The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.
Hurthle Cell Back Again
AliceP
CSN Member Posts: 32
My original diagnosis of hurthle cell carcinoma was in Sept. '06. I had a TT. My TG levels have never gone up. I had 3 tumors in my neck that were removed in 2010. RAI was not affective and I had 6 weeks of EBR. Now I have another recurrance under my clavical/sternum and a 2cm mass in my lungs. I am currently being treated at Mayo clinic in Jacksonville. I had a CT scan today and am waitiing to hear if the surgeon feels he can "get" it. I feel I have a great team of doctors, but would love to hear from someone who has gone through this.
Has anyone had a similar occurance? If so what was your treatment like?
Has anyone had a similar occurance? If so what was your treatment like?
Comments
-
Hurthle Cell
Hi Alice P,
I was DX with Hurthle Cell Carcinoma in Dec 2010. Still undergoing treatment myself, I have a question for you if it’s not too much trouble. I and another Hurthle Cell Carcinoma patient here on the boards are from Jacksonville. Did you grow up here? We both see Dr. Sultan at North FL Endocrine. He is interested in tracking Hurthle Cell Carcinoma, and other rare thyroid cancers that seem to be popping up here in this area. I hope you are able to find answers from others that have had reoccurrence after RAI and EBR. I am not quite a year out from surgery. I had two surgeries and 150 mci's of RAI, so far so good. If I can be of any assistance to you please let me know. Best of luck in your ThyCa journey.... -
Discussion Boards
- All Discussion Boards
- 6 Cancer Survivors Network Information
- 6 Welcome to CSN
- 122.5K Cancer specific
- 2.8K Anal Cancer
- 455 Bladder Cancer
- 311 Bone Cancers
- 1.6K Brain Cancer
- 28.6K Breast Cancer
- 407 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 13K Head and Neck Cancer
- 6.4K Kidney Cancer
- 681 Leukemia
- 802 Liver Cancer
- 4.2K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 242 Multiple Myeloma
- 7.2K Ovarian Cancer
- 69 Pancreatic Cancer
- 493 Peritoneal Cancer
- 5.6K Prostate Cancer
- 1.2K Rare and Other Cancers
- 544 Sarcoma
- 743 Skin Cancer
- 659 Stomach Cancer
- 192 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.9K Uterine/Endometrial Cancer
- 6.4K Lifestyle Discussion Boards