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Did you know you could get the 123 scan but stop and go to surgery ?
I heard that if the diagnostic 123 scan shows quite a few nodes lighting up, you will be asked if want surgery first and the 131 dose won't be given. That was surprising because you'd think that by ultrasound and other studies your docs would know how much tumor is still there. Have any of you been advised after the 123…
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Swollen lymph nodes
I was diagnosed with hurthle cell carcinoma on Sept 7, 2011 and was scheduled to have a complete thyroidectomy Sept 28. Well I had an ultrasound on Sept 20 and it came back with 3 nodes being suspicious/enlarged. So that has delayed my surgery until Oct 5. I am having a biopsy on the 3 nodes today to see if they may be…
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Synthroid side effects
So I'm 24 years old and had a total thyroidectomy almost 2 years ago due to papillary cancer. I go see my endo every three months for blood work and my levels are never right two years later. Right now I'm currently taking 175mcg of synthroid. I've been having really bad headaches, still feel tired all the time, and…
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i was diagnosed with pap thyroid cancer almost 2months ago and am scheduled 2 months from now ... so
from diagnosis to surgery.. is this normal? others i spoke to had theirs out with in a few weeks of the diagnosis. I don't understand why it has to be such a long wait. i was told it's because they think i've had it for some time so they are in no rush to remove it. and since it's papillary they are not concerned.... i am!
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What is MBq and how does it relate to mci/millicuries ?
An article listed 2775-3700 MBq. What does this mean and how does it convert to millicuries ?
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Suppressed TSH and Muscles
Had TT in Sept 2010 along with 3.75 parathyroids removed. Had papillary cancer in both lobes of thyroid, but was not outside them, stage I. Had RAI in October 2010 with no "hot spots" detected on body scan. Was on 125mcg of Synthroid after surgery; last testing of TSH in March was at 0.040. Then Endo changed my Synthroid…
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Thyrogen Shortage
Hello Ladies and Gentlemen, Has anyone heard the latest on the Thyrogen shortage? The last I read, Genzyme was saying they were ready to restart production. But the same story also said Genzyme has said this before and not been able to do so. I think this was a week ago. I was wondering if anyone knew if they had really…
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Radio iodine dose seems way high
My two docs are thinking I should have a whopping 150 to 175 of radio iodine because I had pap cancer in both thyroid lobes and in some lymph nodes nearby which were removed. My neck ultrasound is normal show all nodes under 0.7 cm and my thyroid is gone. Several docs cannot feel any nodes. Okay, so I'm a man and over 55,…
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sick + lymph node swelling
My kids brought home a lovely cold from preschool, and I have had swollen, sore lymph nodes for a long time. It is truly freaking me out, and I feel like the stress makes it worse. I feel like my throat (right under the jaw at top of the neck) is just going to close in on me and breathing can be more labored at times - is…
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Thyroglobulin test level immediately after surgery
Has anyone ever had their thyroglob measured one to seven days after their thyroid has been removed ? If so, what was the level and did it indicate anything good or bad later on ?
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Scared and Confused...metastasized to my lung...
I'm 38 years old and I just found out yesterday that my thyroid cancer metastasized to my lungs...again. Really I don't even know if the RAI treatment helped from the last time (Feb 2010), I'm scared and don't know what to do. My doctor seems as if they are clueless on what to do or what's really going on. I feel that I…
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withdrawal symptoms in preparation for RAI
I am in the preparation stage for RAI at the end of the month. I am now off all thyroid medicine and on a low iodine diet for three days. I feel pretty good and have not had any of the withdrawal symptoms that I read about. I know it sounds funny but I am wondering why. Has everyone that went off the meds had withdrawal? I…
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Allergy medicine + thyroid cancer
I am having severe allergies but I see most of the medicines say not to use them if you have "thyroid disease" - does this apply to those of us with thyroid cancer? Not sure how to work on this, but my post nasal drip has got to GO!
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Oh my ! This instruction sheet on rai makes it sound freaky.
http://www.thyca.org/rai.htm Is it this bad ? Did you get put in the hospital ?
