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Long term self-catheterization is okay
I have noticed some comments on self-catheterization and I wanted to share some information that might ease some fears. Although it is inconvenient and perhaps a little scary long term self-cauterization is okay. I have done it 6 times a day since 2000 when it was discovered that due to some nerve damage (disk disease) I…
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Can someone please help us understand our results
My husband got a call yesterday from a urology PA and she made his 3mpPri sound dire. We are waiting for an appointment with a urologist oncologist but it may take a couple weeks which has us in knots over here:( hopefully some of u who have more knowledge on this can help me better understand the reading of the mri and…
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Will AMS800 AUS Replacement Dictate Bike Seat Choice?
After 5+ years my AMS800 is no longer working well. I'm scheduled to have all three parts replaced soon. Until they unzip me to look at the existing parts, the reason for failure will not be known. Furthermore, my Uro states it may be necessary to replace with a double cuff. I have speculated that bike riding over 6k miles…
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psa 7 6 weeks after robotic prostatectomy
Just wondering if anyone has had similar results and what your opinion is. age 50 11/17 routine PSA 21.3 12/17 biopsy 15 of 19 core positive and gleason 3+4 3/21/18 robotic prostatectomy pathology report: Adenocarcinoma, Grade gourp 5, Gleason 4+5 involving both lobes and associated with extraprostatic seminal vesicle…
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active surveillance
Diagnosed in October 2017, Gleason 6 Have had pathology slides read again at Vanderbilt for second opinion and was told they were consistent with original . Oncotype dx was 23 , psa 2 years ago 2.57 one year ago 2.97 then last week was 4.7. Have MRI scheduled May 11, First Biospy was left mid 2 of 2 cores measuring 5 mm…
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3 years ago today....
My "facebook" memory today had a quote from 3 years ago - the day we got the results from my husband's first MRI guided prostate biopsy: (We are faithful followers so I hope this doesn't offend anyone): "Our God is an awesome God. He reins from heaven above with wisdom, power and love. God is so good today and everyday!…
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Spouse Upcoming Robotic Surgery
My husband is having robotic surgery in 4 days and I must admit I am nervous for him. He is in very good spirits and ready to move forward with the process. I would appreciate any suggestions/insight you can share with making his recovery a bit easier. What type of foods did you eat upon returning home?
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Questions
Hello, first post on this site. I am scheduled for scar tissue removal at the end of this month. Has anyone had this procedure, how did it work out for you? Hopefully I have a successful outcome and can go on to have an AUS fitted at last. Incontinence is a huge problem for me. As regards the AUS, can anyone recommend a…
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Hormone therapy
I went to the oncologist today who says to go back to urology and get hormone treatment.Otherwise any raditation treatments would leave me permanently incontinent.I had a Gleason score of 9.Last saw my pas was .8.New here,so don't know what to expect or how soon I will be able to pee on my own.He also showed me where my…
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Pick a treatment or stick with AS
I am looking for some advice. I just received my Prolaris results 3.7 which is consistent (their rating) for intermediate PC. two cores less than 15% 3+4 with high PSA 13.7. (PSA may be high from long term and frequent cathing according to two urologists) Also received a clear Bone Scan and MRI results - (MRI prostate…
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Biopsy Results - Gleason 3+3=6
I just got my biopsy results (below). I talked with my urologist and he had three options; monitor, radiation or surgery. I am 64, live in San Rafael, CA (San Francisco Bay Area) and am a member of Kaiser HMO. The closest radiation treatment center is in Novato, CA. Dr. Joseph Lee of the San Rafael Kaiser office does…
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My recent PSA Test
Would appreciate getting your thoughts. I was diagnosed with Prostate cancer back in 2002 with a Gleason score of 3+3. Had Radical Prostatectomy in 2002. PSA has been zero until last week. Showed 3ng/ml which was a complete shock considering I was cancer free for 15 years. Any idea what is happening? Error in PSA testing?…
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What happened?
What happened to the button to notify administrators about inappropriate comments?
