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Long term side affects of EBRT
well thought I was heading for mono treatment ..until 3 weeks ago...now it’s it’s either surgury which they feel very confident it will be successful..or it’s radiaTion combo ..1 hi dose internal and 25 low dose external.havent had the chance to talk to radiologist yet hsve app on 23rd..anyone know where I can find out…
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5+4=9
My post-op pathology indicated 5+4 Gleason score. (Surgery on 2/12/2018) I have stage T3b and positive magins. I also have Perineural Invasion. My pre-op PSA was 8.0 and after RP is 0.1. I've been reading a lot online and most info seems outdated. However 9 + T3b + PM + Perinueral Invasion seems to equal that I am at very…
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Guards in underwear
Well, I actually tried just a guard in a pair of under armour boxer/jockey underwear. Then I went ouside and staretd getting my camper ready for the beach (clean the awning; clean windows, clean grill). I had no leakage onto my underwear or shorts. I did have leakage into the guard, but it was contained (no pun intended…
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prostrate containment
started a small thread about containment...been seeing surgeons and radiologist,,,have had alot of opinions..2 out of 3 very qualified surgeon tell me i shouldnt have the prosatrate removed..looking at brachytherapy as well as cyberknife....my question is how can one tell if the cancer is really all contained...i know that…
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Post surgery PSA: 0.1 or <0.1 the target?
My post surgery PSA was 0.1. My doctor, who wants me to have follow up radiation, says the magic number is <0.1, that 0.1 says there is something there to measure. I've read other places that >0.1 says there is possibly something there. I'm having another PSA soon but wonder if 0.1 is something to worry about. Because I…
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PSA
Hi everyone, my man is a 3 years Prostate cancer survivor in good health, 64 years old And a wonderful person. Today his GP called him to tell him that his PSA when from 0.01 to 4.0 in 6 months He had his annual physical at the beginning of april and he just got notify of the results today. I’m feeling very upset with him…
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PSA rising 6.2 points in one month
Hey folks I'm new to the forum, I'm 65 diagnosed with Prostate cancer 3 years ago, Gleason score of 8, I've had 43 IMRT treatments, PSA decreased to 0.18, at end of treatment, then began to rise, 3 month intervals 1.6, 2.4, 8.80 and now in one month has gone from 8.80 to 15.0 I've just had a second bone scan and MRI both…
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just saw on TV - new guide lines for prostate cancer screening
seemed to me that PSA should not be chec ked before 55 or after 70 ;; that is what i heard on NBC news.. Seems to me that is what doomed me to stage 4 metastatiic prostate cancer.. i would get medicare and insurance in Kentucky then when i went to Florida for the winter my insurance and medicare didn't work well.. Sp, i…
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How does your treatment change if you find out you have mets
This you may find as a odd question but this is what my Ortho Oncologist asked me. About a year ago after complaining about hip pain After prostate radiation I was refered to a Orthopedic. They he did xrays and said I had atheritis in my hip and I should have it replaced. But said that he wanted me to have a bone scan I…
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non-toxic therapies to consider adding to standard of care
Provided below are some video links below to a presentation by a Stanford trained oncologist and two researcher who have developed overlapping non-toxic therapies that appear promissing. There have been limited clinical testing and a few small trials which indicate that low carbohydrate diets, restricted ketogetic diets in…
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T3 MRI ACTIVE SURVEILLANCE
Just got my MRI results back and this is what was found. 1Moderate BPH and gland enlargement. 2. A couple of small lesions within the left transition zone and left posterior peripheral zone in the mid gland that shows low t2 signal and only subtly restricted diffusion. These are marked in DynaCAD and may correspond to the…
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The prostatic urethra
Will someone please educate me on the prostatic urethra and TURP? This is a membrane that passes from the bladder neck through the prostate, where the ejaculatory ducts and prostatic ducts empty into the membrane, the membrane then joins the urethral membrane at the base of the prostate. But what happens in TURP?... I can…
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Crispr
Did anyone see 60 minutes last night? Anyone on Crispr trials? Looks promising.
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Is it just me?
