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Looking for Surgeon
Hello!My name is Elena and I am new to this blog. My 16 year old child was diagnosed with "suspicious" for thyroid cancer. Her doctor recommended surgery. I am looking for recommendations for great surgeons in California. Thank you for your help. In the meantime, she is taking PolyMVA and some vitamins. She is eating a lot…
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Internal scar tissue problems
I had my first operation, to remove the right hand side of my thyroid and a large tumour, in April 2011. A second operation, on the same scar site, to remove the remaining thyroid took place a month later. Following difficulties with my blood results, and being unable to have RAI, a small remnant of thyroid was found and…
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Recurrent thyroid cancer
I had my total thyroidectomy in August 2010 with papilliary cancer. I have had my yearly blood work and ultra sound. This time they told me that they noticed a lumph mode that they had not seen before and the the report said could be malignant or benign and doctor says to wait six months and see if any change as my blood…
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RAI
I had to get a small dose of 2-4 mCi for a scan. I was just wondering if anyone knows what the breakdown of it would be in hours/days. Would it be safe to go for a blood test after only about 36-48 hours? I have been drinking a lot and using the bathroom more then once per hour at times to get it out of my system but I'm…
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New, PTCFV, Question about enlarged lymph nodes
I'm new here, I had papillary TC follicular VariNt in 2010, thyroidectomy in Oct. 10., RAI in Nov. 10. Ever since, I've had bouts of hoarseness, fullness in my throat, as if my food hasnt completely settled into my stomach, or like I have a pill stuck in my throat....much like I had before the TT surgery. I have episodes…
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Ear pain
I have recently been diagnosed with papillary thyroid cancer. I've had an ear ache and swollen face and neck on same side as cancer. The dr. says they are not necessarily related. Anyone else have these symptoms?
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Confused about Tg Antibodies
I had thyroid cancer back in 2009, and all tests done up to this year showed that I had No Antibodies present and that all the thyroid tissue was gone after the radioactive iodine treatment. Suddenly about three months ago I tested positive for Tg antibodies. I thought this was impossible, and I am totally confused how…
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Newcomer with high antibodies
Hi folks... I'm new and trying to sort info while waiting for my specialist appointment. I have been diagnosed so far with 'thyroid disease'. I have high antibodies (value over 1000) and nodules on my thyroid. (hypothyroid) When I pressed the dr. for a more specific diagnosis, he refused and referred me to the specialist…
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Armour Thyroid
Is anyone out there taking Armour Thyroid? I was on 250 mcg's of Levothyroxine and while my TSH on paper was fine at 0.7 I still was having some issues with body aches and tiredness so my doctor thought my body wasn't converting the medicine to T3 so he changed me to 180 mcg's of Armour Thyroid. I've been on it almost 3…
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TSH levels dropping instead of rising...why?
My total thyroidectomy was June 5th. I'm waiting for tsh levels to get high enough for RAI treatment, but instead of the levels elevating, they are dropping. I started out at 8, went up to 10, and now a week later, it's dropped to 7. Why would this happen? This whole cancer ordeal is scary... and now this! Has anyone else…
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Help! Second surgery scheduled for this Thursday and I dont know if I should do it...
Hi all! I need advice. I just had my right lobe taken out but when they tested it when I was in surgery it showed indeterminate but now further testing shows it is cancer (stage 1 and super small) and the surgeon says I should do the second surgery within 10 days of first surgery, that that is the standard protocal. He…
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are these symptoms related to cancer or am I hyper or hypo?
Hi i am new to this site and need some advice please. i was diagnosed with pap carcinoma in 2011 and had mu surgery in may and august 2011. i had my RAI scan in November 2011. i have been doing well every since however when i had my follow up neck scan and thyroglobulin test in May 2012, the radilologist notice i hd a…
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Numb lips, hands and arms
I was just wondering if anyone has any advice. I recently switched medical providers and have been on a new perscription of Levothyroxine, but different manufacturers. I am about 35, 5'2 weigh about 150 lbs, I went on a low calorie diet 950 calories a day, I work out and lift weight 4-5 times a week, and I am a size 6.…
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recurrent thyroid cancer
I have recurrent thyroid cancer and was told I am non-avid which means rai did not work after two attempts. I get ultra-sounds every 6 months and if growths arise a surgeon removes them in a neck dissection. My Tg levels are checked every 6 weeks and my synthroid levels are kept high to supress Tg levels. On December 7 of…
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Need help, low iodine diet
Hi everyone, if you can answer a few questions for me it would be helpful. i started my LID on April 18' have to do it for 2 weeks but unfortunately i have been having sunflower seeds for a snack. Went to a site and found out that sunflower seeds have high amounts of iodine. Am I still ok for doing the full body scan on…
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Another Cancer
Just got a diagnosis of Melanoma Skin Cancer. Very frustrated! Julie-SunnyAZ
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How do bad Endocrinologists get certified/ venting! let it out!!!!!
