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Insurance Denial
I was diagnosed with Stage 4 prostate cancer that metatisized to the bones. After 18 treatments of chemo my Doctor wanted a petscsn done but because he just put prostate cancer the insurance company refused to approve it. When we called health-first they stated that if the doctor would have put that it metastisized to the…
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Cyberknife Side Effects
Hello, I had CK for prostate cancer in November 2016. Since receiving the treatment, I have developed severe heartburn, which keeps progressing. The acid is affecting my teeth ( I had to have one pulled), and I am sure that it will only be a matter of time, before there will be more. Additionally, I am losing my ability to…
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Buying PC Awareness Merchandise
Hello, Does any have a recommendation for a legitimate place to purchase PC rubber bracelets to give to family members and supports? I would like for all or most of the proceeds to go to PC research ? Thanks - Burgie
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Xtandi Help for Dad - bad side effects
Hello All, My dad is 75. He has had prostate ca for 14 years, mets in 2013. He had seeds and radiation early on. Receives Lupron every 3 months. He was never a candidate for prostatectomy. He had a partial TURP a few years ago and has had chronic hematuria and incontinence since. I am looking for some advice/encouragement…
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Elevated PSA after two years undecta
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Cyberknife Side Effects
Hello, I had CK for prostate cancer in November 2016. Since receiving the treatment, I have developed severe heartburn, which keeps progressing. The acid is affecting my teeth ( I had to have one pulled), and I am sure that it will only be a matter of time, before there will be more. Additionally, I am losing my ability to…
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IMRT recurrent w psa rising, false negative scans but the MRI
Hey, I am under investigation for radioi recurrent pc after IMRT. The latest MRI results came in and I think I have to do the MRI fusion type biopsy. thanks. -k PSA - 11/16/10 to 09/20/13 8.2 to 0.2 (2012 Focused IMRT 75g) 09/20/13 to 10/05/16 0.2 to 2.8 10/05/16 to 10/27/17 2.8 to 5.7 (Now 66) 65 year old man with is a…
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My first RP anniversary
While my first post RP anniversary is here (November 2,2016) I want to write about my experience and take hindsight to reflect my recover. Just to mention; 51 y/o man very healthy not on any medication, non smoker, non drinker, not overweight, regularly excercising, had some some LUTS with bladder neck obstruction which…
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Very Disappointed
I consulted with a HIFU specialist and because my prostate size is about 2 and a half times the normal size of 40ml (mone is 109ml) I am not a candidate for HIFU. I have now met with three Urologists and they are all concerned that I do something NOW. I have a Left lateral inferior abnormality consistent with tumor,…
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PCa update
Swingshift, thanks for the suggestion to start a new thread. I'll re-post some info from the other thread; Hello all, Psa 6 or 7 months ago was 14. Early this year it was 12. It's nearing 5 Yrs. since a biospy. Dr. suggested a repeat biospy altho he was against it a year ago. I had no trouble the 1st one but I read where…
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Old New Meicine
New Old Medicine My life change 18 months ago, I have been diagnosed with 4 stage prostate cancer. I’m a retired pilot and just in the last 3 years I have witness the pain and struggle of 2 friends and colleagues battling they illness. I didn’t want to submit myself to conventional treatments. I must admit when my wife…
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Treatment options for metastases post Radical Prostatectomy
Hi, I am writing on behalf of my father (Age: 65). My father was diagnosed with prostate cancer in 2015, following which he underwent radical prostatectomy (2015), hormone therapy (2015), and radiation therapy (2016). This year his PSA level started rising and PET CT scan has revealed metastases in right iliac bone. Please…
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Zytiga and prednisone with lupron and xgeva - cost, payment, outcome
Hello all, dx with metastatic stage 4 prostatecancer jan 2017 at age 80... wondering how everyone meets the cost of Zytiga... i have medicare and insurance (aarp - united healthcare).. my copay is $2800 which is being picked up by pan foundation, but that will end in another month.. so i m trying to get coverage from the…
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How do you choose a Da Vinci surgeon?
I was diagnosed last November with prostate cancer and the urologist recommended robotic surgery to remove the prostate. I got a second opinion from another urologist who recommended the same. I'm struggling with the decision. Any help will be appreciated.
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UCSF Urology
I am hoping for a seccond opinion at UCSF. Does anyone out there have exprience with prostate surgery at UCSF? In particular with Dr. Shinohara?
