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medullary thyroid cancer
I was diagnose with medullary thyroid cancer I was told it's a female problem and a rare deasese is there a male out there with this problem.
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What should I take to the Hospital ? Will laptop, books, cell phone be affected by radiation?
I had Thyroid surgery at the end of January. Thyroid Carcinoma was found in both sides of the thyroid, and after low iodine diet I am scheduled for RAI this Thursday 5th. I have not received any instructions from my doctor or nurse yet, when I got the cancer results in February I was told that I will stay 2 nights at the…
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Just finished RAI
Aloha, I'm new to the forums. Had a TT April 9th, Papillary Thyroid Cancer Stage 3 diagnosis on April 13th. RAI - 209 mCi dose on May 21st. I'm 12 days post RAI now. I'm still feeling not well. I go back to work next week Wednesday and I am kind of nervous about it! I am going back to work 3.5 days per week for the first…
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Where to stay after RAI?
Where did you stay after RAI? I have two small children and can't really go home to them afterward, until I know that I am totally safe. As a psychologist, I don't want to have to push them away for hugs, etc when they come jump on me :( My doc suggested a hotel, but are there precautions for this? I would imagine so, but…
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Possible all clear
Went to the hospital today, to see the oncologist and get the results of my scans taken after my RIA. Apparently the scans showed all the radioactivity was concentrated in my neck, which is good. However, she did say that the take up was the highest she had ever seen, and seems to indicate some residual thyroid tissue…
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Thyroid removed and now five months after radioactive iodine but
Feeling well but my damn thyroglobulin is 0.7 Isn't that a bad sign ?
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ATC spread to bones...
Is anyone in the same boat as my husband? He was diagnosed with ATC in August 2011 and today, we just found out it spread to his bones. Please help!!!
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Reply to Julie-Sunny-AZ
April 25, 2012 - 11:54pm Hi Julie-Sunny-AZ When I saw your comment "no you did not increase your chances for recurrance" I had a sigh of relief, thank you for that. I asked the nurse how hyperthyroid was I but at the time she didn't have my chart with her. When they lowered my meds I told her that I don't do well at a…
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Complex Nodule
Hello People :) I am wandering the halls of CSN and came upon this group. I just got the report from my ultrasound and have a question to ask. The report says "complex nodule with presence of vascularity in the mid pole measuring 1.3 x 0.8 x 1.1 cm" It goes on to say perithyroidal soft tissues are normal. Isthmus "presence…
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CTCA
DOES ANYONE HAVE ANY INFORMATION ABOUT THE CANCER TREATMENT CENTERS OF AMERICA?
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Please, please help i am worried
I started my LID on April 18' have to do it for 2 weeks but unfortunately i have been having sunflower seeds for a snack. Went to a site and found out that sunflower seeds have high amounts of iodine. Am I still ok for doing the full body scan on May 4th? I had blood work, doctor was very concern because I was…
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Thyrogen shortage???
I had my TT in August of 2010. My Dr. wanted to administer a thyrogen injection prior to my 1 year blood tests for recurrent cancer (TG tests). He has not been able to get the thyrogen hormone shots. Now the company is saying that it might not be available until end of January or February. My Dr. didn't want to wait any…
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Can some one help me regarding thyrogen shots
Hii everyone. I know there is a shortage of the thyrogen shots but I was wondering if anyone has been able to order this themselves or even have found this drug. If so where? i live in Monroe, Connecticut. The np at my doctors office has mot found it for me and when I tRy to call around to see if I can locate it she gets…
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Synthoid and thyrogen
Hello, First, I appreciate reading everyone's comments. Thanks to you I fought and finally got Thyrogen. I am due to have the RAI on 4/25. There has been debate between the nuclear medicine dept and my endocrinologist as to whether I need to go off the synthoid and cymotel before my thyrogen I njections and RAI. I wanted…
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Vision Problems After RAI Treatment
I had RAI treatment in November after a total thyroidectomy in August for thyroid cancer. I have had vision problems ever since the RAI treatment. Is it related? Has anyone else experienced this? It is terrible -- I saw an optometrist, who said it is an "autoimmune problem" but offered no solutions. If anyone has…
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had RAI pill last week-are you in isolation now? if so lets chat
home in isolation in my living room. was told to use same plate & utensils all week rather than disposables. have 1 trash bag I am keeping for trash that i will then keep till end of month before throwing out. watching LOTS of tv which is kind of fun because i don't usually have time for that. stayed on rai diet for 3 more…
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Anxiety med, post TT?
