-
Clear Cell Sarcoma
My 19 year old brother was diagnosed with clear cell sarcoma earlier this week. I am trying to connect with others who have this same condition.
-
Is Radiation enough for proper treatment?
My dad was diagnosed with Tumor in his Colon in 2018. For which he had surgery and then was advised 12 cycles of chemotherapy which he completed. Then an year later he had this mass growing somewhere near bowel loops again for which he got biospy which came out negative. Then in 2022, he got PET-CT Scan done and found that…
-
Caretaker, struggling and depressed.
All, forgive me if this is not the right way to post in this forum. I found the instructions vague at best, but please point me in the right direction if I'm lost. My wife was diagnosed with synovial sarcoma in her leg about 2 years ago. After the worst 24 months of our lives with aggressive chemotherapy, radiation, and…
-
Ewing Sarcoma support
I just feel like I need some support going through everything that I I'm in the WORST part of my life and I need support
-
Ewing Sarcoma tumor on left kidney
I was diagnosed with your ink sarcoma around two years ago I am 31 now and I had a lot of complications with my surgery that turned into more surgeries and me being transported and waking up days later with not only a bigger cut then was supposed to but also cut up on each leg on each side that were left open for two weeks…
-
Sarcoma associated with trauma or injury to limb?
My 63 year old husband was diagnosed with Myxofibrosarcoma in May. He had very small tumors removed from the calf of his right leg in 2013 and 2016. Both times the pathology diagnosis was benign giant cell tumor. In April this year, a tumor came back at the same site on his calf. His surgeon sent him to a local oncologist,…
-
Mixoid Chondrosarcoma (or neuronal)
Hello. I live in NY. My partner was diagnosed with a high grade sarcoma in his right thigh which was removed 'en mass'. The tumor was about 4cm long within a capsule. He had no symptoms and this tumor was detected because of an MRI due to an auto accident. The tumor was removed by a neurosurgeon. The medical oncologist…
-
Leiomyosarcoma - Seeking Information
Three days ago my husband was diagnosed with Leiomyosarcoma. I'm just now getting over the shock that my 39 year old husband has cancer for the second time (he had childhood cancer when he was 13 years old.) I'm been brought to my knees several times by what I have found on the internet. We have two young children, 2 and…
-
Clear Cell Renal Sarcoma
I just got my pathology report shows Clear Cell Renal Sarcoma. Is there a thing call that.
-
Synovial Sarcoma--Starting Gleevec
My husband was diagnosed with synovial sarcoma in Aug. 2003. He is 37 years old, and the primary tumor was in his thigh, but it had already metastasized to both lungs. He has endured 4 different chemo regimines for the metastases with no success (all the standards . . .adriamycin, ifosfamide, gemzar, etc. too many to…
-
Fibrosarcoma
Is there anyone out there with my cancer...fibrosarcoma? I have never met another person with fibrosarcoma..if you are out there, what is your story, and how are you?
-
To those who have or know alot about neurofibromatosis
Hello , My dad has neurofibromatosis 1 and also has been battling rectal cancer for the last three years since that time I have searched for info on neurofibromatosis and found some but not much . Now my dad has had a neurofibroma in his throat for the last 20 years . It causes no symptoms so it's never really been much of…
-
Sarcoma Cancer
About six Mponths ago my husband had a Sarcoma Cancer in his right thigh. The doctors said chemo and Radation would not help him as much as them going in and taking it out. They did four surgies on him and finally got it they said it had not got to the bone yet real close but not to the bone. They removed the Gricilic…
-
Votrient
My sister has soft tissue sarcoma. She begins 800mg of Votrient this week The cancer invaded her hip and tibea, causing the knuckle of the tibea to break off. A PET showed it also in her liver. Any Votrient experiences?
-
Fibromyxoid Sarcoma
I had a lump they were "watching" for 6 years. I decided to just get it out and it was a fibronyxoid sarcoma under my right arm. I am currently doing radiation and then another surgery is to follow. The margins were not clear and because I was not put under...it was a local....everytime the numbing needle went into the…
-
Lung Sarcoma
I was diagnosed in 11/05 with a primary tumor in my left lung. I am currently undergoing chemo to shrink the tumor for possible surgery. I have been told this is a very rare site for sarcoma and wonder if anyone has had any experience with this? It is rhabdomyosarcoma, sorry if I didn't spell that right, and usually kids…
-
Husband diagnosed w/ Cardiac Angiosarcoma-41 yrs. old-anyone else.?
