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Should I be concerned....
RRP in August 2005 by Alan Partin at Johns Hopkins. 4+3 Gleason, T2b with no spread. PSA undetectable for 13 years since RRP, using same lab each time. However, in Fen 2018, PSA registered <.04 so local urologist in SC wanted to retake again in 6 months. Test was earlier this week and now it registers <.05. I realize <.05…
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What next?????
Would like to hear comments, suggestions, advices, could do, should do things? I was not fortunate enough in my recovery after RP. At almost 21 months post RP, I still did not experience any sign of spontaneous response from my penis. Still using Cialis, Viagra, VED and BIMIX, normally not at the same time. BIMIX is also…
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Radiation Therapy and Travel
Hi: My dad is undergoing 33 sessions of Radiation Therapy (he is on his 25th session as of today) in India. So far he says he doesn't have any side effects during RT. The thing is, my wife and I are expecting our second kid anytime next month and my parents want to come here (US) during that time. We would love to have…
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Hello just diagnosed and very frightened
I was just diagnosed Thursday by my urologist . PSA 7.8 ..had 5.5 for many years with 3 biopsy’s and were all good. This last one not sooo good.2 out of 12 showed some cancer .thsts all I know until I see the specialist next Thursday.thoughmy urologist did give me encouragement saying we caught it very early whatever that…
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blood in urine
Operation last year and finished radiation in December of last year. Incontinent. Had bright blood in urine 3 weeks ago, had CT w/ contrast. Blood gone away, but I had some blood in urine yesterday. Is this normal for this to happen after radiation? I'm wary of having a catheter put in again, but guess it will have to…
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internal radiation burns
Hi, I've been searching all day for some information on the radiation burns that have occured in my father one year after having the seed implants. He started having alot of pressure and pain associatied with urinating and having a bowel movement about6 months ago. The doctors were treating him for hemoroids, until they…
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Hope??
My husband is diagnosed with prostate cancer. His PSA was 87 and size of prostate was 130. His bone scan was clear and at present no organ. Doctor thinks it is in lymph nodes because of size and PSA.frozen dissection today. Won't do surgery if any in lymph node. Said he would have to throw everything at it and it is a huge…
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IMRT as primary treatment
Hi folks, just joined the forum. Curious if anyone else chose IMRT as the primary treatment for their PC. I was diagnoised in April 2010 with PC. My PSA had risen from 3.2 to 4.0 in one year. Two biopsys later, 1 of 12 cores positive for PC. Gleasson 3+3=6 confined to prostate. Started IMRT treatments in August 2010…
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Update: Lupron with Zytiga?
My dad is metastatic with bone lesions, diagnosed last fall. He has done 10 rounds of radiation on lumbar spine after a fracture, alongside Lupron + Casodex. He completed 15 rounds of IMRT last month that have left him feeling (side effects of course but) almost pain-free! He did develop a DVT + pulmonary embolism that…
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Old-timer seeking advice
Please forgive me for posting this item about melanoma on this discussin board. I have also posted it on the skin cancer board. I think my friends on this board may be interested in seeing it. My wife is in reasonably good health, at age 93. Biopsy of a spot on her arm says she has melanoma. We received this report by…
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prolactin testosterone and B6
Just curious... Asking those who have a lot of experience with ADT... As I keep looking into the effects of prolactin on testosterone production, I came across this... What can you do to lower your prolactin levels? 1.Supplement with vitamin B6 Studies have found that by supplementing a single 300mg dose of pyridoxine –…
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Facing possible SRT, PSA .068 3 1/2 years post RALP
I had Robotic Prostatectomy in Jan 2015. PSA at the time was 4.3. Surgical pathology upgraded me from G6 to G7(3+4), EPE, SV, LN (9), all negative. PNI Positive (it was negative on biopsy). Margins were “negative Final margins”, meaning my surgeon does frozen section as routine, my frozen section showed positive apical…
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Newly diagnosed prostate cancer
So I was recently diagnosed with prostate cancer and the doctor is being vague regarding what exactly is going. I’m hoping I can get a few questions answered. I fully trust my doctor and he does want to sit down with me in person and explain. This is what is going on so far. I am 47 years old with no family history of…
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AUS800 and scar tissue
Hello, posted this to wrong site I think, anyway here I go again. So sorry for repeating myself. I have had surgery for scar tissue removal in the urthra / bladder area. Hopefully this procedure will allow me to go ahead with the aus800 fitting in the coming months. I am in Canada so who knows how long that will be. I am…
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gleason 8 and hormone treatment
is there anyone out there with a gleason 8 and who is on hormone...I was cancer free for two years and now it is back, I was wondering how long someone with a high gleason can be on hormones before they quit working, I'm considering intermitten therapy, thanks for any imput
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PSA Rising: NOW What??
