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Sarcoma

Unclassified High Grade Left Iliopsoas Sarcoma
I was recently diagnosis with a 10cm High Grade Unclassified Retroperitoneal Sarcoma. The plan is to do 2 rounds of chemo in hopes that it shrinks down in order to remove it. I have read that chemo does not always work and was wondering, if so, how long does it take to know if it does. I read some post stating the others…
Sarcoma Sucks
I have Osteosarcoma. My surgery was in June of last year. Im 24 and love to surf, my doctor told me i wont be able to anymore but i beg to differ. I recently got me a longboard so im gonna try it out this summer. I was wondering if anyone else was having any problems with there leg since surgery. I have bad numbing pains…
Ewing's Sarcoma and radiotherapy
Hello! I'm now in my 8th year of remission after being diagnosed and treated for Ewing's Sarcoma in my right scapula. I had a year of chemotherapy and some radiation therapy instead of surgery. Somewhat recently I've begun having pain in my shoulder area again which the doctors have assured me was scar tissue pain as a…
Need help in Myxoid Liposarcoma
i need help in my topic my father he was diagnosis to have fat tumors but not carcenic cells in the begining then after the surgery has been made to remove this fat tumors then after the surgery they discover that it was myxoid liposarcoma then they suggest that we have to make another surgery to remove the edges remaining…
splenic angiosarcoma
Very rare. I've passed 5 years in remission and am searching for any other survivors of this cancer. Thus far NO RESPONSES come up when I type it in. Any help in finding other splenic angiosarcoma survivors would be greatly appreciated. Thank you.
adult rhabomyosarcoma
my husband was diagnosed with rhabdomyosarcoma , stage 4, first in the testicle, then it spread to the bones, ribs, lymph, and stomach. After numerous surgeries and years of chemo & radiotherapy , we are happy to say he is now 13 years cancer free. We had many prayers and I believe this is a miracle. So have faith and God…
Proton Beam Therapy-Insurance denying coverage
I was recently diagnosed with Leiomyosarcoma and the only effective lifesaving treatment for my unique case is Proton Beam Therapy. My tumor was attached to the back of my esophagus. Conventional radiation treatment would subject my heart and lungs to a dangerous amount of radiation. We are battling Horizon Blue Cross/Blue…
Rhabdomyosarcoma - Adult
My father was diagnosed with Rhabdomyosarcoma in February 2009 (52 years old). He had a tumor the size of a softball in his upper thigh. A week following his diagnosis, he was started on chemo treatments. The current plan is to continue chemo thru February or March of 2010 (full year). We were told that his particular…
Dermatofibrosarcoma Protuberans ( DFSP ) on Face
I apologize in advance if there is anger in this message, however I am so frustrated. Around 2003 I had MOH's surgery on my right leg, to remove DFSP. Although the tumor wasn't excessively large, the tentacle like projections of the DFSP extended far beyond the actual lump. Since my initial surgery, I moved away from my…
spindel cell sarcoma NOS
I am a 52 year old gal who just joined this group a moment ago...a spindle cell sarcoma (NOS, not otherwise specified)and have been on this trek almost 3 years. The progression of my disease was one tumor removed from the posterior neck...head and neck radiation (IMRT)...one rt.lung surgery for 2 lung mets...then two more…
high grade spindell sarcoma
I had a 5.5 cc tumor removed from my face. I had the left side of my face opened up and my pallete taken out feb. 10th 2012 just finished 7 weeks of radiation ---I have to wait at least 6 weeks before all the scans are taken again to see if this has even worked,,this is a very rare form of this type of cancer just would…
Sarcoma under shoulder muscle?
My brother was recently diagnosed with Sarcoma. He lives in another state so we don't talk much and see each other rarely. He hasn't told me what type of sarcoma it is. All I know is that he had a tennis ball sized tumor under a muscle around his shoulder area. He went to the doctor because of extreme chronic pain in his…
ALVEOLAR RABDOMYOSARCOMA
HI I AM A MOTHER OF A 4 AND HALF LITTLE BOY NAMED DANY , HE WAS DIAGNOSE WHEN HE WAS ONE YEAR, DID SURGERY , RADIATION AND CHEMOTHERAPY, AFTER 2 YEAR CANCER HAD COME BACK,IN THE SAME PLACE (NOSE) I AM VERY SAD, AND DONT KNOW IF SOMEONE HAS PASS THE SAME THING OR CAN GIVE ANY HOPE BRENDA
19 yr survivor and NEED ADVICE! please
I was diagnosed with rhabdomyosarcoma before my 3rd birthday and spent about 2 years in the hospital undergoing chemo and radiation to my head and neck area. The tumor was inside my nasal cavity bulging the soft pallet of my mouth and was centimeters away from my brain. Due to wear the tumor was located they blasted my jaw…
Leiomyosarcoma
How do I deal with such an unknown. I cannot find another person with this diease. The recurrance within a year is very scary. Who out there know anything of how to deal with such a rare cancer.