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FNA shows 2 types of cancer
My FNA showed two possible types of cancers Hurthle and Follicular. I have two nodules - On the left side at its largest is 1.8 cm and on the right side at its largest is 5 cm. My antibodies test was negative and my thyroid numbers tested in the normal range. My thyroid is twice the normal size and will be removed 9-28. Do…
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Are treatments worse than the disease ?
Hearing that people could have ptc for five to twenty years before they are diagnosed and treated, one wonders---- has the "TT" and rai and subsequent surgeries and rai's have extended lifespans ? Are the total treatments worse than the disease ?
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Video from Germany on a low iodine diet
http://www.youtube.com/watch?v=LTd5j6rc9nQ&feature=player_embedded
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Have any of you had a TT but left in a few nodes with ptc, then did RAI ?
How important is it to remove all possible lymph nodes on the neck sides if they might have PTC ? Can one get i131 treatment then later remove any lymph nodes ? Or does one not so 131 until all nodes are removed ?
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How many of you have thyrogen side effects ? RAI side effects ? What were they, how bad, and how
Please share.
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Best place for treatment of ptc after a total thyroidectomy
I'm in Marin county California just north of San Francisco. Had a "TT" for pap ca which people abbreviate as ptc. I'm ready for rai. Have any of you gotten a second or third opinion before getting rai ? If so, where is the best place or places in California or the USA ? One doc said that I should consider getting the nodes…
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Tg or anti Tg testing
I need some help understanding the testing for the Tg or anti Tg. My doctors says i should go off my thyroxine before getting tested. Or I could take the thyrogen shots - if available by then. But he also said he could do the blood work while I was on the thyroxine, but it wouldnt be as an accurate picture. He's not doing…
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Is withdrawal from thyroid pills more effective than thyrogen when treating papillary cancer ?
I read on some website that stopping thyroids meds then getting radio-active iodine is better than staying on thyroid pills and getting a thyrogen shot or two. The reasoning was that your own tsh is higher and higher longer when you withdraw. Anyone know if this is true ?
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Bone scans
How many is too many? My mom has bone mets from Thyroid cancer and keeps having to do bone scans every 2-3 months. Is this bad for her health even though she has cancer and is not in the best of health?
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I feel a lump!
I just had my thyroid removed on 7/27 and was administered RAI 50mci on 8/25. I was writing a paper one hour ago when I noticed another lump on the right side of my throat. It feels small almost an inch long and half an inch wide. I am making an appointment to see the doctor but was wondering if anyone felt anything like…
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Lymph nodes
I was diagnosed with papillary carcinoma in July of 2010, had a total thyroidectomy, and just recently found out that there is a reoccurrence of the cancer and will start RAI treatments in October. The question I have for anyone who can answer is: I have noticed in a lot of posts that this cancer has went to lymph nodes,…
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Looking for others that have been diagnosed with two different types of Thyroid Cancer at the same t
I am searching for others that have been diagnosed with two types of Thyroid Cancer at the same time. I have been diagnosed with Hurthle Cell Carcinoma / tumor 4.1 cm 33 grams in one lobe and Papillary Carcinoma / tumor 1.1 cm and 9 grams with vascular and soft tissue invasion in the other. I have had two surgeries now,…
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Totally confused
I had surgery to have my thyroid removed in Feb of this year. They also did a partial dissection of the lymph nodes on the left side of my neck. I just went last week to get an ultrasound done and the right side noe has 2 lymph nodes that one has grown and one has shrunk. I am on Synthroid medication and the doses have…
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new article I came across about when to take your synthroid
http://www.thyroid.org/patients/ct/volume4/issue5/ct_patients_v45_7.html to me this sounds like I might be able to start takeing it at night instead of in the morning... is that what everyone else reads... wouldnt it make it so much easyer to take it at bed time if you dont take other pills then. Craig thats my thoughts…
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Can one private message another member here ?
How does one do it ?
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Thoughts anyone??? New to this discussion board but not CSN
Hi Everyone, I've been on CSN:head/neck cancer for my partner. I was his caregiver for Stage 4 Tonsil Cancer. I'm happy to say his 13mo PET scan on Thurs 14Jul was clean. As if the past year wasn't enough, I noticed that I was feeling a "weird" sensation when I swallowed, ear fullness, occasional sore throat and sometimes…