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Undifferentiated Pleomorphic sarcoma

bjfdubin
bjfdubin CSN Member Posts: 2
in Sarcoma #1
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  • LaineyC
    LaineyC CSN Member Posts: 1
    #2
    Undifferentiated pleomorphic sarcoma

    Has anyone been diagnosed with undifferentiated pleomorphic sarcoma?  

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  • Prg
    Prg CSN Member Posts: 2
    #3
    LaineyC said:

    Undifferentiated pleomorphic sarcoma

    Has anyone been diagnosed with undifferentiated pleomorphic sarcoma?  

    Undifferentiated pleomorphic sarcoma

    i was diagnosed in June 2017 and had surgery in July of the same year.

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  • vic m
    vic m CSN Member Posts: 2
    edited June 2019 #4
    pls

    mine came up overnight the size of a baseball on the back of my left elbow. no pain, swelling or dicoloration. first doctors prelim diagnosis was possible severe ssprain and severe hematoma i was sent for an mri with contrast. a rariologist concured with diagnosis. i was operated on and after 2 hours closed up but the tumor was violated and possible seeding. i was referred to a surgical orthopedic oncologist in jackson ms..prior to 2nd surgery radiation for 5 weeks. the tumor was shrinking but 2 days after the last treatment it fought back and started to grow. i spent over 10 hours in or, apparently my tumor refused to die and got a new blood supply, my artery, a vascular surgeon resectioned it and the tumor was removed "well within the  margins"spirits were very high there was no matistisis yet and a follow up ct and mri were scheduled for 3 months later.june 27 the tests were done and results showed matistisi 5mm upper left lung lobe and 8mm upper right lobe with 9 others that were too small to measure. i have an appointment with an oncologist july 10th to discuss options. i'm 74 in better than good shape ,never taken a drop of medicin, and other than the flu never sick. prognosis does not look good

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  • vic m
    vic m CSN Member Posts: 2
    #5
    does anyone know of new

    does anyone know of new treatment for pls. i was told by an oncologist there are 2 types of chemo 1 will make everyone sick for a year after treatment and only woks 50%of the time the other you dont get as sick but only works 20% of the time

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