The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Hurthle Cell Back Again

AliceP
AliceP CSN Member Posts: 32
in Thyroid Cancer #1
My original diagnosis of hurthle cell carcinoma was in Sept. '06. I had a TT. My TG levels have never gone up. I had 3 tumors in my neck that were removed in 2010. RAI was not affective and I had 6 weeks of EBR. Now I have another recurrance under my clavical/sternum and a 2cm mass in my lungs. I am currently being treated at Mayo clinic in Jacksonville. I had a CT scan today and am waitiing to hear if the surgeon feels he can "get" it. I feel I have a great team of doctors, but would love to hear from someone who has gone through this.

Has anyone had a similar occurance? If so what was your treatment like?
Like Care

Comments

  • csm2007
    csm2007 CSN Member Posts: 25
    #2
    Hurthle Cell
    Hi Alice P,

    I was DX with Hurthle Cell Carcinoma in Dec 2010. Still undergoing treatment myself, I have a question for you if it’s not too much trouble. I and another Hurthle Cell Carcinoma patient here on the boards are from Jacksonville. Did you grow up here? We both see Dr. Sultan at North FL Endocrine. He is interested in tracking Hurthle Cell Carcinoma, and other rare thyroid cancers that seem to be popping up here in this area. I hope you are able to find answers from others that have had reoccurrence after RAI and EBR. I am not quite a year out from surgery. I had two surgeries and 150 mci's of RAI, so far so good. If I can be of any assistance to you please let me know. Best of luck in your ThyCa journey....
    Like Care
  • rebeccamae
    rebeccamae CSN Member Posts: 7
    #3
    Hurthle Cell
    My husband was diagnosed with hurthle cell in 06 also. I would rather correspond by email if you are interested. My email is Rebeccamae_76@yahoo.com
    Like Care

Discussion Boards