In my 15 years of dealing with endo's, i have came across only two good ones who listen and know what is wrong and why, then treat it. they both are of course not covered by my cheap insurance. i am stuck with idiots. yes i am cancer free but that does not mean everyday i dont suffer. i have failed classes at school…
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hoshimoto's/ underactive thyroid causing fibermyalgia or chronic fatigue syndrome???
I read this amazing book today about how thyroid problems and hoshimotos causes fibermyalgia and cfs chronic fatigue syndrome. anyone's doctor tell them this or anyone deals with this? I ve had thyroid problems since i was 11 years old. had a thyroidectomy for cancer a year and a half ago. i seen many doctors due to lack…
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treatment after thyroid cancer
i was diagnosed with thyroid cancer on march 8th, had the thyroid removed on the 13th and went to an endocrinologist today. they are still awaiting the pathology (due wednesday) but the treatment plan for this sounds as bad as having cancer. i am being told they put me in hypothyroid state which takes about 6 weeks then…
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Free educational conference from PENN medicine
PENN medicine is conducting a "Focus on Thyroid Cancer" Conference June 8, 2012. You may attend in person or via the WEB. You must register for the conference by June 1 and they are accepting $20 donations but you are not obligated to donate. For more info, go to oncoLink.org/Conference/Thyroid or call 1-800-789-PENN Penn…
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Symptoms
What were your symptoms when you were diagnosed?
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Possible Recurrence
For starters, I'm a new member and this is my first post. Thank you for taking the time to read and respond. HISTORY I was diagnosed as hypothyroid in 2005 at age 23. My doctor immediately noticed a large mass in my neck and an FNA was performed. I was told it showed cancer cells in the right lobe. In December, 2005 I had…
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Thyrogen Shortage
I have done the LID for a week and the hospital just called and cancelled my test next week due to a thyrogen shortage. They don't have any, can't get any and don't know when they will, has anyone else had this happen?
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had thyroid follicular cancer op 11 years ago. now suddenly i have develloped low calcium levels ple
hi-i am in the uk, england quick history, i had a massive goitre 1995-2001, which eventually started twisting my windpipe, so at that point i had emergency surgery aug 2001 to remove goitre- and afterwards the doctors realised it was a follicular carcinoma, but they had only took the (R) thyroid and isthmus out, as they…
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Help
Hello, Just looking for some advise. I have had total thyroid removed due to Hurthle/Follicular cancer in 2007. Followed by I-131. My scan following my tt and radiation showed that I had uptake in my chest area. I have a whole body scan 6 months later and chest x-ray to see if further I-131 treatment was necessary. I was…
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medullary thyroid cancer
I was diagnose with medullary thyroid cancer I was told it's a female problem and a rare deasese is there a male out there with this problem.
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What should I take to the Hospital ? Will laptop, books, cell phone be affected by radiation?
I had Thyroid surgery at the end of January. Thyroid Carcinoma was found in both sides of the thyroid, and after low iodine diet I am scheduled for RAI this Thursday 5th. I have not received any instructions from my doctor or nurse yet, when I got the cancer results in February I was told that I will stay 2 nights at the…
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Just finished RAI
Aloha, I'm new to the forums. Had a TT April 9th, Papillary Thyroid Cancer Stage 3 diagnosis on April 13th. RAI - 209 mCi dose on May 21st. I'm 12 days post RAI now. I'm still feeling not well. I go back to work next week Wednesday and I am kind of nervous about it! I am going back to work 3.5 days per week for the first…
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Where to stay after RAI?
Where did you stay after RAI? I have two small children and can't really go home to them afterward, until I know that I am totally safe. As a psychologist, I don't want to have to push them away for hugs, etc when they come jump on me :( My doc suggested a hotel, but are there precautions for this? I would imagine so, but…
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Possible all clear
Went to the hospital today, to see the oncologist and get the results of my scans taken after my RIA. Apparently the scans showed all the radioactivity was concentrated in my neck, which is good. However, she did say that the take up was the highest she had ever seen, and seems to indicate some residual thyroid tissue…