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Age They No Longer Check PSA
My husband has had high PSA levels for close to 10 years. He is turning a young 76 in a couple of months. Today his Primary Care Doctor told him they no longer needed to check his PSA levels at his age. Does that sound correct? I don't like the idea of no longer monitoring it. Thank you.
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Good site compares PC treatments - surprising results
So after a series of PSA tests over the past few months ranging from 10.8 to 11.5 and taking anitbiotics for 6-8 weeks wth not impact on PSA, also a recent DRE with some "firmness" identified on left lobe, off to get an MRI assisted biopsy. O joy !. However my senior ongolosit already suggesting that IF the Gleeson score…
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recent surgery, now likely radiation
Hello, My husband was diagnosed with PC in early November, discovered in a routine check. Two weeks ago he had RP. He's 69 years old. His PSA had risen to 6 pre-surgery and the Gleason was 3+4. After the pathology report came back, we know the lymph nodes are clear, thankfully, but the cancer had grown outside the prostate…
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Me too
I just received the results of my biopsy Monday. My history: 2010 psa 1.70 2014. 3.79 July 2017 5.78 15 days of cipro, retest 4.40 I asked them to do a free psa at the time off the retest It was 8% The urologist /nurse practitioner wanted me to wait until November for another psa, that came in at 6.50 The urologist…
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Recent Diagnosis - Surgery soon
Good afternoon. My title definately fits the mood in our home right now. This has been the most difficult season for us in a while. A little background. My husband is mid 50's. My husband's father had prostate cancer years ago. He's doing great considering the barbaric type of surgery they did 20+ years ago. Because of his…
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Enact clinical trial for prostate cancer
Before I began radiation I was recommended todo the the Enact Clinical trial.. I signed up for it , but backed out due to some of the side effects like seizures even though it was a small posibility.. Is anybody doing the trial.. How are you doing with it?
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dry orgasism after rp
ITS TRUE!! the shocking part is i am getting there with a flacid penis--go figure. 7 weeks post rp--no cancer, 90% continent and able to orgasism without a mess--one lucky guy. have started viagara to help with blood flow but after having only 50% of nreves sparred there is not much taking place down yonder as of yet .By…
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insurance question
just realized something that i didnt think of...does med insurance cover the cost of consultaions...i sure hope so otherwise i will be owong a ton of money..thanks i have 2 insurances a primary and secondary..i would hope Drs and hospitals would let us know in advance if its not covered ..thanks everone
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Treatment of PC with RSO
Is there anyone on this forum currently treating their prostate cancer with RSO? What are your experiences? I'm taking a gram a day. The oil is pure (I made it myself). I have been diagnosed with non-metatastic cancer in 10 of 12 cores, G8 and a PSA of 37. I have been accepted into a clinical trial in which I will get…
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active survellance or robotic
After having second opinion at Vanderbilt Hospitail it confirmed gleason 6 from previous pathology . 2 out of 12 positive, one 5mm and 3.5mm cores, 60% and 35% of core length. Oncotype dx test was 23 very low psa 2.97, considering active survellance, Then psa checked in April and prostate fusion mri within a year . Both…
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33 year old
I am a 33 year old who was in a motorcycle accident a couple of weeks ago. while in the er they found something wrong with my prostate all they would tell me was i had to see a urologist. I finnaly got the radiology report and it said: "small mediastinal and bilateral hilar lymphnodes. residual thymis tissue in the…
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Dry then not dry
It has been 8 months since my combined prostatectomy/diverticulotomy, and I'm still dealing with the unpredictable incontinence. I can go several days without much of an issue, then it flares up again. I'm to the point where I should always wear a diaper just in case. Is that a normal feeling to have? I can deal with it,…
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Low T
I am 14 1/2 months post RP. At my most recent visit to urologist for follow up, I had long conversation with my doc about my feelings which progressively worsened in the past couple of months. He checked my testicles and penis, try to get soft stretch which was disappointing, and asked multiple questions about any new…
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High PSA should I wait Dr want to keep going with Anti-biotics
HI, I have just turned 60, last month had a regular check up/blood test, PSA came back 12.5. Dr put me on a 4 week course of Cypro. Just had another blood test PSA down a bit to 11.8, he wants to keep me on for another month then another PSA test. I am concerned its not an infection and I may be wasting a month, should I…
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Psa of 5 4 k score 20 percent
hello new here psa 5 4 k score 20 percent Doc wants biopsy any thoughts 64 years old