Pleomorphic Sarcoma of the right knee??
I was diagnosed in 2010 with Pleomorphic Undifferentiated Sarcoma of the right knee. I was told this was very unusual and rare by my oncolgist. I had 2 surgeries and 6 weeks of radiation and can happily say I have been cancer free for 13 months!I was just curious if anyone else has had this?
Hemipelvectomy query
I am a 39 year doctor living in the UK with my wife and two kids aged 4 and 7. I have had a pelvic recurrence of rectal cancer that I originally had resected in 2004. The MDT have ruled out the usual surgery of pelvic clearance as being unlikely to be curative and are considering whether to offer an external hemipelvectomy…
How to cope with it
Hi everyone that will view this I am not a cancer patient nor do I have cancer I hope not anyway the reason I joined this site is because I have my mother who has spindle cell sarcoma and it went to her stomach her tumor was 20lbs. and made her look 9 months pregnant and my mother is about to turn 59 years old on the 23th…
Sarcoma cancer took the life of my SIL
Not even sure what kind of sarcoma cancer that it was. She was very private with her cancer and made sure not to dwell on it. I do know from her daughter that it was a very agressive and rare type. Her cancer started in the back of her leg as a small lump. From Sept. 2010 to mid Dec. it had grown the size of a basketball.…
Spindle Cell Sarcoma
I wish it was something other than a cancer I had to talk about. My son 27, was complaining of "pain" in his shoulder and back about August 2011. For a young man, who works hard, I suggested to get a massage to work out the pain. It then became numbing and tingling, no strength in his hand. Saw him in September, and he…
Endometrial Stromal Sarcoma
I had ESS almost 4 years ago and clean since. Looking for similar stories and experience with a reoccurrence. Thanks
What should I expect on first surgical onc consult?
Hi, I'm 29 and noticed a 1cm mass in my left thigh two months ago. Initially my doctor thought it was probably just a hematoma and I should wait it out. I had an ultrasound the showed a homogenous hypoechoic solid mass with peripheral vascularity and was referred to a surgical oncologist. I guess the vascularity and US…
malignant fibrous histiocytoma
malignant fibrous histiocytoma I have malignant fibrous histiocytoma MFH. Does anyone else have that type of Sarcoma. I was diagnosed about 7 months ago. Had 2 surgeries and 30 radiation treatments. Now I go every 3 months for an MRI and CAT scan at Seattle Cancer Care Alliance. Occurence was the upper right thigh. I have…
Alveolar rhabdomyosarcoma
Hi All, I am 30 years old, Male, In January 2012, I got to know that I have "Alveolar rhabdomyosarcoma" from the reports PET and MRI scans, doctors confirmed that it is only in Sinus Area if any of you know best treatment place in Arizona area, USA, can you please let me know you can call me or text me 314-402-5467 or…
Very rare, Transformation into Sarcoma
Hello All, My husband was originally diagnosed with Testicular Cancer, however three tumours contained Teratoma in his retroperitoneal area transformed into Fibro Sarcoma. It was complete dissected in Aug 2011 and since then thankfully all clear for 6months. This transformation is very rare to happen and so we have been…
proton therapy for synovial sarcoma
Does anyone have experience with proton therapy for synovial sarcoma? I have synovial sarcoma primary to my lung. I am about to finish 8 rounds of chemo ( adriamycin and ifex) and I am going to MD Anderson in Houston to have proton beam therapy on what is left of the tumor. It is just one more way to make sure I kill the…
Skull-based primary low grade sarcoma
My 45 year old husband was recently diagnosed with a large skull-based brain tumor that went from his ear drum to behind his nasal cavity down to his jaw bone. He had dizzy spells, lost half of his hearing in one ear and had numbness on this face. The first biopsy that was done on the section protruding from his ear drum…
Sarcoma cancer husband died of so now I do I live without him
Sarcoma between the colon and prostate my husband had. So now what he died I have two kids and he is gone. How do I go on with my life.
Spindle Cell Sarcoma 80 yo male
My father is 79 years old and 2 years ago after a prostectomy December 2009, spindle cell sarcoma was found in the prostate. After several CT scans and 3 opinions, the physicians all decided he needed to have a cystectomy/prostectomy. Perform a radical prostectomy with the removal of his perfectly good bladder and wear a…
Just Got the News - Leiomyosacroma
I'm a healthy 48 year old woman who went for a routine hysterectomy (needed beacuse of fibriods and heavy bleeding) and came out with a live changing diaginosis of Leoimyosarcoma. The mass was removed during surgery, however, the GYN thought it was fine. The mass was 16cm in size and the pathology report said is was low…

Sarcoma

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