The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Spindle cell sarcoma

Spindley1
Spindley1 CSN Member Posts: 1
in Sarcoma #1

I am posting because I am truly clueless about my diagnosis of Spindle Cell Sarcoma in my leg. Trying hear from anyone that has any experience or knowlege as I am not seeing a lot.  Maybe I am not looking in the right places.  My prospects feel very grim an not sure whether to fight or enjoy my current days.  May be overreacting but quality of life is important to me, I think. Newly diagnosed so excuse me, stilll processing .  I'm strong one minute then scared the next.  I hear this is rare but if you are out there I would greatly appreciate input or some common ground.

Thanks,

Spindley 1

Like Care

Comments

  • TLC718
    TLC718 CSN Member Posts: 2
    edited September 2019 #2
    my mom has been battling with

    my mom has been battling with spindle cell sarcoma stage 4 in ribs, spine, hips, femur, adrenal gland and has now spread to lungs, liver and lymph nodes.

    There is a great facebook page called Undifferentiated Pleomorphic and Spindle Cell Sarcomas that might be of help to you.

    All the best on your journey I pray for a treatment that works for you.

    Stay well,

    TLC

    Like Care

Discussion Boards