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Prostate Cancer

The value of second opinions
When I was diagnosed last fall, all my test results, biopsy, Gleason, MRI and Oncotype testing pointed to Active Surveillance as the best mode of treatment. The original biopsy had one positive core with a Gleason of 3+3. The the pathology report on my second confirmatory biopsy came back with two cores, 3 & 7% showing a…
Post External Beam Radiation Urinary Stricture Questions
Folks: I just completed external beam radiation (using Varian Truebeam IMRT) on Wednesday, April 18, 2018). Total number of EB sessions was 43 over 8 weeks. Being a long-time active exerciser (used to commute by bicycle 30 miles per day before retirement, but continuing bicycling now in retirement), I never had any…
Health of the Prostate Gland after biopsy
Hey guys, I was wondering if any of you knowledgeable folks can provide me with some info on the after care of the prostate gland once a biopsy has been done. How long does the gland take to heal fully? Is there anything one can take (food, supplements, exercise?) to help promote the healing of the gland? How long does the…
Underwear for Incontinence
Well, I have now tried Depends and Tena. In my opinion, both capture and contain the urine just fine as long as you do not move a lot at night. In this case, Tena is better. Tena is bulkier than the Depends. The Depends did not give my testicles a safe place to land. Actually, hurt in some cases. Tena is better. So far, I…
Incurable prostate cancer ..it spread to hip
My husband had his prostate removed. Few months later it spread to his hip. Had radiation and hormone therapy. He is incurable but treatable. PSA has been undetectable for almost a year. My question is, if the PSA is so low , why does he have leg pain 24/7 and needs pain meds everyday. His doctor says it is from the cancer…
radical prostatectomy and 'penile shrinkage'
Hi everyone. I am wondering how bad the shrinkage is with radical prostatectomy. When they take out the prostate, they also take the urethra. Prostates are typically an inch or more in length (and thus so is the urethra they take out). They do lower the bladder down when they attach the bladder neck to the urethral…
Radiation Proctitis Argon Plasma Coagulation treatment
I had radiotion treatments that ended in may of 2017, Started seeing blood clots in my stool. Turned out to be Radiation Proctitis..During Sigmoid oscopy they were able to see the bleading and there was a lot of damage and the Dr he basically lasered the whole area. I saw the photos... Has any one had any side effect from…
Fiducial markers
Hello all. I last posted on March 15, 2018. I received some excellent advice from several members. After much research and discussion with friends, my oncologists and urologist I have opted for Hormone and radiation therapies. I received my first 4 month Lupron injection yesterday and am scheduled for a radiation class…
Sudden PSA jump from .04 to .10, 5 years after Radical Prostatectomy
Hi, My dad had a radical prostatectomy 5 years ago. His Gleason score was 3+4. His PSA was zero a while after the surgery, eventually it crept up to .04 and has stayed there for the past year or so. He had a PSA test at the end of Januray and it was still .04. Just the other day he had it tested again as part of his…
4 Weeks Ago Today
4 weeks ago today I had my RP; Bladder Neck Reconstruction; Bliateral Pelvic Lymph Node Dissection (8). I am still a little sore. I am still incontinent. The good news is that this morning when I checked my pad there was no urine in it. So pretty much dry from 9:00 PM last nght to around 6:00 AM this morning. Hopefully the…
Question about Father's Biopsy Report
Hello Again, If you don't mind, I am starting a new thread to ask some questions about my father's prostate biopsy report. Some background (as described in the old thread : https://csn.cancer.org/node/315446) 1) Father is 81 years old, lives alone in India, was diagnosed with Recurent Urehtral Stricture in 2001 and has…
Movember 2017
After my prostatectomy in Oct 2017, I wrote the following email to my adult male friends over the age of 40. I hesitated to post it online as it's a bit graphic. But I've now shared it with over 100 people through email and figure the cat is out of the bag. So, I'm posting it here for others - on the nameless/faceless…
Update 3wks 2 days after RP
Surgery: 03/20/2018; RP; bilateral pelvic lymph node dissection (8); bladder neck reconstruction. Pathology: All avenues for spread of the cancer showed benign. Exercise: Walked 20 miles in steps last week; kegel 4 times a day 10 to a set. Status: Still incontinent, but yesterday when I got up there was only urine about…
Prostate cancer diagnosis
Newly diagnosed prostate cancer. 54yr old healthy male 3+4 and 13.5 PSA. Prefer radiation due to side effects of surgery .Thoughts
Good news about HIFU for prostate Ca
https://www.medscape.com/viewarticle/894885 CIGNA started covering HIFU for PCa treatment. MK
enlarged bladder