Hello, We live in Toronto, Canada. My husband just diagnosed and started chemo 2 weeks ago. He has had a hard Time and remained in hospital. Platelets went down to zero. The primary tumor is in the heart but also spread to His should crushing 3 bones. Having a rough time and would like to meet others with similar…
-
Liposarcoma in abdominal area
I would love to chat with someone who grows cancerous fatty tumors that appear around the colon, small intestine and abdominal area. I've had 3 surgeries in 4 years with prognosis that more surgeries will come. No treatment will help only removal whenever they show up large enough. I haven't found anyone out there who has…
-
Anyone else with Dermatofibrosarcoma Protuberans on the neck
Hi Everyone I am newly diagnosed and just had WLE. First of all, it is sad that the doctors misdiagnose this as just cysts. I hear all the frustrations we all have had with this. Secondly, I too have been treated like it is "no big deal". It is a big deal and these are our bodies and our lives. My story is very similar to…
-
soft tissue sarcoma looking for someone to talk to
my cancer has spread to my lungs and i have been battling this for over two years . I have lost my left arm , had multiple surgery and alot of different types of chemo im looking for someone to talk to who has went through or is going through something similar thank for reading this Chris
-
Spindle cell sarcoma
I am posting because I am truly clueless about my diagnosis of Spindle Cell Sarcoma in my leg. Trying hear from anyone that has any experience or knowlege as I am not seeing a lot. Maybe I am not looking in the right places. My prospects feel very grim an not sure whether to fight or enjoy my current days. May be…
-
Pleomorphic Liposarcoma-anyone else??
I am a 36 yr old who was just diagnosed w/ a high grade pleomorphic liposarcoma. It was removed two weeks ago and I had my first oncology appt. I was referred to a specialist in seattle due to how rare of cancer I have. Is there anyone else out there w/ this same type of sarcoma? I have not begun treatment but will start…
-
Undiff pleomorphic sarcoma (armpit)
My husband is 37 and was diagnosed with a high grade undifferentiated pleomorphic sarcoma last month. They say stage 3. He had surgery to remove it and it was 6cm. Docs say we can do chemo but there is no data to support if it works or not. But radiation for sure. We are trying to go for a second opinion to MD Anderson.…
-
Inheritance of Synovial Sarcoma
I want to know if the Synovial Sarcoma or Endometrial Cancer is inherited from one generation to next? I had my Grandmother suffering from Cervical or Endometrial Cancer and my Father suffered Synovial Sarcoma. What is chance for me getting either or both of these diseases?
-
MPNST - Malignant Peripheral Nerve Sheath Tumor
My husband was diagnosed with Maligant Peripheral Nerve Sheath Tumor approx. 3 years ago. The tumor arose from his sciatic nerve. He had surgery in which he was originally told it was a begign nerve sheath tumor and a month after we found out he has high grade MPNST. He has had clean check ups every 3 months for the last…
-
Undifferentiated Pleomorphic sarcoma
-
Myxoid liposarcoma in right thigh
Hello, My husband was diagnosed with myxoid liposarcoma on September 10, 2004. He travels alot, and found a lump on his thigh (size of a small lemon) when he was in indonesia on July 4th. Upon returning, he showed it to me, and I made an appointment the following day for him to see the doctor. The doctor refered him to a…
-
high grade, stage 4 sarcoma
My sister (59 yrs. old) had emergency surgery about 4mos ago for a tumor on her intestines. She had a cholostomy and they thought they got it all. Original dx as GIST. Six weeks ago she had another emergency surgery. They found and took out another tumor around the original site and found another mass on the pelvic floor…
-
Uterine Sarcoma
Back in August of 2018, I was admitted to the hospital for Colitus. During the examination the doctor found a mass in my uterus and recommended I have it looked at by my gynecologist. They did a sonogram and the mass was quite large almost 13 cm. My gynecologist had the mass biopsied and it came back benign so we talked…
-
Retroperitoneal Liposarcoma survivor stories needed to encourage me
Hi. I'm 5 months post surgery after having had a 5lb Liposarcoma removed from my abdomen. I was fortunate that I did not lose any organs during surgery and was deemed to have had a 'surgeons dream' of an operation due to the unusual lack of complexity. No treatment afterwards, follow up surveillance once a year. I should…