control
Did anyone have issues with birth control and synthroid? I tried it for one month and immediately had a reaction including extremely dry eyes (painfully dry), alternating with anxiety. It is so strange, and has never happened to me before - but it definitely began when I started the BC; I have since discontinued it, but…
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Aches and Pains. . .
Hi All - I am 4 months (9/9/11) post-op total thyridectomy for papillary carcinoma. I had my Thyrogen and RAI body scan October 2011 and was told all it good. Now, for the past 3 weeks or so I am so tired, every muscle and joint hurts. I take my calcium 3 times a day and my Synthroid (150 mcg) daily. I am not due to go…
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Need Help CALCIUM
Hey Everyone First of all I apologise for the erratic post your about to read. I had my Thyroidectomy Jan.10th. Surgeon said all went well. Parathyroids not damaged be out of hospital the next day. Well its now the 13th and i'm still not home they can't get my calcium levels to say up.They've had to switch the iv site…
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Anyone has experience with thyroid cancer treatment at UCSF?
My wife was just diagnosed with thyroid cancer over the holidays. We'd like to see a doctor at UCSF since we live in the Bay Area and have heard good things about its capability in cancer/endocrinology. One thing we're concerned about is the wait time to get an appointment there. Does anyone have experience with UCSF…