I had a prostatectomy and diverticulotomy one year ago, and still am experiencing incontinence issues. I mentioned to my urologist that I can go hours without feeling the sensation that I need to pee. When the urge does present itself, it is sudden and I can have a complete flooding. Also, I can sometimes void and not know…
Prostatectomy: To Gut or Not to Gut?
Should you have a robotic radical prostatectomy? This question weighed heavily on my mind, but in the end the opted for a different treatment. You can read it about in my Cancer Survivor Network blog. Cheers and prayers for your best possible outcome. Doug
Side effects of modern PCa treatments compared
http://urologytimes.modernmedicine.com/urology-times/news/side-effects-modern-pca-treatments-compared?utm_source=PFOC+April+2018+Programs+bulletin&utm_campaign=April+2018+bulletin+&utm_medium=email Side effects of modern PCa treatments compared Newer, older treatments show little difference in functional outcomes August…
Question about AMACR Staining Test
Hello, If a prostate biopsy was negative in the pathology, had a positive staining for p 63 (Immunoreactive, score 4+ in all myoepithelial cells present in all glands), is an AMACR staining test required to rule out prostate cancer? Thank you, Zent
Post surgery persistent psa
Prostate cancer diagnosed last late August, Cancer staged as T1cN0MO, 1 out of 12 biopsies sample, lesion about 0.8 mm butting Capsule boundary. Gleason score at 8; PSA 5.2 All bone scan negative. Surgery in early Jan shows 10% Tumor; Extraprostatic Extension but negative in Margin and Negative in both Lymph nodes and…
Preop RO meeting
Had a great preop meeting with RO. I will be doing two fractions of HDR-BT, 13.5 gy, two weeks apart. The procedure entails basically three steps. Under propofol, they will use a transrectal ultrasound to insert catheters, I think 20, into the prostate. They also will insert a urinary catheter for the procedure. I then…
Must we forsake Coffee & Beer to fight incontinence?
Preparing for surgery in a couple of weeks. I drink 4 cups of coffee at a 75% decaf ratio and stop at noon. Maybe a beer or two in the evening. Have you guys who went through surgery, and had done your Kegel excercises, found that you had to give up these diuretics? Thanks, Nick
MK tell us your story
MK... if you want to help the guys who come to this forum, you should tell the whole story from beginning to end. If you only share snippets in an effort to disparage robotic surgery, no one will know why robotic surgery was wrong in your instance, and how they can avoid those outcomes. You have mentioned your marriage…
One week since Catheter removed RP 3/20/2018
Well, it has been one week since my catheter was removed. I am stiil incontinent. With that said, when I am not incontinent and actually make it to the bathroom, I must say I have not had a stream flow like that since I was much younger ( I could pee across the room if I wanted to). There are times when everything seems…
Another urodynamic test
One year after my prostatectomy/diverticulotomy it was suggested I have another urodynamic study. I mentioned that I can still go long periods of time without the sensation that I need to pee. Before the study, I urinated over 700ml. into their beaker after losing a little previous to that. I wear a diaper which was a…
artificial sphincter
I have read that putting in an artificial sphincter is tougher to do after radiation, is that true? Can it be done? I'm fairly confident that I will not gain continence after radiation. While we are on the subject, can they put in an implant at the same time?
From slow growth to rapid growth
In 2013, had my biopsy results sent to John Hopkins. Results are below: 1) Prostatic Adenocarcinoma, Gleason Score 3+3=6 involving 30% of one core. 2) Prostatic Adenocarcinoma, Gleason Score 3+3=6 involving 90% of one core. 3-6) Benign Prostatic Tissue Dec. 2015 MRI - Prostate 83cc. Seminal vesicles and neurovascular…
Use of Bicalutamide and Finasteride
My Urologist has prescribed these two drugs to reduce the size of my prostate (109ml) and slow down sudden aggressivness of the prostate cancer. My PSA jumped from 7.1 in Aug 2017 to 13.3 today. Have any of you been on these drugs? What was or is your experience. Thank you, Jim
3/20/2018 Surgery Done
I will give you folks a more complete update after I get my catheter out next Thursday. For now I am at peace with myself and in good spirits. The pathology on the prostate, lymph nodes, bladder neck indicated no cancer outside of the prostate. These tests were done prior to actual removal during the surgery. I was there 2…
PSA up while on zytiga
well here i am going on 2 years with stage 4 metistatic prostate cancer, i was told that the average life with what i have is 2 & 1/2 years.. as i am 80 i have already beat the average life xpectancy of the american male, so maybe i can beat the other one too.. i am off zytiga and prednisone as my psa jumped to112..…

Prostate Cancer

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