I have metastatic castrate-resistant prostate cancer. Brief summary follows, with details on my "About Me" page: Journey started April 2013. Had radical prostatectomy in June 2013. At time of surgery, cancer also found in 4 of 12 extracted lymph nodes. But when PSA began rising in fall of 2013, I have followed that surgery…
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New medication, Apalutamide (a handrogen receptor inhibitor)
Is anyone currently on Apalutamide? My doctor wants me to start on this new durg and I'm not sure about it. Brief history: 66 years old, with Gleason Grade 4+5=9. Had Radical Prostatectomy in 2016 and radiation treatments for seven weeks starting 5/17. The cancer is Non-metastatic and am currently on hormone treatments…
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PC spread to para-aortic lymph node-where to go for 2nd opinion-Pa.
My 64 y/o husband was diagnosed with PC in May, 2018. PSA of 9.46. Gleason 7 (4 + 3) per biopsy. CT found it has spread to a lymph node in para-aortic area. Bone scan is negative for bone involvement. We are in the S/E area of Pa. & treating with a local oncologist who has recommended ADT with bicalutamide & Lupron…
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Stem Cell Injections for ED post Robotic Prostactemy
Wanted to know if anyone on this board has or knows someone who has tried stem cell injections for post surgery ED. Results claim improvement from severe to mild ED issues. Thanks.
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Radiation Fatigue
Hello All, It's been a while since writting or read here. I was diagnosed with Stage 4 locally advanced PC last Sept. Went on a trial of Lupron, Zytiga for 6 months then RP. Everything went well. Because of my Lymph node involvement (3 still had cancer) they suggested 8 weeks of radiation followed by 18 weeks of Docetaxal…
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Ode to Prostate Cancer
I found this on a Prostate Cancer website in the UK. It has "British humor" written all over it... . ....Poem by Chris Boothby We've had to learn a whole new lexicon New words and medical babble With such increased vocabulary We should be bloody great at Scrabble! A new website for our ailments To help that constant toilet…
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A Minor Victory
I have made it 48 hours since my second biopsy and do not have a fever. This may sound minor and insignificant but having had Sepsis from my first prostate biopsy I am ecstatic. This second 3T MRI Fusion biopsy was deemed needed enough to risk a second bout of sepsis by my Uro team lead.... Now the wait for results and…
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Circumcision and cancer
I don't know if anybody has been following the outrage on social media over circumcision, but I thought this might add a curious element to the discussion... Circumcision reduces the risk of prostate cancer by up to 60% - but is most effective when done after the age of 35 * Men circumcised as babies have a 14% reduced…
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Recently diagnosed
I was recently diagnosed with PC. Gleason score of 6 (one core positive), PSA 18. Had a bone scan and MRIboth came back excellent. My prostate is enlaged and accordig to the doctor hard in one area and my doctor believes that my prostate sufferes from a cronic infection (the hardness) and that may be contributing…
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IMRT?
My dad’s got a new oncologist who is switching his radiation plan to IMRT for bone metastases. I’ve done some reading and it does seem like the better option— anyone have success stories they’d like to share with me? His cancer is still responding to Lupron/Casodex, and bone scans had shown some improvement about two…
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Surgery to stop Incontinence
I had my prostate removed 2 years ago. I had incontinence right from the beginning. I was leaking, it started to improve, then i did 30 days of radiation, and my incontinence got worse only slightly, then hospital offered me Optional chemo (which i took) 5 treatments every 3 weeks. During this period my leaking got worse…
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68-Ga-psma-pet/CT scan
Wondering if anyone has any info on the availability of this scan. My reachsearch so far says it's only in clinical trials. Thanks in advance guys.
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Moved my PSA Appointment
I had to change my appointment from August 3 to today. The surgeon who took my prostate out, pretty much told me what I already knew. My PSA is undetectable. I will go back to see him in October and have another PSA test. If that one is undetectable, they will enroll me into a Survivorship Program. Also, I got invited to…
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TIP Testosterone inactivating pharmaceuticals Treatment Option
One of my consults will be with the Dr. Turner of the Mark Scholz group in L.A. (The Key to Prostate Cancer, 2018 and The Prostate Snatchers). I am also meeting with Radiation Oncologists at MD Anderson for Proton and UNM Cancer for Photon therapies. I was recommended not to have surgery and RT may also have some extra…
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Eligard treatments
I am just winding up my first four months of an Eligard implant and will get the results of my first post implant PSA test tomorrow. My PSA was over 30, Gleason 9 and a biopsis indicated some spread to the lympth nodes, although the CT scan did not detect the spread. So far, I have not seen any references to Eligard…