Going on 8 months since robotic prostatectomy and all is as expected. It hasn't been a picnic and there are still incontinence issues but PSA is still less than .01. The incontinece is improving. Faster at first,but then I never even see the improvement except in retrospect. Three to six weeks will go by and I realize that…
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Prostate cancer Please help
Hello, My dad has been diagnosed with stage one prostate cancer. He has a Gleason score of 7. We are looking at all our options and doing our research. One of our options is MRI Guided Focal Laser Ablation. Has anyone here have that done? If so, could you please tell me your experiences. Dates are important. How long ago…
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Long term self-catheterization is okay
I have noticed some comments on self-catheterization and I wanted to share some information that might ease some fears. Although it is inconvenient and perhaps a little scary long term self-cauterization is okay. I have done it 6 times a day since 2000 when it was discovered that due to some nerve damage (disk disease) I…
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Can someone please help us understand our results
My husband got a call yesterday from a urology PA and she made his 3mpPri sound dire. We are waiting for an appointment with a urologist oncologist but it may take a couple weeks which has us in knots over here:( hopefully some of u who have more knowledge on this can help me better understand the reading of the mri and…
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Will AMS800 AUS Replacement Dictate Bike Seat Choice?
After 5+ years my AMS800 is no longer working well. I'm scheduled to have all three parts replaced soon. Until they unzip me to look at the existing parts, the reason for failure will not be known. Furthermore, my Uro states it may be necessary to replace with a double cuff. I have speculated that bike riding over 6k miles…
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psa 7 6 weeks after robotic prostatectomy
Just wondering if anyone has had similar results and what your opinion is. age 50 11/17 routine PSA 21.3 12/17 biopsy 15 of 19 core positive and gleason 3+4 3/21/18 robotic prostatectomy pathology report: Adenocarcinoma, Grade gourp 5, Gleason 4+5 involving both lobes and associated with extraprostatic seminal vesicle…
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active surveillance
Diagnosed in October 2017, Gleason 6 Have had pathology slides read again at Vanderbilt for second opinion and was told they were consistent with original . Oncotype dx was 23 , psa 2 years ago 2.57 one year ago 2.97 then last week was 4.7. Have MRI scheduled May 11, First Biospy was left mid 2 of 2 cores measuring 5 mm…
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3 years ago today....
My "facebook" memory today had a quote from 3 years ago - the day we got the results from my husband's first MRI guided prostate biopsy: (We are faithful followers so I hope this doesn't offend anyone): "Our God is an awesome God. He reins from heaven above with wisdom, power and love. God is so good today and everyday!…
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Spouse Upcoming Robotic Surgery
My husband is having robotic surgery in 4 days and I must admit I am nervous for him. He is in very good spirits and ready to move forward with the process. I would appreciate any suggestions/insight you can share with making his recovery a bit easier. What type of foods did you eat upon returning home?
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Questions
Hello, first post on this site. I am scheduled for scar tissue removal at the end of this month. Has anyone had this procedure, how did it work out for you? Hopefully I have a successful outcome and can go on to have an AUS fitted at last. Incontinence is a huge problem for me. As regards the AUS, can anyone recommend a…
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Hormone therapy
I went to the oncologist today who says to go back to urology and get hormone treatment.Otherwise any raditation treatments would leave me permanently incontinent.I had a Gleason score of 9.Last saw my pas was .8.New here,so don't know what to expect or how soon I will be able to pee on my own.He also showed me where my…
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Pick a treatment or stick with AS
I am looking for some advice. I just received my Prolaris results 3.7 which is consistent (their rating) for intermediate PC. two cores less than 15% 3+4 with high PSA 13.7. (PSA may be high from long term and frequent cathing according to two urologists) Also received a clear Bone Scan and MRI results - (MRI prostate…
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Biopsy Results - Gleason 3+3=6
I just got my biopsy results (below). I talked with my urologist and he had three options; monitor, radiation or surgery. I am 64, live in San Rafael, CA (San Francisco Bay Area) and am a member of Kaiser HMO. The closest radiation treatment center is in Novato, CA. Dr. Joseph Lee of the San Rafael Kaiser office does…
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My recent PSA Test
Would appreciate getting your thoughts. I was diagnosed with Prostate cancer back in 2002 with a Gleason score of 3+3. Had Radical Prostatectomy in 2002. PSA has been zero until last week. Showed 3ng/ml which was a complete shock considering I was cancer free for 15 years. Any idea what is happening? Error in PSA testing?…
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What happened?
What happened to the button to notify administrators about inappropriate comments?
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Post Prostate Surgery Radiation
Sat, 04/28/2018 - 7:50am — Q-Ball I am now 7 weeks post surgery and had a few thoughts I wished to share and ask about. the first is I was in a quandary about male pads and underwear. If it wasn’t for this site I would have stayed in the dark. I wanot to thank everyone for their candor and honesty, the result, boxer/brief…
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5 week Post Op
Well, I have my 5 week post op with my doctor tomorrow. I am 67. Gleason 4+3=7. RP; bladder neck reconstruction; 8 pelvic lymph nodes removed. I know he is going to ask about the incontinence which I still have, but not like it was, getting better. I know he will ask about the ED part. My wife and I checked that out today…