Hi everyone I had TT in late March 2011, and RAI in late august. My endo keeps my TSH -1 (0,0..) , and I've been too anxious, with palpitations and tired the last few months. It is a long story, but a psychiatrist prescribed my 40mg of paroxetine (Paxil). I don't want to take it, because it is too much and I don't want to…
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how to find the best surgeon and treatment team
I was just diagnosed with thyroid cancer three days ago. I had a complete physical in October of 2011, and all my blood work was good. I had no health problems at all. My doctor said that I didn't have to come back for a year for my next check-up. About a week ago, I noticed a lump in my neck. I went to my PCP who ordered…
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Not only do we battle our cancer but..
Not only do we battle our cancer but we have to battle the companies who sell us the drug to save our live. I am soo angry.. http://www.msnbc.msn.com/id/46814168/ns/health-health_care/
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External Beam Radiation for Aggressive Papillary?
First some background: I'm a 26 year old female Background: Diagnosis of Papillary Thyroid Cancer March 17, 2011 Treatments: Radical Neck Dissection on March 22, 2011. The surgery took 8 hours. They removed my entire thyroid, one of my jugular veins, and 55 lymph nodes ranging from the base of my skull to my breast bone on…
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Childhood Radiation
As an infant I was radiated in 1946 for an enlarged thymus gland in the mistaken belief that this would prevent SIDS. The amount of radiation I absorbed was equal to ten common CT studies today. This treatment was commonly used in major hospitals and even pediatricians’ offices across the country. Thousands of infants and…
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If you are new to thyroid cancer, read this.
I found my nodule around 10/06/11 had first ultrasound 10/17/11 which lead to a fine needle aspiration on 11/11/11 which is the same day my doctor called with the cancer diagnosis. I tried to find the right people to help but no one would answer any questions. I found some real useful websites that I will post later. While…
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Wondering if it's normal to be exhausted after a total thyroidectomy
Hi, I hope someone can shed some light who's at the end of their therapy on my topic and give me a bit of hope. I'm 34, married to a Naval Officer and I have 2 small kids. I found out my nodule was suspicious of papillary carcinoma right after Thanksgiving of last year. Had my first surgery on the 13th of December when the…
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Very concerned
I came to this site in January by way of Kidney Cancer, but due to neck swelling/knot and pain that I have had for a while and ignored, I went last Friday and had and ultrasound of my neck. (my dr insisted) I am supposed to go this friday for the results, but because of the last ultrasound I had showing I had kidney cancer…
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New to the group, new to cancer and new to how confusing this is...
Quick background: I am a 26 y/o male, and I have aggressively pursued treatment of my thyroid and thyroid cancer. Here is my story and then my major question. Nov. of 2011 I went for a check-up because I was having problems focusing, getting out of bed, having energy and motivation through the day and gaining weight. Was…
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change synthroid - not good
New here. I am a 16 year cancer survivor. My medicine has always come from one place and I have always taken it the same, Until. About a year ago I began to feel bad: aching bones, low energy, sinus infection, whole body inflamation. Found a lump, ended up having an hysterectomy - not cancerous. Spring came, I felt a…
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Very Worried.
Hi Everyone, I found out some news today that i'm needing some advice on. I had my TT Jan.10. Found out Papillary Carcinoma Feb. 9th, Found out today that I'm pregnant!? So naturally I am very worried and scared. We've wanted another baby for a long time, but now is not when we were thinking. I'll be calling my doctor…
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lymph node
I had my 6 month post treatment ultrasound and there was a small lymph node ~5mm there. Doc said 'not to worry' so of course, I worried. She said it did not have any characteristics of cancerous lymph nodes, but I'm concerned why it might be slightly larger. Anyone know more about that? I am still paranoid that everything…
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Hürthle cell carcinoma
Hi everyone.. I was just recently diagnosed with Hürthle cell carcinoma. I am now on my second opinion on how it should be treated. I had my right thyroid removed on Aug 30, 2011. And it came back witha positive diagnosis of Hürthle cell carcinoma. The first surgeon said he wanted to take the wait and see approach for…
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Thyroglobulin at 2....do RAI again?
I had my total thyroid taken out and multiple lymph nodes taken out. Both my thryoid and some of the lymphnodes tested positive. Before I took the RAI my thyroglobulin level was at a 22 and my scan showed that I had activity in my neck. After 1 year, my scan came back clear but my Tg level is at a 2. So my question is...do…