Spindle cell sarcoma

Spindley1 Member Posts: 1

I am posting because I am truly clueless about my diagnosis of Spindle Cell Sarcoma in my leg. Trying hear from anyone that has any experience or knowlege as I am not seeing a lot.  Maybe I am not looking in the right places.  My prospects feel very grim an not sure whether to fight or enjoy my current days.  May be overreacting but quality of life is important to me, I think. Newly diagnosed so excuse me, stilll processing .  I'm strong one minute then scared the next.  I hear this is rare but if you are out there I would greatly appreciate input or some common ground.


Spindley 1


  • TLC718
    TLC718 Member Posts: 2
    edited September 2019 #2
    my mom has been battling with

    my mom has been battling with spindle cell sarcoma stage 4 in ribs, spine, hips, femur, adrenal gland and has now spread to lungs, liver and lymph nodes.

    There is a great facebook page called Undifferentiated Pleomorphic and Spindle Cell Sarcomas that might be of help to you.

    All the best on your journey I pray for a treatment that works for you.

    Stay well,