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Post Prostate Surgery Radiation
Sat, 04/28/2018 - 7:50am — Q-Ball I am now 7 weeks post surgery and had a few thoughts I wished to share and ask about. the first is I was in a quandary about male pads and underwear. If it wasn’t for this site I would have stayed in the dark. I wanot to thank everyone for their candor and honesty, the result, boxer/brief…
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5 week Post Op
Well, I have my 5 week post op with my doctor tomorrow. I am 67. Gleason 4+3=7. RP; bladder neck reconstruction; 8 pelvic lymph nodes removed. I know he is going to ask about the incontinence which I still have, but not like it was, getting better. I know he will ask about the ED part. My wife and I checked that out today…
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The value of second opinions
When I was diagnosed last fall, all my test results, biopsy, Gleason, MRI and Oncotype testing pointed to Active Surveillance as the best mode of treatment. The original biopsy had one positive core with a Gleason of 3+3. The the pathology report on my second confirmatory biopsy came back with two cores, 3 & 7% showing a…
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Post External Beam Radiation Urinary Stricture Questions
Folks: I just completed external beam radiation (using Varian Truebeam IMRT) on Wednesday, April 18, 2018). Total number of EB sessions was 43 over 8 weeks. Being a long-time active exerciser (used to commute by bicycle 30 miles per day before retirement, but continuing bicycling now in retirement), I never had any…
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Health of the Prostate Gland after biopsy
Hey guys, I was wondering if any of you knowledgeable folks can provide me with some info on the after care of the prostate gland once a biopsy has been done. How long does the gland take to heal fully? Is there anything one can take (food, supplements, exercise?) to help promote the healing of the gland? How long does the…
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Underwear for Incontinence
Well, I have now tried Depends and Tena. In my opinion, both capture and contain the urine just fine as long as you do not move a lot at night. In this case, Tena is better. Tena is bulkier than the Depends. The Depends did not give my testicles a safe place to land. Actually, hurt in some cases. Tena is better. So far, I…
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Incurable prostate cancer ..it spread to hip
My husband had his prostate removed. Few months later it spread to his hip. Had radiation and hormone therapy. He is incurable but treatable. PSA has been undetectable for almost a year. My question is, if the PSA is so low , why does he have leg pain 24/7 and needs pain meds everyday. His doctor says it is from the cancer…
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radical prostatectomy and 'penile shrinkage'
Hi everyone. I am wondering how bad the shrinkage is with radical prostatectomy. When they take out the prostate, they also take the urethra. Prostates are typically an inch or more in length (and thus so is the urethra they take out). They do lower the bladder down when they attach the bladder neck to the urethral…
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Radiation Proctitis Argon Plasma Coagulation treatment
I had radiotion treatments that ended in may of 2017, Started seeing blood clots in my stool. Turned out to be Radiation Proctitis..During Sigmoid oscopy they were able to see the bleading and there was a lot of damage and the Dr he basically lasered the whole area. I saw the photos... Has any one had any side effect from…
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Fiducial markers
Hello all. I last posted on March 15, 2018. I received some excellent advice from several members. After much research and discussion with friends, my oncologists and urologist I have opted for Hormone and radiation therapies. I received my first 4 month Lupron injection yesterday and am scheduled for a radiation class…
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Sudden PSA jump from .04 to .10, 5 years after Radical Prostatectomy
Hi, My dad had a radical prostatectomy 5 years ago. His Gleason score was 3+4. His PSA was zero a while after the surgery, eventually it crept up to .04 and has stayed there for the past year or so. He had a PSA test at the end of Januray and it was still .04. Just the other day he had it tested again as part of his…
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4 Weeks Ago Today
4 weeks ago today I had my RP; Bladder Neck Reconstruction; Bliateral Pelvic Lymph Node Dissection (8). I am still a little sore. I am still incontinent. The good news is that this morning when I checked my pad there was no urine in it. So pretty much dry from 9:00 PM last nght to around 6:00 AM this morning. Hopefully the…
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Question about Father's Biopsy Report
Hello Again, If you don't mind, I am starting a new thread to ask some questions about my father's prostate biopsy report. Some background (as described in the old thread : https://csn.cancer.org/node/315446) 1) Father is 81 years old, lives alone in India, was diagnosed with Recurent Urehtral Stricture in 2001 and has…
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Movember 2017
After my prostatectomy in Oct 2017, I wrote the following email to my adult male friends over the age of 40. I hesitated to post it online as it's a bit graphic. But I've now shared it with over 100 people through email and figure the cat is out of the bag. So, I'm posting it here for others - on the nameless/faceless…
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Update 3wks 2 days after RP
Surgery: 03/20/2018; RP; bilateral pelvic lymph node dissection (8); bladder neck reconstruction. Pathology: All avenues for spread of the cancer showed benign. Exercise: Walked 20 miles in steps last week; kegel 4 times a day 10 to a set. Status: Still incontinent, but yesterday when I got up there was only urine about…
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Prostate cancer diagnosis
Newly diagnosed prostate cancer. 54yr old healthy male 3+4 and 13.5 PSA. Prefer radiation due to side effects of surgery .Thoughts
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Good news about HIFU for prostate Ca
https://www.medscape.com/viewarticle/894885 CIGNA started covering HIFU for PCa treatment. MK